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Running head: YOUNG CHILDREN WITH DISABILITIES 1

Young Children with Disabilities: Different Placements, Different Goals, Different

Experiences, and the Same Right to Education

Than Spence

Educ 315: Early Childhood Practicum 2: Observation, Assessment, and Intervention


YOUNG CHILDREN WITH DISABILITIES 2

Table of Contents

Placement Setting Research: Program M ....................................................................................... 5

Introduction ................................................................................................................................. 5

Description of the Program ......................................................................................................... 5

Community, population, and services. .................................................................................... 5

IDEA Research: Part C ................................................................................................................... 7

Description of IDEA Law ........................................................................................................... 7

Special Education Process .......................................................................................................... 8

(Dis)ability, Assessment, & Intervention, Program M ................................................................... 8

(Dis)ability or Diagnosis: Autism Spectrum Disorder................................................................ 8

Assessment: Identification and Eligibility .................................................................................. 9

Assessment process. ................................................................................................................ 9

Brief Infant-Toddler Social and Emotional Assessment (BITSEA). .................................... 10

Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F). .... 11

Ethical considerations of assessment. ................................................................................... 12

Evidence-Based Interventions .................................................................................................. 13

Developmental, Individual-difference, Relationship-based/Floortime model...................... 13

Speech therapy ...................................................................................................................... 14

Sensory Integration Therapy ................................................................................................. 14

Progress Monitoring.................................................................................................................. 15

Placement Setting Research, School C ......................................................................................... 15

Introduction ............................................................................................................................... 15

Description of the Program ....................................................................................................... 16


YOUNG CHILDREN WITH DISABILITIES 3

Community, population, and services. .................................................................................. 16

IDEA Research, Part B ................................................................................................................. 18

Description of IDEA Law ......................................................................................................... 18

Special Education Process ........................................................................................................ 19

(Dis)ability, Assessment, & Intervention, School C ..................................................................... 20

(Dis)ability or Diagnosis: Fetal Alcohol Syndrome ................................................................. 20

Assessment: Identification and Eligibility ................................................................................ 20

Assessment process. .............................................................................................................. 21

Pediatric Evaluation of Disability Inventory (PEDI). ........................................................... 22

The Callier-Azusa Scale. ...................................................................................................... 23

Ethical considerations of assessment. ................................................................................... 24

Evidence-Based Interventions .................................................................................................. 25

Social Stories ........................................................................................................................ 25

Break Tasks and Procedures into Lists ................................................................................. 25

Physical Therapy................................................................................................................... 26

Progress Monitoring.................................................................................................................. 26

Final Reflection ............................................................................................................................. 27

Introduction ............................................................................................................................... 27

Ideas and Practices that Resonated ........................................................................................... 27

Challenges ................................................................................................................................. 28

New Understandings and Remaining Questions....................................................................... 28

Collection of Artifacts............................................................................................................... 29

Growth as a Person, Educator, and Professional ...................................................................... 29


YOUNG CHILDREN WITH DISABILITIES 4

Conclusion ................................................................................................................................ 30

References ..................................................................................................................................... 32

Appendix A ............................................................................................................................... 36

Appendix B ............................................................................................................................... 38

Appendix C ............................................................................................................................... 40

Appendix D ............................................................................................................................... 42

Appendix E ............................................................................................................................... 44

Appendix F................................................................................................................................ 46

Appendix G ............................................................................................................................... 48

Appendix H ............................................................................................................................... 50

Appendix I ................................................................................................................................ 52

Appendix J ................................................................................................................................ 54

Appendix K ............................................................................................................................... 56

Appendix L ............................................................................................................................... 58

Appendix M .............................................................................................................................. 60

Appendix N ............................................................................................................................... 62
YOUNG CHILDREN WITH DISABILITIES 5

Placement Setting Research: Program M

Introduction

Program M is an early intervention (EI) provider located in City K and provides services

to families in over 30 towns within the south-western region of New Hampshire (see Appendix

A for a brochure from Program M). The region is primarily rural with small pockets of minor

urbanization. Program M provides services through visits to the child’s natural environment; this

is primarily at a family’s house, however in some cases this is a childcare facility. The core team

consists of two speech language pathologists, two special educators, an occupational therapist, a

physical therapist, and an administrative assistant; there are additional speech language

pathologists, special educators, and occupational therapists who also work as part of Program M

but on a per diem basis.

Description of the Program

EI services are provided for children birth to age three who have developmental

disabilities and would benefit from additional supports (Hyson & Biggar Tomlinson, 2014).

Program M provides theses services to assist families in the area however they can appropriately

(see appendices B-E for brochures Program M provides to assist families). They strive to create

strong relationships with families, informing their decision-making, and enhance children’s

learning and development (Program M, 2018).

Community, population, and services.

Program M works both with children with developmental delays and the families of

children with developmental delays. Services provided include developmental evaluations,

guidance on including therapeutic activities into daily routines, speech language pathology,

occupational therapy, physical therapy, special instruction, and service coordination; service
YOUNG CHILDREN WITH DISABILITIES 6

coordination includes information about community resources, assistance with transitioning from

EI, information about advocacy groups, access to feeding/nutrition programs, access to special

medical services, and much more. Many families benefit from having additional adults’ thoughts

about how best to help their children.

The population in the community is predominantly white (96%), with a fairly even

distribution of ages containing two bubbles in the age ranges of 15-24 and 40-64 (U.S. Census

Bureau, 2010a). There are approximately 25% of households which have children under 18, and

the population for the area contains around 3,700 children under the age of 5 (U.S. Census

Bureau, 2010a). The unemployment rate for the area is 2.8% (NHES & ELMI, 2018), and 13.4%

of the families with related children under the age of 5 reported an income below the poverty

level which is higher than the 5.2% which is for all families below the poverty level (U.S.

Census Bureau, 2016a). There are approximately 110 individuals living in each square mile of

land within the area.

In terms of Bronfenbrenner’s bio-ecological model (Swick & Williams, 2006), children

part of Program M will have a microsystem that consists of their immediate family, any peers

they might have in a childcare setting, childcare providers, and perhaps service providers

depending upon the frequency which they visit the family. The child’s exosystem will include

their neighbors, any social services provided – like EI –, as well any media the child may

consume (e.g. children’s television shows, music, television left on in front of the child). As

13.4% of the families in the community with children under the age of 5 report an income below

the poverty line, many children’s exosystem will include charity and government funded

organizations like food banks, Medicaid, WIC, SNAP, and clothing drives. Program M helps

families who need assistance navigating the applications of the various initiatives. Additionally,
YOUNG CHILDREN WITH DISABILITIES 7

with the low population density of the region, many will not have access to as many supports

from neighbors due to the distance from one neighbor to the other. The children who receive

services through EI may then be aware, as they get older, of the fact that they are getting

additional supports and become self-conscious of the self-awareness if others around them are

not getting the same supports. The macrosystem for the children will include the culture of New

Hampshire and America as a whole, the political climate of the times, and societal norms which

are common within the United States. With a large political divide occurring at present, children

might feel the political stress which their family feels as well as any tension due to

institutionalized racial discrimination, as the region is predominantly and historically white.

IDEA Research: Part C

Description of IDEA Law

The Individuals with Disabilities Education Act (IDEA) is the piece of legislature which

outlines special education standards and the regulations surrounding them (Bateman & Cline,

2016). IDEA consists of four sections: Part A, which covers general provisions of IDEA’s

purpose and definitions used in the law; Part B, which guarantees free and appropriate public

education (FAPE) in the least restrictive environment (LRE) for all children with disabilities

aged three to twenty-one; Part C, which outlines how EI can assist young children with

disabilities and their families until the child is three years old; and Part D, which discusses

supporting information that is used to improve the education of children with disabilities (U.S.

Department of Education, 2004). Part C of IDEA explicitly states that all children who have a

developmental delay in at least one developmental area (i.e. cognitive, physical, communication,

socioemotional, and adaptive) or have a diagnosed physical or mental condition that likely would

lead to a developmental delay; it also outlines that families must be involved with the
YOUNG CHILDREN WITH DISABILITIES 8

development of a service plan as well as how often the plan needs review and the content of the

plan (U.S. Department of Education, 2004).

Special Education Process

For children under the age of 3 to receive services through EI, a parent, caregiver (with

permission from the parent), or physician can reach out to the intake coordinator of a local EI

program. After voicing concerns about specific delays that the child has or might face due to a

diagnosed disability, a team of professionals – usually two but it can be more – will perform a

developmental evaluation primarily through conversation with a caregiver about the

development of the child and what milestones they have reached/what behaviors they exhibit. If

a child is shown to need EI, the team will then be able to immediately have a conversation with

the family about what specific goals they would like to have their child achieve and write it all

down in an Individualized Family Service Plan (IFSP). Every six months, there is a review of the

child’s development and the goals within IFSP; as goals are met, they are marked as completed

in the IFSP and either families can add more goals or continue with the goals they have. At any

point during the process, the family can say that they no longer wish to receive services from EI

and terminate the IFSP. Once a child reaches 27-32 months old or have reached all their goals

and are no longer developmentally delayed, they will be eligible for transition planning out of EI;

if the child is aging out of the program, the EI team will facilitate meetings with a local school to

help ease the transition from their services into the school.

(Dis)ability, Assessment, & Intervention, Program M

(Dis)ability or Diagnosis: Autism Spectrum Disorder

Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder described by the

American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders (5th
YOUNG CHILDREN WITH DISABILITIES 9

ed.; DSM-5; APA, 2013). It outlines the criteria for an ASD diagnosis, which includes

impairments to social communication and interaction as well as restrictive and/or repetitive

patterns of behavior. It is important to note that ASD is a spectrum disorder, meaning that no two

individuals with the diagnosis will present in the same way and that each individual will have

their own strengths. As part of the communication impairment, children with ASD may exhibit

language delays and 25-50% of children with ASD do not develop verbal communication skills

(Patten, Ausderau, Watson, & Baranek, 2013). As part of the social interaction impairment,

children with ASD often show little socioemotional reciprocity, displaying few instances of

social initiation, reduced eye contact, and reduced or absent imitation of others’ behavior (APA,

2013). Additionally, children with ASD may present with sensory processing difficulties (APA,

2013).

Assessment: Identification and Eligibility

Assessment process.

Admission to services provided by Program M begins when a caregiver in a child’s life

(e.g. family member, physician, childcare provider) has suspicions about atypical child

development. Upon deciding that they would want Early Intervention (EI) services for their

child, the family would then reach out to the Early Supports and Services area agency regarding

the intake process. After all necessary paperwork was signed, two service providers from

Program M (at least one being a specialist in a domain of development) would go to the child’s

home to complete an evaluation of the child and assess the family’s need for support. For a

family who raised concerns of ASD, assessments would likely focus on behavioral,

socioemotional, and/or language development components. If a child is then found eligible for

services, Program M will assign the family a Service Coordinator who will act as the primary
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liaison between Program M and the family; the service coordinator is usually a member of the

evaluation team and is usually one of the primary service providers. In the case of a child with

suspected ASD, the family would be encouraged to reach out to a child development specialist

who would be able to determine whether or not ASD would be an appropriate diagnosis for their

child.

Brief Infant-Toddler Social and Emotional Assessment (BITSEA).

The BITSEA is a form in three sections to be completed by family member (on the Parent

Form) or by childcare provider (on the Childcare Provider Form). Both forms are nearly identical

with slight differences in phrasing of some of the questions (see Appendix F for a blank copy of

the Parent BITSEA Form). The first section is 42 questions regarding the child’s feelings and

behaviors requiring families to assess the frequency of the feelings and behaviors as exhibited

over the last month. The second section is 2 questions inquiring about the family’s level of

concern regarding the child’s behavioral, socioemotional, and language development. The final

section is an open-ended space for the family to write notes about their child as they see fit.

Upon completion, the family would turn it in to a service provider who would score the form and

compare it against the child’s age to determine their developmental progress.

Goals/purpose of the BITSEA.

The BITSEA is intended to identify socioemotional and behavioral problems or delays in

children 12 to 36 months old. The BITSEA is comprehensive and covers many of the common

behaviors and characteristics found in children with ASD. It can also be used as a tool to identify

children who might have socioemotional and behavioral delays who do not have ASD.

Cons of the BITSEA.


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The BITSEA is written in a heavily deficit-based mindset (e.g. “refuses to eat”, “is

destructive”); if a parent were filling this out they very likely could be affected by the tone of the

questions. To balance against this, the evaluation team could ask the questions spread out over

the evaluation session without asking them all at once. Further, this document is primarily in

English with translations provided through a third-party company; such a language barrier could

pose a problem to families who do not speak English fluently or to EI agencies who do not have

the funds for translated versions. It also is not culturally flexible, some of the questions regard

Western cultural norms (e.g. eye contact) which would not be common in other cultures (e.g. in

Japanese culture, eye contact is sometimes disrespectful).

Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F).

The M-CHAT-R/F consists of two forms, each with the same 20 questions to be

completed by family members or service providers. The M-CHAT-R is filled out prior to the M-

CHAT-R/F, which is more in-depth and contains a flow-chart for each question outlining the

pass/fail conditions for each question (see Appendix G for a blank copy of the M-CHAT-R). M-

CHAT-R is intended for use by families while the M-CHAT-R/F is intended for use by

professionals. Scoring of the M-CHAT-R is included in the document, outlining the next steps

for the family depending on how their child scored.

Goals/purpose of M-CHAT-R/F.

This assessment can be quickly completed during well-child visits with a pediatrician

between 16 and 30 months of age as a screening tool. This high sensitivity tool is intended to

detect as many cases of ASD as possible by assessing what the child can do with yes or no

questions. It is available online for anyone to use.

Cons of M-CHAT-R/F.
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As the M-CHAT-R is intended as a highly sensitive tool to detect possible cases of ASD,

there is often a high false positive rate. Such a condition could lead to families assuming that the

M-CHAT-R would give a definitive diagnosis while it is actually just a part of the diagnosis

process; making this point clear from the beginning would help many families. Further, this

document is listed only in English without a translation service provided, leading to a language

barrier issue for some families. While the M-CHAT-R is a specific checklist which only has yes

or no answers, the M-CHAT-R/F completed afterward also includes flow-chart answers which

end in Pass/Fail wording as well as examples of the child’s behavior. The terminology of pass or

fail within the M-CHAT-R/F is likely off-putting for families who would see this as an

assessment of their child’s capabilities.

Ethical considerations of assessment.

To understand the ethical considerations of assessment, we must understand the legal

aspect and the professional aspect of assessment. The Family Educational Rights and Privacy

Act (FERPA) outlines the legal rights which families have regarding the privacy of their child’s

information and how it is shared by different education agencies and to whom it can be shared

(U.S. Department of Education, 2013). Under FERPA, EI providers are not able to share their

assessments or notes with other EI provider agencies, doctors, or specialists without a family’s

expressed permission. While there may be temptation for providers to mention information

without consent, it is imperative to acknowledge the legal repercussions. Additionally, both the

National Association for the Education of Young Children (NAEYC) and the Division for Early

Childhood (DEC) include in their codes of ethics terminology which highlights the importance

for ensuring privacy.


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Another key aspect which both the NAEYC and the DEC emphasize in their codes of

ethics is the use of multiple assessment tools to understand children. Principle 1.6 of the NAEYC

Code of Ethical Conduct states, “We shall strive to ensure that decisions such as those related to

enrollment, retention, or assignment to special education services, will be based on multiple

sources of information and never be based on a single assessment” (2011, p. 3). In very similar

words, the DEC states within their Code of Ethics under the Professional and Interpersonal

Behavior category, “We shall use individually appropriate assessment strategies including

multiple sources of information such as observations, interviews with significant caregivers,

formal and informal assessments to determine children’s learning styles, strengths, and

challenges” (2009, p. 2). These two professional documents agree about the importance of

having multiple sources of information to form a meaningful assessment as opposed to using a

single assessment. This will decrease the likelihood of a false diagnosis or assessment being a

key factor in a child’s education.

Ultimately however, families are the key factor in assessment for young children. They

are the ones who decide whether a child will be assessed and can withdraw consent for an

assessment and services at any time. It is important for providers to ensure that families are

feeling good about the process and to answer any questions that families might have. With the

BITSEA and the M-CHAT-R, providers need to talk the family through the screening tools

question by question and make sure that they are answering in a genuine manner and not feeling

pressured to answer in a specific way.

Evidence-Based Interventions

Developmental, Individual-difference, Relationship-based/Floortime model


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The Developmental, Individual-difference, Relationship-based (DIR)/Floortime model

was designed to improve development through an understanding of each child’s individual

differences and create relationship-based learning (Liao, Hwang, Chen, Lee, Chen, & Lin, 2014).

The implementation of DIR/Floortime is for caregivers to spend a significant amount of time

with the child by playing on the floor, at the child’s level with the goal of engaging the child in

reciprocal interactions called circles of communication (Liao et al., 2014). These interactions can

be as small as sharing eye contact or a smile, or more meaningful by having the child make the

adult do something (e.g. blow some bubbles by putting the bubble wand in front of the adult’s

mouth). For children with ASD, the DIR/Floortime can be used to increase interaction with

caregivers by highlighting children’s preferences and encouraging caregivers to think about

activities on the child’s level (Liao et al., 2014).

Speech therapy

Children with ASD who have expressive communication difficulties may benefit from

targeted therapy to encourage language growth. One method which service providers use is very

similar to the Floortime model. When a service provider wants to engage verbally with a child

with ASD, they can follow the child’s lead to see what the child wants to play with (Bradshaw,

Koegel, & Koegel, 2017). Once they understand that, they gain the child’s attention by making it

so that the service provider needs to do something for the activity to continue (e.g. pick up a top

which had previously been spinning), provide clear and concise prompts for language through

the use of a time delay prompt followed with modeling of whichever word they were targeting

(e.g. spin) and provide reinforcement for any communication attempt, be it vocalizations, spoken

words, or signed language (Bradshaw et al., 2017).

Sensory Integration Therapy


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Children with ASD often have difficulties with sensory processing and sensory

functioning Preis & McKenna, 2014). Sensory Integration Therapy (SIT) is targeted sensory

input which directly affects the nervous system in a specific way which results in increased

attention, behavior, and learning (Preis & McKenna, 2014). Examples of SIT include activities

such as swinging, bouncing on a ball, wearing a weighted vest or blanket, and squeezing or

pulling putty (Preis & McKenna, 2014). As their sensory input becomes regulated, the child will

be more likely to show behavior appropriate for their developmental age (Preis & McKenna,

2014).

Progress Monitoring

In the EI setting, children’s progress is monitored primarily through notes taken by

service providers during their visits. The service provider would note any changes they had

noticed since the last time they had seen the child or that the family had reported seeing. During

a DIR/Floortime session, the service provider might make note of the total number of circles of

communication that they share with the child and make note of it. These anecdotal observations

are supplemented through standardized tools which give empirical measures on progress; for

example, the Early Communication Indicator is used to measure the number of gestures,

vocalizations, single word utterances, and multiple word utterances used by children to illicit a

response from an adult over the course of six minutes (see Appendix H for a blank copy). All of

these get reviewed during six-month and annual evaluations to determine the child’s growth and

progress through the program.

Placement Setting Research, School C

Introduction
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School C is a nonpublic school in City K that provides education and medical services to

roughly 20 children with complex medical and developmental needs. School C is a component of

Center C, which also includes residential care for many of the students (see Appendix I for a fact

sheet from Center C). As School C primarily has residential students, the children’s home

communities are all over New Hampshire, Maine, and Vermont; there are some children who are

local day students who receive transportation to go to school. There are three mixed age

classrooms which each have around six learners; each classroom has one special education

teacher and a number of one-on-one Licensed Nursing Assistants (LNAs) equal to the number of

students. The total staff number is roughly 100, consisting of Registered Nurses, Licensed

Practical Nurses, LNAs, Respiratory Therapists, Physical Therapists, Occupational Therapists,

Speech Therapists, Special Educators, and facilities staff, as well as administrative staff.

Description of the Program

School C exists to provide education for learners who might otherwise not be able to

attend school due to intense medical needs (see Appendix J for a newsletter for families and

Appendix K for a newsletter for staff). Center C’s mission statement includes a commitment to

“enrich the lives of children with complex medical and developmental needs, support their

families, and collaborate with other community providers to build a continuum of care” (2018, p.

1).

Community, population, and services.

School C provides education services for learners aged 3- to 21-years old for children

who have a medical necessity to be in a specialized care setting; because of the age range of

individuals at Center C, the staff call the residents “learners” as it would not be appropriate to

call a 20-year-old a child. Center C provides residential care to individuals from infancy to 21-
YOUNG CHILDREN WITH DISABILITIES 17

years old, and the majority of the learners over the age of three attend School C – some attend

school in a less restrictive environment. The School and Center C primarily interact with the

children under their care, however there is limited community interaction (see Appendix B for a

brochure sponsored in part by Center C). The children in School C receive individualized

education as determined by their teacher as well as their Individualized Education Program

(IEP). The IEP can include services such as speech therapy, occupational therapy, physical

therapy, instruction from a teacher for the blind and visually impaired, instruction from a teacher

for the deaf, and consultation with adaptive technology specialists.

School C is located within City K. While the region of children served is the states of

Vermont, New Hampshire, and Maine, the majority of the learners who attend School C are

either local day-student learners or learners who live at Center C; for this reason, the community

discussed further will be of City K as this is the community which will affect the children most.

The city is predominantly white (91.6%) with the plurality of the population being in the 18-24

age range, likely to the two post-high school institutions in the city (U.S. Census Bureau, 2016b).

There are approximately 15% of households which have a child under the age of 18 years and

the city has almost 4,700 children (U.S. Census Bureau, 2010c). The unemployment rate for the

area is 2.8% (NHES & ELMI, 2018), and 10.8% of the families with related children under the

age of 18 reported an income below the poverty level (U.S. Census Bureau, 2016c). There are

approximately 630 individuals living in each square mile of land within the area.

In terms of Bronfenbrenner’s bio-ecological model (Swick & Williams, 2006), children

attending School C will have a microsystem that consists of any family that regularly

communicates, their school peers, the LNAs, teachers, and other facility staff the children

regularly interact with. This may give the children a disproportionate view of gender distribution
YOUNG CHILDREN WITH DISABILITIES 18

as women are over twice as likely to be employed in the above listed professions (U.S. Census

Bureau, 2016b). The child’s exosystem will include their neighboring schools’ children, as well

any media the child may consume (e.g. children’s television shows, movies, and music,

educational games played on a computer). The population density of the city allows for multiple

schools to be in the same region and thus allows for local schools to come visit School C on an

infrequent basis, so both populations of children have exposure to the other. The macrosystem

for the children will include the culture of New Hampshire and America as a whole, the political

climate of the times, and societal norms which are common within the United States. With a

large political divide occurring at present, children might feel the political stress which their staff

feel as well as any tension due to institutionalized racial discrimination, as the region is

predominantly and historically white.

IDEA Research, Part B

Description of IDEA Law

As previously discussed, IDEA outlines the special education regulations and is broken

into four sections (Bateman & Cline, 2016). Part B guarantees free and appropriate public

education (FAPE) in the least restrictive environment (LRE) for all children with disabilities

aged three to twenty-one (U.S. Department of Education, 2004). A child with a disability is

defined as a child “with intellectual disabilities, hearing impairments (including deafness),

speech or language impairments, visual impairments (including blindness), serious emotional

disturbance …, orthopedic impairments, autism, traumatic brain injury, other health

impairments, or specific learning disabilities” (U.S. Department of Education, 2004, 20 USC §

1401(3,A,i) ). School C provides FAPE as the children who attend School C come from school

districts which have determined that the child would receive a higher quality of education at
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School C than at their own schools due to the advanced medical needs of the child; this means

that the families do not have to pay for children to attend School C, rather that the school pays

for the cost of the child’s education. The children at School C experience their own LRE as they

are in a setting with other children, are allowed independent play – when developmentally

appropriate –, and they would receive lesser quality education in a different school setting – if

they were in a more traditional school, they would not receive the medical treatment they need

nor the individualized attention for instruction; if they were in a more traditional residential

program, they would be receiving less formal education.

Special Education Process

The children at School C receive their special education through their home school

district, as carried out by School C. When a child turns three-years old, they are eligible for

services as described through IDEA Part B. After the school district conducts or receives the

results from an evaluation of the child’s development and confirms the need for special

education services, they would write an IEP which includes goals for the child’s development

and they would add a statement dictating where schooling would occur in a section where

appropriate. The IEP would be written with input from the child’s family, the home school

district, and School C. At School C, they hold quarterly update meetings to talk to everyone

involved with the IEP writing process about developmental updates, as well as any goals which

need to be added or adjusted as children develop and meet goals. Annually, the a child will

receive a new IEP based upon the growth that they have had over the past year. Every three years

students will receive evaluation testing to determine eligibility again. Once a child is 14-years

old, they are invited to attend their IEP meetings and they will begin to plan for when a child

reaches 21-years of age and will no longer be eligible for services through School C or Center C.
YOUNG CHILDREN WITH DISABILITIES 20

While the learner will no longer be eligible for School C, Center C provides a grace period where

they will continue residential care for learners until they are 25-years old if they need additional

time for an opening to appear at a different residential care facility.

(Dis)ability, Assessment, & Intervention, School C

(Dis)ability or Diagnosis: Fetal Alcohol Syndrome

If a person’s mother drank alcohol during pregnancy, that person is susceptible to fetal

alcohol spectrum disorders (FASDs) (CDC, 2018); the Centers for Disease Control and

Prevention (CDC) outline three signs and symptoms for Fetal Alcohol Syndrome (FAS), one of

the more common FASDs: abnormal facial features – a smoothed ridge between the nose and the

mouth, a thin upper lip, and narrow, wide-set eyes; growth problems – height and/or weight; and

central nervous system problems – including, but not limited to, a small head, general neurologic

problems, cognitive deficits, executive functioning deficits, motor functioning delays, attention

problems, difficulty regarding social skills, and sensory sensitivities (CDC, 2018). While

knowing that a mother had no alcohol consumption during the pregnancy, being unsure would

not prevent a diagnosis of FAS and confirming the alcohol consumption would only strengthen

the diagnosis as opposed to solidify it (CDC, 2018). As FAS is an FASD, it is important to note

that, as a spectrum disorder, individuals with FAS may show symptoms/characteristics of FAS to

varying degrees. In addition to the signs and symptoms described previously characteristics of

FAS can include understanding phrases at literal level, expressive or receptive language deficits,

difficulty regulating behavior, deficits in short and/or long-term memory, difficulty

understanding cause-and-effect, difficulty reading social cues, difficulty following multi-step

directions, and difficulty understanding rules (Miller, 2006).

Assessment: Identification and Eligibility


YOUNG CHILDREN WITH DISABILITIES 21

Assessment process.

Learners come to School C primarily because they are residents at Center C. Due to the

advanced medical needs of the learners who live there, many home school districts for the

learners are ill equipped to care for the medical needs of the learners and the admission process

is somewhat backwards, with learners beginning to live at Center C before starting school at

School C. To qualify for School C, learners need to have an IEP which outlines the services they

will receive. For a child with FAS, their EI team will either initiate communication with the

child’s school district to set up all the assessments needed to determine eligibility; depending

upon the severity of the FAS, a child might qualify for different disabilities outlined by IDEA:

developmental delay, specific learning disability, or other health impaired. For the sake of clarity

this example will focus on a child with FAS who receives services through IDEA through the

“other health impaired” disability; according to the State of New Hampshire (NH), this child

would need an assessment of their academic performance and of their health (NH Department of

Education, 2017) (see Appendix L for the complete list of require assessments for different

disabilities in NH). Once the assessments are completed and a learner is found eligible for an

IEP, School C will create a team of the director of special education for School C, the learner’s

teacher, the therapists involved with educating the learner, the learner’s family, a representative

from the learner’s home school district, and anyone else the learner’s home school district or

family would want. Once the learner’s IEP was complete, then they could start attending School

C. It is important to note that the process would be similar for learners not living at Center C;

they would live at their house while this process was occurring, possibly attending their home

school district’s schools if there was a classroom which was mildly prepared to provide the

education and medical care needs for the learner.


YOUNG CHILDREN WITH DISABILITIES 22

Pediatric Evaluation of Disability Inventory (PEDI).

The PEDI consists of three parts: the first part contains 197 items of functional skills on a

capable/incapable rating; the second part contains 20 items of functional activities rated 0-5 on

how much assistance the child needs; and the third part contains 20 items of functional activities

rated on how much modification is needed for the child to complete the activity – N (no

modifications), C (child-oriented), R (rehabilitation equipment), or E (extensive modifications).

The questions will be answered through either an interview with a primary caregiver or through

observation of the child in their natural environment. The assessment targets children who are

aged 6 months to 7.5 years old. The PEDI can be completed by therapists or teachers who have

been trained to run the assessment.

Goals/purpose of the PEDI.

The PEDI can be used both to measure a child’s growth by measuring their normed

developmental score at the start of a child’s school experience compared to later during their

schooling and as an evaluation tool when looking at their scaled score. The comprehensive list of

questions allows for high accuracy with determining the functional capabilities of the child. This

includes many components which involve gross and fine motor development. The PEDI has also

been translated into many languages. It was normed with a sample of 400 children.

Cons of the PEDI.

With most of the questions based on a simple capable/incapable dichotomy, family

members could easily become discouraged about the performance of their child, perceiving

failure while the skills might not be age appropriate. As the PEDI focuses on functional skills, it

cannot be used to assess cognitive skills. Talking through all of the total 217 questions would
YOUNG CHILDREN WITH DISABILITIES 23

take a considerable amount of time; so that is a consideration when completing a PEDI

assessment.

The Callier-Azusa Scale.

The Callier-Azusa is the assessment which School C primarily uses. It was designed to

assess children under 9 years old who need large levels of support, specifically for those who are

visually or hearing impaired. It breaks down development into five different areas: motor

development; perceptual development; daily living skills; cognition, communication, and

language; and social development. Each area has three to four different sub-skills. The test has

questions associated with each sub-skill at different levels, with the child’s progress being

marked on a score sheet as the test goes on. Through observation, a primary caregiver or

educator will indicate a child’s developmental level based on what they have or have not seen a

child do.

Goals/purpose of the Callier-Azusa.

Despite being written in 1978, the Callier-Azusa remains relevant through its use of

simple and timeless assessment areas (see Appendix M for a section of the Callier-Azusa). The

score sheet is easy to read and interpret, quickly seeing graphically where the child is in their

development. This ease of reading also makes it easy to compare a child’s growth over time from

an initial assessment to subsequent assessments. Having been designed for children with

disabilities, the assessment puts an asterisk next to areas of development that some children

might not be able to display competency in.

Cons of the Callier-Azusa.

The wording of the directions show signs of the person-second language that was

prominent during previous decades; if a family member or child saw this assessment, they might

become disheartened by this demeaning language. Completion of a full assessment takes


YOUNG CHILDREN WITH DISABILITIES 24

significant time to work through all of the questions associated with the development areas and

each sub skill, as the primary means of assessment is observation. Additionally, as an

observation only assessment, the professional will only record what the child shows externally; a

child may have internal thoughts about a task but not physicalize them, giving a false negative.

Ethical considerations of assessment.

To further understand the ethical considerations of assessment, we must understand the

legal aspect and the professional aspect of assessment. When assessing children who have

medical complications which should be taken into consideration with the crafting of an IEP or in

the continuation of care for a child with medical needs included in their IEP, the Health

Insurance Portability and Accountability Act (HIPPA) needs to be taken into consideration. A

law outlining how health insurance works in the United States, HIPPA includes a Privacy Rule

which protects the privacy of individuals’ health information as well as how disclosures of

information can be made without patient authorization (U.S. Department of Health & Human

Services, 2015). In the case of patients not expressly authorizing consent to allow an institution

to release information to a private individual or different institution, no information will be

shared. What HIPPA is to healthcare and medical practices, FERPA is to education; both laws

are concerned with maintaining privacy of individuals and the only difference lies in the field

which the law is concerned about.

The NAEYC and DEC have further guidelines regarding assessment that are applicable.

Principle 1.5 of the NAEYC Code of Ethical Conduct states, “We shall use appropriate

assessment systems, which include multiple sources of information, to provide information on

children’s learning and development” (2011, p. 3). This applies to the PEDI and the Callier-

Azusa because while they each individually only are one assessment, when used together with
YOUNG CHILDREN WITH DISABILITIES 25

other assessments, they form a more concrete understanding of a child’s developmental progress.

The DEC also mentions assessments further by affirming “we shall respect, value, promote, and

encourage the active participation of ALL families by engaging families in meaningful ways in

the assessment and intervention processes” (2009, p. 3). This inclusion of the families in

meaningful ways ensures that the families’ time or resources are not wasted completing

assessments or interventions which would not benefit the child. The NAEYC also mentions

families and assessments in Principle 4.5: “We shall be knowledgeable about the appropriate use

of assessment strategies and instruments and interpret results accurately to families” (2011, p. 6);

here ensuring that families not only are aware of how the assessment will be completed, but also

interpreting the results for the family so that they can understand how their child is developing.

Evidence-Based Interventions

Social Stories

A social story is a short story designed to teach the usually unspoken rules around a

certain situation (Ryan, 2006). For example, one social story a child with FAS might use could

be about playing a game of Go-Fish and taking turns instead of repeatedly asking for the other

players’ cards; this would support the child to develop social awareness of reading body

language when their other players might not verbally say that it was the child’s turn, cause and

effect understanding as every turn would begin with someone asking for a card which would

cause an effect from a different player, and it would more solidify the rules surrounding how to

sit at a table with others and not being in their personal space.

Break Tasks and Procedures into Lists

Children have different levels of success when attempting to retain multiple instructions

mentally at the same time. Children with FAS often have a more difficult time remembering the
YOUNG CHILDREN WITH DISABILITIES 26

order of steps or even subsequent steps to the first; as such by breaking a larger task down into a

list of smaller steps, children with FAS can better grasp the task at hand by following down the

set of directions to get the correct final product (Duquette, Stodel, Fullarton, & Hagglund, 2008).

This would strengthen the child’s problem solving skills as they could begin to see problems as a

succession of smaller tasks as opposed to one large task.

Physical Therapy

Physical therapy is a targeted form of therapy which helps individuals move their body

around in space. As children with FAS have less physical growth than their peers and some have

cognitive impairments which decrease coordination, targeted physical therapy can increase a

child’s ability to navigate their world (Bertrand et al., 2004). One aspect of physical therapy

might include working on using alternating feet while on a staircase or working on walking using

ankle-foot orthotics to help stabilize the joint.

Progress Monitoring

At School C, most of the progress monitoring is completed through each learner’s

individual IEP goal sheets. Each goal in a learner’s IEP will have its own sheet, and the front of

the sheet will have the full text of the learner’s IEP goal, and the back will have the goals for

increasing the difficulty of the goal so that it can be achieved in a reasonable time period. Each

goal sheet has an attached chart of completion of the goal to be signed off by the learner’s

educator. Some goals are written to be practiced every day, while others are practiced as

infrequently as twice a week. Another major progress monitoring document is School C’s

Quarterly Review sheet (see Appendix N for a blank copy). This document, done on a quarterly

basis, breaks down all of the different components of a learner’s needs, the family’s concerns,

and any new goals which might need to be added between official IEP goals.
YOUNG CHILDREN WITH DISABILITIES 27

Final Reflection

Introduction

This past semester I had the opportunity to complete two practicum experiences: one with

an early intervention provider and the other at a non-public school for children with medical and

special needs. I was with the early intervention provider for 71 hours, spaced over roughly three

days a week for roughly five weeks; this was to facilitate children taking naps and families not

wanting to have appointments too early in the morning. I shadowed speech language

pathologists, an occupational therapist, and special educators as they went to childcare facilities

and families’ homes to work with children and their families. I was at the non-public school for

71 hours, spaced over two days a week for 5 weeks, with one extra hour when I attended an IEP

meeting on a day I normally would not have gone to school. I shadowed a special education

teacher and often followed children to their therapies and observed all the staff interact with the

children there.

Ideas and Practices that Resonated

With the early intervention provider, I found such joy in working with the young children

and seeing the professionals interact with family members to encourage them to perform

different best practices with their children. However, one thing that I also discovered is that

while I would enjoy doing EI home visiting, I would miss the social interaction that young

children have between each other. It was a realization that came slowly and then all at once; I

first realized I would want to be an infant or toddler room teacher and do early intervention as a

per diem basis but as I write this I think I realized why I like the classroom environment better.

At the non-public school, I found it so important to give the children attending school

there as many opportunities as I could. They have limited exposure to the outside world and
YOUNG CHILDREN WITH DISABILITIES 28

anything that other staff do not frequently offer the children to explore. The concept of giving

opportunities and sharing joy with the children when they get to experience something new and

fresh is my biggest take-away from this school.

Challenges

For early intervention, I was most challenged to not make assumptions about families

based upon how they looked, talked, acted, or where they lived. I’m a pretty unassuming person;

if someone is reaching out to early intervention for support then they have to be doing something

right. However, there were times when families would do or say something that gave me a bit of

cognitive dissonance and I had to keep on reminding myself that the bottom line for their child

rearing is that they are the parent/guardian and have the right to decide what is best (aside from

when it is literally harmful to the child).

At the non-public school, I was most challenged to perceive competence for the children.

Going into the school and seeing how other staff interacted with the children – and other staff

while around the children – it gave me a false sense that the children were less capable than they

are. It occurred to me one day that the way that I was thinking was wrong and that I hadn’t seen

the children show me that they couldn’t do more, and when I started thinking that way I started

seeing them do more things than I had before. It’s powerful to note how our perceptions color

our observation skills.

New Understandings and Remaining Questions

I know that I just talked about this, but I want to emphasize how high I think the

importance of perceiving competence is. Perhaps it’s because of how much I’ve shifted my

mindset of non-inclusion classrooms; I used to think that they were an acceptable alternative to

an inclusion classroom if a child showed the signs that they would not benefit from it. However,
YOUNG CHILDREN WITH DISABILITIES 29

I know realize that even if a child might not show signs that they are benefitting from an

inclusion classroom, they almost certainly are at least in a small way. Additionally, after

watching Dan Habib’s film, I have a better understanding about how important perceptions of

competence are toward individuals with disabilities in their daily life: when an other treats an

individual with disabilities as competent, they will go so far.

Going forward, I hope to continue to learn about how to improve inclusion in my future

classrooms. I’d also love to find out how I can help a movement to get Intelligence Quotient (IQ)

tests taken out of the assessments for disabilities; the tests don’t correlate one-to-one to either a

person’s ability to exist nor to their disability and often act as a barrier for those with low IQs

with disabilities who are perceived incompetent or for those with high IQs who test too high to

“have” a disability.

Collection of Artifacts

The collecting of artifacts was a unique experience; I had previously learned about many

of the topics (e.g. assessments, family communication, community resources) but holding them

in my hand and having the impetus to think critically about them caused me to stop and consider

them in depth. Each of the documents I found had a concrete use and reason to exist, and each of

the artifacts that I selected – as I did not use every document I brought home – embodied some

aspect of the education profession in a way that I didn’t fully comprehend until the artifact was

in front of me.

Growth as a Person, Educator, and Professional

This semester, I think that I’ve continued to come into my own and become more of who

I want to be. I’ve always had an idea in the back of my head that I want to be someone who

creates more good in the world than he takes away. And through my actions both inside and
YOUNG CHILDREN WITH DISABILITIES 30

outside of school, I find myself being nicer and warmer to more people as opposed to my usual,

small group of friends. The psychology student inside me can’t help wonder, though, how much

of this perceived change is due to my continued weight loss and improving self-image.

As an educator, I’ve concluded that co-teaching is incredible. I had never given it much

thought, however with seeing it implemented flawlessly by my professors this semester I’ve

come to appreciate how much planning it takes to do well (Sileo, 2011). Additionally, I begin to

see co-teaching more when I think of it less as a mechanism which is forced but rather a natural

course of action that occurs when two professionals are in the same environment together

teaching.

As a professional, I’ve made progress toward developing more of the professional

dispositions which teacher candidates are supposed to display (KSC, 2018). The most prominent

disposition I noticed improvement in is 11, “Recognizing the legal and ethical obligations of the

profession” (KSC, 2018, pg. 1); over this semester, I have spent far longer than I expected to

looking over laws, codes of ethics, and recommended best practices from various organizations

and government agencies. That, coupled with spending time in practicum placements where I got

to see the law in practice, gave me a better depth of understanding surrounding the laws.

Additionally, and I have touched on this somewhat already, I feel that I have grown in

disposition 8, “Being open to diverse perspectives and backgrounds” (KSC, 2018, pg. 1); being

forced somewhat out of my comfort zone in terms of being in an environment where an educator

would have no control was slightly jarring. However the experience made me better understand

the power dynamic that families and professionals should have: cooperation rather than dictating

how things should be.

Conclusion
YOUNG CHILDREN WITH DISABILITIES 31

I am very fortunate to have the opportunity to attend educator preparation school at an

institution that gives students so many opportunities to explore the different parts of early

childhood education and for so long that I get to explore them. This semester has shown me

through both placements things that I know that I want to emulate in my own classroom and

things that I want to learn more about so that I can implement them better – rather than just

abandon the concept. One of the biggest things that I think that I’ve gained through this process,

however, is my growing professional network. At each of the previous practicum placements

I’ve had, I know that if I came to them with a question or asking for advice, they would know

exactly who to ask or how to find the answer and help me to find what I want to know, and that

is almost more important than having the knowledge yourself.


YOUNG CHILDREN WITH DISABILITIES 32

References

American Psychiatric Association (2013). Diagnostic and statistical manual of mental

disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.

Bateman, D. F. & Cline, J. L. (2016). A teacher’s guide to special education. Alexandria, VA:

ASCD.

Bertrand, J., Floyd, R.L., Weber, M.K., O’Connor, M., Riley, E.P., Johnson, K.A., Cohen, D.E.,

National Task Force on FAS/FAE (2004). Fetal Alcohol Syndrome: Guidelines for

referral and diagnosis. Atlanta, GA: Centers for Disease Control and Prevention.

Bradshaw, J., Koegel, L., & Koegel, R. (2017). Improving functional language and social

motivation with a parent-mediated intervention for toddlers with Autism Spectrum

Disorder. Journal of Autism & Developmental Disorders, 47(8), 2443–2458.

https://doi.org/10.1007/s10803-017-3155-8

Center C (2018). About [Center C]: Quick facts about [Center C]. City K, NH: Center C.

Centers for Disease Control and Prevention (2018). Fetal Alcohol Spectrum Disorders (FASDs).

Retrieved from https://www.cdc.gov/ncbddd/fasd/diagnosis.html

Division for Early Childhood (2009). DEC code of ethics. Retrieved from: www.dec-sped.org

Duquette, C., Stodel, E., Fullarton, S., Hagglund, K. (2008). Teaching students with

developmental disabilities: Tips from teens and young adults with Fetal Alcohol

Spectrum Disorder. TEACHING Exceptional Children, (39)2, 28-31.

Hyson, M. & Tomlinson, H. B. (2014). The early years matter: Education, care, and the well-

being of children, birth to 8. New York, NY: Teachers College Press.

Keene State College. (2018, Fall). Teacher candidate dispositions assessment [EDUC 315 class

handout]. Keene, NH: [author unknown].


YOUNG CHILDREN WITH DISABILITIES 33

NAEYC (2011). Code of ethical conduct and statement of commitment. Position Statement.

Washington, DC: NAEYC.

New Hampshire Department of Education (2017). New Hampshire Standards for the Education

of Children with Disabilities. Concord, NH.

New Hampshire Employment Security & Economic and Labor Market Information Bureau

(2018). Top job prospects: Short-term employment projections, 2017 Q4 to 2019 Q4.

Concord, NH: ELMI Publications.

Patten, E., Ausderau, K. K., Watson, L. R., & Baranek, G. T. (2013). Sensory response patterns

in nonverbal children with ASD. Autism Research & Treatment, 1–9.

Preis, J., & McKenna, M. (2014). The effects of sensory integration therapy on verbal expression

and engagement in children with autism. International Journal of Therapy &

Rehabilitation, 21(10), 476–486.

Program M (2018). Who we are. Retrieved from http://www.mds-nh.org/index.php/who-we-

are/partners/11--sp-742/-sp-450/184-mds-birth-to-three

Ryan, S.M. (2006). Instructional tips: Supporting the educational needs of students with fetal

alcohol spectrum disorders. TEACHING Exceptional Children Plus, 3(2) Article 5.

Sileo, J. M. (2011). Co-teaching: Getting to know your partner. TEACHING Exceptional

Children, 43(5), 32-38.

Swick, K. J. & Williams, R. D. (2006). An analysis of Bronfenbrenner’s bio-ecological

perspective for early childhood educators: Implications for working with families

experiencing stress. Early Childhood Education Journal, 33(5), 371-378.


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U.S. Census Bureau (2010a). Profile of general population and housing characteristics: 2010

demographic profile data. Retrieved from

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U.S. Census Bureau (2010b). Population, housing units, area, and density: 2010 – United States

– county by state; and for Puerto Rico 2010 census summary file 1. Retrieved from

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demographic profile data. Retrieved from

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community survey 5-year estimates. Retrieved from

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U.S. Census Bureau (2016b). City K, NH. Retrieved from https://datausa.io/profile/geo/keene-

nh/#demographics

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community survey 5-year estimates. Retrieved from

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and students [Video File]. Retrieved from https://youtu.be/nhlDkS8hvMU

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Appendix A

Brochure from Program M about Program M

The following document is a brochure from Program M targeted to families unfamiliar with

Program M, what services they provide, and how to receive services. All edits to the brochure

have been made to ensure confidentiality of the program and any employees there.
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Appendix B

Brochure from Program M about Playgrounds in a City

The following document is a brochure from the Program M office which provides an illustrated

map of playgrounds in one of the cities served by Program M. This is used as a resource for

families to understand what is around them in their community. It was sponsored in part by

Center C.
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Appendix C

Brochure from Program M about Supports for Survivors of Abuse

The following document is a brochure from the Program M office which has resources to assist

individuals who have experienced domestic violence, sexual assault, stalking, and other forms of

abuse. Resources described include emergency shelter, support groups, court and police

advocacy, and hospital advocacy. This is used as a resource for families to understand what is

around them in their community.


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Appendix D

Brochure from Program M about Childhood Milestones

The following document is a brochure from the Program M office which helps families visually

understand normative development for young children. This is used as a resource for families to

comprehend typical development and when to start having concerns about atypical development.
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Appendix E

Leaflet from Program M about Typical Development

The following document is a brochure from the Program M office which details many

developmental milestones for typical child development. While like Appendix D and made by

the same organization, Appendix E was picked in addition because of its inclusion of a Spanish

translation on one side. This is used as a resource for families to comprehend typical

development and when to start having concerns about atypical development.


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Appendix F

Brief Infant-Toddler Social Emotional Assessment

The following document is a blank copy of the Parent Form for the BITSEA tool. Families can

fill out the front and back of this document and hand it to professionals to score to better

understand their child.


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Appendix G

Modified Checklist for Autism in Toddlers, Revised with Follow-Up

The following form is a copy of the M-CHAT-R. Similar to the M-CHAT-R/F, this is a brief

look at a child’s behavior and capabilities as a screening tool for Autism Spectrum Disorder. It

includes scoring instructions and next steps based on the scoring.


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Appendix H

Early Communication Indicator

The following form is a blank Early Communication Indicator tool. It can be filled out by

various professionals as they work with children and assess their communication development.
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Appendix I

About [Center C]: Quick Facts about [Center C]

This is a fact sheet available to families, school districts, and donors who would want to learn

more about the program in brief. It contains information about the services provided, specific

medical diagnoses Center C can care for effectively, as well as licensing information and a map

of the areas served. All edits to this fact sheet have been made to ensure confidentiality of the

center and any employees there.


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Appendix J

The [Center C] Gazette

This is a copy of a newsletter which goes out to families a few times a year. It includes articles

written by staff and updates on the children’s activities. It also appears to be written in part for

donors. Ultimately this is a form of communication with members of the Center C community

who do not interact with the center on a frequent basis. All edits to this newsletter have been

made to ensure confidentiality of the center and any employees there.


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Appendix K

Staff Newsletter November 9, 2018

This is a newsletter geared for staff members at Center C. This communication helps those

working at Center C stay on the same level of awareness of the events going on as well as

communicate important information that is easiest conveyed through written media. All edits to

this newsletter have been made to ensure confidentiality of the center and any employees there.
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Appendix L

The New Hampshire Standards for the Education of Children with Disabilities

This document, produced by the state, outlines how IDEA works for the state of New

Hampshire. This selection includes the assessments required for each disability which Part B of

IDEA recognizes as well as who is qualified to perform each assessment.


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Appendix M

The Callier-Azusa Scale

This is a portion of a full Callier-Azusa Scale. This is an assessment used to determine a child’s

development. Included in this portion is the table of contents to illustrate the different domains

and sub-categories, as well as the introduction, directions, and one of the sections in full. The

selection is concluded with a blank scoring sheet.


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Appendix N

Center C’s Quarterly Review form

This is a blank quarterly review form from Center C. Here each staff member at a quarterly

review meeting will take notes about each of the different areas outlined on the sheet.

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