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Reference: http://www.nfcacares.org/who_are_family_caregivers/care_giving_statstics.cfm
CAREGIVING POPULATION
More than 65 million people, 29% of the U.S. population, provide care for a chronically ill, disabled or aged family member or friend during any given year and spend an average of 20 hours per week providing care for their loved one.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP; November 2009.
CAREGIVING POPULATION
The value of the services family caregivers provide for "free," when caring for older adults, is estimated to be $375 billion a year. That is almost twice as much as is actually spent on homecare and nursing home services combined ($158 billion).
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
CAREGIVING POPULATION
The typical family caregiver is a 49-year-old woman caring for her widowed 69-year-old mother who does not live with her. She is married and employed. Approximately 66% of family caregivers are women. More than 37% have children or grandchildren under 18 years old living with them.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
CAREGIVING POPULATION
CAREGIVING POPULATION
CAREGIVING POPULATION
Family caregivers are the foundation of long-term care nationwide exceeding Medicaid long-term care spending in all states.
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
CAREGIVING POPULATION
51% of care recipients live in their own home, 29% live with
their family caregiver, and 4% live in nursing homes and assisted living.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
CAREGIVING POPULATION
CAREGIVING POPULATION
14% of family caregivers care for a special needs child with an estimated 16.8 million caring for special needs children under 18 years old. 55% of these caregivers are
caring for their own children.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
CAREGIVING POPULATION
10
78% of adults living in the community and in need of longterm care depend on family and friends as their only source of help.
Thompson, L. Long-term care: support for family caregivers. 2004
ECONOMICS OF CAREGIVING
Women who are family caregivers are 2.5 times more likely than non-caregivers to live in poverty and five times more likely to receive Supplemental Security Income (SSI).
Study conducted by researchers at Rice University data compiled from the Health and Retirement Study funded by the National Institute of Aging and conducted by the University of Michigan, 1992-2004
ECONOMICS OF CAREGIVING
Caregiving families (families in which one member has a disability) have median incomes that are more than 15% lower than non-caregiving families. In every state and DC the poverty rate is higher among families with members with a disability than among families without.
Disability and American Families: 2000, Census 2000 Special Reports, July 2005
ECONOMICS OF CAREGIVING
During the 2009 economic downturn, 1 in 5 family caregivers had to move into the same home with their loved ones to cut expenses.
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
ECONOMICS OF CAREGIVING
47% of working caregivers indicate an increase in caregiving expenses has caused them to use up ALL or MOST of their savings.
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009
ECONOMICS OF CAREGIVING
The average family caregiver for someone 50 years or older spends $5,531 per year on out of pocket caregiving expenses in 2007 which was more than 10% of the median income for a family caregiver that year.
Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update. AARP
23% of family caregivers caring for loved ones for 5 years or more report their health is fair or poor.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP; November 2009
Stress of family caregiving for persons with dementia has been shown to impact a person's immune system for up to three years after their caregiving ends thus increasing their chances of developing a chronic illness themselves.
Drs. Janice-Kiecolt Glaser and Ronald Glaser, "Chronic stress and age-related increases in the proinflammatory cytokine IL-6. Proceedings of the National Academy of Sciences, June 30, 2003.
Nearly three quarters (72%) of family caregivers report not going to the doctor as often as they should and 55% say they skip doctor appointments for themselves. 63% of caregivers report having poor eating habits than noncaregivers and 58% indicate worse exercise habits than before caregiving responsibilities.
Evercare Study of Caregivers in Decline: A Close-Up Look at Health Risks of Caring for a Loved One. National Alliance for Caregiving and Evercare. 2006.
40% to 70% of family caregivers have clinically significant symptoms of depression with approximately a quarter to half of these caregivers meet the diagnostic criteria for major
depression.
Zarit, S. (2006). Assessment of Family Caregivers: A Research Perspective
More than 1 in 10 (11%) of family caregivers report that caregiving has caused their physical health to deteriorate.
How Do Family Caregivers Fare? A Closer Look at their Experiences. Center on Aging Society. 2005.
A wife's hospitalization increased her husband's chances of dying within a month by 35%. A husband's hospitalization boosted his wife's mortality risk by 44%.
Nicholas D. Christakis, Professor, Health-care Policy, Harvard Medical School, Boston and Suzanne Salamon, M.D., Associate Chief, Geriatric Psychiatry, Beth Israel Deaconess Hospital, Boston, New England Journal of Medicine, Feb. 16, 2006
Family caregivers experiencing extreme stress have been shown to age prematurely. This level of stress can take as much as 10 years off a family caregiver's life.
Elissa S. Epel, Dept of Psychiatry, Univ of Calif, SF, et al, From the Proceedings of the National Academy of Sciences, Dec 7, 2004, Vol 101, No. 49.
73% of family caregivers who care for someone over the age of 18 either work or have worked while providing care; 66%
have had to make some adjustments to their work life, from reporting late to work to giving up work entirely; and 1 in 5 family caregivers have had to take a leave of absence.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009
Caregivers caring for elderly loved ones cost employers 8% more in health care costs estimated to be worth $13.4
Over 65% of employers believe that health benefits improve employees' health. Sixty percent (60%) believe it increases morale and 39% believe it increases productivity.
Job-based Health Insurance in the Balance: Employer Views of Coverage in the Workplace.Collins, S.R. et al, The Commonwealth Fund, Commonwealth Fund Supplement to the 2003 National Organization Study. March 2004
Focus group research suggests that family caregivers do not recognize that public policy has a direct impact on their day-to-day lives. Many are uncomfortable even thinking there might be a connection.
Lake Snell Perry & Associates, A Report on Formative Focus Groups, conducted for the Family Caregivers Self-Awareness and Empowerment Project, a joint program of the National Family Caregivers Association and the National Alliance for Caregiving, September 2001.
CAREGIVER SELF-AWARENESS
Over 90% of family caregivers become more proactive about seeking resources and skills they need to assist their care recipient after they have self-identified.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.
CAREGIVER SELF-AWARENESS
83% of self-identified family caregivers believe their selfawareness led to increased confidence when talking to healthcare professionals about their loved one's care.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001
CAREGIVER SELF-AWARENESS
For over 75% of family caregivers it was the act of helping their loved one with personal care that contributed to their self-identification.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.
CAREGIVER SELF-AWARENESS
For 60% of family caregivers, their loved one's diagnosis and their interaction with the health care system made them aware that they were family caregivers.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.