#CPHC Twitter Chat 1/15/13 Guest Regina Holliday NatriceR @ReginaHolliday Hi Regina sounds li!e u r "usy today###loo!

o!ing $orward to your %oint o$ &iew today##at 1 %' (T## #c%hc ReginaHolliday @NatriceR there are &ery $ew days that ) a' not "usy *+ #c%hc NatriceR ,uestions a"out %atient rights ad&ocacy %atient in$or'ation- co'e tal! to @reginaholliday now##welco'e to you all #c%hc Gail.aht/ 0ust %osted 'y than! you to @ReginaHolliday 1nd now we will hear $ro' her at #c%hc Post is htt%*//t#co/&$wu23Re ReginaHolliday @Gail.aht/ Great %ost4 ) lo&e you &oice so honest and clear# #c%hc Gail.aht/ @ReginaHolliday oh than!s####$elt li!e when ) see you %aint a'a/ing it got done in the 'idst o$ chaos4 #C%hc Gail.aht/ @ReginaHolliday 3ou %aint with a "rutal honesty too5 how is it $or you integrating so 'any other %eo%le6s stories- #C%hc ReginaHolliday @NatriceR did you get a chance to wear your 7ac!et- #c%hc NatriceR ) did i too! 'y o%%ortunity as not 'any ha%%en in Ti''ins*+RT @ReginaHolliday* @NatriceR did you get a chance to wear your 7ac!et- #c%hc NatriceR ) wore it to a 'tg locally %%l ad&ocating $or "etter world a"le to tell a $ew a"out 'y %ersonal story and yr a'a/ing art wor! #c%hc ReginaHolliday @NatriceR that is great4 8ne o$ the "est lectures ) ga&e was on the "us in $ront o$ a lot o$ 9C co''uters #c%hc NatriceR @Gail.aht/ @ReginaHolliday #c%hc ) a' a %roud 'e'"er o$ the #wal!inggallery 5 a %atient ad&ocate caregi&er with $lair:+ Gail.aht/ ;hew "arely online# 0ust %osted on @ReginaHolliday at htt%*//t#co/<1nNRT=> to read #c%hc Gail.aht/ @the"owtieguy ) see you there 5 will you share so'e o$ your story too- #C%hc Gail.aht/ @NatriceR ) was 7ust ad&ocating to another 'other in the genetics o$$ice at 1'%lat/ here :5+ #C%hc Gail.aht/ @C?later29 8ne o$ our $a&orite docs4 Ha&e you seen @reginaholliday "e$ore - #C%hc C?later29 @Gail.aht/ @reginaholliday not in %erons ha&e ad'ired $ro' a$ar #c%hc C?later29 @C?later29 ooo%s %erson4 #c%hc ReginaHolliday @C?later29 ) ha&e en7oyed reading your tweets @Gail.aht/ #c%hc C?later29 @ReginaHolliday $lattered4 T3 i a' relati&ely green at tweeting "ut got ad&ice to "e @real@ $ro' a 'utual $riend# #c%hc

ReginaHolliday @C?later29 in art and in tweets "eing real is the !ey# #c%hc Gail.aht/ @NatriceR agree4 Aeing honest essential4 #C%hc nurse$riendly <8< 'id day chats are always interesting # # #c%hc Gail.aht/ @nurse$riendly what is interesting too a"out 'id5day a doctor Bhus"and+ said recently5 we say @this is wor! too and this 'atters@ #C%hc Gail.aht/ @ReginaHolliday The conce%t $ro' the start with @cslater'd and @%$anderson etc was integrating i'%ortant con&ersation within the day #C%hc nurse$riendly @Gail.aht/ 2id59ay chats are usually Hit or 2iss de%ending on wor! schedules and li&es# 8$ten >east or >a'ine# #c%hc Gail.aht/ <i$e is %retty hit or 'iss# There is no $or'ula $or health chats any 'ore than real li$e4 #C%hc NatriceR @nurse$riendly at least i$ "usy anyone can chec! u% on the $eed later in the day and toss their ideas into the car%ool*+ #c%hc Gail.aht/ ) lo&e this 'id5day chat and our %ro&ing you can $it li$e and i'%ortant change in together4 ) a' ty%ing $ro' hos%ital with !ids# #c%hc nurse$riendly 2a!es 'e glad with #Car%ool #Healthcare #Chat we ha&e the channel o%en CD/E *+ with $oru's to "oot *+ #c%hc NatriceR @nurse$riendly 'ost chats teach &olu'es## #c%hc nurse$riendly 3es they do *+ RT @NatriceR* @nurse$riendly 'ost chats teach &olu'es## #c%hc nurse$riendly 3ou can $ind us 7oin us chat co''ent on Google F htt%s*//t#co/<e'G;E2H #c%hc nurse$riendly 3ou can $ind us 7oin us chat co''ent on #>ace"oo! htt%s*//t#co/aIwAC,C' #c%hc Gail.aht/ @nurse$riendly Than! you so 'uch $or %ointing out so'e o$ the CD/E outlets too4 3ou ha&e de$initely "een using the'5 so glad4 #c%hc nurse$riendly @Gail.aht/ ;e need to let %eo%le !now what is out there how to get in touch as! Juestions *+ #c%hc ?hy9iDE @nurse$riendly co''unication is &ital in h/care we need to co''unicate e$$ecti&ely #C%hc C?later29 agree in 1<< 'edia $ace C $ace K techRT @?hy9iDE* @nurse$riendly co''unication is &ital in h/care we need to co''unicate e$$ecti&ely #c%hc nurse$riendly Need to "ut don6t o$ten *B RT @?hy9iDE* @nurse$riendly co''unication is &ital in h/care we need to co''unicate e$$ecti&ely #c%hc ?hy9iDE ;e are the eyes K ears o$ our %atients# #C%hc nurse$riendly ;e see the 'ost listen the 'ost at the "edside# RT @?hy9iDE* ;e are the eyes K ears o$ our %atients# #c%hc ReginaHolliday @Gail.aht/ %ainting a"out a'a/ing %eo%le is so hel%$ul to us all# )t hel%s s%read their story and when ) s%ea! ) can share their tale #c%hc

C?later29 @ReginaHolliday i loo! at the 7ac!ets and i'agine the story they %ortray###"eauti$ul #c%hc ReginaHolliday @C?later29 "eauty and tragedy co'"ined 7ust li!e li$e# #c%hc Gail.aht/ @ReginaHolliday ?o true a"out "eauty and tragedy co'"ined in li$e# 3our 7ac!ets ena"le %eo%le to acce%t all o$ "oth# #c%hc C?later29 @ReginaHolliday "ut ) see the 7ac!ets as ho%e and resolution#####"eauty $ro' the %ain# 'ay"e not the intention- #c%hc NatriceR ) agreeRT @C?later29* @ReginaHolliday "ut ) see the 7ac!ets as ho%e and resolution#####"eauty $ro' the %ain# 'ay"e not the intention- #c%hc Gail.aht/ @C?later29 )n 'y eL%erience 'a!ing the "eauty $ro' the %ain is essential to 2a!ing )t 2atter4 #c%hc ReginaHolliday @C?later29 well ) see our li$e as a constant that contains "oth "eauty and %ain the story doesn6t really e&er end# #c%hc C?later29 @ReginaHolliday good %oint actually 'y son %ointed that sa'e senti'ent out to 'e yesterday# 'outh o$ "a"es #c%hc nic!dawson @ReginaHolliday thats lot li!e %lurality theory* we o$ten hold two o%%osing things at the sa'e ti'e# Iery hard $or 'ost to ac!nowledge #c%hc Gail.aht/ @nic!dawson )t was the hardest %art $or 'e when ) got 'y 7ac!et $ro' @reginaholliday the %lurality5 tried to touch on it today# #c%hc nic!dawson )dea o$ %ain and ha%%iness or su$$ering and relie$ at the sa'e ti'e in $act MisM %lurality theory and is co''on healthcare settings #c%hc Gail.aht/ @nic!dawson )$ this idea o$ %ain and ha%%iness etc is so co''on in healthcare5 why don6t 'ore %eo%le tal! a"out it- #c%hc nic!dawson @Gail.aht/ why donNOPt we tal! a"out any o$ this stu$$- ?o'ehow all the hu'an %arts o$ healthcare are ta"oo #CPHC ReginaHolliday @nic!dawson ) wonder i$ one can wor! in this s%ace and still "e whole without the a"ility to e'"race "oth #c%hc nic!dawson @ReginaHolliday %ower$ul Juestion# 2a!es 'e wonder how 'uch caregi&er "urnout is due to $ailure to e'"race "oth- wow4 #CPHC Gail.aht/ @nic!dawson 3et the &ery thing @reginaholliday and 'any o$ us are ad&ocating $or is the hu'an %arts# How can we do that "etter- #c%hc ?hy9iDE @Gail.aht/ %eo%le don6t want to discuss and they %re$er or choose not to !inda li!e su%%ression #C%hc ReginaHolliday @nic!dawson @Gail.aht/ ) thin! it goes "ac! to e'"race o$ hard science o&er the 'essy world o$ our so$t hu'an $lesh and $eelings# #c%hc nic!dawson 1 not great "ut %assa"le wi!i%edia %ost on %luralis'* htt%*//t#co/<I?1"1=J #c%hc ?hy9iDE Aoundaries also need to "e i'%le'ented &/i'%ortant or else u can see yoursel$ "urning out and $ull o$ #anLiety# #C%hc nic!dawson@?hy9iDE had a co5wor!er who used to 7o!ingly %oint out* @tal!ing a"out death doesn6t 'ean we are going to dro% dead###@ #c%hc

nurse$riendly @nic!dawson No%e tal!ing a"out #9eath #9ying #9isease does let us %rocess our thoughts e'otions 'a!e %eace with the'# #c%hc C?later29 ?adly easier to not "ring it u% when %ressed $or ti'e K sJuee/ed $or %roducti&ity @Practical;isdo'@nic!dawson@ReginaHolliday %ower$ul #c%hc ReginaHolliday @nic!dawson Google i'age search in this s%ace and loo! at all the s'iling %hotos and all the sad %eo%le inside can6t always s'ile# #c%hc Gail.aht/ @nic!dawson Close to cogniti&e dissitance- #c%hc nic!dawson @C?later29 you are a %ro4 #c%hc C?later29 "lushing *5+ @Practical;isdo' 1greeQRT @nic!dawson* @C?later29 you are a %ro4 #c%hc Gail.aht/ ?o @reginaholliday you too are 7uggling daily your wor! your !ids your story5 how does that wor! Bor not+ 'ost days- #C%hc nic!dawson @Gail.aht/ lur!ing o&er lunch while at a con$erence 5 'ay get %ulled away "ut $or now en7oying so'e intro&ert reco&ery ti'e# #c%hc Practical;isdo' Nic! Golly it would "e Great to see a 0ac!et in your >uture# 3ou R an 1d&ocate $or Patients RT @nic!dawson* @ReginaHolliday hahah4 #c%hc Gail.aht/ Than! you all $or 7oining us# 8ur star today is @reginaholliday Part o$ the un'oderated idea is to let %eo%le as! the guests Juestions #C%hc NatriceR ) want to as! @reginaholliday when she "egan %ainting and how it got $ocused into the #;al!ingGallery #c%hc Practical;isdo' How 'any #thewal!inggallery 0ac!ets are there nowhtt%*//t#co/%LyTy1H< #c%hc ReginaHolliday @NatriceR @Practical;isdo' there are CCR 7ac!ets worn "y CRR wal!ers in #the;al!ingGallery #c%hc SC2acRN Hi @ReginaHolliday and e&eryone# Ausy day "ut wanted to 7u'% in Juic! and say how a'a/ing ) thin! Regina6s wor! is# <o&e 'y 7ac!et4 #c%hc Gail.aht/ @SC2acRN 9o you ha&e a %icture o$ can you tell us a"out your 7ac!et- #c%hc SC2acRN @Gail.aht/ so here is a lin! to 'y story htt%*//www#7o%'#org/%ers%ecti&e/narrati&es/CR1C/1R/CD/one5clinicians5 awa!ening/ #c%hc ReginaHolliday @SC2acRN ) lo&e your 7ac!et too @('"racing (%silon@ htt%*//t#co/Gc"u(73S #e%atient #c%hc SC2acRN @Gail.aht/ ?orry didn6t wor! here is the lin! again htt%*//t#co/3J9$)PTS #c%hc SC2acRN @ReginaHolliday Than!s Regina it was &ery 'o&ing when ) saw it $or the $irst ti'e# #c%hc

SC2acRN @Gail.aht/ @ReginaHolliday 1gree telling 'y story and wearing it on 'y "ac! is healing $or 'e too ta!es away the "urden o$ stig'a #c%hc Gail.aht/ @SC2acRN )t really changed things $or 'e5 tried to eL%ress it in "log today at car%oolhealth a"out @reginaholliday Not sure ) did# #c%hc ?hy9iDE Ausy is a great thera%eutic inter&ention so ) ha&e "een told# See%s your 'ind acti&e# #C%hc Gail.aht/ @?hy9iDE Ausy can "e great5 can you share so'e o$ your story too;e ha&en6t 'et yet5 glad to see you4 #c%hc ?hy9iDE ) do a lot o$ 7uggling here with wor! !ids s%orts 'y night classes %lus housecleaning and coo!ing it ne&er ends here# #C%hc NatriceR @Gail.aht/ 'eet @shydiDE a $riend o$ 'ine $ro' north o$ the "order###sorry ) neglected to introduce:+ #c%hc Gail.aht/ @?hy9iDE That is %art o$ what "oth our guest today Bwhere is @reginaholliday -+ and this chat5 "usy $itting in i'%ortant and 'undane# #c%hc Practical;isdo' Regina )6d lo&e to !now what areas o$ Health care you see the 'ost ho%e $or Patients in CR13# @ReginaHolliday #c%hc ReginaHolliday @NatriceR @Practical;isdo' ) see a lot o$ ho%e in 'o"ile health# 1 lot o$ those inno&ators want to wor! with e5%atients #c%hc ?hy9iDE ) would li!e to see so'e %ositi&e changes ha%%en in h/care to "e "etter $or %atients and sta$$# #C%hc Practical;isdo' Than!s4 9o you thin! inco'e %lays a role in the nu'"er o$ %atients who are a"le to %artici%ate in 2o"ile Health @ReginaHolliday #c%hc Gail.aht/ @SC2acRN Than! you $or sharing lin!4 ;e are sharing stories at htt%*//t#co/<1nNRT=> Please $eel $ree to share in co''ents too4 #c%hc ReginaHolliday @SC2acRN )t is %ower$ul i'age and ) a' so glad your shared your story with others #c%hc Gail.aht/ @?hy9iDE ) !now 'y story is %retty ugly stu$$ %eo%le don6t want to discuss# ) did not want to in %erson 7ac!et changed that $or 'e# #c%hc Gail.aht/ @ReginaHolliday How do you 'anage at these serious 'edical con$erences when you $orce a 'iL o$ hu'an within science- #c%hc ReginaHolliday @Gail.aht/ ?o'e $ol!s acce%t what ) do and allow the'sel&es to "e $rightened so'eti'es ) %aint on the sidewal! in $ront o$ the &enue# #c%hc Gail.aht/ 1n a'a/ing %art is this chat is one wee! old4 )ncredi"le how 'uch %eo%le ha&e done in so short a ti'e# )dea was less than a 'onth ago# #c%hc %$anderson @Gail.aht/ @ReginaHolliday @C?later29 >ran!ly )6' still con$used a"out "oth the conce%t K how it will wor! "ut that6ll co'e in ti'e #c%hc Gail.aht/ @%$anderson Con$used a"out what conce%t and how it will wor! in what way- #c%hc

%$anderson @Gail.aht/ )6&e "een con$used $r day 1# Not sure 1DR can enco'%ass yr &ision *+ ) don6t understand why we need another general hashtag #c%hc %$anderson @Gail.aht/ 8T8H it6s o"&ious other $ol! 98 get it and are using it# Trending at ?32P<TR so ) a' waiting $or it to co'e clear ### #c%hc %$anderson @Gail.aht/ ;e6ll see what ha%%ens# *+ )$ it ta!es o$$ great4 )$ it doesn6t then good lessons learned# #c%hc Gail.aht/ @%$anderson Perha%s %art o$ the con$usion is the chat is not the (??(NC( o$ the wor!5 7ust one o$ 'any eLtensions that are TA1 #c%hc Gail.aht/ @%$anderson ;hat is con$using to you- )t is the &ery thing you ha&e ad&ocated $or $or a long ti'e5 no 'oderation no "oundaries### #c%hc Gail.aht/ @%$anderson ) 'y $riend will articulate your con$usion $or you while you can not5 as @reginaholliday %ainted 'ine4 #c%hc Gail.aht/ @ReginaHolliday How is it carrying other %eo%le6s stories along side o$ your own- #c%hc Practical;isdo' Thin! it6s interesting @Hard ?cience@ see's to "e e'"racing $eelingsU ;hole Person @ReginaHolliday @nic!dawson @Gail.aht/ #c%hc nurse$riendly nic!dawson #Healthcare #2edicine is a"out "attling the #disease not a"out healing the %erson *B #c%hc nic!dawson @ReginaHolliday %ower$ul eLa'%le# )NOP' really ins%ired to eL%lore this idea# )tNOPs not an either / or itNOPs NOV"oth andNOW #CPHC ReginaHolliday @nic!dawson Great go $orth and "low so'e 'inds *+ #c%hc Gail.aht/ @C?later29 Iery hard on all sides# 0ust 'et with 29 5 couldn6t understand tension nurse said "ecause she is $rustrated w/out answers #c%hc C?later29 @Gail.aht/ HCPs o$ten $rustrated when we don6t ha&e answers# answers are what we thin! others eL%ect $ro' us #c%hc Gail.aht/ @C?later29 )nteresting 'y hus"and/surgeon 7ust shared the sa'e5 said ) was 1st %erson in CD hours to not as! hi' @why@# #c%hc Practical;isdo' Hard C say don6t !now 2T @C?later29* HCPs o$ten $rustrated when we dont ha&e answers# answers are what we thin! others eL%ect $ro' us #c%hc 1utoi''uneGal @C?later29 @Gail.aht/ Though )6&e $ound "est HCP? r those willing to say don6t !now# Pre&ents wasting ti'e K can 'o&e to nLt o%tions# #c%hc Gail.aht/ @C?later29 1nd we want answers and o$ten %eo%le to "la'e5 see's easier to de$lect than5 li$e is hard healing is 'essy# #c%hc Gail.aht/ @%$anderson ;hen you ta!e away a $ocus on diagnosis role or 7o"5 does get 'essy5 "ut it6s ti'e $or so'e 'ess and so'e action4 *5+ #c%hc Practical;isdo' Regina has you ha&e "eco'e 'ore well !nown are you seeing 'ore o%enness to your wor!/1rt/Alogging/?%ea!ing- @ReginaHolliday #c%hc

ReginaHolliday @Practical;isdo' ;e are lo&ely duc!s in our &ery s'all %ond# ) ho%e our 'o&e'ent goes 'ainstrea' in CR13# #c%hc Gail.aht/ @ReginaHolliday )t ta!es a lot to rattle 'e# 2y 7ac!et did when you ga&e it to 'e and still does so'e days when ) see it4 #c%hc nurse$riendly @ReginaHolliday >unny to suggest that #doctors #nurses #HCPs are e'otionally handica%%ed when it co'es to "eing #hu'an there is truth #c%hc 1$ternoonNa%%er @nurse$riendly ('otional handica% also U %rotecti&e 'easure# ) don6t thin! ) could o%erate on so'eone ) lo&e# #c%hc Gail.aht/ @1$ternoonNa%%er ) don6t thin! anyone can o%erate on a lo&ed one# 1gree the e'otional handica% is 'ore o$ a %rotection $ro' wor!# #c%hc nurse$riendly ReginaHolliday ;e BHCP?+ do 'uch "etter ha&e 'ore C8NTR8< when we $ocus on sy'%to's treat'ents 'edications# #c%hc ReginaHolliday @nurse$riendly not 7ust the %ro$essional %ro&iders### this is a %ro"le' in %atient co''unities also# ;e cannot always "e ha%%y or sad# #c%hc C?later29 co'$ort /one @nurse$riendly @ReginaHolliday HCP? do 'uch "etter ha&e 'ore C8NTR8< when we $ocus on sy'%to's treat'ents 'edications #c%hc nurse$riendly @nic!dawson* @ReginaHolliday #Caregi&er #Aurnout o$ten starts with %oor co''unication and !nowledge de$icits# #c%hc ?hy9iDE ;e should "e $ocusing %ri'arily on %atient $ocus center care not sure i$ 'any do# #C%hc Gail.aht/ @?hy9iDE How do you thin! %eo%le do or don6t $ocus on %atient center care- #c%hc ?hy9iDE Ta!e a loo! at the %atient in a holistic 'anner# 1lso using e'%athy and sy'%athy goes a long way as well# #C%hc nurse$riendly )n a #Per$ect;orld *B RT @?hy9iDE* ;e should "e $ocusing %ri'arily on %atient $ocus center care not sure i$ 'any do# #c%hc nurse$riendly )t 'ust "e su%%orted "y 'anage'ent o$ten not RT @Gail.aht/* @?hy9iDE How do you thin! %eo%le do or dont $ocus on %atient center care#c%hc ?hy9iDE ) thin! %atients i$ they can should "e in&ol&ed in there care %lan# #C%hc Practical;isdo' Can we as! @reginaholliday a"out htt%*//t#co/g?(;r'<P ) <o&e the new u%date @Gail.aht/ #c%hc Gail.aht/ @Practical;isdo' Than! you4 ) would lo&e to hear 'ore a"out the %ersonal side o$ the wor! @reginaholliday does5 don6t you- #c%hc Gail.aht/ Please yes @reginaholliday agree with @%racticalwisdo' $ascinated "y s%ea!er6s lin! now5 you are on an intl s%ea!ers "ureau4 #c%hc ReginaHolliday @Gail.aht/ @Practical;isdo' @s%ea!erlin! is still going strong and we are considering a donate now $unction to hel% su%%ort it# #c%hc

Gail.aht/ @reginaholliday 3ou and ) ha&e tal!ed %ersonally a"out the reality that we ha&e to su%%ort oursel&es while doing good wor!5 hard4 #c%hc ReginaHolliday @Gail.aht/ 3e% ) a' now a listed s%ea!er at @a%"s%ea!ers which is great4 )t loo!s li!e ) a' one o$ the $ew e5%atients on the site #c%hc Gail.aht/ @ReginaHolliday Aig congratulations $or @a%"s%ea!ers ) saw you with international na'es# How does it $eel- #c%hc Practical;isdo' GH 2T @ReginaHolliday* 3e% ) a' now a listed s%ea!er @a%"s%ea!ers which is great4 )t loo!s li!e ) a' one o$ the $ew e5%atients# #c%hc nic!dawson @Practical;isdo' @reginaHolliday re'inds o$ ?hirtless 9ancing Guy soon not e'"racing your wor! will "e 'inority htt%*//t#co/GG?T.ICT #c%hc NatriceR @nurse$riendly @nic!dawson @ReginaHolliday #c%hc "eing "loc!ed le$t out not %art o$ the tea' is so draining discouraging !nowledgeU%ower Gail.aht/ @?hy9iDE 1nd %atients and caregi&ers need to "e a %art o$ the tea'5 "ut understand the %hysician and hc% are res%ected %arts too4 #c%hc ReginaHolliday @1$ternoonNa%%er ) don6t thin! 'any o$ us do stitches nowadays### 8nly a 'odern s%eciali/ed society allows us to hand o$$ care# #c%hc ?hy9iDE @ReginaHolliday tea' wor! is &/i'%ortant in h/care wor!ing on a 'ulti disci%linary tea' &/crucial #C%hc 1$ternoonNa%%er @ReginaHolliday ;ell### stitches no "ut again### ) could### %ac! a wound ha&ing to use twee/ers- ;e got that down# #c%hc 1$ternoonNa%%er @ReginaHolliday ;e 7ust "egan @ad&entures in s!in cancer@ at ho'e too# Gonna "e $un# #c%hc Gail.aht/ @1$ternoonNa%%er ?o'eone in your $a'ily got s!in cancer#c%hc 1$ternoonNa%%er @Gail.aht/ 8h we6&e got s!in cancer in the $a'ily li!e ;H81# #c%hc Practical;isdo' ?orry to hear a"out thatQ@1$ternoonNa%%er #c%hc Practical;isdo' Can6t wait when not in&iting Patients/1d&ocates to s%ea! 2edical Con$erences will "e 'inority @nic!dawson #%atientsincluded #c%hc nic!dawson @Practical;isdo' start "y ha&ing PTs as attendees at least# 1lso i'%ortant to re'ind all s%ea!ers K attendees they are %atients too #c%hc ReginaHolliday @nic!dawson wor!ing on that one 7ac!et at a ti'e #c%hc @Practical;isdo' Practical;isdo' ;e are all >riends who are %assionate a"out PatientsQ) !now this is True# @Gail.aht/ @%$anderson #c%hc ReginaHolliday @Gail.aht/ The %ro"le's we s%ea! a"out in healthcare our not only T? %ro"le's# There is a culture shi$t world5wide# #c%hc @a%"s%ea!ers Gail.aht/ @ReginaHolliday ) ha&e $ound we share co''on challenges "ut 'ust re'e'"er healthcare is deli&ered locally and di$$erently# #c%hc

ReginaHolliday @Gail.aht/ 3es "ut a$ter s%ea!ing in ?outh Sorea and 1ustralia ) was a'a/ed how 'uch the world loo!s to the T? $or leadershi%# #c%hc ?hy9iDE H/c world wide is di$$erent in all %arts o$ the world which 'a!es it con$using trying to co'%rehend what other countries do# #C%hc Gail.aht/ @ReginaHolliday 9o you thin! the world loo!s to the T? or the T? wants the world to loo! to us- ) a' not sure when s%ea!ing to others# #c%hc NatriceR what a way to 'a!e an hour $ly4 #c%hc Gail.aht/ @NatriceR ;e ha&e G 'inutes o$ wisdo' le$t5 un"elie&a"le# That6s why it6s great we are CD/E on 'any %lat$or's4 #c%hc 1$ternoonNa%%er @nic!dawson )6' really starting to disagree w/ this @we are all %atients@ thing# There needs to "e a @yet@ clause# #c%hc Gail.aht/ @1$ternoonNa%%er ) say yet5 including we 'ay not yet "e caregi&ers5 we are all o$ these things at so'e ti'e or another# #c%hc nic!dawson @1$ternoonNa%%er o%en to the challenge# Aut in&erse i'%lies so'e %atients are 'ore %atienty than others right- ;hat6s the Juali$ier- #c%hc 1$ternoonNa%%er @nic!dawson There are so'e "lessed w/ across the "oard good health# There are so'e who are acti&e &s# %assi&e# #c%hc 1$ternoonNa%%er 1d'ittedly ) a' in a weird @%lace@ right now in which ) a' eLtre'ely 7ealous o$ those w/ one5ti'e/treata"le conditions# #c%hc Gail.aht/ @1$ternoonNa%%er There is also a shi$t de%ending on the day ti'e relationshi% conteLt etc isn6t there5 is anyone the sa'e always#c%hc nic!dawson @1$ternoonNa%%er 'ay"e to%ic $or another ti'e "ut ) still wonder* what Juali$ies one as a %atient- #c%hc Practical;isdo' GH To%ic RT @nic!dawson* @1$ternoonNa%%er 'ay"e to%ic $or another ti'e "ut ) still wonder* what Juali$ies one as a %atient- #c%hc NatriceR @nic!dawson @1$ternoonNa%%er %atient is anyone not in %er$ect health needing in%ut o$ HCP- #c%hc C?later29 Nic! a to%ic $or CD/E $or sure# great head scratching JL @nic!dawson* @what Juali$ies one as a %atient-@ @gail/hat/ #c%hc ?hy9iDE ) !now here D %t to "e in <TC ho'e they need to 'eet there criteria# )$ not sorry not acce%ted# #C%hc nurse$riendly @Gail.aht/ Ha&e seen 'any eLa'%les lately where #Patient #1d&ocacy at the (L%ense o$ The Aotto' <ine is retaliated against# #c%hc nurse$riendly @Gail.aht/ )$ @stic!ing your head u%@ to %ro'ote "etter sa$er care $or your %atients will cost you your 7o" you will thin! twice# #c%hc ReginaHolliday @nurse$riendly )t is scary isn6t it- Aut i$ ) let $ear rule 'e ) would still "e $ull ti'e at the toy store# #c%hc @Gail.aht/ 1$ternoonNa%%er @ReginaHolliday >ear is an aweso'e $orce# Really re'inds us o$ "eing ali&eNOXgood or "ad# #c%hc

Gail.aht/ @2hos!insC1EG 3es ) $ind it good to surround 'ysel$ with aweso'e %eo%le44 2a!es initiati&es really easy e&en i$ ti'e consu'ing4 #c%hc Practical;isdo' Regina ;hat can we each do to hel% you- 3ou gi&e so 'uch to usQ@reginaholliday #c%hc ReginaHolliday @Practical;isdo' watch $or 'y neLt @'edstartr ca'%aign *+ #c%hc Practical;isdo' Can6t waitQ They 1re wonder$ul4 Than!s 1leL4 RT @ReginaHolliday* @Practical;isdo' watch $or 'y neLt @'edstartr ca'%aign *+ #c%hc Practical;isdo' Can you share the scoo% with us now@ReginaHolliday cc* @'edstartr #c%hc Gail.aht/ @ReginaHolliday ) thought in an hour we would learn e&erything $ro' you###see's we "arely got started4 1ny last thoughts- #c%hc ReginaHolliday @Gail.aht/ H14 ) a' an onion with 'any layers *+ #c%hc Gail.aht/ ReginaHolliday 1ren6t we all onions then- *5++ #c%hc 1$ternoonNa%%er @ReginaHolliday ;hich eL%lains why you always 'a!e 'e cry# #c%hc Practical;isdo' TRTTH4 ) thin! it6s an a'a/ing your <ayers# RT @ReginaHolliday* @Gail.aht/ H14 ) a' an onion with 'any layers *+ #c%hc ReginaHolliday @Gail.aht/ 3e%4 Power$ul "ite when raw sweet when we6re $ried *+ #c%hc nic!dawson @Gail.aht/ not sure any ti'e "etter than another 5 this wor!ed today and so glad what a great ins%iring dialogue #c%hc Gail.aht/ @nic!dawson ) lo&e the $act that we can start and sto% anyti'e# ) "elie&e in ti'e the conce%t o$ CD/E will really ta!e o$$# #c%hc ?hy9iDE Great chat e&eryone this is so 'uch "etter than >ace"oo!# Ha&e a great wee! e&eryone ho%e to see e&eryone soon# #C%hc Gail.aht/ @?hy9iDE Great seeing you# <oo! $orward to getting to !now you 'ore4 #c%hc Practical;isdo' Than! you $or in&iting @reginaholliday today# Than!sQ @Gail.aht/ #c%hc Gail.aht/ @This@ 'ay not "e de$ined5yet de$ines itsel$: ) thin! @reginaholliday was such a great 1st guest5 "ecause she hel%s us all do that4 #c%hc

Gail.aht/ ) a' going to 7u'% o$$line as ) a' on a "orrowed co'%uter at the hos%ital and as!ed to @'ute@ 'y %hone5 "ut T3 all es% @reginaholliday #c%hc

C?later29 great great chat 'iddle o$ day# GTG too4 "ye all until neLt ti'e# #c%hc 1$ternoonNa%%er Great "ig hugs to all NOXY and a %ersonal $a&or to as!# NeLt ti'e you6re "ored chec! out Rare 9isease 9ay# htt%*//t#co/2&N9LcnD #c%hc Gail.aht/ 9o you ha&e #The;al!ingGallery 7ac!et- Aeen hel%ed "y @ReginaHolliday - Please say than! you here htt%*//t#co/yLD0D;gE #CPHC