NPR

When Scientists Develop Products From Personal Medical Data, Who Gets To Profit?

Data from patient medical records are being used to develop commercial products. What rights do we have over the use of our personal health information?
Source: Katherine Streeter for NPR

If you go to the hospital for medical treatment and scientists there decide to use your medical information to create a commercial product, are you owed anything as part of the bargain?

That's one of the questions that is emerging as researchers and product developers eagerly delve into digital data such as CT scans and electronic medical records, making artificial-intelligence products that are helping doctors to manage information and even to help them diagnose disease.

This issue cropped up in 2016, when Google DeepMind decided to test an app that measures kidney health by gathering 1.6 million records from patients at the Royal Free Hospital in London. The British authorities found in the United Kingdom and put a stop to

You’re reading a preview, subscribe to read more.

More from NPR

NPR5 min readIndustries
China Makes Cheap Electric Vehicles. Why Can't American Shoppers Buy Them?
American drivers want cheap EVs. Chinese automakers are building them. But you can't buy them in the U.S., thanks to tariffs in the name of U.S. jobs and national security. Two car shoppers weigh in.
NPR5 min read
In 'The Fall Guy,' Stunts Finally Get The Spotlight
For years, Hollywood's behind-the-scenes action heroes have been pushing for an Oscars category to honor their work. Many hope The Fall Guy will make it a reality.
NPR7 min read
Unions Double-down In The Deep South: Can Alabama Pave The Way?
Three high-profile labor disputes have unfolded in central Alabama over the past several years, with Amazon warehouse workers, coal miners and autoworkers all speaking out for change.

Related Books & Audiobooks