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Session 75
Evaluating the Impact of Patient Internet
Access to Medical Records
AUTHORS/PRESENTERS
Chen-Tan Lin, MD
Medical Director of Informatics
University of Colorado Hospital
Denver, Colorado
Email Communication
Electronic mail (e-mail) is an increasingly used communications technology. However, relatively few
clinicians have used e-mail to communicate with patients. In November of 2000, a survey by Medem,
a San Francisco-based e-health company, showed that 10 percent of physicians were e-mailing
patients 1. On the other hand, patients have tremendous interest in e-mail: in August 2000, a survey by
VHA, a nationwide network of community-owned health care organizations, indicated that 35 per-
cent of patients would consider switching to an e-mail accessible clinician 2.
There are several concerns about potential usage of e-mail to communicate medical issues. Many
physicians are concerned that patient e-mail will be an additional workload and liability burden for an
already busy practice. In addition, there is growing concern about the “digital divide” separating
those who have Internet access from those who do not. Mandl showed that e-mail and Internet use
grew from 52 percent to 72 percent from 1998 to 2000 among families of a pediatric practice, but that
Internet access was proportional to income.3
Study Instruments
Two self-administered questionnaires were developed (one for patients and one for clinicians),
reviewed by a professional survey consultant, pilot tested by 20-30 patients and 5-10 physicians, and
further modified for clarity.
Patients were asked whether they had access to e-mail, whether they currently communicated with
one or more of their doctors by e-mail, and if so, how often. They were also asked whether they were
interested in communicating with their doctor by e-mail in the future. Then they were asked questions
about several potential benefits of e-mail communication with their doctor, with response choices
including “yes”, “no” and “not sure.” The potential benefits assessed were: speed, convenience, effi-
ciency, provides printed documentation, eliminates “telephone tag,” saves me money, easier to reach
my doctor, or other comments. They were also asked to respond to questions about the potential risks
of e-mail communication with their doctor on the same rating scale: lack of confidentiality, imper-
sonal, hard to use, lack of access to a computer, lack of timely response, don’t know who is on the
other end, cannot discuss complicated issues, potential for misunderstanding, worry about “bother-
ing” doctor, or other comments.
Physicians were asked the same questions about potential risks and benefits of e-mail, and were also
asked whether they had communicated with colleagues about patients by e-mail, and whether they
were aware of federal patient privacy legislation such as the Health Insurance Portability and
Accountability Act (HIPAA). They also provided demographic information about their sex, year of
medical school graduation, primary or specialty care focus, and what percent of time was spent in
direct patient care.
Results
We received 546 responses (49.6 percent) to two physician mailings, and 409 responses (40.9 per-
cent) to a patient mailing. 97 percent of surveyed physicians have access to e-mail, while 89 percent
of surveyed patients have access. 35 percent of physicians currently communicate with patients via e-
mail, while only 18 percent of patients e-mail their physician. In contrast, 44 percent of all physicians
would be interested in e-mailing patients in the future, while 91 percent of all patients desired e-mail
access to their doctor in the future.
Additional findings include:
• Patients were more likely to view e-mail in a positive light.
• Both physicians and patients felt e-mail eliminated “phone tag,” was faster, more convenient,
more efficient, and allowed printable documentation.
Setting
This study is being conducted in a subspecialty clinic for congestive heart failure (CHF) at University
of Colorado Hospital. This is a referral clinic that offers consultations and enrollment in clinical trials
for patients with moderate to severe congestive heart failure. Clinicians include six attending physi-
cians and a nurse practitioner. Support staff includes dedicated nurses, medical assistants, and admin-
istrators. Approximately 250-300 patients are seen per month.
This setting was chosen because it provides a patient population with a relatively homogeneous diag-
nosis, making it easier to study the effects of the intervention. Also, because the pathophysiology of
congestive heart failure is complex, with optimal treatment requiring both lifestyle modifications and
the use of multiple medications, interventions that enhance patient self-efficacy and doctor-patient
communication have the potential for great benefit.
Participants
All six attending physicians in the CHF clinic are being interviewed as part of the qualitative study.
Physicians are blinded to which patients are given access to the EMR to prevent any special treat-
ment, conscious or unconscious, for patients with access to the EMR. We are in the process of
enrolling 100 study and 100 control patients from the clinic’s patient population.
Patients
From the pre-intervention qualitative study of control patients, we will describe how patients perceive
the process of providing access to their medical records, including
• Current use of the Internet and e-mail in general
• Current use of the Internet for obtaining medical information
• Concerns about use of the Internet and e-mail for sensitive topics such as financial and medical
information
• Suggestions for elements to include in a valuable patient-accessible EMR
• Perceived need for medical and/or technical advice
From the post-implementation qualitative survey of study patients, we will describe how patients per-
ceived the impact of having access to their medical records, including
• Benefits of reading the medical record
• Negative consequences of reading the medical record
• Ability to understand dictated notes
• System ease of use (e.g. navigating the site, communicating with the clinic)
• Suggestions for further improvement
Cohort study—questionnaires
From the questionnaires used in the Commonwealth cohort study, we will describe the impact of pro-
viding patients access to the EMR on
• Patient self-efficacy
• Functional status
• Adherence
• Knowledge about CHF
• Doctor-patient communication
• Overall patient satisfaction
STUDY OUTCOMES
The grant-funded research study commenced in July 2001. At the 2002 HIMSS conference, presen-
ters will report on initial qualitative data from physicians and patients regarding the potential for ben-
efit and harm from patient Internet access to medical records. Six months of quantitative e-mail,
workflow and survey data on patient outcomes such as satisfaction, self-efficacy, disease comprehen-
sion and resource utilization will also be reported. The study will supply valuable information on the
effect of patient access to the electronic medical record on the patient’s sense of well being, the
patient’s self-efficacy, and the physician-patient relationship. It will provide both qualitative and
quantitative measures of the impact of such a program.
The Commonwealth study, as well as the e-mail studies, will also provide information on how the
medical system is affected by allowing patients to view the electronic medical record and to commu-
nicate with the clinic by e-mail. Research will provide information on whether the clinical practice
will find such a system to be a valuable adjunct to clinical care or an additional burden.
UCH’s research will also form the basis for future studies. The effects of patient access to medical
records can be evaluated in other patient populations, such as patients with diabetes, or more hetero-
geneous patient populations such as those in primary care. A quantitative study of the impact of such
a system on physicians could also be performed. The patients of study physicians would be provided
access to the EMR while the patients of control physicians would not. This would allow more direct
impact of the effect of such a system on documentation style and effectiveness of doctor-patient com-
munication. The computer system provided could be enriched to provide more doctor-patient interac-
tion, such as electronic patient documentation of home blood sugars or peak flows. It could also be
enriched to provide expanded hyperlinks to personalized medical information.
By describing UCH’s experience with this system, we will provide guidance to hospitals on how to
implement similar systems. Specifically, we will help to determine what parts of the system are most
valuable to patients, and what pitfalls to avoid, especially as regards ease of use, comprehension
and privacy.
CONCLUSION
The Internet has the potential to be a convenient and widely accessible vehicle for allowing patients
to view their medical records, and an important tool for improving patient-physician communication
and for making care more patient-centered. For this reason, it is increasingly important that the med-
ical community understand the implications of this new world of web-enabled medical care.
AUTHOR BIOGRAPHIES
Stephen J. Clark, Ph.D., Vice President and Chief Information Officer, University of Colorado
Hospital. In his 30-year career, Stephen Clark has directed the IS departments of ten healthcare
organizations comprising 19 hospitals with staffs of over 100 professionals. At UCH, he is responsi-
ble for overall strategic development and management of information resources and technology.
Chen-Tan Lin, M.D., Medical Director of Informatics, University of Colorado Hospital. C.T. Lin, a
practicing internist, provides leadership and direction on the development of UCH programs to
encourage physician’s use of information technology that supports patient care, research and educa-
tion.
REFERENCES
1
Hsih C. Latest research reveals that half of physicians interested in using e-mail with patients if
reimbursed. [Medem Web site]. November 6, 2000. Available at:
http://www.medem.com/Corporate/press/corporate_medeminthenews_press023.cfm
2
Pound B, Evans C, Thomas C. LaurusHealth.com Poll Shows e-Mail Option May Determine
Choice of Doctor. [VHA Survey website]. Available at:
http://www.vha.com/vhassi/news/releases/2000/08_14_00.shtml.
3
Mandl K, Feit S, Pena B, Kohane I. Growth and determinants of access in patient e-mail and
internet use. Arch Pediatr Adolesc Med 2000. 154(5):508-11.
4
Green, P.; Porter, C.; Breshahan, D; Spertus, J. “Development and Evaluation o fhte Kansas City
Cardiomyopathy Questionnaire: A New Nealth States Measure for Heart Failure.” Journal of the
American College of Cardiology 2000; 35(5):1245-1255