UOACCONNECTION

May 2013 Volume 20 Issue 8

The UOAConnection is a publication of the United Ostomy Association of Canada Inc. This bulletin is published 10 times a year in both English and French (future) to provide greater communication to the chapters. Limited funds only permit circulation to chapter leadership who are encouraged to share the information with their members by including items of interest in their newsletters.
NATIONAL OFFICE: United Ostomy Association of Canada Inc. 344 Bloor St. West, Suite 501 Toronto, ON M5S 3A7 uoacan@astral.magic.ca 416-595-5452 FAX: 416-595-9924 TOLL FREE: 1-888-969-9698 WEBSITE: www.ostomycanada.ca PRESIDENT: Peter Folk VICE PRESIDENT: Ann Ivol TREASURER: Stephen Maybee SECRETARY: Carol Wells

Presidents Message
President's Message

5 May 2013 Greetings all, Our board of directors had an online board meeting on May 4, 2013. It was attended by our most of our executive and board as well as four observers. However, two hours is just not enough time to thoroughly discuss all the issues that need to be discussed. Our next online meeting will be Saturday, June 1. Nominations for election of the Executive and Board of Directors of the United Ostomy Association of Canada Inc for the upcoming term closed effective April 15, 2013. Nominations were received as follows: Peter Folk President Vacant Vice President Carol Wells Secretary Steve Maybee Treasurer Ed Tummers Director Ruth Kenney Director John Molnar Director Ann Ivol Director Vacant Director (Andrea Manson will be serving out the second year of her two-year term as Director) There were not sufficient applications received to fill all positions, and not enough to require the holding of an election. In accordance with established UOAC procedures the above named persons will be presented by the Nomination and Election chair to the Assembly for acceptance to his / her position as members of the Board of Directors by acclamation. The board of directors will meet in person in Halifax on August 16, the day before the Chapter Information Session (CIS), and attend the CIS on August 17 and meet again the afternoon after the Annual General Meeting on August 18, 2013. The Ostomy Halifax chapter is going to have a great get together, see more information later on in this UOAConnection! The Canada-Not-for-Profit Corporation Act provides federal not-for-profit corporations with a new set of rules that are modern, flexible and better suited to the needs of today`s not-forprofit sector. Our by-laws committee is working hard to have new by-laws ready for a vote at the AGM in Halifax in 2013. We have set up a not-for-profit task force with key members from our past leadership as well as current chapter presidents. Details have been sent to chapter presidents and we had our further online meetings on April 10th. Another one is scheduled for May 24th.

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Three important decisions have been made by the UOAC Board as recommended by the task force and I am hopeful that the task force is able to agree on three more key points and bring those to the board meeting on June 1st so that we can present the results at the annual general meeting in Halifax on August 18th.
Our District Support Services group has presented to the UOAC Board the first draft copy of the CHAPTER Outreach SUPPORT Services Manual and was accepted by the board. The process of defining and changing the manual will continue over the next year and will ultimately realign our important outreach support with the changing demographics in Canada and bring us closer to achieving the vision presented in our Strategic plan. Thanks to Roger Ivol, Les Kehoe and Di Bracken for your hard work on this process. The SASO Support Group brochure is now available from UOAC National Office. A copy has been mailed to all chapter presidents. To obtain more copies of the brochure for your chapter please contact the office either by telephone or email. Thank you to Betty Woolridge and Ann Ivol for your work on producing and distributing this brochure. The UOAC acknowledges that Revenue Canada has a Disability Tax Credit but does not provide recommendation if individuals should apply or not. The UOAC continues to maintain this policy. We have noted that Form T2201has been clarified as to what an inordinate amount of time means. Bladder Cancer Canada is hosting a patient conference in Toronto on May 25. UOAC has agreed to set up a booth at this conference with Ann and Roger Ivol as well as John Molnar representing UOAC. It will be held at the International Centre, Mississauga. We encourage all interested people to attend this patient conference. For more information, visit the Bladder Cancer Canada website: http://www.bladdercancercanada.org/main.php?p=757&lan=1 On May 25, Lakeside Medicine Centre is hosting their 7th Annual Ostomy Education Day at Coast Capri Hotel, 1171 Harvey Avenue, Kelowna, BC from 9:00 AM - 3:00 PM. We urge all interested people in the area to attend and help raise funds for the UOAC Ostomy Youth Camp. See more information in this UOAConnection or on our blog. Our friends to the south of us, the United Ostomy Associations of America (UOAA), have a conference in 2013 and are inviting their Canadian friends to come join them in Jacksonville, Florida. The theme this year is "Bridge to Acceptance". Registration fees and hotel rooms are very reasonably priced. Activities start on August 7th and continue through August 10th. To find out more information or to register for the 2013 National conference, go to http:/www.ostomy.org/conference_2013.shtml. Our next biennial conference will be in St. John's Newfoundland in 2014. Dates are July 31 to August 2. Our conference chair is Delilah Guy and the St. John's and Gander chapters are working together to put on a great conference. We hope to see you all there and take some time to tour around the "Rock" and enjoy the unique experience that is Newfoundland. A big thank you to the mayor of St. John`s NL, Dennis O'Keefe, who approved a cheque from the city for a donation of $750 to go to the conference. We were surprised to see that amount after the last Provincial budget cut millions of dollars to the cities. Peter Folk President, United Ostomy Association of Canada Inc.--

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Notice of Meeting
NOTICE IS HEREBY GIVEN that the Annual General Meeting of Member Chapters of the United Ostomy Association of Canada Inc. will be held at the Lord Nelson Hotel, 1515 South Park Street, Halifax, NS on Sunday August 18, 2013 between the hours of 8:00 a.m. and noon for the following purpose: 1. To receive the financial statement of the United Ostomy Association of Canada Inc. for the year ending March 31, 2013 together with the Auditors Report thereon.; 2. To appoint auditors for the period for the ensuring year and to authorize the Directors to fix the remuneration of the Auditors.; 3. To review and approve Form 4031 Article of Continuance (transition); 4. To elect President, Vice President, Secretary and five (5) Directors; 5. To review and approve By-law No 1, a by-law relating generally to the conduct of the affairs of Ostomy Canada Society to conform to the new Not-for-Profit Act; 6. To transact such other business as many properly come before the meeting. Carol Wells Secretary

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Contd from Page 1 Directors Delilah Guy John Molnar Andrea Manson Mary Penner Ed Tummers Three Vacant Positions OFFICE COORDINATOR Carole Pew OFFICE CHAIR Di Bracken NATIONAL OFFICE ADDRESS 344 Bloor St. W., Suite 501 Toronto, ON M5S 3A7 UOAC COMMITTEES 2012-2013 UOAC DSS Roger Ivol (Leader) John Molnar (Southern Ontario) Roger Ivol (Southern Ontario) Jean-Pierre Lapointe (Quebec Rep) UOAC INTERNATIONAL RELATIONS Janet Paquet (Leader) Pat Cimmeck (Member) UOAC NATIONAL OFFICE SUPPORT Di Bracken (Leader) Peter Folk, UOAC Office Contd page 6

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Social Networking
During the year 2010, our website has had 504,822 hits 17,193 unique visitors. During 2011,we have had 660,359 hits from 19,160 unique visitors. During 2012, there were 728,083 hits on our website by 27,019 unique visitors. Our focus this term has to been to develop social media. 62% of our visitors come from bookmarks or links in emails and 28% found our website through a search engine, with Google being the most popular. 80% of our visitors use Windows, 13% use Macintosh, less than 1% use mobile phones. 70% of our visitors type in the URL, use bookmarks or links in email to reach our site, 21% came to our site from a search engine and 9% came to our site from a link on another web site. For an online map of chapters and districts, click here: http://www.ostomycanada.ca/maps/map.html You can type your postal code in the bottom right hand search box to locate your city or town and then zoom in to find your nearest chapter or satellite. If you have any comment on our website, please contact: John Molnar or Peter Folk through the national office email uoac@astral.magic.ca Social Media:

Our website is very popular, a great source of information and at least 6,350 other websites directly link to ours. More and more people are using the Internet to get Ostomy information and our contact form is used regularly to contact the office. Peter Folk
Unique Web Visitors Facebook Likes Number of Web Visitors Facebook Parents Group Members Google + Members Blog Hits Facebook Group Members Discussion Board Members Twitter Followers Linkedin Followers Linkedin Group Members UOAC1 Group Members Blog Followers Web Hits 11166 146 22362 34 22 1396 333 61 165 4 18 37 145 261868

Volume 19 Issue 2

Page 5 United Ostomy Association of Canada Inc. Mission Statement The United Ostomy Association of Canada Inc. is a volunteer-based organization dedicated to assisting all persons facing life with gastrointestinal or urinary diversions by providing emotional support, experienced and practical help, instructional and informational services through its membership, to the family unit, associated care givers and the general public. A Non-Profit Canadian Charitable Organization

Chapter Information on the Website

Did you know that our website www.ostomycanada.ca had over a half million hits last year? A lot of the visitors visited the website to look for a support group in their area. Therefore, it is important that this information be kept up to date! Make sure when sending the information in to the UOAC office that the chapters contact information is current - phone number, email contact, newsletter availability, website, annual dues, meeting dates and times. Visit our chapters page on our website at http://www.ostomycanada.ca/chapters and let the UOAC office know via email if any of the information needs to be updated. Weve had at least one chapter past president contact the office to tell us that the website still included their phone number instead of the current president. Please check your chapters listing to make sure the updates have been done correctly!

Upcoming Events:

July 1st - July 6th 2013 UOAC Youth Camp at Camp Horizon, Alberta. Deadline for application is June 1st, 2013. Cost is $570.00 UOAA Conference August 7-10, 2013, more information at http://www.ostomy.org/conference_2013.shtml August 16-17-18, 2013 - 40th Anniversary, Chapter Information Session and Annual General Meeting in Halifax, NS August 16, 2013 - UOAC Board of Directors meeting in Halifax August 18, 2013 - Annual General Meeting in Halifax (morning) August 18, 2013 UOAC Board Meeting (afternoon only) July 31st - Aug 2nd, 2014. Conference in St. Johns, Newfoundland

Articles, information and/or opinions expressed in this newsletter are NOT necessarily endorsed by the entire UOAC membership, they are the opinions of the writer and may not be applicable to everyone. Editors Please Note

Note: If your chapter has an upcoming event that you would like added here or on the national website, please email the details to Carol Wells through the national office email.

UOAC Annual General Meeting 2015

Halifax has been chosen to host a Chapter Information Session and Annual General Meeting in 2013. We are looking for a host chapter for the year 2015. If any chapter is interested, please contact the national office for a Hotel Check List of the criteria required to host an Annual General Meeting. Also contact your DSS representative for the Chapter Information Session manual.

Items in the UOAConnection may be copied for use in other newsletters, providing proper credit is given regarding the source of the material.

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UOACConnection

UOAConnection

UOAC Public Awareness & Support and COD WOD

John Molnar (Leader) Delilah Guy (Member) Carol Wells (Member) Mary Penner (Member) UOAC Office

Donate To UOAC
The Canadian finance minister, Jim Flaherty, announced that the Canadian one cent coin is going to be phased out, so now's the perfect time to donate your pennies to charity! We have signed up to receive donations online through CanadaHelps.org. This is a handy way for you to make a donation without even leaving the comfort of your computer chair. Simply visit our website at: http://www.ostomycanada.ca/ and click on the image that looks like this:

OSTOMY CANADA
Lisa Gausman (Senior Editor) Lorne Aronson (Advertising Manager) Tammy Hunter (Graphic Designer) UOAC CONNECTION Carol Wells (Leader) Ann Ivol, Joel Jacobson, UOAC Office (Members) UOAC PRIVACY POLICY Elizabeth Lindner (Privacy Officer) John Molnar (Member) UOAC PUBLICATION Ann Ivol (Leader) Joel Jacobson, Andrea Manson (Members) UOAC WEBSITE Peter Folk, John Molnar (Leaders) Mary Penner, Andrea Manson (Members) UOAC SOCIAL MEDIA Peter Folk (Leader) John Molnar, Mary Penner, Di Bracken, Carol Wells (Members) UOAC CONFERENCE Delilah Guy (Conference Administrator) Janet Paquet, Carol Wells, Gander & St. Johns Chapters (Members) UOAC FINANCE Treasurer Executive Committee Contd Page 11

This will bring up a secure website that will allow you to enter your credit card or PayPal information. Canada Helps will issue a donation receipt right away and email it to you.
Have you set up your 2013 monthly donations yet? It's easy and convenient. No cheques to write, no pledge payments to remember. Monthly giving allows you to spread your donation out over the year so that you hardly notice the regular deductions, and provides United Ostomy Association of Canada Inc. a steady, predictable income so it can work towards its mission. Set it and forget it. Here's how: 1. Set up or log in to your Canada Helps account Remember that you need to have a credit card on file for monthly donations 2. Click the Monthly Giving tab. 3. Search for UNITED OSTOMY ASSOCIATION OF CANADA INC. 4. Click DONATE MONTHLY 5. Enter the details of your monthly donation. Visit our donation page: http://www.ostomycanada.ca/donations Peter Folk President, United Ostomy Association of Canada Inc.--

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FROM THE EDITOR

EDITORS MESSAGE

Now in its 71st year, National Volunteer Week is all about volunteer recognition. This years celebration took place between April 21 and 27. A week is never enough time to celebrate volunteers who make a tremendous contribution in communities across the country. They make our communities resilient and our country vibrant. Ostomy Canada is proud to have dedicated volunteers leading the organization nationally and to have hundreds of volunteers guiding chapters across the country. Most of these volunteers dont think theyre volunteering. Theyre doing what comes naturally to them helping others live better lives not only within their ostomy groups, but in countless other organizations in their communities. The most recent Ottawa chapter newsletter printed a list of the top 10 reasons to volunteer. This should be distributed to each and every chapter member, some of whom are eager participants in helping the chapters thrive, and others who attend meetings but rarely ask to (or are asked to) volunteer. 1. Its good for you! Research shows that those who volunteer have lower mortality rates, greater functional ability as they get older and report good health more often. 2. Those who volunteer are less likely to be depressed. So, go for itput on a happy face. 3. Volunteering is a great way learn a new skill. 4. Belong. There is no better way to meet good people and connect with your community. 5. It just plain feels good to give back to your community. 6. Volunteers consistently report a high feeling of self-worth, achievement and higher motivation. 7. In a recent study, more than 90% of employers feel that volunteering enhances job skills, and over 70% said they would hire someone with volunteer experience over someone without. 8. Get out of a rut. Volunteering is a great way to explore and get experience in a new field. 9. Spend time with your family. Volunteering as a family is a great way to spend time together. 10. Enrich your life. Volunteering adds meaning in many ways, through learning new skills, making new friendships, and by making our community a better place to live.
Joel Jacobson Editor

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Ostomy CIS Luncheon AGM Schedule 2013

OSTOMY CIS LUNCHEON AGM SCHEDULE 2013 THURSDAY, AUGUST 15, 2013 Board, some delegates arrive Halifax..check into host hotel, Lord Nelson Hotel, South Park Street and Spring Garden Road. Accessible rooms available.

FRIDAY AUGUST 16, 2013 9 a.m. National board meeting Victoria Suite, 3rd floor, Lord Nelson Hotel 7 p.m. Meet and Greet, board, delegates, other guests hosted by national president Victoria Suite

SATURDAY AUGUST 17, 2013 9 a.m. 12:30 p.m. Chapter Information Session all delegates, board and interested parties Bethune Ballroom, Bethune Building main floor, QEII Health Sciences Centre, University Avenue. (Five minute walk from Lord Nelson Hotel). Accessible entryways. 1 p.m. 3:30 p.m. Ostomy Halifax Gala 40th Anniversary Luncheon Weatherwatch Restaurant 5th floor, Dickson Centre (adjacent to Bethune Building) 3:30 p.m. FOWC annual meeting Bethune Ballroom 3:30 - ??? FREE TIME - Board, delegates and chapter members on your own to tour downtown Halifax and savor fine restaurants for dinner. 8:30 p.m. - ??? Open House Victoria Suite

SUNDAY AUGUST 18, 2013 8 a.m. 12 noon UOAC Annual General Meeting Admiral Room, main floor, Lord Nelson Hotel. Accessible availability via elevators. 1 p.m. 5 p.m. National Board meeting Victoria Suite, 3rd floor, Lord Nelson Hotel 8 p.m. - ?? Casual farewell gathering for those remaining Victoria Suite

OSTOMY 2013 CIS LUNCHEON REGISTRATION FORM

Ostomy Halifax

CIS Seminar and Halifax 40th anniversary luncheon August 17, 2013

SCHEDULE: CIS: 9 a.m. to 12:30 p.m. Bethune Ballroom Luncheon: 1 p.m. to 3 p.m. Weatherwatch Restaurant, Dickson Building, QEII Health Sciences Centre

Name: ____________________________________________________ Member ____ Non-Member ____ Address: ______________________________________________________________________________ City: _________________________________________________________________________________ Postal Code: ________________________________ Telephone: _________________________________ E-mail Address:______________________________

RSVP: Florence Farrell either by e-mail or phone: Florencef2@gmail.com or cell 902-293-7349 and home 902-444-0657 Please register no later than: July 1, 2013 PRE JULY 1 CIS only - $20 Luncheon only $45 Combined CIS and luncheon $55

POST JULY 1 CIS only - $25 Luncheon only - $50 Combined CIS and luncheon $60

Please make cheques payable to Ostomy Halifax Remit to: The Treasurer PO Box 8476 Halifax NS B3K 5M2

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2012-2013 COMMITTEES Continued

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Jokes for Today

2012-2013 COMMITTEES Continued UOAC FUNDRAISING and bringing forth a Case Statement Mike Paquet (Leader) John Molnar, Ed Tummers, Carol Wells Andrea Manson, Janet Paquet, Roger Ivol, Mary Penner (Members) UOAC AWARDS Ann Ivol (Leader) Delilah Guy (Member) UOAC BY-LAWS Ed Tummers (Leader) Carol Wells (Members) UOAC POLICY & PROCEDURES Ann Ivol (Leader) Delilah Guy (Member) UOAC 20/40 GROUP Angie Schickerowski (Leader) UOAC PARENTS of CHILDREN with an OSTOMY Mary Penner (Leader) Pat Cimmeck, Karen Lindsay (Members) UOAC SASO GROUP Betty Woolridge (Leader) Ann Ivol (Member) UOAC YOUTH CAMP Pat Cimmeck (Camp Administrator) Lisa Gausman, John OShaughnessy, Karen Spencer (Members) UOAC MEMBERSHIP Mary Penner (Leader) Andrea Manson (Member) UOAC NOMINATIONS & ELECTIONS Peter Folk (Leader) Janet Paquet (Member)

UOAC STRATEGIC PLANNING Executive Committee Board of Directors, UOAC Office

Little Johnnys kindergarten class was on a field trip to their local police station where they saw pictures tacked to a bulletin board of the 10 most wanted criminals. One of the youngsters pointed to a picture and asked if it really was the photo of a wanted person. Yes, said the policeman, the detective want very badly to capture him. Little Johnny asked, Why didnt you keep him when you took his picture?

UOAC ANNUAL OPERATIONAL PLAN Executive Committee Andrea Manson, Les Kehoe, Peter Folk, Mary Penner, Delilah Guy (Members) UOAC INDUSTRY ADVISORY Andrea Manson (Leader) Contacts from Hollister, ConvaTec, Coloplast and Salts UOAC MEDICAL ADVISORY Delilah Guy (Leader) Dr. Zane Cohen, Dr. Philip Gordon, Current CAET President OTHER PROFESSIONAL PARTNERS Andrea Manson (Leader) Contacts from Crohns and Colitis, Colorectal Cancer Assoc., Bladder Cancer Canada, etc.

A wealthy American Indian entered a gambling spa in Las Vegas carrying a satchel filled with $100.000. After two hours of play, he lost all his money. He drove to the mountains and sent a smoke signal. Please send me another $100.000. Just at that moment, an atomic bomb explosion went off some miles behind him, the mushroom cloud billowing into the sky. A few hours later the Indian read the answering smoke signal in the distance: The money is on the way, but dont holler.

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PEG BOARD
LOOK FOR UNSUNG HEROES IN YOUR CHAPTERS. LET'S HONOUR THEM BY TELLING US WHAT THEY DO.
Surely there have to be men and women in your chapters who are doing all the little things that make the chapter tick. Email Joel Jacobson, UOAConnection editor, through the national office email at uoacan@astral.magic.ca with their story.

2014 UOAC Conference in St. Johns

Delilah Guy has been appointed Conference chair for the 2014 conference in St. Johns. She will be working closely with St. J ohns chapter president Carol Wells along with other members of the Gander and St. Johns chapters. Watch this space for updates in the coming months! The dates for the Conference are July 31 August 2, 2014. We have the Delta St. Johns tentatively booked. Come see Canada`s coolest city to quote Danny Williams.