Third International General Information

Neuroimmunologic Meeting Location and Accommodations:

Disorders The symposium will be held at the
Redmond Marriott Town Center.
Symposium 7401 164th Ave NE
Redmond, WA 98052
Jointly Sponsored by:
For reservations please contact Katina Alley
425-498-4024, between 8am-4pm Monday-
Friday. Or email katina.alley@marriott.com

If you have any questions or concerns email Paula

Lazzeri at plazzeri@myelitis.org

Fees
Conference Registration Fees:
$290.00 USD per person
Please note your registration fee covers 3 breakfasts,
3 lunches, the Gala evening event dinner and breaks.

Payment Options
Register online at:
http://dev.esg.us/Seattle/registration.php

Credit card transactions are the preferred form of

payment for The 3rd International Rare
Neuroimmunologic Disorders Symposium.
The following payment methods are accepted:
PayPal, VISA, MasterCard and American Express.
If check payment is required, please select check in
the payment options section. Please make check
payable to "Transverse Myelitis Association" and
send to:

Rare Disorders Symposium Registration

c/o Transverse Myelitis Association
10105 167th PL NE
Redmond, WA 98052

Conference Cancellation Policy

Cancellations made before May 16, 2008 will
be charged 50% of conference fee.
Registrants who cancel on or after May 17,
2008 will be responsible for the entire
registration fee.

J u ly 1 6-1 9 , 2 0 0 8
S e a t t le W as h i n g to n
The Redmond Marriott Town Ctr.
For more information go to:
7401 164th Ave NE http://dev.esg.us/Seattle/index.php
Redmond, WA 98052
The Transverse Myelitis Association and the Johns Hopkins Project 2:30 – 3:00 Pediatric TM as different from CIDP, & Pediatric 5:00 – 6:30 Workshop Sessions
ADEM Workshops will be rotated twice
RESTORE (the TM and MS Centers) are co - sponsoring this 2008 Rare
Gregory Barnes, MD/PhD; Vanderbilt University Session 1– 5:00 – 5:40 pm
Neuroimmunologic Disorders Symposium. The symposium is for patients 3:00 – 3:30 Neurosarcoidosis Session 2– 5:50 – 6:30 pm
with autoimmune diseases of the central nervous system including TM, MS, Carlos Pardo, MD; JHU A. Adjusting to the disease: pitfalls, precautions and
ADEM and NMO. The purpose of this symposium is to bring together pleasures for patients and their caregivers.
3:30 – 3:45 Refreshment Break Adam I. Kaplin, MD, PhD
patients, their caregivers, clinicians and researchers to better understand
B. Support for Women during Pregnancy and
these diseases. Our first meeting was in 1999 in Seattle and we have 3:45 – 4:15 Neurological manifestations of lupus and other Preconception
since continued these symposia biennially to raise awareness, to advocate systemic rheumatologic disorders Donna Chattin, BSN, RN
for and to educate the patient and physician community and to stimulate Julius Birnbaum, MD; JHU C. Spasticity
4:15 – 4:45 Accelerated Cure Project Presentation Frank Pidcock, MD
collaborative research on these disorders. The goal of this symposium is to
Benjamin Greenberg and Art Mellor D. Pain Management
provide an overview of the related neuro- immunologic diseases, symptom 5:00 – 6:00 The auto - immune epidemic: Bodies gone Denise Taylor, MD
management, discuss the latest research in novel therapies, including- cell haywire in a world out of balance and the E. Complementary and Alternative therapies AND
based restorative treatments. The symposium goals extend beyond cutting edge science that promises hope Equine therapy
Author: Donna Jackson Nakazawa Pat Kennedy, RN, CNP
disease management to caregivers and support groups for these chronic
Panel Discussion and Q&A Moira Baynes, RN
illnesses. The symposium is an educational and networking opportunity F. Positive Growth in the Face of Adversity
for people with these neuroimmunologic diseases, their caregivers, Friday July 18, 2008 Stephen Wegener, PhD
medical professionals, as well as scientists and physicians. G. Self advocacy: navigating government and
Morning Session community support programs
7:30 – 9:00 Continental Breakfast Sandy Hanebrink, OTR/L
Ag e n d a
9:00 – 9:30 Acute Therapies in Demyelinating Diseases Saturday July 19, 2008
Wednesday July 16, 2008 Benjamin Greenberg, MD; JHU Morning Session
9:30 – 10:00 Choosing a Treatment for New Diagnosis
4:00 – 6:00 pm Onsite Registration of Multiple Sclerosis 7:30 – 9:00 Continental Breakfast
6:00 – 6:30 pm Welcome Remarks Kathleen M. Costello, M.S., C.R.N.P., M.R.C.P.
Douglas A. Kerr, MD, PhD; Johns Hopkins Univ. (JHU) (UK), M.S.C.N.; University of Maryland Medical 9:00 – 9:30 Genetics and Autoimmunity
Sanford Siegel, PhD; TMA Center Corey Ford, MD; University of New Mexico
6:30 – 7:30 pm RNDS Inaugural Presentation and Keynote 10:00 – 10:30 Future Immunotherapies and Neuroprotective 9:30 – 10:00 Relating Sensorimotor Function to MRI
Allen Rucker, Author ‘The Best Seat in the House’ therapies Kathleen M. Zackowski, PhD, OT; KKI
Mariko Kita, MD; Virginia Mason Medical Center 10:00 – 10:30 High Dose Cyclophosphamide in MS
Thursday July 17, 2008 Chitra Krishnan, MHS
10:30 – 10:45 Refreshment Break Douglas A. Kerr, MD, PhD; JHU
Morning Session
7:00 – 9:00 Registration and 10:45 – 11:15 Fatigue in Autoimmune Neurological Diseases 10:30 – 10:45 Refreshment Break
Continental Breakfast Kathleen M. Costello, M.S., C.R.N.P., M.R.C.P. (UK),
9:00 – 9:15 Introduction M.S.C.N.; University of Maryland Medical Center 10:45 – 11:15 Hematopoietic Stem Cell Transplantation in MS
Douglas A. Kerr, MD, PhD; JHU 11:15 – 12:00 Depression and Cognitive Dysfunction James Bowen, MD; MS Center at Evergreen
9:15 – 9:45 Neuroimmunologic Disorders: An Overview Adam I. Kaplin, MD, PhD; JHU 11:15 – 11:45 Optical Coherence Tomography (OCT) and
Benjamin Greenberg, MD, MHS; JHU neuroprotection
9:45 – 10:15 Brain, Spinal Cord and Cells: The Actors and The 12:00 – 1:00 Lunch Laura J. Balcer, MD; University of Pennsylvania
Movie A Neuro - primer for Non - Neurologists
Carlos A. Pardo, MD; JHU A f t e r n o o n S e ss i o n 12:00 – 1:00 Lunch
10:15 – 10:45 Understanding the Immunopathology of Central 1:00 – 1:30 Medical and interventional approaches to
Nervous System Diseases Neuropathic Pain and Paresthesias 1:00 – 1:30 Neurorehabilitation – now and the future
Denise Taylor, MD; University of New Mexico Reggie Edgerton, PhD; Univ. of Califorina Los Angeles
Mariko Kita, MD; Virginia Mason Medical Center
1:30 – 2:00 Sexual Dysfunction 1:30 – 2:00 Neurodegeneration and Neuroregeneration –
10:45 – 11:00 Refreshment Break Bobbie Severson, ARNP; MS Center at Evergreen The Future
2:00 – 2:30 Bladder Dysfunction and Management Douglas A. Kerr, MD, PhD; JHU
11:00 – 11:30 Acute Disseminated Encephalomyelitis (ADEM) Claire C. Yang, MD; University of Washington 2:00 – 4:00 A Moderated Discussion
Benjamin Greenberg, MD, MHS; JHU 2:30 – 3:00 Spasticity Management Sanford J. Siegel, PhD; President TMA
11:30 – 12:00 Multiple Sclerosis (MS) Frank Pidcock, MD; KKI Chitra Krishnan, MHS; JHU
James Bowen, MD; MS Center at Evergreen 3:00 – 3:30 Patient Centered Care: The Role of
Self-management Stephen Wegener, PhD; JHU Dinner
12:00 – 1:00 Lunch 6:00 – 9:00 Dinner and Keynote Presentation
3:30 – 3:45 Refreshment Break of TMA Distinguished Service Award
A f t e r n o o n S e ss i o n
1:00 – 1:30 Neuromyelitis Optica (NMO) or Devic’s Disease 3:45 – 4:15 Self advocacy and employment with disabilities Please note, this program is subject to change.
Sean Pittock, MD; Mayo Clinic Sandy Hanebrink, OTR/L
1:30 – 2:00 Transverse Myelitis (TM) 4:15 – 4:45 Obstetric Issues in Women with Demyelinating
Douglas A. Kerr, MD, PhD; JHU Disease
2:00 – 2:30 Pediatric Transverse Myelitis Donna Chattin, BSN, RN
Frank Pidcock, MD; Kennedy Kreiger Institute (KKI) Benjamin M. Greenberg, MD, MHS; JHU