Association of parents, guardians and friends of children with malignant diseases

BACKGROUND - ika Boca is association of parents, guardians and friends of children with malignant diseases. Our
members are parents and friends of children treated for cancer. Involvement in the association is purely
voluntary. Faced with so many problems encountered and arising when you are hit by childrens rare and malignant
diseases in Serbia, in 2010, we created an informal group and since 2011 in order to transfer our experience and
support others in the process, and we established and officially registered our association. Since then we conducted
several projects related to our scope, alone and in cooperation with other local and international associations with the
same goals. All founders are the parents of children treated with cancer. We use social networks to appeal and
gather people to help our cause. Our Facebook page is: www.facebook.com/pages/Pomozimo-Deci-Oboleloj-Od-Bilo-
Koje-Vrste-Karcinoma/122809191107542. Our official Web-site can be found on www.cikaboca.org. ika Boca is
fully recognized member of ICCCPO (INTERNATIONAL CONFEDERATION OF CHILDHOOD CANCER PARENT
ORGANIZATIONS) - www.icccpo.org

OUR MISSION - Support families whose children are affected by cancer

ACTIVITIES - Open door for parents hour, information about law and their rights, including advocacy for laws to
benefit rare and cancer diseases problems, sharing knowledge about diseases and known possible treatments,
survivors experience, creative workshops, capacity building, organization of events to help affected children to find
cure abroad if they cannot be treated in our country, organization of regional gathering for similar associations,
networking
OUR PROJECTS FOCUS FOR YEAR 2013/2014 - From the first diagnose and treatment - provision of support and
survivors experience through our project INTERNET RADIO MLADICE broadcast, present at each hospital in Serbia, and
during the healing process and therapy and once in remission, we are committed to provide them with full
rehabilitation and inclusion into everyday life and healthy life through yearly SUMMER CAMP WE CAN DO
EVERYTHING! for children treated with malignancy sponsored by our tennis ace Janko Tipsarevi and ATP charity
fund, Ministry of Health of RS, Ministry for Sport and Youth and many other donors. This camp is dedicated to
implementation of innovative idea where kids and youth participation is unaccompanied (parents and guardians stays
at home). It is inspired by famous Paul Newmans camp Hole in The Wall and it brings multiple and long-lasting
benefits to these children (socialization, independence, integration, peer support and more and in safe
environment).We secured financing camp and Internet Radio for 2014 through project GOLDEN MINUTE year thanks
to VIP mobile New Year 2014 social responsibility SMS action.

1) SUMMER CAMP WE CAN DO EVERYTHING! 2014 - One of the contemporary methods to help these children
cope with this difficult disease and overcome it, including its consequences, is camp programs, specifically
designed and tailored to their needs. Camp provides common and extraordinary recreation as well as learning
useful skills for dealing with the many issues arising from the treatment. Management Board of ika Boca
Association is committed to this need and conducting yearly summer and winter camps for children aged 7 to 18
years old and parents unaccompanied. First camp was successfully held in July 2013 on mountain Zlatibor in
Serbia, gathering around 38 children in remission and 15 volunteers.
2) INTERNET RADIO MLADICE (www.radio-mladice.rs) - Since May 2012 we have gathered young people treated for
malignancy (usually called survivors in other countries), aged 15 to 30, to facilitate their need for fellowship
organisation into informal group and they came out with the organisation name for all Youth treated with cancer
MladiCe (Mladi - Youth, Ce - (C) in the disease codebook label for cancer). They have started the Project Internet
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Radio MladiCe, which began broadcasting on the September 29 2012. These young people use this media to
talk about their experiences and share that experience to the others through personal example helping those
who are currently in treatment. The project is aimed also at inclusion and socialization of treated children and
their psychological empowerment. The main idea of radio is a young peoples need to be heard and their
opinions considered and discussed on various topics from environment they live in. ICCCPO recognized Radio
MladiCe as successful project enabling gathering of survivors, and was presented at their Congress in May 2013
in Basel. One of donors for Internet Radio MladiCe project is also Ministry for Youth and Sports of Republic of
Serbia.

ika Boca Vojvode Stepe 298, 11000 Belgrade, Serbia

PIB: 107282863; ID No.: 28062761; Account: 285-2321040000003-64 Sberbank Srbija a.d.
Phone/fax: +381 11 405 94 14: E-mail: roditelji@cikaboca.org; Web-site: www.cikaboca.org
Our mission is to support families whose children are affected by cancer Join us or donate and make a change!
 Association of parents, guardians and friends of children with malignant diseases

HELP US CREATE BETTER FUTURE FOR THOSE IN NEED!

CHANGE THE FEAR INTO FINDING A WAYS TO OVERCOME HARDSHIP!
FIGHT AGAINST MALIGNANCY ALL THE WAY!
ALWAYS REMEMEBER EVERYONE WHO EVEN ONCE TOUCHED YOUR SOUL!

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Links to media coverage (selection):

B92 (video coverage)-http://bit.ly/1doSdSv

RTV PINK (video coverage)-http://bit.ly/HeQB2n
RTS (video coverage)-http://bit.ly/1ckAqKW
Media Centre - Medija Centar Belgrade (internet media coverage)- http://bit.ly/1bBVZ8R
Danas (press) - http://bit.ly/1aC8oJU
24 HOURS (press) - http://bit.ly/1f3u84b
Telegraf (press) - http://bit.ly/HeQEv0
OZON Press - http://bit.ly/1h030Hz
Radio Luna (radio coverage) - http://bit.ly/17sjlAX

Pictures:
http://on.fb.me/HpwnmG
http://on.fb.me/16Ll1iY
http://on.fb.me/16JQg3x

Promotional spot INTERNET RADIO MLADICE:

http://bit.ly/1dMzN0C

Parachute tandem jumps - Fenix for MladiCe

http://bit.ly/1hsTeLM

The First Regional Convention of MladiCe (young cancer survivors) 2013:

http://bit.ly/HsPjRN
http://bit.ly/1ggR4zU

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International Childhood Cancer Day 15 February 2014
http://youtu.be/qSgrRfS8vGM

ika Boca Vojvode Stepe 298, 11000 Belgrade, Serbia

PIB: 107282863; ID No.: 28062761; Account: 285-2321040000003-64 Sberbank Srbija a.d.
Phone/fax: +381 11 405 94 14: E-mail: roditelji@cikaboca.org; Web-site: www.cikaboca.org
Our mission is to support families whose children are affected by cancer Join us or donate and make a change!