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TABLE OF CONTENTS:
Sr.No
Topic
1.
Brief Introduction to the Cause
a. Introduction
b. History of Children with Disability
c. Causes of Children with Disability
2.
Socio-Economic Problems
3.
Discussion about various NGOs working for this Cause
a.Asha Bhavan Centre
b.Ummeed
4.
Astitva-Serving the children with disability
8.
School for children with Mental Retardation
9.
Challenges Faced
10.
Introspection Without a sense of complacency.
11.
Workshops
12.
Rehabilitaion
13.
To Make the independent
17.
The School for Deaf
Page No.
3
3
5
9
12
18
18
19
21
23
24
27
29
29
31
35
In India children with disabilities mainly comes under the purview of the Ministry
of Social Justice & Empowerment. Some of the issues are dealt with by the health
ministry. But no single ministry has been assigned the protection of these children,
which leads to varying data about occurrence of disability amongst children. In
India 1.67% of the 0-19 population has a disability. 35.29% of all people living
with disabilities are children. Other estimates say that India has 12 million children
living with disabilities. Only 1% of children with disabilities have access to school
and one third of most disabilities are preventable. Under-nutrition is a severe
problem with children who suffer from cerebral palsy. In India 80% of children
with disabilities will not survive past age forty.
Many of the causes of disability are preventable by providing expecting mothers
will better prenatal and post natal care as well as proper nutrition for infants and
mothers.
The main causes of disability in children are
Communicable disease
Infection in early childhood
Early motherhood
Nutritional deficiencies
Insufficient or inaccessible health care services
Inadequate sanitation
Inter-family marriages
There are many protection issues that also lead to disability, especially mental
disabilities. Children who are trafficked, abused and sexually exploited are at risk
for psychological effects as well as physical retardation. Other forms of violence
against children can also lead to a disability such as corporal punishment in
schools, children living on the streets, and purposefully created disabilities for
begging. Children from poor families face a double disability.
Disability in India is still functioning in the realm of social welfare instead of a
rights perspective. Teachers are not trained and schools don't have the
infrastructure to deal with children with disabilities. Neither are pediatric wards of
hospitals equipped to deal with them. There is not enough data on the number of
children living with disabilities to allow the government to provide the necessary
services. Mental health disorders account for one sixth of all health disorders yet
India spends 0.83% of its health budget on mental health. Child labourers are also
at a higher risk of becoming disabled especially in hazardous industries.
1. Pervasive Attitudes
Idiot Cagesused to keep people with disabilities out of trouble, but also
for
Entertaining townspeople
Thomas Malthusadvocated elimination of defective people
2. The Enlightenment
Influential thinkers such as John Locke & Jean Jacques Rousseau: persons
with
Intellectual disabilities are capable of learning.
Education of deaf-mutes
Philip Pinel first to say mentally deranged were diseased rather than sinful
or
Immoral.
c. Causes of Disability.
Some babies form differently inside the womb and no one knows why.
But many disabilities in babies are caused by harmful conditions of women's lives.
If women can get enough nutritious food to eat, can protect themselves from work
with toxic chemicals, and can get good health care, including care at the time of
childbirth, then many disabilities could be prevented.
2.War
In today's wars, more civilians than soldiers are killed or disabled, and most of
them are women and children. Explosions cause people to become deaf, blind, and
lose their limbs, as well as causing other injuries. Their mental health is also badly
affected by the violence. The destruction of homes, schools, health centers, and
means of livelihood that results from conflicts and wars leads to increased
disability, poverty, and disease.
Land mines, cluster bombs, bullets, and chemicals used in wars cause more
disabilities in the world today than anything else. They often injure women who
are carrying out their daily activities, such as farming, or gathering water and
wood.
Explosions and landmines cause many leg and arm injuries, and often a child's or a
woman's leg has to be amputated. But only about 1 of every 4 amputees gets an
artificial leg to replace a lost leg, because they are usually expensive or difficult to
get.
3. Nuclear accidents
Many people have suffered after being exposed to massive amounts of radiation.
This happened after accidents in nuclear power plants at Three Mile Island in the
USA in 1979, and at Chernobyl in the Ukraine in 1986. And it also happened when
the USA dropped nuclear bombs on Japan in 1945. These incidents caused
widespread destruction and death from exposure to radiation.
The people who survived these accidents and bombing attacks have suffered
mainly from cancers--either tumors in various parts of the body, especially in the
thyroid glandor leukemia (cancer of the blood), all of which bring an early
death. In communities where these nuclear incidents happened, there has also been
an increase in the number of children born with learning difficulties, such as Down
syndrome.
4. Poor access to health care
Good health care can prevent many disabilities. Difficult labor and birth can cause
a baby to be born with a disability such as cerebral palsy. Trained birth attendants
who can identify risks and handle emergencies can prevent babies from being born
with many disabilities. Immunization can also prevent many disabilities. But many
times vaccines are not available, or people who are poor or live far from cities
cannot afford them, or there are not enough for everyone.
5. Illness
If a woman gets German measles (rubella) during the first 3 months of pregnancy,
her child may be born deaf.
Some illnesses a pregnant woman may get can cause physical or learning
problems when her baby is born. Illnesses that can cause birth defects include
German measles (rubella), which is a common cause of deafness in newborn
babies. There is a vaccine that gives protection against rubella, but a woman who
gets an immunization of the rubella vaccine should not get pregnant for one month
afterward.
Syphilis, herpes, and HIV can also be passed from a mother to her baby and can
cause birth defects. So women need to be tested and treated for sexually
transmitted infections to protect the baby developing in the womb.
Some illnesses a baby or small child may get can also cause disability, such as
meningitis, polio, and measles. It is important for newborn babies to get
immunizations for protection. Children who live in places where leprosy (Hansen's
disease) is common need to be tested as early as possible.
6. Poisons and pesticides
Poisons such as lead found in paints, pesticides such as rat poison, and other
chemicals can cause disabilities in people and cause birth defects in babies
growing in the womb. Smoking or chewing tobacco, breathing smoke, and
drinking alcohol during pregnancy can also harm a child before she is born.
Workers often use chemicals on the job or in the fields without being taught how to
use them safely, or without even knowing if they are dangerous. Accidents in
factories can release poisons into the air, water, or ground, causing terrible health
problems, including permanent disabilities.
b. Asha
Bhavan Centre
Entering into its 31st year, Astitva is an organization dedicated to the development
of disabled. Secular in approach, caste, creed & religion play no role while
admitting a student. The only parameters considered are the disability and toilet
training of the student. Astitva is situated at Dombivli, a thriving suburban town on
the central railway route of the Mumbai local train network. Prior to the setting up
of Astitva, parents had to take their disabled children to Mumbai by local trains; an
ordeal even for the normal human being. Two affected parents along with five
others working in social organizations came together on 6th September, 1981 on the
eve of World Handicapped Day and the same day, this organization was set up.
In order that the parents of mentally retarded children should not consider our
school as an escape for them from these children, we grant vacation to the school
during summer and Diwali so that the children can stay in the midst of their family
for a long time without interruption and nurture the feeling of being very much a
part of the family. The mentally retarded children are also deputed to participate in
the various tournaments/events organised by government/semi-government and
autonomous bodies as well as other social service organisations and schools. The
mentally retarded children are afforded an opportunity to present their individual
performance and/or group performance in the field of art, acting, dress
competitions, drawings, dance competitions, cultural programmes and also outdoor
sports events like running etc., or in-door sports like carrom etc., in order to get
them exposure to the outside world with a view to inculcating in them the feeling
of self-confidence.
We have classified our students according to the nature of their mental retardation
like mild/moderate/severe mental retardation, down syndrome, epilepsy, cerebral
palsy, birth asphyxia, hyperactive etc. and also on the basis of the progress
achieved in attending to daily routine activities, etiquettes, conversation, group
compatibility etc. We have further classified them according to their requirements
of special case/need like speech problem, language problem, therapy, meningitis
etc.
After students attain the age of 18 years, according to the rules of the government
obtaining in this behalf, they are required to be transferred to Sheltered Workshop.
While in the school for mentally retarded, we try to take utmost care to ensure that
the child after attaining the age of 18 can undertake some gainful activities
preferably of the monotonous nature so that they can draw earnings, though
marginally. It stands to the credit of the school that five mentally retarded students
after leaving the school were in a position to secure petty jobs on their own
elsewhere on the recommendation of our school.
The trustees of 'ASTITVA' are fully aware that I.Q. level of any mentally retarded
child cannot increase even a bit inspite of the voluminous efforts directed towards
the end. It has therefore been our constant endeavour to activate his other faculties
which may be subtle so that the mentally retarded child can atleast be trained to
attend to his day to day activities and make a modest earning lest he is considered a
burden on the family and/or the society of which he is very much an integral part.
With this broader objective in view, our process of research and development in the
field of mental retardation is under way continuously without interruption. We
consider each child as a class by himself and a subject for research in mental
retardation. We firmly believe based on the results of our research that if one
faculty of any individual is dormant, the other faculties are bound to be capable of
getting activated to make good the deficit only if we work towards the end with
enthusiasm and missionary zeal without the slightest sense of complacency.
d. Workshops
What happens to those who cross the age limit of 21 years? Having spent
more than 10 years in the school it is traumatizing for the children to stay at home.
It is also troublesome for the parents. Early in the evolution of our institution, we
decided that we would not let our children go through this experience just because
government aid is not available after a certain age. We therefore set up two
workshops one under the government aid and the other funded by the institution.
Sheltered Workshop of Astitva school, set up in 1986 was the first Govt.
recognized section in Thane district. Since then students have seamlessly moved
from the school to the sheltered workshop and then on to the normal workshop.
Once a child is admitted to Astitva, he or she stays with us for as long as the
situationpermits.
The concept & philosophy of the Sheltered workshop & Workshop was
originated by Dr. Suresh Adkar and implemented by late Shri. Major Kale. He
worked with zeal & total dedication, implementing various programs at school. He
insisted on sharing the profits of these programs with the mentally disabled
children working in various departments. The remuneration of each child is given
to the respective parents in Diwali & on 31st March every year.
e Rehabilitation of the Mentally Disabled
Due to the limitations on the school education, in case of the mentally disabled,
vocational training proves to be of immense importance. Considering the liking &
the ability of the disabled student, he can be provided theoretical as well as
practical training of a particular profession. The students, after training, can engage
themselves in activities like making envelopes, card board boxes, Book binding,
stitching, knitting etc. In group activities, they can make chalks, candles, incense
sticks etc.
These Workshops play a very important role, imparting vocational training to the
disabled. By empowering them to be productively engaged, they also help their
parents in a small way by sharing the financial burden. Instead of depending on the
organization always, we believe that the parents can form their groups, unite the
children & become partners to our institution. In future we may have industrial
establishments run by these children & their parents and start some activity of any
vocation on their own.
In the Sheltered Workshops, different groups of students are formed on the basis
of their I.Q., liking & ability. Doing the same work for a considerable period of
time, the students develop specialization. Unlike normal people, these students do
not experience the monotony of doing the same work. We ensure that each student
develop specialization in at least one product. It is our experience that students
grow more confident when they see that they too can contribute to the society.It is
generally easier for the Deaf & Dumb to become be self-sufficient than it is for the
mentally disabled.
We are very proud that one of our alumni is now working as caretaker in our
hostel. 18 of them are earning their livelihoods by working in shops and factories.
The disabled students need to be taught self-sufficiency, working without any
dependence on others, punctuality, understanding the clock, knowledge of the
surroundings, some day to day routines etc. It is a time consuming process for the
disabled to learn & understand the things. But with regular practice, they learn
these things.
We provide vocational training in the Sheltered Workshop whereas various items
of daily use are made in the normal Workshop. We try to maintain good quality and
ensure that the children making these products are healthy & hygienic & use
proper accessories such as aprons and masks. Our foods section has the approval of
the Food & Drugs Administration, Thane District. The following are the different
divisions in our Sheltered workshop & Workshop.
5. To Make Them
Independent
Household work division Edible products like spices, supari, papad etc. are made
in this division. The work is divided in different students as per their ability. All the
training is given like identifying the raw material, handling of goods, Baking,
Grinding, Cutting, Counting The students are given training to use various utensils
like mixer, grinder, gas, sewing machine, knife, scissors etc.
Sewing training Knowing the sewing machine, handling, taking care of the
machine, changing the needle etc. is taught in this division. The students are
trained to stitch, bags, apron, fancy bags, purses etc.
Handicraft training: Rakhis, Sky lamps, Greeting cards etc.
Box making: Boxes of various sizes, Ofiice files, Dusters, Envelopes, Paper bags
etc.
Making Candles & Chalks: Sieving the chalk powder, measuring the water,
Melting the wax, filling the moulds, Drying & Packing. Decoration candles are in
great demand in festive season.
Making Idols: Soaking the soil, Filling the moulds, Finishing the idols, Coloring,
Drying & Packing of the idols.
In spite of a legal provision to reserve 3% jobs in Government, it is seldom found
reality.
Breathing exercises: The hearing impaired children cannot utter a word or sentence
completely due to lack of control over breathing. To develop the speech ability, the
children are asked to do some breathing exercises like making bubbles of soap
water, drinking water making use of a straw, blowing the cotton, picking up peas
with the help of a straw, blow the candle etc.
Along with academic studies, the children are encouraged to develop other skills
like handicraft, drawing, dance, drama, warli painting, jewelry making etc.
Professional courses like typing & computer are also available for the children. In
Road Safety Police ( R.S.P.), the children are very efficient.