INNOVATION DEVELOPMENT OF eREGISTRY

FOR CHILDHOOD-ONSET DIABETES IN KUWAIT eHEALTH INNOVATION NETWORK

INTRODUCTION
As part of the Kuwait Scotland eHealth Innovation
Network project Dasman Diabetes Institute has partnered
with Aridhia Informatics Ltd, the University of Dundee and
NHS Tayside to develop an eHealth registry for children
and adolescents (19 years), newly-diagnosed with
diabetes. The Childhood Onset Diabetes Registry will
enable the epidemiology of diabetes and its complications AUTHORS
to be robustly monitored, will function as a tool for DASMAN DIABETES INSTITUTE,
research, enable intervention costs to be measured, and KUWAIT
support development of other chronic conditions registers in Azza Shaltout, Dari AlHuwail,
the region. Monira Al Arouj, Abdulla Al Nakhi
Dalia A. Badawi, Abdulla F. Al
AIMS Khuzam
To design an electronic register to record young people Kazem Behbehani
diagnosed with diabetes, discharged from government
hospitals, attending Primary Healthcare Centers, Diabetes ARIDHIA INFORMATICS,
Special Clinics and the Kuwait Diabetes Society. To enable SCOTLAND
users to run complex queries and generate reports to Rodrigo Barnes, Elizabeth Fairley
enable statistical data analysis.
MINISTRY OF HEALTH, KUWAIT
METHOD Mona Alkhawari, Afaf Al Adsani,
From a review of existing datasets (Scottish Care Rehab Al Wotayan
InformationDiabetes Collaboration, NHS Dataset for
Diabetes and Kuwait Ministry of Health sample form) a UNIVERSITY OF DUNDEE,
number of dataset record definitions have been developed. SCOTLAND
The process focuses on building consensus between Andrew Morris
stakeholders and users and understanding the requirements
(i.e. electronic rather than paper based data capture). Data STEERING GROUP FOR KUWAIT
CODeR NAVIGATION capture is partially automated and drawn from multiple CHILDHOOD ONSET DIABETES
Home Page
sources and includes data validation, links to clinical coding eREGISTRY (CODeR)
Search CODeR information, laboratory range alerts and referencing of M. Abdulrasoul, H. Alsane,
Portlet Portlet standard guidelines information. The element guaranteeing M.Qabazard, M. Al-Mahdi,
Search by Patient List My Filter by my quality and totality of data is the existence of a unique civil N. Zanati, A. AlMansour,
Civil ID Registrations registrations
identifier. Patient data input is via a web portal, saved H. Habeeb, F. Al Shawaf,
within a Dasman Diabetes Institute data centre repository T. Al Muaili, N. AlTarkeit,

Patient Profile and accessible through an electronic patient record portal Z. AlMazidi, F. Mandani,
Quick access to Clinical CODeR called the Kuwait Healthcare Network , which has been E. Maarafi, N. Al Mazidi, H. Sorour,
Standards CODeR Registration
best practice deployed in the Capital Governorate with a population of H. Mahmoud, R. Saqr, A. Al- Attar,
(Childhood) Panel
502, 854 and constitutes 14% of the total population of N. Abdella, F. El Eneizy,
New detail view
Kuwait. E. AlBosairi, E. Alozairi, W. AlDahi,
H. Al Ghareeb, M. AlOteiby,
RESULTS S. AlJassar, Y. Khuraibit, W. Saba,
TYPE OF DIABETES RECORDED AGE PROFILE The registry is being piloted at Dasman Diabetes Institute. A. Al Dousari, S. Alansari,
Ongoing development includes: the user interface, the F. AlEneizi, N. Elkum
synthesis of results to improve health planning, and
maintenance of statistical software used for report creation. www.dasmaninstitute.org/coder

Type 2: 6, 4%
CONCLUSION
Understanding the process and key lessons learned enables
Not set: 11, 9%
the e-Health registry to be continually optimized to improve
04 59 1014 1519
the efficiency of how data is entered, saved, linked and
formatted for reporting and analysis. Preliminary results
Type 2 0 2 2 2
indicate that it will prove to be an invaluable innovation in
Type 1: 114, 87% Type 1 22 47 37 8
the area of Paediatric Diabetes.
Friday 30 th September 2011

eHEALTH INNOVATION NETWORK

www.dasmaninstitute.org/kuwait-scotland www.dasmaninstitute.org www.moh.gov.kw www.aridhia.com www.dundee.ac.uk www.nhstayside.scot.nhs.uk