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Sam Adams
A NEW POLL has revealed that almost half
of practising Catholics support legalisation
for assisted suicide.
Forty-four per cent of respondents to a
YouGov survey who identified themselves as
actively participating Catholics said they would
support a change in the law to allow close
friends and relatives of those suffering from
incurable diseases to help them commit
suicide. Forty-two per cent opposed it.
A majority (56 per cent) of those who iden-
tified themselves as Catholic whether active
or not also said they would support a change
in the law.
Support among Anglicans was even more
pronounced with 72 per cent backing legal-
isation, while majorities of people of other
faiths, including Jews, Sikhs and Methodists,
were also in favour.
Overall, nearly three-quarters (70 per cent)
of the 4,437 people who took part in the poll
which was commissioned for this weeks
Westminster Faith Debate on assisted dying
including those of no faith, said they supported
the legalisation of assisted suicide, with only
16 per cent opposing it.
A majority of those opposed to a change in
the law (59 per cent) said they did so because
of concerns for vulnerable people who could
be, or feel, pressured to die.
A third of respondents who supported a
change in the law said they did so mainly
because they believe the NHS and welfare
systems cannot provide decent end-of-life
care for the terminally ill.
Christians voice support for assisted dying
DUBLIN: The Supreme Court
in Ireland has ruled that there
is no constitutional right to die
or to be assisted to die in a
challenge brought by a
terminally ill woman, writes
Sarah Mac Donald.
The ruling by the seven judges
of Irelands highest court
means the ban on assisted
suicide remains. However,
Chief Justice Mrs Susan
Denham said lawmakers could
introduce legislation, with
appropriate safeguards, to
deal with tragic cases like that
of 59-year-old Marie Fleming,
who is terminally ill
with multiple sclerosis.
The judges noted that
similar cases had been brought
tothe European Court of Human
Rights and in the UK had been
unsuccessful. The European
Court ruled it was up to each
state to decide whether to
introduce assisted suicide.
4 May 2013
|
THE TABLET
|
29
We are committed to working for
a more human future through
education, healthcare, social and
cultural activities.
We draw our inspiration from the
life of the early Christians who were
deeply imbued with the Spirit of Jesus.
We wear no distinguishing sign,
and live either alone, in our family
or in a community.
We welcome enquiries from
single women.
Further information from Daughters
of the Heart of Mary, 41 Murray Road,
Wimbledon, London SW19 4PD.
Tel.0208 946 3564
International Religious
Congregation
Daughters of the Heart of Mary
Sam Adams
THE EQUALITY and Human Rights
Commission (EHRC) is wrong to treat every
belief as equal and identical, according to the
Bishop of Portsmouth.
In a letter to the commission in response
to its recent guidance on religion and belief
in the workplace, Bishop Philip Egan claimed
the document contains a philosophical flaw
in that it fails to differentiate adequately or
robustly between what constitutes a religion
and what constitutes a lifestyle or moral con-
viction.
He said the result of this is that beliefs like
vegetarianism, environmentalism, and even
having a beard, become equated with the
great religions of Judaism, Hinduism, Islam
and Christianity.
The document is based on the thesis that
every religion or belief must be treated as
absolutely equal and identical, rather than
respected as essentially different and com-
plementary, he said. In other words, a
totalitarian or absolutist concept of equality
is at work.
Bishop Egan said this meant minority reli-
gions such as Druidism would be treated dis-
proportionately, diluting the influence of
Christianity what he described as the religion
of the majority - in any policymaking, and in
the process subvert the core of Britains
national culture.
Bishop Egan said Britain is a Christian
nation not just because of the number of
adherents to the faith but more importantly
because of the self-evident Christian patri-
mony of our laws, institutions, social mores
and traditions. He said this Christian heritage
was even reflected in the secular values
espoused by the EHRC, such as respect, dig-
nity and freedom of belief.
He warned that Catholics fear the dicta-
torship of relativism that comes when
governments impose ethical guidelines and
patterns of behaviour that are not demon-
strably derived from the natural law and right
reason. We believe that governments and
policymakers ought to foster the traditional
religious identity of our culture our
Christian patrimony, said Bishop Egan. This
will truly assist greater social cohesion, and
the very respect and equality that the EHRC
espouses.
THE CATHOLIC Education Service of
England and Wales (CES) is working with
the Government to find ways for church
schools to provide leadership for failing sec-
ondaries and primaries, writes Sam Adams.
Catholic schools already act as sponsors
for community schools, including academies,
but are prevented from entering into closer
hard federations in which maintained
schools operate under a single governing
body or multi-academy trusts.
Paul Barber, director of the CES, told The
Tablet he wants to give Catholic schools a
greater range of options for entering into
closer partnerships with secular schools.
There are one or two particular arrange-
ments that are more difficult [for Catholic
schools to enter into with secular schools]
and we want to look into minor changes to
facilitate this, he said.
Some of them would only be available if
the [non-faith school] changes into a
Catholic school too. The intention is to
increase the range of options available to
local partners where there is a wish for a
high-performing Catholic school to assist
another local school, but without either the
Catholic school or that other school
losing its identity or changing its existing
character.
The CES is now working with the
Department for Education to find ways of
making this happen.
Catholic schools already provide leadership
for secular schools. An example of this is the
partnership between the high-achieving
Coloma Convent Girls School in Croydon,
south London, and the Quest Academy,
which was created out of the former Selsdon
High School.
Maureen Martin, headteacher of Coloma
Convent Girls School, is executive principal
of the academy, which is overseen by the
Coloma Trust, through the Congregation of
the Daughters of Mary and Joseph.
The Government favours closer partner-
ships between non-faith and Catholic
schools which are significantly more likely
to be ranked as good or outstanding by the
schools inspector, Ofsted.
Martin austerity warning
Children in Ireland are going hungry due to
the Governments austerity measures, the
Archbishop of Dublin, Diarmuid Martin, has
warned. In an address to the Fordham Centre
of Religion and Culture in New York, he said
that public spending cuts introduced in
Ireland in response to the economic crisis
were bringing the country to a social breaking
point.
Nichols praises work of order
The Archbishop of Westminster praised the
charitable work of the Order of Malta during
a Mass to celebrate the 900th anniversary of
a papal bull putting the group under the pro-
tection of the Holy See. During a homily at
Westminster Cathedral last Sunday, Vincent
Nichols praised the marvellous work of the
British branch of the order in looking after
the sick and elderly and helping the poor. He
said that despite challenges, setbacks,
vicissitudes, the worldwide order had survived.
Catholics beaten in church debate
Catholic speakers have lost a high-profile
debate on the future of the Church. The the-
ologian Fr James Alison and Catholic
journalist Peter Stanford opposed the motion:
The Catholic Church is Beyond Redemption:
Pope Francis Cannot Save It, in a debate
hosted by Intelligence Squared at Sadlers
Wells Theatre in London, last week. Fifty-
five per cent of voters backed the motion while
30 per cent opposed it. The results were an
improvement on an Intelligence Squared
debate on whether the Church is a force for
good in the world in 2009, in which the
Catholic speakers were overwhelmingly
defeated.
IN BRIEF
Egan attacks totalitarian
concept of equality
Leadership plan for failing secular schools
The Archbishops of
Westminster and Canterbury
have used their frst joint
statement to condemn the
ongoing violence in Syria.
Archbishops Vincent Nichols
and Justin Welby said that
escalating violence had torn
Syria apart.
They condemned in
particular the kidnapping last
week of two Orthodox bishops
of Aleppo, Mar Gregorios
Yohanna Ibrahim and Paul
Yazigi. In a statement, they
said they would continue to
pray for the people of Syria
and for an end to violence.
Brian Morton
In Glasgow
THE ARCHBISHOPof Glasgow met last week
with the prefect of the Congregation for
Bishops in Rome to discuss the future of the
Church in Scotland following the resignation
of Cardinal Keith OBrien.
Archbishop Philip Tartaglia was in Rome
to carry out a routine visitation of the Pontifical
Scots College but while there he met Cardinal
Marc Ouellet, who is in charge of the Vatican
dicastery which oversees the appointments
of bishops.
A church spokesman in Scotland confirmed:
Archbishop Tartaglia did meet Cardinal
Ouellet during the course of his recent visit
to Rome; however, the contents of their con-
versation remain private. It is understood
that they discussed the number of dioceses
in Scotland that need new bishops.
Currently, five out of eight dioceses in
Scotland are either vacant, headed by a bishop
past the age of 75 or, in the case of Dunkeld,
have a bishop whose retirement has been
accepted due to ill health.
Recent press reports suggested the resig-
nation of Cardinal OBrien following
allegations of sexual impropriety, and the sub-
sequent furore, have led to a slowdown in
episcopal appointments. It is understood that
no appointments will be made until the
Vatican is satisfied there are no further alle-
gations against the cardinal, who stepped
down after admitting personal failings and
that his sexual conduct had fallen below that
which was expected of a priest, bishop and
cardinal.
But sources close to the Church in Scotland
have said that there is no ongoing investigation
into Cardinal OBrien, whose situation is sub-
ject to a watching brief .
This week the cardinal was photographed
moving boxes into his planned retirement
home in Dunbar. It is a church-owned prop-
erty close to the parish of Our Lady of the
Waves.
Cardinal OBrien, 75, had his resignation
as Archbishop of St Andrews and Edinburgh
accepted early by Pope Benedict XVI in
February. This followed allegations of inap-
propriate sexual conduct made by four men,
three of them priests.
30
|
THE TABLET
|
4 May 2013
50 YEARS AGO
Tomorrow (Sunday) sees the consecration
of the Berlin Church of Our Lady, Queen
of Martyrs Regina Martyrum which
has been built on a site close to where the
gallows of Pltzensee Prison once stood.
It was here that many victims of the Nazi
regime were executed and the church is
intended as a memorial to all those who
lost their lives under Hitler for the sake of
freedom of belief and of conscience ... In
front of a modern piet by Fritz Konig there
are three tombstones. The central one bears
the inscription: To all martyrs who were
refused burial. To all martyrs whose graves
are unknown. The tombs to right and left
are for two Berliners chosen to represent
all their fellow-victims. One is Dr Erich
Klausener, the leader of Catholic Action in
the Diocese of Berlin from 1928 until his
death on 30 June, 1934, the night of the
long knives: he was killed on Goerings
orders, and his death was officially described
as suicide. His ashes are being solemnly
transferred to their new resting place
tonight (Saturday). The other is Provost
Bernhard Lichtenberg, a priest who in 1935
had personally protested to Goering as soon
as he heard of the horrors being perpetrated
in the concentration camp at Esterwege
On 23 October, 1941, he was arrested by
the Gestapo, and after his trial he was sen-
tenced to two years imprisonment: when
he had served this term he was regarded
as such a threat to public security that he
was transferred to Dachau, and it was while
he was on his way there that he died.
The Tablet, 4 May 1963
100 YEARS AGO
Mr [Herbert] Samuels annual statement
on the work of the Post Office contained
many items of general interest. The revenue
from the department showed, he said, sat-
isfactory increase, except telegraphs, which
were in a stagnant state, due to the com-
petition of the telephones [Mr Samuel,
the Postmaster General,] announced a
revision of telephone rates in order that
the service might be extended and cheap-
ened. He hoped to develop the Post Office
system of annuities and life insurance by
the issue of small policies. The Post Office
contemplated laying a tube railway through
London for Post Office purposes alone.
The plans of the railway had now been
completed. The railway would run from
Paddington to Whitechapel, a distance of
six miles. The tube would be 9ft in diameter
with two tracks, and the trucks would be
run automatically without drivers. The
mails would be handled to a great extent
by automatic appliances. The capital cost
would be about 1,000,000.
The Tablet, 3 May 1913
FROM THE ARCHIVE
Tartaglia
meets Vatican
bishops chief
The chief executive of the
Irish Churchs safeguarding
body is to take on a similar
role in Australia, writes
Sarah Mac Donald.
Ian Elliott has led the National
Board for Safeguarding
Children in the Catholic Church
in Ireland (NBSCCCI) for six
years and is due to retire at the
end of next month. Mr Elliott
has confrmed that he is to
advise the Church in Australia
on safeguarding.
During his time in ofce in
Ireland, Mr Elliott has conducted
a review of the safeguarding
procedures of a number of
dioceses and religious orders.
His tenure also coincided with
the publishing of government-
commissioned reports giving
harrowing details of clerical
sexual abuse.
In Australia, the Catholic
Church is one of a number of
institutions being investigated
by a Royal Commission
looking into allegations of
sexual abuse of children.
The Archbishop of Dublin,
Diarmuid Martin, has paid
tribute to Mr Elliott, saying he
had made the Church a safer
place for children.
Last week a new tranche of
safeguarding reviews in
Ireland revealed very
encouraging progress in the
dioceses of Ferns, Clogher,
Galway, Elphin, Killala,
Waterford and Lismore and in
the Society of African Missions.
However, the NBSCCCI, which
conducted the audits, said that
risky behaviour was
inadequately dealt with in
Clogher and Ferns in the past.
THE BISHOP of Menevia has issued a plea
for unity to parishioners after the Vaticans
Congregation for Clergy backed his decision
to close their church in Aberystwyth, Wales,
writes Liz Dodd.
The Vaticans intervention is the latest in a
long-running argument between the Diocese
of Menevia, which wants to demolish St
Winefrides Church, and parishioners who want
to refurbish it. The matter was brought to the
attention of the Vatican after a parishioner
appealed to the Congregation for Clergy against
the dioceses decision to close the church. But
the congregation ruled in favour of the Bishop
of Menevias argument that the church building
is unsafe and beyond repair. They said his deci-
sion was reasonable and just.
The Bishop of Menevia communicated the
decision in a pastoral letter to the parishes of
Aberystwyth and Aberaeron, in West Wales.
He said that he understood parishioners
reluctance to leave the building but promised
that they would be involved in the creation
of a new church.
I appeal to all parishioners that, for the
good of the Church and the parish, everyone
looks forward to a more positive future, he
said. He continued: It is a wrench to consider
leaving a much loved St Winefrides after so
long. But I am convinced that you will come
to love your new church [] You will make
it your own. That is right and just.
The decision came as members of the Save
Our St Winefrides Committee said they
planned to submit an alternative planning
application to Ceredigion Council.
Holy See backs plan to close church
4 May 2013
|
THE TABLET
|
31
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27
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ST STEPHENS HOUSE
An Anglican Theological College and Permanent
Private Hall of the University of Oxford
Appointment of Senior Tutor &
Tutor in New Testament Studies
St Stephens House seeks to appoint a
Senior Tutor & Tutor in New Testament Studies
from October 2013.
Closing date for applications: 10 May
Interview date: 21 May
A detailed job description and application form for
the post are available from
The College Secretary, St Stephens House
16 Marston Street, Oxford OX4 1JX
Tel: 01865 613500
Email: enquiries@ssho.ox.ac.uk
LEEDS CHURCH INSTITUTE
DIRECTOR
NJC POINT 42 to 46 - 35,430 to 38,961
We seek a person of vision to work with the Council and lead the staf team
in promoting the interpretation of the gospel for the city of Leeds.
As the Director you will be responsible for:
Managing the Institute including a small staf team and a
multi-purpose building
Developing the work with churches and other faith communities
through educating, training, resourcing and representing
Organising and promoting a programme of educational activities
Working in partnership with others, you will be committed to church
engagement in society, have management and training experience, have
knowledge of recent developments in relation to faith communities and so-
cial inclusion, have some theological training, be a member of a Christian
church and be committed to working ecumenically and with other faiths.
Te Church Institute is a leading Christian foundation in Leeds. It houses
a library, conference/training facility and a range of other organisations in
its newly-refurbished city centre building.
Closing date: 31 May 2013
Interviews: Tursday 27 June 2013 (this date cannot be changed)
For further details contact:
Te Administration & Finance Manager by email:
haydn@leedschurchinstitute.org
Classified 4 May.indd 31 30/04/2013 09:23
32
|
THE TABLET
|
4 May 2013
Volume 267 No. 8996 ISSN: 0039 8837
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31 December 2012 is 19,545
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CALENDAR
Sunday 5 May:
Sixth Sunday of Easter (Year C)
Monday 6 May:
Easter feria
Tuesday 7 May:
Easter feria
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Easter feria
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Sunday 12 May:
The Ascension of the Lord
18
9 770039 883202
For the Extraordinary Form calendar go to
www.lms.org.uk and look under Find a Mass
WALKING DOWN the
old cart lane and then on
to the fields, I was paying
so little attention to the
world that I almost
stepped on one of its miracles. What else could
you call the yellow wagtail?
Yes, other birds migrate across continents
to get here too, but then theyre built for jour-
neying. The swallow, swift and Arctic tern are
not only a perfection of aerodynamics, but
also they live most of the year on the wing,
virtually their entire lives in the case of the
swift; in contrast, their fellow voyager, the
yellow wagtail, spends the bulk of its life
walking on the ground.
Hunkering down, I watched the little bird
Glimpses of Eden
pottering around me. That long, fluttering
tail and dancers step, which makes it able
to dart under cattle hooves to snatch insects,
can surely only be a hindrance in crossing
oceans? Built for flying in field-sized
undulations, having just arrived from West
Africa no wonder hes so exhausted that he
cant even be bothered to get out of the way
of the human clodhopper. A voyage akin to
you or me crossing open seas in a public-park
rowing boat. At last the new arrival wandered
away to be joined by a pied wagtail. The black-
and-white plumage of the annual resident
deepens the gold of the light-coloured sum-
mer visitor so that the true miracle is
revealed: Africa has arrived.
Jonathan Tulloch
ROSE PRINCE
THE ETHICAL KITCHEN
Jam busters
WHEN THE British use the word jam in the
context of, say, a strawberry preserve, they mean
it. Immoveable, immortal, resolute jam; a boil-
ing of fruit and sugar that sets to a steadfast
jelly. To the British jam maker, all that
seems to matter is the set, wrote Nigel Slater
in Eating for England. We are obsessed with
getting the jam so stiff you could turn the jar
upside down and the contents stay put.
Quite that is my memory of the berry jams
of summers past, and not only is the fruit set
firmly in the sugar, the sugar content is set in
British law that is, if you want to write the
word jam on the pot. One cant help a slight
shrug. Thats the British for you: they have
offices of people who govern the content of
jam jars.
But all of this is to overuse a word set
to change. The Ministry of Jam (Department
for Environment, Food and Rural Affairs)
would like to lower the sugar content in jam,
which is if you are new to jam-making the
agent responsible for a firm set. The law says
jam is not jam unless it contains 60 per cent
sugar, and the intention is to lower this to 50
per cent.
Less sugar means a runnier jam, which is
also much better for us, says the ministry, con-
scious of the cost of the current obesity
epidemic in Britain. It will put our jams on
a par with continental fruit preserves, which
have a habit of falling disobediently off the
toast.
These jams are also fruitier; more delicious
to some, including myself and also Nigel Slater,
who likes the way French jams slide sexily
off the scone in a cream tea while our jams
are prim. To others they are a disgrace, and
possibly a health-and-safety issue, since less
sugar means moulds can grow. The latter part
I cant worry about. When we were children,
my mother would scoop mould off the sur-
face of jam before spreading it on our toast,
and I do the same. In fact I regard mould as
a good sign.
Lets scroll back a little to understand what
this is really all about, and that is the uncom-
fortable fact that for the bigger players in the
jam business, sugar costs less than fruit.
Increase the fruit content by 10 per cent per
pot and profitability is going to be a problem.
And I am fond of fruity jam. My mother
always made strawberry and raspberry jams
by macerating the fruit with the sugar (50:50
ratio) then giving them a quick boil. This makes
a swifter flowing jam, not the rush-hour, grid-
locked variety.
Do keep it in the fridge, and dont make
hundreds of pots just a few will see you
through.
Quick berry jam
Makes approximately 900g jam to fill two
average jam jars
450g strawberries or other berries
(raspberries, blackcurrants, tayberries etc.)
450g preserving sugar (or granulated with two
tablespoons pectin)
vanilla pod, split
Sterilise the jam jars with boiling water.
Put the berries in a bowl and cover with the
sugar (and pectin if using). Bury the vanilla
pod under the macerating fruit. Leave for
several hours or overnight (the fruit will
become mushy and liquid), then transfer to
a stainless-steel pan. Bring very slowly to the
boil then boil fast for 15 minutes. Transfer to
the jars, place a waxed paper disc on the
surface of the jam, then leave to (nearly) set.
Cover and store.
TABLETCare
INSIDE | Music therapy for the aged | Care decisions | Recording memories
A TABLET SUPPLEMENT ON ELDERLY LIVING CHOICES MAY 2013
4 May 2013
|
TABLET Care
|
s1
to the latter group, it has been possible to
build three state-of the-art care homes for
the former. Sr Mary Thomas is the woman
whose bold inspiration brought this mutually
supportive community about, and who
masterminds its continuing development.
A soft-spoken, gentle Irish nun, born into
the middle of a large Tipperary family in the
1940s, she has recently been awarded an MBE.
She had some idea that it might happen,
when Cardinal Cormac Murphy-OConnor
visited to say Mass. He told me I should get
something for all of this, but I said no, no. I
didnt want it. But now, well, its very nice,
not just for me but for the whole community.
I was pleasantly surprised by how everyone
the sisters obviously, but the staff, and
people living in the village, and the care
homes seemed to be delighted.
S
t Georges Park is strangely hard to
leave. High on the South Downs, near
the pretty village of Ditchling, it looks
like a clever childs drawing of an ideal
community. It has an almost magnetic allure.
Drive in, and you realise the scale of the
place. The sweeping grounds, with their
lakes, hills and peaceful farmland, resemble
the demesne of a stately home and, in a way,
thats what it is. But this is not a place for
tourists to visit, nor for landed gentry to
inhabit. It is designed and run for two
different kinds of people: the elderly who
need nursing care, and those for whom a
completely independent life has become just
a little too difficult, but who need
somewhere of their own to call home.
The really inspired thing is that by selling
long leases on comfortable, new apartments
So they should be. This is what honours
should be about, for Sr Thomas is a
remarkable story. Educated by the
Presentation Sisters, she had at first no
notion of becoming a nun. She took a job in
an electrical firm selling records and
televisions, but I found that the social scene
didnt appeal to me much. I got tired of it, and
I happened to say to a priest friend of ours, I
think Ill be a nun. He recommended the
Augustinians, so she went to try it out and
never looked back. Ive always enjoyed
looking after elderly people, she says. Its
stimulating work, and very rewarding. I like
whatever little difference you make to their
life, new ways to make sure that they are
given choices, and care, and dignity. And
that people have a voice: obviously, thats
paramount. Its very important to know
peoples background, what they like and,
more importantly, what they dont like.
She came to St Georges when she was 21
and trained first in mental nursing, and then
in general nursing. St Georges was very
different then, a huge institution built in the
1860s for the mentally ill. In those days, such
people were locked away: nobody had any
idea what went on in the big house on the
hill. Change came about gradually. At first
there were enough sisters to do everything:
the laundry, the cooking, the caring. But the
numbers began falling, until today there are
20, and no new vocations. Sr Thomas
explains this as not so much a rejection of
religion as a real change in society: Years ago,
a lot of people entered the priesthood and
the religious life. These days, young people
have so many options available to them:
university, travelling, seeing the world. And
often they give their time and energy for a
year or two, to good causes.
Gradually the sisters started employing
people, not just a gardener or a farmer, but
care assistants and nurses. And that led to
the formation of a management team. The
profile was changing, there were not so
many young residents, far more of the
elderly. The old building was not suited to
these new circumstances. More hoists were
needed, more lifts, more wheelchairs, and it
was not compatible with such changes: parts
were having to be closed down.
In the 1990s, Sr Thomas was appointed
superior. She held a meeting to decide what
was to be done. Should they give up, or
should they carry on in a different way? It
was very clear that the sisters wanted to
continue the work they were doing, to carry
A community of Augustinian nuns once ran a vast care home for the
mentally ill in East Sussex. Now their superior has been awarded the
MBE for transforming the home into a retirement village that can
provide a variety of types of accommodation and care for elderly
people. Sr Mary Thomas told Sue Gaisford how she did it
(Continued on page s2.)
Age of
independence
Sr Mary Thomas poses
behind the controls
of an earth mover at
St Georges Park
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on caring for people. So we began looking at
the land and seeing what could be done with
it. We had the space, 250 acres, but we didnt
have money to build new homes, even for the
people who already lived here. I think we also
felt that we just looked after the elderly, the
frail, the mentally ill at one level. Beyond
that, there were no facilities. So we invited
architects to come, and the concept of the
care village evolved.
This was the big moment. They decided to
offer facilities to more people. The enabling
development transpired, and we went
forward for planning permission to build the
apartments, then to sell the leaseholds, and
then to build the care homes. So, you sell,
then you build, then you sell again.
The idea is that you buy the apartment and
pay a service charge to cover the excellent
restaurant, the library, the shop, the gym,
the hairdresser, and the popular allotments
and a minibus to take you shopping, or to
the theatre or wherever you want to go. You
have security, and stability, but you also have
your freedom. The residents, like those in
the care homes, are funded partly privately,
partly by social services: there is no sense of
it being run solely for the well-heeled. The
oldest buildings are the convent itself, and
the chapel: Quite a few people come to daily
Mass there, and Mass is also celebrated in
the care homes, where people can receive
time goes by, they find that they like a bit of
company after all, and they begin to socialise.
Although you have to be 60-plus to buy an
apartment, and the 180 care-home residents
tend to be even older, there is no lack of
young people about the place. Not just staff,
but children. We have guest apartments, if
families want to stay there, rather than in
their relatives apartments. At weekends, or
in school holidays, there are loads of children
around. The grounds are very attractive,
which is a great advantage. They can take
their relatives out, walking or in a wheelchair;
they can feed the ducks, or go down to the
farm and see the animals. Weve all sorts
here not just sheep, ducks and rabbits but
alpacas, Highland cattle and water buffalo!
Or sometimes they just book a table in the
restaurant and have a day out. The car parks
are full all the time, every time of day.
Sr Thomas is a serene and welcoming
woman, but her energy is undimmed. She
has no thoughts of retirement, and she is
always planning. Last year, we bought these
special raised flower beds. A lot of people
love gardening, and this way they can grow
their own vegetables and flowers. And we
have loads of entertainments. Its good fun,
you know.
It certainly is. No wonder it feels hard to
leave.
ISue Gaisford is a freelance journalist.
Communion on a daily basis. A lot of people
come to us for that reason.
The order runs another care home at
Danehill, East Sussex, and another at Princes
Risborough, in Buckinghamshire. But the
real innovation is the village at St Georges.
We also have our own domiciliary care
agency, run by Sr Miriam. So if people inthe
apartments need assistance with cleaning,
help to get up in the morning or to go to the
restaurant they can stay on in the
apartments. And then, if they need respite
care, or are not feeling well, they have priority
to move into the care home, instead of
having to move off the site. And the husband,
or the wife, can stay on, and visit their
partner easily.
There are no aggressive security barriers,
and the top gate is always open, but there is
a concierge 24 hours a day, based in the
central Maes Court named after the Rev.
Canon Peter John Maes who founded the
Augustinian Order in Bruges, Belgium, in
1842 and devoted his life to caring for the
mentally ill and available if anyone needs
help in the night. The real security is the
comfort of being looked after, in familiar
surroundings. We discussed the fact that
fewer people nowadays are taken in by their
own families, but as Sr Thomas points out,
there is another side to this: Sometimes
people come in, and the family tells us that
they want to be on their own, but often, as
(Continued from page s1.)
M
uriel, 79, listens earnestly when you
ask her questions. Do you live with
your daughter Elizabeth? Yes.
Elizabeth, wearing a pained smile,
intervenes: No, mum.
How many children do you have? Four
or five. Elizabeth clears the matter up: Four.
And how old are you? Umm
Mother and daughter sit in a circle of
bucket chairs in a church hall in St Albans,
attending a session of Singing for the Brain,
a music therapy-style group run by the
Alzheimers Society. Here people with the
condition and their carers can come for an
hour a week to take part and get a break.
The groups leader, Jill Dean, takes the group
of around 30 through vocal exercises, basic
physical exercises and feel-good old
favourites such as Gracie Fields Sing As We
Go. During Singing in the Rain, Dean
reaches out a hand to a woman who is
staring vacantly; she elegantly gets up and
they ballroom-dance the whole number.
Once that ends, the woman carries on
dancing by herself.
Its the highlight of the week, explains
Elizabeth, a mother of three who works as
cabin crew for an airline. Mum didnt like to
come out but for this shell have a bath, get
dressed and put lipstick on. Muriels
primary carer, her husband, died six days
before we met, yet Elizabeth still prioritised
attending the session. Its nice to have
something positive to share with Mum. In
the rest of the illness I struggle to see
anything positive. Since coming here, weve
started singing more at home even
Twinkle, Twinkle, Little Star. Its
therapeutic for everyone. That includes
Elizabeth, her brother and godmother who
all help look after Muriel and argue over
whose turn it is to bring her to the sessions.
I ask Elizabeth what work Muriel used to
do. She got an MBE, later a CBE, for
political and public services, Muriel pipes
up unprompted: The Queen was so nice.
Dean says Singing for the Brain is
designed for people with dementia and their
carers, and aims to boost the confidence of
both: people with dementia, frequently
needing help with the most basic of tasks,
Tunes that
strike a deeper
chord
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find at the session something they can join
in with, and carers see the person (often a
much-loved spouse or a parent) singing all
the words to a song and glimpse them
becoming if temporarily more engaged
with those around them.
Dean points out a woman in a wheelchair
who arrived with a look of panic on her face,
and while the singing goes on around her,
visibly relaxes and joins in. We notice that
people who turn up reluctant to be here
leave in a happier mood, even if theyve
forgotten the session by the time theyre
helped into their car. Most at the session are
over the age of 75 but at least three in the
group are in their late fifties. The Alzheimers
Society says there are 800,000 people with
dementia in the UK (62 per cent with
Alzheimers, 17 per cent with vascular
dementia, and the rest with other forms).
The charity believes one in three people over
65 will develop some form of dementia, which
is a broad term that covers damage to
cognitive ability, normally through disease
or injury.
Since its pilot session in 2003, there are
now about 200 Singing for the Brain
sessions across the country. But the St
Albans group has a waiting list of nearly a
year 17 people and their carers and Dean
admits that nationally, availability of the
groups is hit and miss, largely because the
Alzheimers Society sometimes has to secure
funding from the local authority and the
local NHS. The Governments 2009
dementia strategy noted that the provision
of therapeutic activities within care homes,
such as art therapy, music therapy or drama
therapy, may have a useful role in enabling
a good-quality social environment and the
possibility for self-expression.
One music therapy charity that doesnt
receive government money is Lost Chord,
which exists on grants from organisations
such as the National Lottery, the Esme
Fairbairn Foundation and the Rank
Foundation, and members of the public
donating, sometimes through sponsored
events. In addition, the 130 residential
homes in which it performs make a small
contribution to the charity, or if the session
takes places in a day centre, the Alzheimers
Society will contribute.
Lost Chord pays professional musicians to
give one-hour classical concerts, and
founder Helen Muller says the experience is
often an eye-opener for the performers. I
insist that singers move round their audience
and hold their hands, or that violinists get
down on their knees and serenade them.
The effect, she says, is magical. But, she says,
its not just the people with dementia who
benefit. It really helps the musicians with
their ability to communicate with people,
especially one-to-one. And as a result of
their involvement, some have gone on to
train in music therapy.
When I went to a Lost Chord session at a
care home in Isleworth, west London,
residents went from being subdued to
animated and even raucous. Soprano Jo
McGahon glided from Carmen to musicals
to wartime songs, holding residents hands
and making determined eye contact with
them. As she did so, those who were
hunched over looked up, drooped lips
smiled, feet tapped, hands clapped, some
residents swayed in time and others even
took to the floor to dance, albeit getting
assistance to be able to stand.
Thus far, there hasnt been much research
into why music therapy helps people with
dementia and therefore how to use it in the
most effective way or broaden its availability.
According to Andrea Halpern, visiting
professor of psychology at Queen Mary and
Goldsmiths, University of London, most of
the findings are anecdotal or experiential
research by music therapists rather than
scientific studies.
However, in Halperns work among
people with early-stage Alzheimers she has
noticed some patterns, such as peoples
moods improving even with very simple
tunes. She adds: Theres evidence that
deterioration of memory scores, language
scores, visual-spatial puzzles, these arent
needed for a sense of aesthetic appreciation.
Music can lift anyones mood, but for dementia patients it is
often transformative. Thats why charities are sending
singers into church halls and care homes. Abigail Frymann
has been to see music therapy in action
(Continued on page s4.)
At a session of Lost Chord, feet tapped
and hands clapped
needed for a sense of aesthetic appreciation.
The neuro-circuits that process emotional
response seem to be less vulnerable in
Alzheimers.
Halpern has done research into artistic
appreciation as well, and found that people
would rank objects in the same order of
preference two weeks apart even if they
have no conserved memory of having seen
them before. However, if she played
melodies to them and five minutes later
played some different ones, they wouldnt be
able to say which ones they had just heard.
In his 2007 book on music and neurology,
Musicophilia, neurologist Oliver Sacks
wrote that the aim of music therapy in people
with dementia is to bring to the fore the
emotions, cognitive powers, thoughts and
memories, the surviving self of the patient.
Professor Sacks, who also wrote
Awakenings, which became the inspiration
for the 1990 film, noted: Musical perception,
musical sensibility, musical emotion and
musical memory can survive long after other
forms of memory have disappeared. During
music therapy, torpid patients become alert
and aware; agitated ones become calmer.
Music, he said, can have a power beyond
anything else to restore them to themselves
and to others, at least for a while. Sacks then
goes on to give astonishing case studies of
musically gifted patients who had lost their
short-term memory and yet could still
remember songs or difficult piano pieces,
and who looked more present when they
sang or played.
Back in St Albans, Dean explains how,
after 25 years as a BBC producer, she took a
course in music therapy with the Nordoff
Robbins charity so she could use her singing
to help people with impaired memory. Her
father was reading Musicophilia and told
her: If I ever lose it, sing to me.
Some names in this article have been changed.
For more information, visit
alzheimers.org.uk/singingforthebrain, and
www.lost-chord.org.uk
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(Continued from page s3.)
R
esidential care for older people in the
UK is neither the most popular nor
the best-known of public services.
There was a rare example in February when
residential care edged into the headlines and
public consciousness for a few days with the
Coalition Governments announcement
concerning changes to the amount that
individuals are required to contribute to
their care. It proposes that, from 2015, the
means-tested threshold above which people
have to pay for their own social care will be
raised from 23,250 to 123,000, while a
new cap of 75,000 will be established on
how much would have to be paid over
anyones lifetime. But, for the most part,
when care homes are in the news, it is about
poor and even cruel treatment.
To this should be added the potential for
instability highlighted in 2011 when
Southern Cross then the largest private
provider of residential care for older
people collapsed as its complex but not
unusual financial arrangements unravelled.
Such stories augur ill for the certainty to
which people are entitled in old age. They
also seem to bolster popular and media
prejudice about hoping never to have to go
into an old peoples home.
For 30 years, politicians have watched the
residential sector change beyond recognition,
as local authorities have progressively
withdrawn from providing homes in favour
of purchasing that care from small
care-home owners, large private companies
and charities. Parallel to this, the real thrust
of preferred policy has been that, where
Care home or home care?
The conventional wisdom is that
elderly people who need care are
better off getting it in their own
homes. But Terry Philpot, an
expert on social care, says the
evidence suggests otherwise
possible, older people should be given
support in their own homes through
domiciliary care. Again, local authorities
play an increasingly small part in such
provision, turning here, too, mainly to the
private sector. This emphasis on care in ones
own home in old age also fuels the assumption
that the alternative is to be avoided at all costs.
One of the myths about residential care is
that the supposed breakdown of the family
unit, social mobility and a general loss of
community have consigned many older
people to care homes when in the past they
would have been living with their families.
In fact, the number of older people in some
kind of institutional care has been consistent
for decades: today, 4 per cent of the older
population live in long-term residential care,
a proportion roughly the same as that of
older people living in workhouses in 1892.
But who enters a care home and when
have changed. People enter at a later age
with the time of their stay falling to an
average of three years and they are far
more dependent than in the past. Half of
people with dementia are in care homes and
80 per cent of residents have dementia. A
survey of homes run by Bupa, carried out in
2011 by the Centre for Policy on Ageing,
showed that 90 per cent of residents had
high support needs, 70 per cent suffered
from incontinence and nearly half (47.6 per
cent) had severe mobility problems.
Such residential care is attractive to many,
as shown by the numbers who choose to pay
for their own care. These so-called
self-funders amounted to 43.4 per cent
(175,000 residents) paying the full costs of
their long-term care fees in 2012. But
another 14 per cent (56,000), while being
supported by councils, relied on top-ups
from family or friends. Thus, 231,000 older
residents choose to pay in full or in part from
their own or their families resources for
something that local authorities deny them.
In 1980, local authorities provided 63 per
cent of care-home places and the private
sector 17 per cent. By 2002, the positions had
been reversed and the gap widened. While
nearly half the market is composed of small
care-home owners, the largest 10 providers
have 20 per cent of that market and the
largest 20 have 28 per cent. These providers
are overwhelmingly very large private
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companies that have got larger by takeover
and merger. Beside them, even the largest
charities Anchor Trust and St John of God
lag behind in terms of both the numbers of
beds and homes, and market share.
Three decades of change have also
affected domiciliary care. There are 5,400
home-care agencies in England and Wales,
overwhelmingly in the private sector, in a
market worth 5.5 billion a year.
Domiciliary care is often perceived as the
preferable option to residential care, one
that ensures the recipient has a full and
active life. While this is undoubtedly true
for some, many people receiving this kind of
care are also severely disabled. Gone are the
days when domiciliary care staff could
provide companionship, as well as practical
assistance. What we have now is time-sheet
care: domiciliary care assistants are
allocated often tight time slots to carry out
their tasks before moving on to their next
job. Someone woken for bathing, dressing
and breakfast at 8 a.m. may have an hour
with a carer and not see another person
until that worker returns at 6 p.m. to
prepare an evening meal and put them to
bed. This leaves too many older people on
their own for most of the day. But anyway,
many of them do not even qualify for this
help because councils have progressively
raised the thresholds at which they become
eligible.
Domiciliary care also has its own
instabilities. This was illustrated last
February when 81-year-old Gloria Foster was
left at home in Surrey without medication,
food or water for nine days and later died in
hospital. Carefirst24, her care provider, was
shut down after a raid by the UK Border
Agency and she slipped through any safety
net that Surrey County Council might have
had in place. Yet local authorities actively
discourage residential care. What they are
prepared to pay to providers in fees is
notoriously low: on average, councils in
England paid 480 per week for residential
care in 2012/13, plus nursing-care fees of
about 150 a week. These rates are so low
that they threaten the livelihood of the small
businesses that make up 48 per cent of the
market. Independent research has found,
too, that average weekly fees are not enough
to meet the standards of care laid down by
the regulator, the Care Quality Commission.
This would not pay for a bed for a week in
most budget hotels.
Despite the billions spent by local
authorities keeping people in their own
homes, the results of domiciliary care,
according to Oxford Brookes Universitys
Institute of Public Care, are not easy to
define or, as it puts it, home care is poorly
served by evaluation of impact. Ironically,
for all successive governments talk of
choice for those who use social care, direct
payments money paid directly by local
councils to those who use their services so
that they can purchase their own care
cannot at present be used to pay for
residential care. But such payments can be
used to pay for domiciliary care.
For those who require it, the best
residential home offers companionship,
meals, accommodation, activities,
stimulation and care on tap, 24 hours a day.
So why is residential care viewed so
negatively when all kinds of positive but
often unrealistic expectations are placed on
domiciliary care? Des Kelly, director of the
National Care Forum, the umbrella group
for care homes run by charities, says: We
have set up a kind of false dichotomy. We
have put forward the idea of residential care
bad; care in the community good.
Whereas I see residential care as a part of
community care, providing support to
people when they need it.
Residential care for older people faces a
lack of public appreciation, media
indifference,insufficient funding, growing
demand and escalating costs, government
cuts, and the active hostility of too many
local councils. And behind this lies the
welfare of some of the countrys most
vulnerable citizens.
ITerry Philpot is the author or editor of
more than a dozen books on social care.
G
et me out of here,my mother would
often plead during her last
three-month stay in hospital. It
washer second stint during the past 12 months.
This time she went in with a chest infection and
mobility problems. At times, we wondered if she
would ever come out, writes Paul Donovan.
While in hospital she caught norovirus as well
as other infections. Then early this year when
she was due to come home, there was another
infection linked to a gall-bladder problem. In
February, Mum came out of hospital unable to
walk. It has been a steady progression downhill
over recent years. Just 18 months ago she was
reasonably self-sufficient, able to get up and
down the stairs and look after herself. Mums
health experience has almost been the opposite
of Dads: he died in 2008, after years of
dementia, and spent the last two and a half
years of his life in homes, getting specialist care.
Mentally, Mum is bright as a button, but
physically it is as though everything is shutting
down. For the rest of the family it is difficult to
know whether mental or physical deterioration
is worse. The physical problems cause Mum
incredible frustration. She has a glass
half-empty approach and does not cherish her
truly remarkable memory. A passionate
historian, at the age of 88 she can still recall dates,
places, battles and people from past centuries.
However, her physical decline has tended to
dominate her thoughts. She has lost most of her
sight and hearing in recent years. One of the big
loves of her life has been reading, so the loss of
sight remains particularly acute. Her legs are shot
through with arthritis which makes movement
difficult. She suffers from incontinence, another
annoyance for a proud lady.
Mums ability to do the most basic tasks has
reduced. When a little while ago she could make
a cup of tea and some food and put herself to
bed, now she is reduced to being hoisted from
her chair Eventually she will need 24-hour care
either at home or in a residential home.
All of these changes have meant buying in
more and more care. With Dad, the battle when
he was in residential care was to ensure he was
being treated properly, not drugged or
exploited. For Mum it has been about bringing
care into the home. This began three years ago,
with a carer coming in each morning to get her
up. She helped Mum wash, fixed breakfast, did
the washing and helped set up the day. Mum
established a good relationship with the carer
and all went well for a couple of years. However,
as Mums physical condition deteriorated, more
care was needed. When she came out after her
first stay in hospital last year, the care visits were
increased, so that a carer came in during the
afternoon and at night to help her get to bed.
As the care requirement expanded, so the
care company seemed to provide ever
less-competent staff. I spoke to one new carer
about what she did before and she explained
that two weeks earlier she had been working as
a PA. The trainingshe had received was to go
out with one of the experienced carers a couple
of times and then she was off on her own. Care
requirements of course vary, from on the one
hand getting the shopping for an elderly person
to the whole personal-care requirements of
washing, feeding and so on. The qualifications
of many carers are lacking and the regulation is
virtually non-existent. The whole experience has
taught me that commerce and care simply
cannot mix. The latest care company provides
eight carers a day, coming in four times in pairs
to see to Mums needs.
I have spent more and more time looking
after Mum. My own life has become subsumed
by the caring role. I am still managing to keep all
the different balls in the air, but around a million
people in this country have given up careers in
order to care for relatives.
Mum sees her life as going into an
ever-darker tunnel with more illnesses, more
hospital stays and eventually the end. What is
making this situation much worse for her and
her children are the shortcomings in the care
services. The danger is that the state, in seeking
to make savings across the sector, will end up
leavingthe care role increasingly to the
unsupported family of the elderly person. While
no one should resent caring for a parent who,
after all, once cared for them it would be
negligent to deny to carers the support that
they need to keep their own mind, body and
financial well-being together.
IPaul Donovan is a freelance journalist.
As the care requirement expanded, so the care
company seemed to provide ever less-competent staff
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I
have just spent three years in the
company of some of the most remarkable
people in Britain. Often they are treated
by society with indifference or even
contempt all the more appalling since they,
along with their rare human qualities, are
rapidly passing from us.
I got close to a large number of them as
part of a quest to document the experiences
of the last survivors of the generation who
served Britain during the Second World
War. Far from the jaundiced stereotype often
projected by society, my encounters yielded a
life-affirming picture of the rare and mostly
unsung qualities of the oldest generation of
British people. More than 100 of them
reminisced about their experiences,
achievements, aspirations and
disappointments for a new book as the close
of their very long lives draws near.
It is astonishing to think that those who
had direct involvement with the 1939-45
conflict will soon be gone. Many of them are
quiet heroes and heroines, but the signature
modesty of their generation would forbid
them from ever proclaiming it. These
wartime survivors are at least octogenarians,
and, if they were serving adults in 1939-45,
are now well into their nineties. Soon those
who are left will be dead, and their
memories departed with them.
Great old age makes this generation rare
All their
yesterdays
in another sense, too. In his book The View
in Winter, Ronald Blythe remarks that if the
folk of Renaissance or Georgian times could
return they would be as astonished by the
number of old people in Britain as they
would by a television. In those times, not many generations ago, wrote Blythe, it was
the exception to go grey, to reach the
menopause, to retire, to become senile and
to acquire that subtle blend of voice, skin
and behavioural changes which features so
largely in our long-lived times.
Long-lived and in the case of many of
my interviewees vibrant and full of energy,
too. Among those I met, there was also
seemingly little resentment of a society that
no longer venerates the old. When I went to
see 88-year-old Richard, one of the most
distinguished railwaymen of his generation,
he met me at the station in his own car and
cooked me lunch in his neatly kept house
with well-trimmed lawns while we talked
without sentimentality about how he helped
keep the trains running during the Blitz. Yes,
his wife had died and, no, his children did
not live nearby. But he was proud of his
independence, and if he was lonely, dignity
would not permit him to let on.
Then there was Reg, 89, a former
engineer, who had witnessed the bombing of
Coventry from his back garden in 1941
before heading out fearlessly the next
morning to help get the city moving again.
He was now confined to his small modern
house on the outskirts of a Midlands new
town, where I suspect too few people
dropped by. But he still kept up with
developments in his industry and ever the
engineer delighted in showing off the
intricacies of his stair lift.
Housebound, too, was Kathleen, who still
lived in her girlhood home near
Stratford-upon-Avon. Now at 88 almost
totally blind, with her only relative more
than 100 miles away and seriously ill
himself, she could still giggle about her
The generation that
experienced the Second
World War is fast
slipping away. Here
Michael Williams, who
gathered their
memories for a new
book, pays tribute to the
remarkable men and
women he interviewed
Women cleaners at an engine shed on the
LNER during the Second World War.
Many of those who served in the war are
now well into their nineties
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wartime role as the first woman porter on
the railways in a world dominated by men.
For some, mental frailty meant the shutters
were coming down on what remained of
memory. But when you talk to Mum, you
might be surprised at what comes back, the
daughter of 92-year-old Audrey told me.
And sure enough, recollections of fearless
years as a wartime nurse came tumbling out
with astonishing vividness.
One of youngest I interviewed 82-year-old
Alf Norris defied every stereotype of the
elderly. As a boy, he was the last to be pulled
alive from the scene of the worst single
civilian disaster of the war, in which 173 died
in a crush on the steps to Bethnal Green
Tube station on 3 March 1943. He wept as
he told me the story, as vivid now as it was to
him 70 years ago. But there was no self-pity
here Alf was busy campaigning for the
erection of a memorial to the victims, and he
wasnt going to let go until it was built.
Yet people such as Alf often fail to get the
honour they deserve. Maybe this is because,
as Blythe remarks, unable to love the old,
we approach them via sentiment, duty and
an eye to our own eventual decline. We care
for them without real interest and believe
they must be unhappy because we would not
be happy to be old. Yet, contrary to the
stereotype of grumpy old men and women, a
major survey of 10,000 people carried out by
Warwick University in 2012 found that we
actually get happier when we get older,
despite a decrease in our physical abilities.
One of the happiest I encountered was
92-year-old Dick Sheen. Having trouble
locating a Dunkirk survivor, I approached
the Forces charities in vain. One breezy PR
woman told me Oh, the Dunkirk lot packed
up long ago. Then a BBC colleague
remembered Dick, a retired printer from
west Wales, who had just published his own
book of Dunkirk memories, travelling the
hundreds of miles to his old stamping
ground at Dover in the process, not seeming
to have paused for breath in a life of more
than nine decades.
I
n the course of their marriage, Alice Holt
would talk to her husband, Ken, about her
experience of the Second World War and her
terror of air raids, writes Polly Kaiser. She would
describe how she would often stay dressed at
night in case she had to make a quick dash to
the air-raid shelter. When, in later life, she
developed dementia, these fears came back
with a vengeance. When she went to live in a
care home, she would often insist on remaining
dressed at night and ready for the air-raid siren.
But her husband had alerted the care-home
staff of what to expect because he gave them
an account of Alices life including her experience
of the war and her night-time fears. If they
hadnt known the history, the staff might have
prescribed unnecessary tranquilisers to calm
Alice down.
This experience gave Ken Holt an insight:
stories can have a therapeutic value for us when
they give us an insight into ourselves, our
hopes, our fears and our dreams and we can
communicate this to others. Of course we have
been doing this for aeons. We have been
putting our prized memories into photograph
albums, or today we continue to do this using
CDs, DVDs or Facebook. But stories need to be
heard as well as told.
There is increasing evidence that we are not
alert to some of the most pressing needs of
older people. Recent reports, such as the Francis
Report into the shortcomings in care
experienced by older patients of the Mid
Staffordshire NHS Foundation Trust, illustrate
this all too shockingly. In her 2011 Care and
Compassionreport, Anne Abrahams, former
Health Service Ombudsman for England, reported
that there were twice as many complaints
regarding older people than there were for the
other care groups put together. According to
Abrahams, staff focused too much on clinical
conditions and too little on the person. Above
all, care for older people should be shaped not
just by their illness, but by the wider context of
their lives and relationships,she wrote.
About 800,000 people in the UK have
dementia and this number is expected to
double in the next 30 years. The Alzheimers
Society estimates that 21 million of us in the UK
know someone with dementia. This is an illness
that impairs our cognitive abilities, not just our
memory, and can gradually erode our sense of
self-esteem. In its later stages, dementia may
make it difficult for us to make sense of
ourselves and our surroundings. Ken Holts
experience with Alice brought home to him
how telling our life stories can help.
In 2004, Mr Holt and others formed an
experimental local life story network in Oldham
to promote the use of life stories in care settings.
Five years later, at a conference in York, he
shared his vision for a national network to
promote this approach. The challenge was
grasped and Mr Holt lived to see the National
Life Story Network (LSN) launched in Leeds in
2010. This is a now a network of 900 individuals
and organisations dedicated to gathering and
sharing the life stories of residents in care
homes, older hospital patients or any other an
older person being cared for in the community.
As part of its National Dementia Strategy
workforce plan, the Department of Health
launched a national training project developed
by LSN. Entitled Your Story Matters (YSM), the
programme trained 500 individuals in life story
work across the country. Demand far
outstripped the supply of places, which could
have been filled four times over. The
programme focuses on building rapport as the
basis for compassionate care, urging
participants to engage in a different quality of
conversation, one that can promote human
rights. It encourages carers to seek out
opportunities for an older person to relate their
story in the course of their everyday care.
According to Michelle Hacking of the
Pennine Care NHS Foundation Trust, hospital
patients have benefited hugely from the hours
spent interacting on their expert subject their
life story.Her proof? Their joy, their smiles
and their animation, when they can tell their
stories.The success of our approach is
evidenced by more trusts and organisations
commissioning our programmes. Although the
LSNs rapid development is grounded in our
work with people with dementia, it can be
applied across many settings and ages.
Not satisfied with merely anecdotal evidence,
the LSN is working with the Social Policy
Research Unit at York University as part of a
national research programme on the benefits of
life story work. We were heartened, moreover,
by this tribute given by Baroness Sally
Greengross, at the YSM celebration in the House
of Lords in November 2012: Life goes on full of
value because we understand what peoples
lives are, have been and still will be.
IPolly Kaiser is a consultant clinical
psychologist for older people in Pennine
Care NHS Foundation Trust. For more
information about the Life Story Network,
visit www.lifestorynetwork.org.uk
But this is not to pretend everyone was
full of relish. Michael, a retired solicitor, had
spent a lifetime of spare moments
cataloguing an archive of books and
documents. It was a magnificent collection,
much consulted by historians. But it had
brought him sadness, too, since his
grown-up sons were not interested, and he
planned to dispose of it bit by bit. You cant
even trust libraries to care for whole
collections these days, he told me. Better
for me to sell individual items before I die.
At least I know their value.
But this was an exception. I came away
from my journey into the country of old age,
not dispirited, but with a sense of wonder
and humility the closing words of
Shakespeares King Lear ringing in my ears:
We that are young shall never see so much.
ISteaming to Victory: how Britains railways
won the war by Michael Williams is published
by Preface Publishing, a division of Random
House, on 13 May (25).
Care for older people
should be shaped not just
by their illness, but by the
wider context of their lives
and relationships
Michelle Hacking (left) with the Life Story
Network team at the House of Lords
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