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Caregiving Statistics

STATISTICS ON FAMILY CAREGIVERS AND FAMILY CAREGIVING


1. 2. 3. 4. 5. 6. CAREGIVING POPULATION ECONOMICS OF CAREGIVING IMPACT ON FAMILY CAREGIVERS HEALTH CAREGIVING AND WORK CAREGIVING AND HEALTH CARE CAREGIVER SELF-AWARENESS

Reference: http://www.nfcacares.org/who_are_family_caregivers/care_giving_statstics.cfm

CAREGIVING POPULATION

More than 65 million people, 29% of the U.S. population, provide care for a chronically ill, disabled or aged family member or friend during any given year and spend an average of 20 hours per week providing care for their loved one.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP; November 2009.

CAREGIVING POPULATION

The value of the services family caregivers provide for "free," when caring for older adults, is estimated to be $375 billion a year. That is almost twice as much as is actually spent on homecare and nursing home services combined ($158 billion).
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009

CAREGIVING POPULATION

The typical family caregiver is a 49-year-old woman caring for her widowed 69-year-old mother who does not live with her. She is married and employed. Approximately 66% of family caregivers are women. More than 37% have children or grandchildren under 18 years old living with them.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009

CAREGIVING POPULATION

1.4 million children ages 8 to 18 provide care for an adult


relative; 72% are caring for a parent or grandparent; and 64% live in the same household as their care recipient. Fortunately, most are not the sole caregiver.
National Alliance for Caregiving and the United Hospital Fund, Young Caregivers in the U.S., 2005

CAREGIVING POPULATION

20 hours per week is the average number of hours family


caregivers spend caring for their loved ones while 13% of family caregivers are providing 40 hours of care a week or more.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009

CAREGIVING POPULATION

Family caregivers are the foundation of long-term care nationwide exceeding Medicaid long-term care spending in all states.
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009

CAREGIVING POPULATION

51% of care recipients live in their own home, 29% live with
their family caregiver, and 4% live in nursing homes and assisted living.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009

CAREGIVING POPULATION

36% of family caregivers care for a parent and 7 out of 10


caregivers are caring for loved ones over 50 years old.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009

CAREGIVING POPULATION

14% of family caregivers care for a special needs child with an estimated 16.8 million caring for special needs children under 18 years old. 55% of these caregivers are
caring for their own children.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009

CAREGIVING POPULATION

10

78% of adults living in the community and in need of longterm care depend on family and friends as their only source of help.
Thompson, L. Long-term care: support for family caregivers. 2004

ECONOMICS OF CAREGIVING

Women who are family caregivers are 2.5 times more likely than non-caregivers to live in poverty and five times more likely to receive Supplemental Security Income (SSI).
Study conducted by researchers at Rice University data compiled from the Health and Retirement Study funded by the National Institute of Aging and conducted by the University of Michigan, 1992-2004

ECONOMICS OF CAREGIVING

Caregiving families (families in which one member has a disability) have median incomes that are more than 15% lower than non-caregiving families. In every state and DC the poverty rate is higher among families with members with a disability than among families without.
Disability and American Families: 2000, Census 2000 Special Reports, July 2005

ECONOMICS OF CAREGIVING

During the 2009 economic downturn, 1 in 5 family caregivers had to move into the same home with their loved ones to cut expenses.
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009

ECONOMICS OF CAREGIVING

47% of working caregivers indicate an increase in caregiving expenses has caused them to use up ALL or MOST of their savings.
Evercare Survey of the Economic Downturn and Its Impact on Family Caregiving; National Alliance for Caregiving and Evercare. March 2009

ECONOMICS OF CAREGIVING

The average family caregiver for someone 50 years or older spends $5,531 per year on out of pocket caregiving expenses in 2007 which was more than 10% of the median income for a family caregiver that year.
Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update. AARP

IMPACT ON FAMILY CAREGIVERS HEALTH

23% of family caregivers caring for loved ones for 5 years or more report their health is fair or poor.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP; November 2009

IMPACT ON FAMILY CAREGIVERS HEALTH

Stress of family caregiving for persons with dementia has been shown to impact a person's immune system for up to three years after their caregiving ends thus increasing their chances of developing a chronic illness themselves.
Drs. Janice-Kiecolt Glaser and Ronald Glaser, "Chronic stress and age-related increases in the proinflammatory cytokine IL-6. Proceedings of the National Academy of Sciences, June 30, 2003.

IMPACT ON FAMILY CAREGIVERS HEALTH

Nearly three quarters (72%) of family caregivers report not going to the doctor as often as they should and 55% say they skip doctor appointments for themselves. 63% of caregivers report having poor eating habits than noncaregivers and 58% indicate worse exercise habits than before caregiving responsibilities.
Evercare Study of Caregivers in Decline: A Close-Up Look at Health Risks of Caring for a Loved One. National Alliance for Caregiving and Evercare. 2006.

IMPACT ON FAMILY CAREGIVERS HEALTH

20% of employed female caregivers over 50 years old


report symptoms of depression compared to 8% of their noncaregiving peers.
MetLife Study of Working Caregivers and Employer Health Costs; National Alliance for Caregiving and MetLife Mature Market Institute. February 2010

IMPACT ON FAMILY CAREGIVERS HEALTH

40% to 70% of family caregivers have clinically significant symptoms of depression with approximately a quarter to half of these caregivers meet the diagnostic criteria for major
depression.
Zarit, S. (2006). Assessment of Family Caregivers: A Research Perspective

IMPACT ON FAMILY CAREGIVERS HEALTH

More than 1 in 10 (11%) of family caregivers report that caregiving has caused their physical health to deteriorate.
How Do Family Caregivers Fare? A Closer Look at their Experiences. Center on Aging Society. 2005.

IMPACT ON FAMILY CAREGIVERS HEALTH

A wife's hospitalization increased her husband's chances of dying within a month by 35%. A husband's hospitalization boosted his wife's mortality risk by 44%.
Nicholas D. Christakis, Professor, Health-care Policy, Harvard Medical School, Boston and Suzanne Salamon, M.D., Associate Chief, Geriatric Psychiatry, Beth Israel Deaconess Hospital, Boston, New England Journal of Medicine, Feb. 16, 2006

IMPACT ON FAMILY CAREGIVERS HEALTH

Family caregivers experiencing extreme stress have been shown to age prematurely. This level of stress can take as much as 10 years off a family caregiver's life.
Elissa S. Epel, Dept of Psychiatry, Univ of Calif, SF, et al, From the Proceedings of the National Academy of Sciences, Dec 7, 2004, Vol 101, No. 49.

CAREGIVING AND WORK

Six in 10 family caregivers are employed. MetLife Study of


Working
Caregivers and Employer Health Costs; National Alliance for Caregiving and MetLife Mature Market Institute. February 2010

CAREGIVING AND WORK

73% of family caregivers who care for someone over the age of 18 either work or have worked while providing care; 66%
have had to make some adjustments to their work life, from reporting late to work to giving up work entirely; and 1 in 5 family caregivers have had to take a leave of absence.
Caregiving in the United States; National Alliance for Caregiving in collaboration with AARP. November 2009

CAREGIVING AND WORK

64% of working parents caring for a special needs child


believe that caregiving responsibility has negatively impacted their work performance.
Care.com and National Family Caregivers Association: State of Care Index. 2009

CAREGIVING AND WORK

American businesses can lose as much as $34 billion


each year due to employees' need to care for loved ones 50 years of age and older.
MetLife Caregiving Cost Study: Productivity Losses to U.S. MetLife Mature Market Institute and National Alliance for Caregiving Business. July 2006

CAREGIVING AND WORK

Caregivers caring for elderly loved ones cost employers 8% more in health care costs estimated to be worth $13.4

billion per year.


MetLife Study of Working Caregivers and Employer Health Costs; National Alliance for Caregiving and MetLife Mature Market Institute. February 2010

CAREGIVING AND WORK

Over 65% of employers believe that health benefits improve employees' health. Sixty percent (60%) believe it increases morale and 39% believe it increases productivity.
Job-based Health Insurance in the Balance: Employer Views of Coverage in the Workplace.Collins, S.R. et al, The Commonwealth Fund, Commonwealth Fund Supplement to the 2003 National Organization Study. March 2004

CAREGIVING AND HEALTH CARE

22% of family caregivers say they need help communicating


with physicians.
National Alliance for Caregiving and AARP, Caregiving in the U.S. 2004

CAREGIVING AND HEALTH CARE

Focus group research suggests that family caregivers do not recognize that public policy has a direct impact on their day-to-day lives. Many are uncomfortable even thinking there might be a connection.
Lake Snell Perry & Associates, A Report on Formative Focus Groups, conducted for the Family Caregivers Self-Awareness and Empowerment Project, a joint program of the National Family Caregivers Association and the National Alliance for Caregiving, September 2001.

CAREGIVER SELF-AWARENESS

Over 90% of family caregivers become more proactive about seeking resources and skills they need to assist their care recipient after they have self-identified.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.

CAREGIVER SELF-AWARENESS

83% of self-identified family caregivers believe their selfawareness led to increased confidence when talking to healthcare professionals about their loved one's care.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001

CAREGIVER SELF-AWARENESS

For over 75% of family caregivers it was the act of helping their loved one with personal care that contributed to their self-identification.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.

CAREGIVER SELF-AWARENESS

For 60% of family caregivers, their loved one's diagnosis and their interaction with the health care system made them aware that they were family caregivers.
National Family Caregivers Association, Survey of Self-Identified Family Caregivers, 2001.

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