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PAPER
Department of Sociology and Anthropology, Ben-Gurion University of the Negev, Beer-Sheva, Israel 2 Department of Medicine, Ben-Gurion University of the Negev and Soroka University Medical Center, Beer-Sheva, Israel Correspondence to Nitzan Rimon-Zarfaty, Department of Sociology and Anthropology, Ben-Gurion University of the Negev, Beer-Sheva 84105, Israel; rimonn@bgu.ac.il Received 24 August 2009 Revised 18 April 2011 Accepted 24 May 2011 Published Online First 21 June 2011
ABSTRACT The Israeli law of abortions (1977) legally authorises hospital committees to decide upon womens requests for selective abortion. One of the laws clauses determines that abortions can be approved in cases of an embryopathy. However, the law does not provide any clear denitions of those fetal physical or mental defects in terms of severity and/or likelihood, which remain open to interpretation by the committee members. This paper aimed to determine which ethical methodologies are used by committee members and advisors as they face the dilemma of abortion approval due to mild to moderate possible embryopathy. Twenty interviews demonstrated that they use mainly a combination of deontology and a contextualerelational model. Their ethical considerations are both contextual such as the familys/womans relational network and are inuenced by the ethical principles of autonomy and in cases of late abortions the value of life. The ndings reveal a paradoxical picture: on the one hand, committee members hold liberal perceptions and in practice abortion requests are very seldom rejected. On the other hand, the Israeli abortion law and practice of abortion committees is still problematical from liberal and feminist rights perspectives. This paradox is discussed further by reecting upon the relevant theory as well as the Israeli context. The paper concludes by suggesting that within the specic Israeli sociopolitical climate the requirement for committee approval of what should be a private decision might be necessary in order to placate religious or other opposition to abortion.
INTRODUCTION
Prenatal diagnosis is extremely popular in Israel,1e5 and in many instances leads to selective abortions. The Israeli abortion law (1977) generally prohibits abortion. However, the law denes four clauses under which abortions will be approved: 1. The woman is under the age of 17 years or over the age of 40 years. 2. The pregnancy occurred as a result of criminal law-forbidden relations, incest or out-of-marriage relations. 3. The embryo/fetus may have a physical or mental defect. 4. Continued pregnancy may risk the womans life or cause the woman physical or mental damage. In addition, the law obligates the establishment of an abortion committee in each hospital. Each committee includes two medical doctors (one of them a gynaecologist) and a social worker. Every
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woman who wishes to stop her pregnancy is required to appear in front of a committee, which holds the legal authority to approve or reject such requests. In this paper, we focus on the committees process of decision making in cases of abortion requests due to mild to moderate or likely fetal defects. The third clause of the law is very ambiguous and does not provide any clear denitions of the physical or mental defects (in terms of severity or likelihood of expression) that will justify an abortion, which thus remain open to interpretation by the committee members.6 In addition, the Israeli law is an exception as it allows late-term abortions (at all stages of pregnancy). However, it should be noted that the Israeli Ministry of Health addressed the issue of late abortion in two secondary legislations. The rst (memorandum 76/94, issued 28 December 1994) institutes the establishment of high-level regional abortion committeesdthat discuss applications for late abortions (from the 24th week of pregnancy). Each high-level committee includes ve members: three nominated by law (the head of the hospital, the head of the womens department and a senior social worker) and two other members who serve merely as advisors (thus have no vote in the actual decision: the heads of the neonatological department and the genetic institute). The second legislation (memorandum 23/07, issued 19 December 2007) presents those high-level committees with some guidelines according to which late abortion will be approved in cases in which the embryopathy can be medically dened as severe (or moderate up to week 27) as well as substantially probable (probability of at least 30%). Those guidelines still do not provide clearcut denitions of the classications it presents,6 7 and as our research was conducted before the issue of the new regulation, we cannot provide any information regarding their effects. According to the Israeli Ministry of Health (2010), in the years 2006e9, 98e99% of all abortion requests were approved by abortion committees; the majority, 92e97% of all late abortion requests were approved; 87e90% of all late abortions were performed on the basis of the third clause.8 In addition, statistical data show that late abortions are far more common in Israel (ve to ten times) than in the USA and western Europe.4 9 Indeed, it has been claimed that the Israeli Jewish secular society is generally pro-eugenic,1e6 10 and that the Israeli abortion law enables abortions for embryopathic reasons even when its severity or
J Med Ethics 2012;38:26e30. doi:10.1136/jme.2009.032797
METHODOLOGY
As committees deliberations are condential we conducted a qualitative research using semistructured interviews with committee members and advisors. Twenty representatives of the medical establishment who were members of (two physicians and eleven social workers) or advisors/ recommenders of abortion committees (but not actual committee members: seven geneticists/genetic counsellors) were interviewed. Seven respondents were members of regular (early) committees, six were members of high-level committees, and seven were geneticists/genetic counsellors. Interviews were conducted from January 2006 to April 2007. Respondents came from a variety of hospitals. Some were directly approached and some were detected through a snowball sample (in which previous respondents refer the researcher to new possible respondents). Interviews were conducted in Hebrew, usually held in the ofce of the respondent, and lasted between 1 and 2 h. When requested by the respondents, interviews were conducted over the telephone using the same interview protocol. The interviews were based on a predetermined set of questions. Even so, the order of the questions was exible, and the interviewees could freely respond and raise arguments. Interviewees were specically asked about their experience with actual cases of requested abortions due to mild to moderate or likely embryopathies, their conicts and dilemmas, the actual decision that was made and their personal positions and considerations. Interviews were tape recorded (with the respondents permission), transcribed and analysed through thematic-coding process based on a constructivist version of the grounded theory method.24 Using a qualitative inductive content analysis method enabled us to detect recurrent considerations, ideas and ethical arguments that can be further interpreted in terms of the main categories of ethical methodologies.
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ETHICAL BACKGROUND
While deontological ethics emphasises the adherence to moral principles/rules/duties as determining the rightness of an ethical choice,15 16 feminist moral reasoning has been identied with adherence to contexts and relationships (that can also be found in non-feminist bioethics, which turned from reliance on abstract theories to an emphasis on particular circumstances).16 Several feminists have criticised deontological ethics for emphasising abstract universal standards while focusing on the abstract individual. Those critics emphasise the necessity of attending the concrete and personal by reecting on the contextual details of the situation as well as the individuals relationships and moral experiences.15e18 Relating to the abortion issue, while deontological moral reasoning approaches the issue abstractly by setting womens autonomy and rights against the embryos/fetuses value of life, feminist moral reasoning will approach the issue contextually by reecting on the situational conditions (including the pregnant womans wider social world (eg, partner, family members, friends, government agencies, religious afliation and so on)), the ways in which the abortion decision may inuence specic relationships and the ways in which the mother relates to the fetus.15e20 Nevertheless, it is important to note that feminist ethics goes further than concerning itself with contexts and relationships (as we do), to raising questions of power and politics. It
J Med Ethics 2012;38:26e30. doi:10.1136/jme.2009.032797
status of the fetus stem from the relevant familial contexts and relationships (mainly the mother s/parents attitudes towards the fetus). It is important to note that even though most of our interviewees did not relate to questions of justice, hierarchy or womens oppression (thus cannot be analytically related to feminist ethics), some of them did view their attention to contextual details and relationships as intended to help and serve womens interests.
Deontology
There are two main contradictory principles relevant to the ethical dilemma of abortions, also common among our respondents: the women's autonomy (their rights and freedom of choice over their own body and fertility) and the value of human life, which support the exercise of potential human life (the value of the fetus life as such and his right to live even if he has a congenital defect).22 25 26 An expression of the principle of autonomy apparent in the majority of our interviews is presented in the following quotation made by a social worker who serves as a high-level committee member:
Until the fetus is born, I give full credit to the parents. They are adults [.] and they know whats good for them and for their child [.] they are the ones who need to raise the child [.] not me. I have a great deal of respect for them.
As this quotation suggests, committee members and advisors tend to take several contextual factors into consideration. For example, they evaluate family s strength and capacities. They may also take into account more objective familial difculties such as whether there are other sick children or whether the parent himself has the same medical condition (eg, cleft lip). They may also relate to the mother s mental situation (which is also connected to the law s fourth clause) as a contextual factor:
I want to see who the person in front of me is [.] how she understands, how she relates to it [.] what is her level of anxiety, is she (emotionally) available.
This quotation (made by the same committee member) shows that in cases in which the mother is in a difcult mental state, or feels that she cannot cope with the situation committee members takes that into consideration. Nevertheless, it is important to note that the mother s mental situation can also be analysed as reecting the principle of non-malecence or as reecting a consequential ethical methodology. Several committee members and advisors also related to relationships as a factor inuencing their decision. First of all, they seem to pay attention to the way the woman relates to the fetus (eg, as unwanted):
Usually when women come to us [.] they have already made the decision. [.] If the woman is determined, if she knows she cannot handle a disabled baby, I am denitely with her. We are here to support that decision, not to raise more questions [.] to be there for her in the difcult moments. (a social worker regular committee member)
Indeed, most of our respondents tended to value the womens autonomy more than the fetuses value of life. However, the question of the fetuses value of life was raised in late term pregnancies discussed in high-level committees, as mentioned by a committee advisor (a genetic counsellor):
For me, week 35 is a human being [.]. Somehow it is obvious that it is much easier to terminate a pregnancy in week 12, 13 than [.] after week 30. You really see babies being born. [.] The period of pregnancy is very crucial.
In addition, a few of our respondents emphasised the importance of familial relationships as well as relational networks, which can serve as support systems (whether they have friends or family that will help them cope with the situation of having a different child) as can be seen in the rst quotation. Another contextual argument raised by a few of our respondents reects a reference to the wider Israeli social context and more specically its lack of an adequate social support system:
I lived for a little while in Netherland and in USA [.]. They have a lot of institutions, daycares, social answers for different children. We dont. So its not fair to come to parents and tell them: you need to live with this child [.] when we have no social answers. (a social worker high-level committee member)
Therefore, it seems likely that abortions due to embryopathies will be rejected only in late stages of pregnancy, and only in borderline cases. Only then can the principle of the value of life overcome the principle of autonomy as well as the contextualerelational situation. It is important to note, however, that some of our respondents did express difculties in dealing with the ethical questions of abortions due to mild to moderate or likely embryopathies, which increased in cases of late abortions. A few of them even expressed criticism regarding for example, the law s ambiguity and the popularity of prenatal diagnosis in Israel (relating to the nancial interests involved as well as the social implications).6
DISCUSSION
In summary, it seems that a distinction needs to be made between early and late abortions: in early abortions committee members and advisors are inuenced both by the deontological principle of autonomy and by the context and relationships. On the other hand, in late abortions another ethical principle is considereddthe value of life, which intensies the ethical dilemma and ambivalence. Nonetheless, taking the fetus right to live into consideration is often contradictory both to womens autonomy as well as their personal, social and relational contexts. Therefore, we would like to suggest that our ndings may serve as one possible explanation for the fact that
J Med Ethics 2012;38:26e30. doi:10.1136/jme.2009.032797
Similar to our ndings, Weiner and Hashiloni-Dolev,19 found that Israeli medical professionals perceptions regarding the
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tion as murder and is generally supportive of medical technologies.4 5 27 Indeed, according to Rapp,21 US Jews generally express positive views towards prenatal diagnosis and tend automatically to choose abortion after a positive fetal diagnosis. In conclusion, the tendency to approve abortion due to mild to moderate or likely embryopathies, may be explained not only in terms of context-sensitive and liberal perception, but also in terms of society s desire for the perfect child.1 2 6 Our research reveals a rather paradoxical picture: committee members and advisors hold liberal perceptions and in practice abortion requests are very seldom rejected. However, the Israeli abortion law and practice of abortion committees is still very problematical from liberal, feminist and human rights ethical perspectives. The practice of abortion committees can thus be critically viewed in terms of the violation of womens basic rights over their own bodies: the right to bodily integrity and/or privacy and the right one has to decide on whether or not to serve another persons body.15 28 29 Tong15 further presents other feminist approaches (such as Alison Jaggar s), which overall resist medical interference with womens reproductive autonomy and support the idea that the pregnant woman herself should hold the sole legal and moral right to make the abortion decision, as she is the one mostly affected and properly situated to assess and weigh all the relevant factors and interests involved. Regarding the Israeli context, the current legal situation and practice in Israel does not acknowledge abortion on demand, unlike other abortion laws in the western world (eg, the US law and the famous Roe v. Wade decision, which allows abortion on demand during the rst trimester of pregnancy). Israeli feminist researchers identied the Israeli abortion law as patriarchal and patronising: as depriving women of their reproductive autonomy and bodily rights.12e14 They claim that in Israel, both womens as well as fetuses rights are absent from the abortion discussion. Instead the abortion issue is dened as a collective demographic and/or social welfare-related issue, which needs to be formally regulated by the state.13 Abortion committees thus serve as a mechanism of social control within which Israeli women are being both used to achieve collective demographic (pro-natalist) goals as well as morally educated and supervised.12e14 Nevertheless, our current ndings suggest that committees interpretation and everyday application of the law in cases of mild to moderate or likely embryopathies do not attest to such a patriarchal position. Committee members and advisors emphasise womens autonomy and report trying to see the situation from the womans point of view by relating to the contextual and relational details. We would like, however, to suggest several directions for future studies that will further examine our claims. First we believe that a study that will focus on abortion requests for other reasons, not only fetal anomaly, might be useful. It will enable a clear picture regarding the level of committee liberalism and/or eugenic perception (if for example, it is found that they hold liberal positions only in cases of abortions due to embryopathies). In addition, research that will include more medical doctors is needed, and will enable a re-examination of the wrongful birth/ life suits issue. Finally, it may be useful to study the personal experiences of Israeli women who go through abortionddo they experience the process of abortion approval as just, context sensitive and enabling or as demeaning and patriarchal. A recently published paper dealing with 13 Israeli women who went through feticide, described a paradox that corresponds to our discussion: a;though women perceive themselves as the main decision makers and took the responsibility for the abortion
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12. 13. 14. 15. 16. 17. 18. 19. 20. 21. 22. 23. 24. 25. 26.
REFERENCES
1. 2. 3. 4. Remennick L. The quest after the perfect baby: why do Israeli women seek prenatal genetic testing? Sociol Health Illn 2006;28:21e53. Weiss M. The Chosen Body: The Politics of the Body in Israeli Society. Stanford, California: Stanford University Press, 2002:2e3; 30e2. Stoler- Liss S. Mothers birth the nation: the social construction of zionist motherhood in wartime Israeli parents manuals. Nashim 2003;6:104e18. Hashiloni-Dolev Y. A Life (Un)Worthy of Living: Reproductive Genetics in Israel and Germany. Dordrecht, The Netherlands: Springer, 2007:38e9; 47e50; 87e8; 99e101; 101e2; 119e21; 122e4; 124e6; 131e2; 143; 149e152. 28. 29. 30. 31.
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doi: 10.1136/jme.2009.032797
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Notes