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I N
T H I S
I S S U E
There is a saying that a life lived in fear is a life half lived. In other words, fear is half-death.
Any deadly disease is not as deadly as the fear caused by it. It can alter a persons faith in
the possible solution or cure. It can affect a persons hope; his/her desire to live itself.
HIV related co-infections are indeed dangerous. But what the society has made of it is very
tragic. Though it is not an end in itself, the societal pressure makes the person to see it as
the end of all hopes. When all diseases are looked upon with compassion and empathy,
HIV and other related co-infections to it are looked upon with contempt. People are less
concerned about the health of the patient but more interested in his/her morality. And in
the Indian scenario, morality weighs more than the individual. It is saddening that though
States Snapshots
3
everyone knows the cause of the disease, very few know anything more about the disease
itself. In a situation like this, any victim of HIV can soon lose hope and confidence to lead a
States Coverage
good life in the society. More often than not, the patient also shares the same ignorance
4
and prejudice about the disease. Hence it becomes difficult for them to see dignity in their
From The Fields: Gujarat
lives.
As people working for this cause, it should be our mission to create awareness and allay all
sorts of misconceptions and prejudices towards HIV and AIDS. The patients need to be
given hope and encouragement to lead their lives with dignity and strive towards curbing
the infections.
States Snapshots
-ORW, Mumbai
States Coverage as on 31
24
States
252
Districts
166
NGOs
S
No
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
State
Andhra Pradesh
Assam
Bihar
Chhattisgarh
Delhi
Gujarat
Himachal Pradesh
Jharkhand
Kerala
Madhya Pradesh
Maharashtra
Manipur
Mizoram
Mumbai
Nagaland
Odisha
Puducherry
Punjab
Rajasthan
Tamil Nadu
Tripura
Uttar Pradesh
Uttarakhand
West Bengal
TOTAL
s t
March 2015
Districts
23
3
11
5
9
32
2
7
6
10
33
9
7
1
7
10
2
4
8
32
3
11
2
15
252
NGOs
31
2
3
4
1
1
1
1
1
2
32
17
3
7
7
2
1
2
1
32
1
9
2
3
166
ORWs
600
19
63
24
15
132
5
20
17
30
513
104
33
134
44
50
6
20
25
391
4
57
11
61
2,378
District
Coordinators
39
2
9
4
2
16
1
3
3
4
38
18*
3
18
7
7
1
3
4
41
1
10
2
6
242
*At present, there are 18 counselors working in Manipur apart from the above mentioned workforce.
But they didnt have any Nevirapine syrup bottle and asked me to procure from Gwalior ART center. I called Lilavati
and asked her father to go to Gwalior. As Gwalior was 80 KMs from Bhind, he could not go there. I tried other options
also but none of them worked .Then I urgently contacted Mansingh, Lilavatis husband who was in Ahmedabad. I
explained him the urgency and told that he had to go to MP the next day. He readily agreed and left for MP the next
day with 2 bottles of Nevirapine provided by us. Finally the child got nevirapine and we were happy with satisfaction
that we could help the child at the right time. I am very glad that with our constant efforts, both mother and child are
healthy today.
Jitendra Singh, District Coordinator, Ahmedabad & Gandhinagar
M A N I P U R
Mrs. Meena(Name changed) is a 20 yrs old divorcee from a large family who currently resides in Churachandpur
town in Manipur. She conceived out of wedlock and was shocked when during a routine pregnancy check-up
she was detected HIV positive.
Mrs. Meena did not have the strength to reveal her status to the father of her baby, her family members or her
friends. She had to undergo the trauma alone. She decided to go for Medical Termination of Pregnancy (MTP) as
she was not yet married. However after thorough counselling and support given by PPTCT staff, she managed to
bring in the father of her baby for counselling. He was tested and found to be negative. Fortunately, he affirmed
his commitment to marry her and Meena also decided to carry on with her pregnancy.
Meena received regular counselling through home visits and at the ART centre. She started opening up slowly
after regular counselling and began to disclose about her status to her family. She gave birth to a healthy baby
girl at District Hospital through normal delivery. NVP was administered to both mother and baby. She opted for
top feeding.
Meena has slowly changed her attitude about managing life with HIV. She has gradually started realising that
there are lots of other people who are living with HIV and that she is not alone. She is enrolled in different
project of the organization and has begun to regularly attend the support group meetings held by the PPTCT
programme.
M A N I P U R
I am Maria (Name changed) living in Kangpokpi town of Manipur. My husband and I lived a very happy
married life. I am HIV positive and my husband is negative. Ours was a love marriage. I first came to know
about my HIV status during pregnancy, while on the verge of delivery. As I was tested positive, my husband
was also made to test but found negative. But we being a discordant couple, never got a problem in our
married life. My husband and in-laws take good care of me. Initially, my status was not revealed to anyone
due to fear. My first son was delivered without any intervention and when he completed 18 months, he was
tested for HIV and was found to be positive. After doing the necessary investigations, my child was initiated
Anti retroviral therapy (ART) in Jawaharlal Nehru Institute of Medical Sciences Hospital (JNIMS). During
second pregnancy, I came across an NGO called RDA (Rural Development Association) and I was made to
undergo regular ANC check-up with the assistance of ORW of RDA. My second son was delivered at
Community Health Centre (CHC) Kangpokpi with PPTCT intervention by the RDA staff. I took Nevirapine (NVP)
tablet during labour pain and my son was provided with NVP syrup after few hours of delivery. My second
and third children are both born under PPTCT intervention by the NGO, RDA. Both the children were given
replacement feeding and till now they were all tested negative. My eldest son who is positive is 9 years and
second and third sons are 6 years and 3 years respectively.
Despite of being positive and my husband still negative, we are living a normal life, I was never questioned by
my in-laws or husband under any circumstances. My only problem is that my first son is positive. We were
not able to save him due to my fear of people knowing my status. I feel that I could have saved my first son if
I had met the staffs of RDA before.
Both my first son and I are undergoing ART treatment without having any problems. I am living with HIV for
the last ten years and with ART and I am able to live a normal life. My husband takes very good care of me.
He is always concerned about my medication and medical check-ups. Though I am HIV, I am lucky to have
been blessed with this family.
Started in 1997 as Schoolnet, IL&FS Education and Technology Services Limited (IL&FS Education) is the Social
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Email: arvindd.narayanan@ilfsindia.com
Tel: 0120-2459200
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