Sharing

Information to
Improve Care
Dr Robert Jeeves
Sammi Wilson
Steve Robinson

www.england.nhs.uk
Sharing information to improve care
Everyone has care records. This is information
that your GP surgery and hospitals keep about
your health and care.

Important information from these care records can

be shared with other teams who are treating you.
This can help you get better and quicker care.

We are here to discuss two ways of doing this:

1 Adding additional information to Summary
Care Record This is available now and you
can ask for this to be done now

2 Flagging reasonable adjustments across

the NHS This is currently being developed
and you can tell us how this will work
www.england.nhs.uk
 About Summary Care Records

• Most people have a Summary Care Record

• It is created by your GP, on their computer

• It can be seen by staff across the NHS

• It has basic information about your health

www.england.nhs.uk
 What is on a Summary Care Record?

• The Summary Care Record is a snapshot of

your health

• It has what medicines you take

• It has any allergies you have

• It has any bad reactions you might have had

• It is there to make sure NHS staff know how

best to treat you if they do not know you

www.england.nhs.uk
 Why is a Summary Care Record
important?
• You might need to see a doctor or nurse who does
not know you

• It can help them see your information straight away

on a computer

• It can stop them making a mistake, because they can

see your medicines and allergies

• This is really important in an emergency, as they

might not be able to talk to you

www.england.nhs.uk
An example – Rob’s Summary Care
Record
• Rob is allergic to Penicillin

• This is a medicine that is used to treat

infections.

• If Rob gets an infection, he will not be able to

take penicillin

• It is important that hospital staff know this, so

they do not give him penicillin

www.england.nhs.uk
 Here is the BIG NEWS

• If you have a learning disability / autism you can

have extra information put on your Summary
Care Record

• This is so that medical staff know a bit more

about your support needs

• It is your choice to add this extra information on

• You have to ask your GP practice to do it

www.england.nhs.uk
 What information can I add?

• Your illnesses or health conditions

• Operations or vaccinations you have had

• How you would like to be treated

• What support you might need

• Who to contact, if they want to find out

more about you

www.england.nhs.uk
 Adding more information to
your SCR

Supporting those with learning disabilities

Lawrence is a middle aged man with a

moderate learning disability. He has difficulty
hearing, his speech can be difficult to
understand and he gets anxious with people
that he does not know. His sister is his next of
kin and is very involved in his care.

www.england.nhs.uk 9
 Lawrence attends Lawrence initially
Six months later, refuses blood
an annual health
he is brought to tests but he is
check at his GP
A&E with a carer. persuaded to
practice.
He has been have them by
Key information
refusing to eat for using local
from his
the last few days anaesthetic
healthcare
and clutching at his cream and a chat
passport,
chest. Lawrence’s about football. He
including his
SCR is accessed is found to be
phobia of needles
which shows anaemic.
and his interest in
contact details for An endoscopy is
football, is
his sister. It also arranged which is
recorded in his
shows anti- supported by his
GP record.
inflammatory sister. He is
In discussion with
medication that he found to have a
Lawrence and his
has received gastric ulcer. He
sister, his GP
recently and that
makes a ‘best is started on
he has previously
interests’ decision treatment and
been treated for discharged
to create an
gastritis. home.
enriched SCR.
www.england.nhs.uk 10
www.england.nhs.uk 11
 Question time….

• This is your chance to ask any questions

you have about Summary Care Records

• There are experts in the room who can help!

www.england.nhs.uk
 About Reasonable Adjustments
• Sometimes people with a learning disability need
support to help them use health services.

• An example of a health service is the doctor’s

surgery or a hospital.

• If healthcare services know you need support

they should be able to make reasonable
adjustments.

• Reasonable adjustments are things like extra

time with your doctor, giving you easy read
information or more support to understand.

www.england.nhs.uk
 About the Flag
• Sometimes healthcare staff do not know when
people with a learning disability need extra
support.

• This means people with a learning disability can

miss out on getting the reasonable adjustments
they need.

• NHS England want to put a note on your health

record to tell NHS staff that you need extra help
or support.

• The note on your record is called a flag.

www.england.nhs.uk
 About the Flag
The flag could tell NHS staff:

• About your disability and how it affects

you

• What help and support you would

need to use health services.

• What NHS staff can do to make things

easy for you, for example give you
longer appointments
www.england.nhs.uk
 About the Flag
• The information on the flag would be seen by all
the teams providing your care in health services
you use, for example hospitals and your doctor’s
surgery.

• The teams include doctors, nurses and reception

staff.

• They would find the information on your health

record on the computer and use it to make sure
they give you the best care possible.

• You would choose what information was on your

record.

www.england.nhs.uk
 Tell us what you think
1. Would you like NHS staff to know that you may need support
or reasonable adjustments?

2. Why would you like this?

3. What would you like written on your Flag?

4. Can you give examples of how the flag would help you or your
carer?

5. Have you got any concerns or worries about this?

6. How could we make this better?

www.england.nhs.uk 17
Questions?

Further Information:
https://www.gov.uk/government/publications/reasonable-adjustments-
for-people-with-learning-disabilities/reasonable-adjustments-a-legal-
duty
https://www.gov.uk/government/uploads/system/uploads/attachment_d
ata/file/621685/pharmacy_and_people_with_learning_disabilities.pdf

SCR: A patient leaflet is available - see the SCR website:

https://digital.nhs.uk/summary-care-records or talk to your GP practice
SCR Email: scr.comms@nhs.net

National record Locator Email: nhsdigital.interop@nhs.net

www.england.nhs.uk
Reasonable adjustment flag alongside
patient details

NRLS records 16-10 Reasonable Adjustment

www.england.nhs.uk 19
Flag - details of reasonable adjustments
Patient Details Name: Freda Brown NHS Number : 999 999 9998
Date of Birth: 21st March 1992 Age: 25 years old

Patient Reasonable Adjustment Flag

Please consider this patient for reasonable adjustments*
Potential 1. Freda needs to be supported by her keyworker for all health appointments – contact
Adjustment(s) number……………………..
2. Freda needs all health interventions explained in simple terms and shared in written /
diagrammatic form to help her understand, remember and consent
3. Freda needs to be supported to make decisions and choices using non verbal (eye
pointing) approaches
4. Freda’s weight, nutritional intake and skin integrity requires vigilant monitoring;
advice, support and guidance needs to be provided to support staff.
5. Freda uses a care passport – the latest version is available from Freda or her carer.
Main reason(s) Learning Disability (Moderate)
for adjustment(s) Physical Disability
Cerebral Palsy
Adjustment Flag Dr Mike Brown, Tel: 01226 121121
created by Barnsley Acute Trust, Fax: 01226 21212
Some Town, Email: MBrown12@nhs.net
Some County,
S76 8YP
Created on 1st March 2016

*The Equality Act (2010) states that public organisations must take steps to remove the barriers individuals face because of their disability.
www.england.nhs.uk 20
The Act labels this as the duty to make anticipatory reasonable adjustments.
Patient Details Name: Freda Brown NHS Number 999 999 9998 Date of Birth 21st March 1942 Age: 75 years old

NRLS : Available records: 16 in total with 10 updated in last 28 days

GP Practice: Dr Dre, The surgery. The Hood, LS01 1DF 0113 contact: 0113 888888
- 14/09/17 hh:mm 1. GP system record: Emis Web – Resuscitation status
- 14/09/17 hh:mm 2. GP Summary (PDF) – Resuscitation status
- 09/09/17 hh:mm 3. Summary Care Record with Additional information (Spine Portal SCRa or PDF) – Resuscitation status
- 22/04/13 hh:mm 4. Lasting Power of Attorney (record at Office of the Public Guardian)
- 17/12/10 hh:mm 5. Advance decision (PDF) – Resuscitation status
- 23/07/10 hh:mm 6. Preferred priorities for care (PDF)

Anytown community mental health trust – address….. Contact….

- 11/09/17 hh:mm 1. Mental health clinical system (Servelec RIO)
- 17/12/10 hh:mm 2. Care Programme Approach plan – review xx/xx/xx (PDF)
- 23/07/10 hh:mm 3. Mental health crisis plan (PDF)

Anytown community health trust - address…. Contact….

- 15/09/17 hh:mm 1. ePACCs – palliative care coordination record – Resuscitation status
- 17/12/10 hh:mm 2. Palliative care plan – review xx/xx/xx (PDF) – Resuscitation status

North West Ambulance Service – contact xxxx

- 01/09/17 hh:mm 1. Community care pathway plan
Anytown foundation trust - address ….. Contact….
- 03/03/17 hh:mm 1. Care passport
- 01/09/17 14:22 2. Discharge letter – visibility expires on 02/03//18 (at 180 days)
Recent communications (last 3 months):
- Today 04:32 1. 111 – some activity doc
- 01/09/17 14:22 2. Discharge letter – Anytown foundation trust
Other documents:
- 11/09/17 19:45
www.england.nhs.uk
1. Personal health record (PDF)  Back
21