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Social Network Structure and Social Support in

HIV-Positive Inner City Mothers

Edythe S. Hough, EdD, RN


Morris A. Magnan, PhD, RN
Thomas Templin, PhD
Hesham F. Gadelrab, PhD

It has been documented that social support influ- for Disease Control and Prevention [CDC], 2003).
ences health outcomes of persons with chronic ill- AIDS was the third leading cause of death among
nesses. The incidence of HIV and AIDS among mi- African American women ages 25 to 44 (CDC,
nority women is growing at an alarming rate, but 2003), many of whom are mothers. Consequently, in
little is known about social support in this vulnerable addition to suffering from a life-threatening condi-
population, and even less is known about the social tion, many HIV-infected women are faced with ad-
network conveying that support. Guided by the con- ditional challenges such as coping with single par-
voy of social networks model, this study describes the enthood, poverty, and racism.
social networks in a sample of HIV-positive, urban- Social support has been found to be a critical
dwelling mothers (N ⫽ 147) by stage of disease (i.e., factor in coping with HIV (Hays, Chauncey, & To-
asymptomatic, symptomatic, AIDS) and examines re- bey, 1990; Kyle & Sachs, 1994; Rodgers, 1995).
lationships between social network structure and so- However, research examining the importance of so-
cial support. Hierarchical linear modeling showed cial support has focused primarily on White gay/
that women’s social networks were disproportion- bisexual men, and results may have limited general-
ately populated by children, and network members of izability to poor urban African American women.
women with AIDS were significantly older than net- Hough, Brumitt, Templin, Salzt, and Mood (2003),
work members of HIV-positive women with or with- in a study of HIV-infected African American moth-
out symptoms. Profile analyses showed that women’s ers, found that effective coping (i.e., characterized by
perceptions of the quality of social support differed a woman’s ability to make meaning of her experi-
according to the proportion of family members pop- ences) was positively related to her social support.
ulating different segments of the social network. Mothers with adequate social support were more
likely to use effective coping strategies and to exhibit
Key words: social support, social network, HIV-
positive mothers Edythe S. Hough, EdD, RN, is a professor in the College

An increasing proportion of newly diagnosed HIV of Nursing at Wayne State University, Detroit. Morris A.
Magnan, PhD, RN, is an associate professor in research in
and AIDS cases are being reported among minority the College of Nursing at Wayne State University, Detroit.
urban women. The majority of women in the United Thomas Templin, PhD, is an associate professor in re-
States with HIV are women of color. African Amer- search in the College of Nursing at Wayne State Univer-
ican and Hispanic women account for 80% of the sity, Detroit. Hesham F. Gadelrab, PhD, at the time of the
women with HIV, and, in 2000, over 63% of all study, was a doctoral candidate and research assistant in
women with AIDS were African American (Centers the College of Nursing at Wayne State University.

JOURNAL OF THE ASSOCIATION OF NURSES IN AIDS CARE, Vol. 16, No. 4, July/August 2005, 14-24
doi:10.1016/j.jana.2005.05.002
Copyright © 2005 Association of Nurses in AIDS Care
Hough et al. / Social Network and Support in HIV⫹ Mothers 15

decreased mood disturbance. These results point to searchers incorporating specific providers of social
the importance of social support as a buffer against support (e.g., family, friends, partner) have reported
the deleterious effects of HIV-related stress on a that family members are not viewed as particularly
mother’s ability to cope with her diagnosis. How- helpful to HIV-positive persons. In fact, the majority
ever, to obtain a more complete picture of the social of studies suggest that friends provide more support
support system and an understanding of the sources than family to HIV-infected individuals (Burgoyne &
of support, information is needed regarding the char- Saunders, 2000; Friedland, Renwick, & McColl,
acteristics of the social networks of these women. 1996; Hays, Catania, McKusick, & Coates, 1990;
Hays et al., 1990; Hays, Magee, & Chauncey, 1994;
Johnston, Stall, & Smith, 1995; Namir, Woolcott,
Social Networks Fawzy, & Alambaugh, 1987; Schwarzer, Dunkel-
Schetter, & Kemeny, 1994; Stowe, Ross, Wodak,
The term social networks refers to the structural Thomas, & Larson, 1993). Explanations offered for
characteristics of an individual’s informal support friends being more supportive than family have in-
network as opposed to a formal network of paid cluded both the social stigma associated with HIV
support providers. A model that provides a frame- (Barroso, 1997) and issues stemming from problem-
work for the study of social networks across the life atic life styles before contracting HIV (Owens,
span is the Social Convoy Model (Kahn & Anto- 2003). Epidemiological studies (Cohen, Doyle,
nucci, 1980). The social convoy is represented as a Skoner, Rabin, & Gwaltney, 1997; Flaskerud & Win-
series of three concentric circles surrounding an in- slow, 1998) suggest that individuals who engage in
dividual. Inclusion of persons in a convoy circle is diverse social networks live longer than those with
determined by the individual’s emotional attachment fewer types of social relationships, and Cohen (1988)
to the person as well as by the role of the person in proposed that the more isolated HIV-positive women
relation to the focal individual. Thus, persons occu- are, the more susceptible they might be to delayed
pying the innermost circle of an individual’s social healthcare and disease progression.
convoy are likely to be important support providers To date, no published work details the character-
with whom the focal individual feels very close. istics of the social networks of poor urban minority
Membership in the second circle suggests a degree of HIV-positive mothers. There is a great need for in-
closeness to the focal individual as well as relation- formation about the social networks of HIV-infected
ships that are based on more than just fulfillment of mothers because of the potential for the illness to
a role. Finally, members of the third circle are exert extreme burdens on a woman’s social support
thought to be close to the focal individual but usually system. First, there is the issue of stigma which,
in a very role-prescribed manner. In its entirety, the despite over two decades of media coverage of the
convoy model evokes an image of a protective layer successful treatment of the disease, is still an issue,
of family, friends, and others who “surround the especially among African Americans. Stigma leads
individual and help in the successful negotiation of to secrecy and its main consequence: the presence of
life’s challenges” (Antonucci & Akiyama, 1987, p. few knowledgeable people that the person can rely
516) as the individual moves through life. Changes in on in times of needed support (Armistead & Fore-
the convoy are hypothesized to occur across norma- hand, 1995). Additionally, HIV-infected mothers,
tive life transitions, in response to nonnormative like HIV-infected gay men, may enter this phase of
events, or as a result of individual maturation. their life with weakened social networks because of
The relationship of social network characteristics their own past behavior and transgressions (Owens,
to perceptions of social support, psychological well- 2003). Finally, as a mother gets increasingly more ill,
being, and health-related outcomes has not been the social network may simply become more de-
studied extensively in HIV-positive persons. How- pleted because of her decreased ability to maintain
ever, the literature suggests that the size of one’s reciprocal relationships (Hudson, Lee, Miramontes,
social network seems to be less important to health & Portillo, 2001) leaving the woman with limited
outcomes than its composition. For example, re- and perhaps inadequate sources of social support at a
16 JANAC Vol. 16, No. 4, July/August 2005

time when it is needed most for her and her children have a confidante. Also, greater availability of social
(Dorsey, Chance, Forehand, Morse, & Morse, 1999; support has been reported to be associated with less
Dorsey, Klein, & Forehand, 1999). depressive symptomatology in women (Bluestone,
1995; Demi et al., 1995; Nannis et al., 1995;
O’Leary, Wadhwani, Gebelt, & Frenkel, 1995).
Social Support However, Bluestone cautioned that, although social
support may buffer depression when there are few
Social support is the functional imperative of the infection-related symptoms, social support may be a
social network. Social support, an omnibus concept, less effective buffer as the illness progresses.
is broadly defined as the subjective feeling of belong- One study of social support in poor minority HIV-
ing; of being accepted, loved, esteemed, valued, and positive women (Klein et al., 2000) reported that
needed for oneself, not for what one can do for others HIV-infected women received less social support
(Moss, 1973). Several dimensions of social support, than a sociodemographically similar group of unin-
namely emotional, informational, and instrumental fected women. Research examining the specific pro-
support, are seen recurrently in the social support viders of social support has suggested that for many
literature. Emotional support has been defined as with HIV, family members are not viewed as being
providing esteem and affiliation to others (Norbeck, as helpful or supportive as friends. This result has
Lindsey, & Carrieri, 1981, 1983). Instrumental sup- been particularly salient among those who contracted
port includes financial or housing assistance (Gielen, the virus through homosexual sex or drug use
McDonnel, Wu, O’Campo, & Faden, 2001), and (Johnston et al., 1995; Stowe et al., 1993). In other
informational support has been reported as giving words, relationships with family members may have
advice and information on social, health, or employ- been strained before the diagnosis. It is not clear how
ment matters (Turner, Hays, & Coates, 1993). As- this process may apply to heterosexual women. Hud-
sessments of social support often include the function son et al. (2001), from a study of a group of ethni-
it serves (i.e., emotional, instrumental, informational) cally diverse women in San Francisco, reported lim-
as well its availability, desirability, and frequency of ited social interactions with family and friends and a
occurrence. The data clearly indicate that quality of low level of perceived social support. Limited per-
social support influences coping, psychological well- ceived social support was a significant predictor of
being, and health-related outcomes in persons with a distress in this sample of women.
chronic illness (DiMatteo & Hays, 1981; Schwarzer The use of active behavioral coping strategies has
& Leppin, 1989; Taylor & Aspinwall, 1990; Wort- been positively associated with both the size and
man & Conway, 1985), including in persons with satisfaction with one’s social support network
AIDS (Britton, Zarski, & Hobfall-Li, 1993; Grum- (Leserman et al., 1992; Namir et al., 1987, 1990;
mon, Rigby, Orr, Procidan, & Reznikoff, 1994; Nannis et al., 1995). Hough et al. (2003) tested a
Hays, Turner, & Coates, 1992; Linn, Lewis, Cam- model of mother and child coping and adjustment in
eron, & Kimbrough, 1993; Nott, Vedhara, & Power, relation to maternal HIV in a sample of inner-city
1995; Pakenham, Dadds, & Terry, 1994). African American women. Accounting for 36% of
Despite a strong tendency toward secrecy among the variance in child adjustment, the maternal vari-
HIV-infected individuals, the beneficial effect of so- ables reported to be significant predictors in the
cial support on psychological distress has been dem- model were maternal HIV-associated stressors, ma-
onstrated consistently among samples of gay men ternal emotional distress, child social support, child
with AIDS (Leserman, Perkins, & Evans, 1992; coping, and quality of the parent-child relationship.
Namir et al., 1987; Namir, Alumbaugh, Fawzy, & In particular, mothers with adequate social support
Wolcott, 1990; Ostrow et al., 1989; Zich & Temo- were more likely to use effective coping strategies
shok, 1990) and HIV-infected women (Clark et al., such as seeking information and using positive reap-
1995; Demi et al., 1995; Nannis, Semple, & Patter- praisal; they also exhibited decreased emotional dis-
son, 1995). Clark et al. reported that HIV-infected tress. Hough et al. (2003) also reported that the
women who were less depressed were more likely to
Hough et al. / Social Network and Support in HIV⫹ Mothers 17

amount of social support experienced decreased as Procedure and Measures


HIV symptoms increased.
Although the literature clearly demonstrates the Eligible women were clients of a participating
importance of social support in the lives of HIV- clinic/agency who identified themselves as being
positive persons including HIV-infected women, we HIV-infected with confirmation by agency records.
have little knowledge regarding the characteristics of The women were recruited from community-based
the social network conveying the needed support. AIDS service organizations, case management agen-
Moreover, theory and research suggest that the diag- cies, and medical clinics in the metropolitan Detroit
nosis of HIV as well as disease progression—from area to participate in a larger study investigating the
asymptomatic to symptomatic to AIDS—precipitate effects of mother-child coping and adjustment to
a reconfiguration of the social network, which may HIV (Hough et al., 2003). Contact between the re-
adversely affect the quality of social support pro- cruitment coordinator and the subjects occurred ei-
vided. To the best of the intestigators’ knowledge, ther face to face during a regularly scheduled agency
the social networks of HIV-infected mothers have visit or by a subject-initiated telephone call after
not been studied and the relationship between social referral by a caseworker. During the initial contact,
network structure and social support in this vulnera- subjects were asked a number of screening questions
ble population has yet to be determined. This report to determine their eligibility and willingness to par-
will (a) describe the structural characteristics of the ticipate in the study. The recruitment coordinator
social networks of HIV-positive mothers at different then scheduled an appointment for subjects to come
stages of the disease (i.e., asymptomatic, symptom- to Wayne State University to be interviewed. Trans-
atic, and AIDS), and (b) examine the relationship portation and childcare were provided to facilitate
between social network structure and social support subject participation in the study. Subjects were paid
characteristics (i.e., desirability, availability, fre- $50 on completion of the interview.
quency, helpfulness) reported by women in this par- Social network was assessed using the convoy
ticularly vulnerable population. This information will model of social networks described by Antonucci
provide caregivers with important information nec- (1986) and Antonucci and Akiyama (1987). Network
essary for the design and implementation of nursing membership was established by giving subjects a
interventions to strengthen and improve the social target diagram consisting of three concentric circles
support systems of HIV-positive women. with the word you written in the innermost circle.
Subjects were told that each circle should be thought
of as including “people who are important in your
Method life right now” but who are not equally close to you.
To identify memberships in the innermost circle,
Sample subjects were told to think about “people to whom
you feel so close that it is hard to imagine life without
The sample for this study consisted of 147 HIV- them.” Such persons were listed in the innermost
positive women living in the metropolitan Detroit circle of the network diagram. The same procedure
area. These women were young (M ⫽ 36.1 years; SD was followed to determine memberships for the mid-
⫽ 7.1), predominantly African American (86%), and dle circle, described as including “people you do not
single (78%). Although most of the women were feel quite that close to but who are still very impor-
receiving public assistance (97%), they were very tant to you,” and for the outer circle, described as
poor with an average monthly household income of including “people you feel less close to but who are
only $712. The average time since diagnosis was a still important to you.”
little more than 5 years (M ⫽ 62.8 months; SD ⫽ 39). Structural characteristics of the social networks
Using the CDC’s classification system for HIV status were determined by asking subjects to provide addi-
(Osmond, 1998), 57% of the women were asymp- tional information about the first 10 people listed in
tomatic, 18% were symptomatic, and 25% had their social network diagram. Thus, structural char-
AIDS. acteristics of networks included not only circle place-
18 JANAC Vol. 16, No. 4, July/August 2005

ment (i.e., inner, middle, outer) but also relationship Analyses of the size of the social network convoy
to the focal person (e.g., child, family, friend), age, was based on the total number of network members
distance between the residence of the focal person (N ⫽ 1,979) identified by the respondents. However,
and the network member, frequency of telephone detailed information about network members was
calls, and frequency of visits. Scores for these addi- obtained only on the first 10 members identified by
tional network variables were computed by averag- each respondent. Consequently, analyses involving
ing values across memberships within circles. For network characteristics other than size were based on
example, for respondent 1, an inner-circle age score a network membership of N ⫽ 1,329.
was obtained by determining the average age of
network members listed in the innermost circle. Mid-
dle-circle and outer-circle age scores were computed Results
in the same way. This yielded from 1 to 3 average
age scores per subject depending upon how the first Social Network Structure
10 network members were distributed across circles.
This procedure was repeated for other structural Network size. The 147 mothers nominated a total
characteristics. of 1,979 network members, creating an average net-
Social support, a component of network function, work of 13.46 members (Table 1). There was a
was assessed using a questionnaire developed for a significant main effect [F (2, 288.5) ⫽ 69.86, p ⬍
study of social support and physical and psycholog- .01] in the number of network members across cir-
ical distress among gay men diagnosed with AIDS or cles. As shown in Table 1, the innermost circle was
AIDS-related complex (Zich & Temoshok, 1990). more densely populated than the middle circle or the
Using this eight-item instrument, subjects provided outer circle. Network size did not differ significantly
self-ratings on four components of social support by HIV status (i.e., asymptomatic, symptomatic,
(i.e., desirability, availability, frequency, and help- AIDS), and there was no significant interaction effect
fulness) on a 5-point Likert-type scale. A ninth item of HIV status by circle placement
was added to assess satisfaction with support for
child caretaking responsibilities (“he/she helped me Age. The age of network members ranged from
by taking care of my children when I couldn’t”). In less than 1 year to 98 (M ⫽ 31.1; SD ⫽ 20.8). There
this sample, alpha coefficients for desirability, avail- were significant main effects of circle placement [F
ability, frequency, and helpfulness were .84, .89, .84, (2, 239.04) ⫽ 35.73, p ⬍ .01] and HIV status [F (2,
and .83 respectively. 131.41) ⫽ 3.50, p ⬍ .05]. As shown in Table 1,
members of the inner circle were younger than those
Data Analysis of the middle or outer circles. Network members of
subjects with AIDS were older than the network
All data were analyzed using Statistical Package members of subjects who were asymptomatic or
for the Social Sciences 11.5 (SPSS, Inc., Chicago, symptomatic. No significant HIV status by circle
IL). Our data were inherently unbalanced because of placement interaction was observed.
the fact that network memberships across circles
differed from subject to subject. Therefore, hierar- Distance. Geographic distance from the focal
chical linear modeling was used to analyze social person ranged from “live with” to about 200 miles
network characteristics by HIV status and circle away from the respondent, with an average of 25.5
placement because it offers the distinct advantage of miles in distance. A significant main effect for circle
making it possible to analyze unbalanced data at any placement [F (2, 193.58) ⫽ 11.03, p ⬍ .01] was
level. Profile analysis was used to determine whether reported, indicating that network members in the
the pattern of social support characteristics (i.e., de- inner circle lived closer than network members in the
sirability, availability, frequency, and helpfulness) middle and outer circles. Distance did not differ
differed by circle composition (e.g., high or low significantly by HIV status and there was no signif-
percentage of children in the circle). icant HIV status by circle interaction.
Hough et al. / Social Network and Support in HIV⫹ Mothers 19

Table 1. Mean Values of Network Characteristics by Circle Placement and HIV Classification

Circle Placement
Network Characteristic HIV Class Inner Middle Outer Marginal Mean
Size of network Asymp. 7.15 4.20 2.23 13.59
Symp. 8.07 3.70 2.16 13.81
AIDS 7.00 4.22 1.67 12.89
All 7.41 4.04 2.02 13.46
Age of network members Asymp. 25.18 40.52 40.59 35.43
Symp. 27.66 38.28 36.72 34.22
AIDS 28.79 41.36 47.46 39.20
All 27.21 40.06 41.59 36.29
Distance in miles Asymp. 22.65 39.80 23.31 28.59
Symp. 9.50 49.15 51.08 36.60
AIDS 11.30 24.39 12.97 16.22
All 14.50 38.91 29.12 27.13
Telehone calls per month Asymp. 16.34 11.33 11.93 13.20
Symp. 19.31 7.61 5.78 10.90
AIDS 17.62 10.74 10.11 12.83
All 17.76 9.90 9.27 12.31
Visits per month Asymp. 20.50 8.51 7.45 12.15
Symp. 20.57 6.01 7.50 11.36
AIDS 20.71 9.72 11.49 13.97
All 20.59 8.08 8.82 12.50

NOTE: Asymp. ⫽ asymptomatic, symp. ⫽ symptomatic.

Frequency of telephone calls. Frequency of con- Relationship to mothers. Table 2 presents the
tact between mothers and their network members relationship of network members to the mothers. In
ranged from 0 to 30, with a mean of 13.7 calls per the entire network, nearly 84% (83.9%) of the net-
month. Frequency of telephone calls differed signif- work members were family; 4.7% were husbands,
icantly by circle placement [F (2, 177.53) ⫽ 19.71, p 33.7% were children, and 45.5% were family other
⬍ .01] but not by HIV status. Members of the inner than children. The remaining 16.1% were friends
circle made telephone contact with focal subjects (13.2%), health care professionals (2.1%), and higher
more than members in the other two circles. HIV beings (i.e., God, spiritual beings; .8%). A majority
status and circle placement did not interact signifi- (69.9%) of the network members were nominated to
cantly to influence the frequency of telephone calls. the inner circle. Eighty-six percent of the inner circle
members were children (47.1%) and family other
Frequency of visits. The average number of visits than children (38.8%). Children were the most salient
per month between mothers and their network mem- support members in the inner circle. In the middle
bers was 12.5. A significant effect of circle place- and outer circles, family other than children were the
ment was reported [F (2, 210.31) ⫽ 67.95, p ⬍ .01]. most prominent members; 61.4% and 60.9%, respec-
Totals for each circle (see Table 1) showed that tively. The proportion of friends in the inner circle
members of the inner circle made substantially more was only 6%, whereas the proportion of friends in the
visits than members of the other two circles. There middle and outer circles was 28.6% and 34.8%,
was no significant difference in the number of visits respectively.
reported by persons in the asymptomatic, symptom- The investigators explored the role of four types of
atic, and AIDS groups. The interaction of HIV status relationships (i.e., husband, children, family other
and circle placement had no significant effect on the than children, and friends) by HIV status and circle
number of monthly visits. placement. There were no significant main effects for
20 JANAC Vol. 16, No. 4, July/August 2005

Table 2. Percentages for Social Network Relationships by Circle Placement and HIV Classification

Number Relationship to Focal Person


of Family
Circle HIV Network Other Than Health Care Higher
Placement Class Members Husband Children Children Friends Professionals Being
Inner circle Asymp. 515 4.7 51.5 36.9 4.9 1.2 1.0
Symp. 175 6.3 41.7 39.4 7.4 4.0 1.1
AIDS 239 6.3 41.8 42.3 7.5 0.8 1.3
ALL 929 5.4 47.1 38.8 6.0 1.6 1.1
Middle circle Asymp. 184 2.7 2.7 60.3 29.9 4.3 0.0
Symp. 57 7.0 1.8 64.9 26.3 0.0 0.0
AIDS 67 3.0 4.5 61.2 26.9 4.5 0.0
ALL 308 3.6 2.9 61.4 28.6 3.6 0.0
Outer circle Asymp. 62 1.6 0.0 59.7 35.5 3.2 0.0
Symp 10 0.0 10.0 60.0 30.0 0.0 0.0
AIDS 20 0.0 0.0 65.0 35.0 0.0 0.0
ALL 92 1.1 1.1 60.9 34.8 2.2 0.0
Entire network Asymp 761 3.9 35.5 44.4 13.4 2.1 0.7
Symp 242 6.2 31.0 46.3 12.8 2.9 0.8
AIDS 326 5.2 31.6 47.5 13.2 1.5 0.9
ALL 1,329 4.7 33.7 45.5 13.2 2.1 0.8

NOTE: Asymp. ⫽ asymptomatic, symp. ⫽ symptomatic.

circle placement or HIV status for husbands, and Profile analyses were performed using each of these
there were no significant interaction effects from dichotomous variables as the independent variable
HIV status by circle placement. However, significant and the functional characteristics of social support
main effects of circle placement were reported for (i.e., desirability, availability, frequency, and help-
children [F (2,221) ⫽ 128.3, p ⬍ .01], for family fulness) as the dependent variable.
other than children [F (2,237) ⫽ 14.9, p ⬍ .01], and Results of profile analysis for the proportion of
for friends [F (2,223) ⫽ 17.3, p ⬍ .01]. Thus, the children in the inner circle revealed a significant
inner circles of the women were more likely to be difference in profiles [F (3, 435) ⫽ 2.96, p ⬍ .01].
occupied by children, whereas their outer circles Mothers falling above the median in the proportion
were populated by friends and family other than of children in their inner circle rated their social
children. support as less available, less frequent, and less help-
ful than those mothers who fell below the median.
Social Network Structure and Social Support However, the two groups of mothers did not differ in
their ratings of the desirability of social support.
To investigate the relationship between social net- In terms of family other than children in the inner
work characteristics and social support, three net- circle, a significant difference in profiles was re-
work variables were created to represent what ap- ported [F (3, 435) ⫽ 2.7, p ⬍ .05]. Mothers above the
peared to be the most prominent features of the median who reported family members other than
networks of these women, specifically: (a) the pro- children as their primary source of support in the
portion of children in the inner circle, (b) the propor- inner circle rated their support as more available but
tion of family other than children in the inner circle, less desirable. Social support frequency and helpful-
and (c) the proportion of family other than children in ness were rated almost the same by both groups of
the middle circle. Each of these variables was then mothers.
dichotomized and coded as either high proportion or Mothers who fell above the median in reporting
low proportion using the median as the cut point. predominantly family other than children in the mid-
Hough et al. / Social Network and Support in HIV⫹ Mothers 21

dle circle reported experiencing significantly less so- life events precipitate a reconfiguration of one’s so-
cial support [F (3,324) ⫽ 81.86, p ⬍ .01] on all cial network. One explanation for this latter result
dimensions (i.e., desirability, availability, frequency, might be that as a woman progresses to full-blown
and helpfulness). AIDS, her social network becomes more populated
with older people (i.e., parents, aunts, grandparents)
taking on caregiving roles for either the mother or her
Discussion children (Dorsey et al., 1999). As one might expect,
women reported that inner-circle members lived
This report provides a detailed description of the closer and called and visited more than members of
social networks of a group of poor HIV-positive, either the middle or outer circles. The fact that other
largely African American, inner-city mothers. It ex- characteristics of network structure (i.e., size, dis-
amines the social network characteristics of these tance, and frequency of telephone calls) did not differ
women according to the stage of illness (i.e., asymp- across different stages of the disease suggests that
tomatic, symptomatic, and AIDS) and relates social women were able to maintain these aspects of net-
network structure to mother’s report of her extant work structure despite changes in their disease status.
social support. This study is a preliminary step in Consistent with the result showing a greater num-
increasing our understanding of the interpersonal ber of younger people in the mother’s inner circle,
context (i.e., both social network structure and social we noted a preponderance of children (47.1%) in this
support) of this highly vulnerable population of circle. Taken together with the fact that very few
women. friends were nominated for the inner circles and
The women had no difficulty responding to the made up only about one-third of both the middle and
instructions on how to complete the convoy diagram outer circles, it appears that the social networks of
and did so readily. This sample of 147 women named these mothers contained relatively few friends and
a total of 1,979 network participants, or an average of were somewhat top-heavy with children. This result
13.46 per person. Although we could find no other is consistent with reports from qualitative studies in
report on the network size of HIV-positive persons, which HIV-positive women reported relying heavily
this is somewhat larger than those reported by on their children for a variety of supportive functions
women who abuse drugs, as was the case with the (Andrews, Williams, & Neil, 1993; Barosso, 1997).
majority of the women in our sample. For example, The preponderance of children populating the inner
Falkin and Strauss (2003) reported an average of 9 circles is worrisome and raises questions about how
persons in their sample of drug-using women. Also, and to what extent children are able to meet the social
by comparison, Antonucci and Akiyama (1987) re- support needs of their HIV-positive mothers. The
ported an average of 9 network members in a large relative paucity of friends and the preponderance of
sample of elderly persons. Consequently, on the basis family in the social networks of the women also raise
of size it seems that this particular sample of HIV- concerns, because of research suggesting that family
positive women had fairly robust social networks. members are not viewed as particularly helpful to
When we examined various network characteris- HIV-positive persons (Johnston et al., 1995; Stowe et
tics such as age, distance, frequency of telephone al., 1993).
calls, and frequency of visits, we noted that the inner Further data analyses were conducted to examine
circles of these women were populated with signifi- the relations between social network structure and
cantly more younger people than were the middle the mother’s overall satisfaction with the level of
and outer circles and that women with AIDS reported social support she was receiving. We found that
significantly more older people in their entire net- mothers falling above the median in the proportion of
work than women who were either asymptomatic or their inner circle made up of children rated their
symptomatic. Our result that network members of social support as significantly less available, fre-
women with AIDS were older than network members quent, and helpful. This result has a number of im-
of women who were asymptomatic or symptomatic is portant implications. Although children may provide
consistent with the theoretical claim that changing mothers with HIV a reason to live, help them main-
22 JANAC Vol. 16, No. 4, July/August 2005

tain a healthier life style, and provide love and af- matic complaints as a result of being worn down by
fection (Andrews et al., 1993), they also present a nurturing role demands.
complex set of developmental requirements for such These results point to a number of directions for
things as nurturance, material goods, and safety, just future research. First, since little is known about the
to mention a few. Perhaps these developmental re- social network structures of impoverished inner-city
quirements of children outweigh their ability to pro- African American mothers, the results of this study
vide social support to their mothers. Contrary to need to be validated with women of a similar socio-
Barosso’s (1997) suggestion that HIV-positive moth- economic background who are HIV negative. In ad-
ers who rely on their family do not need to reassem- dition, further work is needed to identify the deter-
ble their social networks, our results suggest that a minants of the mother’s social network composition,
reassembly is very much needed. Mothers may re- whether these factors change over the course of her
ceive some degree of support from their children, but illness, and to what extent the children have an im-
it may not provide them with either the type or pact on the mother’s ability to form and maintain
amount of support needed to deal with the multiple supportive relationships with adults.
stressors associated with being poor, having HIV, The children in our study were key providers of
and trying to raise a family in an impoverished social social support for their HIV-positive mothers, but
environment. These mothers are in great need of little is known about the effect this has on the indi-
assistance, not only to maintain their current network vidual child. How do these children manage this
that places their children at the forefront but also to burden? Are there gender differences or differences
enhance their networks with adult friends and family related to the child’s knowledge and understanding
members who can relieve both the mother and her of HIV? And finally, what kinds of support services
children of some of their burdens. do mothers and children need and find acceptable?
The result showing an almost complete lack of Because professionals played such a minute role in
professional caregivers in the lives of these women is the interpersonal lives of this sample of women,
disappointing and suggests that professional nurses, future research needs to explore the effectiveness of
among others, have not established themselves as intervening at the extended family and community
potential sources of support for this group of women. levels as well as with the individual.
A great deal of attention needs to be paid by nurses In summary, we described the social network
and other health professionals to learning how to structure of HIV-positive mothers across a number of
communicate and intervene in the social support dimensions and at various stages of their disease. In
systems of HIV-positive women and their children. addition, we examined the mothers’ level of satisfac-
One starting point for nurses is to advocate for the tion with the social support conveyed by their social
assessment of the social network and social support network. Our results suggest that there is much to be
available to HIV-positive women as a part of their learned from studying social networks and social
ongoing care. Mothers who are relying mainly on support concurrently rather than in isolation. An im-
their children for social and emotional support need portant implication of our study has to do with the
to be assisted in maintaining a delicate balance be- level measurement of constructs. In this sample of
tween their role as mother and their role as an indi- women, the relationship between network structure
vidual with a chronic illness. One area of assistance and social support was observed only when a distinc-
relates to the process of disclosure of her HIV status tion was made between family members who are
to her child, because this has been identified as an adults and family members who are children. Using
important threat to the stability of their relationship this approach, it became evident that social support
(Vallerand, Hough, Brumitt, Pittiglio, & Marviscin, varied according to the proportion of children occu-
2004). HIV-positive mothers are also in need of pying specific segments of social networks of HIV-
respite care for their children as well as parenting positive mothers.
advice and counseling. The availability of respite
care is particularly important because of evidence
suggesting that, in general, women exhibit more so-
Hough et al. / Social Network and Support in HIV⫹ Mothers 23

Acknowledgement Program and abstracts of the HIV infection in women


conference: setting a new agenda: February 22-24, 1995,
Sheraton Washington Hotel, Washington, D.C. (p. 110).
This research was supported by National Institute Richmond, VA: Philadelphia Sciences Group.
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illness. In Gotlieb (Ed.), B. H. Social networks and social
support: Vol. 4. (pp. 117-148). Beverly Hills CA: Sage.
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