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6/27/12 12:30 PM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Sep 28 18:00:00 PDT 2011 Wed Sep 28 19:15:00 PDT 2011 change time period
New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project
KathyKastner
aliciabloom
nursefriendly
Hello all :) RT @aliciabloom:it's that time again-- #hpm tweetchat! expect a flurry of #hospice & #palliative care tweets for the next hour.
Wed Sep 28 18:00:54 PDT 2011
KathyKastner
Welcome all to the official start of #hpm with me, your official host. Hi @nursefriendly
Wed Sep 28 18:01:16 PDT 2011
renee_berry
for the next hour I'll be tweeting about #hospice & #palliative care, all are welcome to hop in the conversation! #hpm
Wed Sep 28 18:01:48 PDT 2011
emilybarryPR
Hi @KathyKastner and all! I'm Emily Barry from Transcend Hospice Marketing Group, @hospice_mktg #hpm
Wed Sep 28 18:02:08 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 1 of 31
6/27/12 12:30 PM
KathyKastner
Kaviraj2
RT @renee_berry: for the next hour I'll be tweeting about #hospice & #palliative care, all are welcome to hop in the conversation! #hpm
Wed Sep 28 18:03:05 PDT 2011
NatriceR
RT @nursefriendly: Hello all :) RT @aliciabloom:it's that time again-- #hpm tweetchat! expect a flurry of #hospice & #palliative care tweets for the next hour.
Wed Sep 28 18:03:14 PDT 2011
nursefriendly
Hello :) Andrew Lopez,Registered Nurse from New Jersey, take care of Hospice patients every week (New Jersey) #hpm #hospice #palliative
Wed Sep 28 18:03:15 PDT 2011
nursefriendly
@emilybarrypr Do you have questions about #hospice or #palliative care? Join us for the next hour for #hpm chat
Wed Sep 28 18:03:43 PDT 2011
KathyKastner
jocelyn528
Hi #hpm chatters.I'm Jocelyn, a Gerontologist from Florida with an interest in hpm and end of life care.
Wed Sep 28 18:03:48 PDT 2011
renee_berry
---> passionate about early #palliative care & increasing public access to hpm resources early into the continuum of care (hello all!) #hpm
Wed Sep 28 18:04:30 PDT 2011
KathyKastner
@jocelyn528 Jocelyn that pic of you looks too good for you to be a Gerontologist :) welcome #hpm
Wed Sep 28 18:04:30 PDT 2011
No_Bozo
RT @renee_berry: for the next hour I'll be tweeting about #hospice & #palliative care, all are welcome to hop in the conversation! #hpm
Wed Sep 28 18:04:30 PDT 2011
aliciabloom
MSW, LSW practicing in #hospice & #palliative care. clinical educator. passionate about goals of care discussions. ready for fall! #hpm
Wed Sep 28 18:04:32 PDT 2011
NatriceR
RT @nursefriendly: Hello :) Andrew Lopez,Registered Nurse from New Jersey, take care of Hospice patients every week (New Jersey) #hpm #h ...
Wed Sep 28 18:04:55 PDT 2011
PracticalWisdom
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 2 of 31
6/27/12 12:30 PM
nursefriendly
Is everyone using Tweetdeck, Hootsuite or Tweetchat.com to follow the conversation? Much easier. http://t.co/yPJ0qqg4 #hpm
Wed Sep 28 18:05:12 PDT 2011
HospitalPatient
KathyKastner
@PracticalWisdom Yay. Lisa's here! And @HospitalPatient, even tho you're feeling crummy. Thanks for coming #hpm
Wed Sep 28 18:05:50 PDT 2011
nursefriendly
Hello again :) #caregivers #nurse RT @KathyKastner: Welcome all to the official start of #hpm with me, your official host. Hi @nursefriendly
Wed Sep 28 18:06:14 PDT 2011
PracticalWisdom
HI I'm Lisa Creativity,Research,Design. Excited to be here tonight. Kathy thanks for hosting. #HPM
Wed Sep 28 18:06:15 PDT 2011
HospitalPatient
NatriceR
RT @nursefriendly: Is everyone using Tweetdeck, Hootsuite or Tweetchat.com to follow the conversation? Much easier. http://t.co/yPJ0qqg4 #hpm
Wed Sep 28 18:06:39 PDT 2011
a_angeletti
@racheldavis24 wah I don't have class tomorrow we coulda had a #hpm that means Harry Potter marathon
Wed Sep 28 18:06:50 PDT 2011
nursefriendly
Do you hesitate, or are at a loss for words when the topic of "final wishes" or "do not resuscitate-DNR" orders come up? #hpm
Wed Sep 28 18:07:13 PDT 2011
KathyKastner
jocelyn528
PracticalWisdom
http://t.co/zbb7Bnud @HospitalPatient: Wait - if Lisas here - Im not sure if I want to stay!!!! :) #HPM
Wed Sep 28 18:07:55 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 3 of 31
6/27/12 12:30 PM
nursefriendly
As a #nurse that is one of the most difficult discussions to initiate with #family #patients and #doctors #hpm
Wed Sep 28 18:08:06 PDT 2011
NatriceR
RT @HospitalPatient: Michael A. Weiss here - Blogger at www.HospitalPatient.com of "Professional Patient Perspective" #hpm
Wed Sep 28 18:08:07 PDT 2011
KathyKastner
HospitalPatient
PracticalWisdom
@HospitalPatient Opps Bad Link tried so show sad Clown face to tease you. #HPM
Wed Sep 28 18:08:43 PDT 2011
nursefriendly
Final wishes are also one the most important discussions you can have. Too many people end up on artificial life support needlessly #hpm
Wed Sep 28 18:08:43 PDT 2011
rawarrior
@HospitalPatient @PracticalWisdom You guys are just being provocative to draw us in. & it won't work. #hpm ;)
Wed Sep 28 18:08:44 PDT 2011
PracticalWisdom
We love U! RT @rawarrior: @HospitalPatient @PracticalWisdom You guys are just being provocative to draw us in. & it wont work. #hpm ;) #HPM
Wed Sep 28 18:09:18 PDT 2011
NatriceR
RT @nursefriendly: Do you hesitate, or are at a loss for words when the topic of "final wishes" or "do not resuscitate-DNR" orders come up? #hpm
Wed Sep 28 18:09:18 PDT 2011
KathyKastner
NatriceR
RT @nursefriendly: As a #nurse that is one of the most difficult discussions to initiate with #family #patients and #doctors #hpm
Wed Sep 28 18:09:38 PDT 2011
nursefriendly
Many #patients when it is discussed firmly state "I don't want this" or that. However, when it is left unsaid, #family must decide. #hpm
Wed Sep 28 18:09:39 PDT 2011
renee_berry
@nursefriendly @ctsincair wrote a great @pallimed post on DNR vs AND http://t.co/ljmwffFu #hpm
Wed Sep 28 18:09:48 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 4 of 31
6/27/12 12:30 PM
HospitalPatient
From a Nursing perspective, how many realistically potential DNR patient's R properly prepared in terms of paperwork? #hpm
Wed Sep 28 18:09:55 PDT 2011
KathyKastner
RT @renee_berry: @nursefriendly @ctsincair wrote a great @pallimed post on DNR vs AND http://t.co/ljmwffFu #hpm
Wed Sep 28 18:10:16 PDT 2011
nursefriendly
Please do not make your #family guess, what you would, or would not want if you are sick and unable to make your own decisions #hpm
Wed Sep 28 18:10:19 PDT 2011
KathyKastner
RT @nursefriendly: Many #patients when it is discussed firmly state "I don't want this" or that. However, when it is left unsaid, #family must decide. #hpm
Wed Sep 28 18:10:45 PDT 2011
NatriceR
RT @nursefriendly: Final wishes are also one the most important discussions you can have. Too many people end up on artificial life support needlessly #hpm
Wed Sep 28 18:10:51 PDT 2011
KathyKastner
RT @nursefriendly: Please do not make your #family guess, what you would, or would not want if you are sick and unable to make your own decisions #hpm
Wed Sep 28 18:11:05 PDT 2011
KathyKastner
RT @HospitalPatient: From a Nursing perspective, how many realistically potential DNR patient's R properly prepared in terms of paperwork? #hpm
Wed Sep 28 18:11:32 PDT 2011
eyeseeyouarein
kdhoffman2
RT @nursefriendly Please don't let family guess...agree with @NatriceR as well #hpm
Wed Sep 28 18:11:36 PDT 2011
nursefriendly
If it has not been make clear, decisions to "maintain life" or allow #death can tear a family apart. #hpm
Wed Sep 28 18:11:37 PDT 2011
NatriceR
RT @HospitalPatient: From a Nursing perspective, how many realistically potential DNR patient's R properly prepared in terms of paperwork? #hpm
Wed Sep 28 18:11:56 PDT 2011
KathyKastner
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 5 of 31
6/27/12 12:30 PM
nursefriendly
Better to make your wishes clear early on, so when the time comes, there is no guesswork, a decision can be make with min. guilt. #hpm
Wed Sep 28 18:12:20 PDT 2011
renee_berry
sorry Kathy just clarifying, is T1 'guilt' or are you going to tweet a question about guilt? #hpm
Wed Sep 28 18:12:24 PDT 2011
endocrineguy
RT @nursefriendly: Please do not make your #family guess, what you would, or would not want if you are sick and unable to make your own decisions #hpm
Wed Sep 28 18:12:59 PDT 2011
KathyKastner
Haven't actually put forward T1 :) RT @renee_berry: sorry Kathy just clarifying, is T1 'guilt' #hpm
Wed Sep 28 18:13:02 PDT 2011
NatriceR
RT @nursefriendly: If it has not been make clear, decisions to "maintain life" or allow #death can tear a family apart. #hpm
Wed Sep 28 18:13:30 PDT 2011
kdhoffman2
Thanks @KathyKastner I had difficulty when we decided to catheterize my mother...sister didn't want that...worse for DNR #hpm
Wed Sep 28 18:13:33 PDT 2011
nursefriendly
@HospitalPatient If it has been discussed, most have some form of instructions, if not discussed, can get ugly. #hpm
Wed Sep 28 18:13:36 PDT 2011
nursefriendly
RT @HospitalPatient: From a Nursing perspective, how many realistically potential DNR patients R properly prepared in terms of paperwor #hpm
Wed Sep 28 18:13:43 PDT 2011
KathyKastner
PracticalWisdom
@KathyKastner Wonderful to see so many people tonight. Love how you make use feel so welcomed. Thank you! #HPM
Wed Sep 28 18:14:04 PDT 2011
HospitalPatient
Sorry - must exit short notice. Thx for info & I will make next week's. #hpm
Wed Sep 28 18:14:20 PDT 2011
nursefriendly
Many a family member will state "he or she would not have wanted this" yet if they are the minority opinion, #patients suffer #hpm
Wed Sep 28 18:14:31 PDT 2011
NatriceR
RT @nursefriendly: Better to make your wishes clear early on, so when the time comes, there is no guesswork, a decision can be make with min. guilt. #hpm
Page 6 of 31
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:30 PM
vj_CR
PracticalWisdom
Hope you feel better Michael. RT @HospitalPatient: Sorry - must exit short notice. Thx for info & I will make next weeks. #HPM
Wed Sep 28 18:14:49 PDT 2011
PracticalWisdom
Val Hi great to see you tonight. RT @vj_CR: Hello #HPM am I too late? #HPM
Wed Sep 28 18:15:09 PDT 2011
NatriceR
RT @nursefriendly: RT @HospitalPatient: From a Nursing perspective, how many realistically potential DNR patients R properly prepared in terms of paperwor #hpm
Wed Sep 28 18:15:15 PDT 2011
nursefriendly
If not addressed, #patients suffer needless "code blues" #hospitalization, #treatments, #procedures. #hpm
Wed Sep 28 18:15:20 PDT 2011
KathyKastner
Not too late at all! Haven't even officially gotten to T1= Guilt RT @vj_CR: Hello am I too late? #hpm
Wed Sep 28 18:15:23 PDT 2011
Right2Health
RT @PalliativeActiv: Agreed! "Pain: a more terrible lord of mankind than even death itself" via @TheLancet http://t.co/2bh5MHel #palliative #hpm #bcsm #NCDchat
Wed Sep 28 18:16:01 PDT 2011
NatriceR
RT @PracticalWisdom: @KathyKastner Wonderful to see so many people tonight. Love how you make use feel so welcomed. Thank you! #HPM
Wed Sep 28 18:16:04 PDT 2011
nursefriendly
If not addressed, family members must deal with "guilt" over not knowing if #patient wanted aggressive artificial life support #hpm
Wed Sep 28 18:16:10 PDT 2011
KathyKastner
nursefriendly
Ideally, code status would be addressed as part of every #hospital admission and #doctors office visit. #hpm
Wed Sep 28 18:16:46 PDT 2011
NatriceR
RT @nursefriendly: Many a family member will state "he or she would not have wanted this" yet if they are the minority opinion, #patients suffer #hpm
Wed Sep 28 18:17:03 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 7 of 31
6/27/12 12:30 PM
KathyKastner
Love it.RT @nursefriendly: Ideally, code status would be addressed as part of every #hospital admission and #doctors office visit. #hpm
Wed Sep 28 18:17:12 PDT 2011
NatriceR
RT @PracticalWisdom: Hope you feel better Michael. RT @HospitalPatient: Sorry - must exit short notice. Thx for info & I will make next weeks. #HPM
Wed Sep 28 18:17:13 PDT 2011
nursefriendly
#codestatus as a discussion should begin early, long before the need arises. #hpm
Wed Sep 28 18:17:15 PDT 2011
aliciabloom
@nursefriendly it's only helpful to address code status if done through realistic, honest dialogue. not a yes/no question. #hpm
Wed Sep 28 18:17:33 PDT 2011
NatriceR
RT @nursefriendly: If not addressed, family members must deal with "guilt" over not knowing if #patient wanted aggressive artificial life support #hpm
Wed Sep 28 18:17:56 PDT 2011
KathyKastner
RT @nursefriendly: If not addressed, family members must deal with "guilt" over not knowing if #patient wanted aggressive artificial life support #hpm
Wed Sep 28 18:18:01 PDT 2011
renee_berry
nursefriendly
Tell my #patients, #caregivers we can keep people alive for a very long time on #ventilators, #artificial #feedings #lifesupport. #hpm
Wed Sep 28 18:18:15 PDT 2011
KathyKastner
I think T1 ties right in: dealing with Guilt: patients decisions, your decisions, family fallout #hpm
Wed Sep 28 18:19:03 PDT 2011
nursefriendly
Also tell them, that there is little "quality of life" involved with most of those life prolonging procedures. #nursefriendly #hpm
Wed Sep 28 18:19:05 PDT 2011
PracticalWisdom
nursefriendly
RT @KathyKastner: I think T1 ties right in: dealing with Guilt: patients decisions, your decisions, family fallout #hpm
Wed Sep 28 18:19:53 PDT 2011
NatriceR
RT @KathyKastner: Love it.RT @nursefriendly: Ideally, code status would be addressed as part of every #hospital admission and #doctors office visit. #hpm
Page 8 of 31
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:30 PM
KathyKastner
@nursefriendly T1: Let's hear if from you: How do you deal with Guilt? #hpm
Wed Sep 28 18:20:07 PDT 2011
nursefriendly
KathyKastner
Passion always appreciatedRT @nursefriendly: @KathyKastner Yipes, Didnt mean to monopolize . . . . #hpm
Wed Sep 28 18:20:44 PDT 2011
vj_CR
NatriceR
RT @nursefriendly: Tell my #patients, #caregivers we can keep people alive for a very long time on #ventilators, #artificial #feedings #lifesupport. #hpm
Wed Sep 28 18:20:55 PDT 2011
nursefriendly
Deal with it every day. Had a 97 year old #COPD, could barely breathe, barely eat, tied to an #oxygen tank 24/7. #hpm
Wed Sep 28 18:21:15 PDT 2011
renee_berry
T1 What are some thoughts on patients decisions, family decisions, disagreements & guilt through the process in #hpm via @KathyKastner
Wed Sep 28 18:21:32 PDT 2011
KathyKastner
PracticalWisdom
Not sure Val. I know Kathy will tell us. RT @vj_CR: @PracticalWisdom hi Lisa! Whats T1 ?? #HPM
Wed Sep 28 18:21:48 PDT 2011
a_singledrop
Hopping onto #hpm late to hear the latest insights into hospice/palliative care. Mostly lurking though as I study.. 2nd yr med student here.
Wed Sep 28 18:22:04 PDT 2011
nursefriendly
@KathyKastner @nursefriendly #Doctors #nurses #caregivers can tell who is stable, unstable. Who will need life support, etc #hpm
Wed Sep 28 18:22:05 PDT 2011
KathyKastner
RT @renee_berry: T1 What are some thoughts on patients decisions, family decisions, disagreements & guilt through the process #hpm
Wed Sep 28 18:22:16 PDT 2011
6/27/12 12:30 PM
kdhoffman2 NatriceR
RT @nursefriendly: Also tell them, that there is little "quality of life" involved with most of those life prolonging procedures. #nursefriendly #hpm
Wed Sep 28 18:22:39 PDT 2011
jessicajohanna
RT @renee_berry: T1 What are some thoughts on patients decisions, family decisions, disagreements & guilt through the process in #hpm vi ...
Wed Sep 28 18:22:42 PDT 2011
nursefriendly
@KathyKastner @nursefriendly Feel guilt over not being aggressive enough with #family #doctors #caregivers in getting #DNRs #hpm
Wed Sep 28 18:22:45 PDT 2011
KathyKastner
aliciabloom
guilt is often deep rooted in patient/family relationships. need to remember it's often about more than the medical decision. #hpm
Wed Sep 28 18:22:49 PDT 2011
KathyKastner
How's about your own? RT @kdhoffman2: Is the guilt of the family or of the nurse or other professional? #hpm
Wed Sep 28 18:23:13 PDT 2011
renee_berry
T1 I think guilt in #healthcare decision making guilt is a common issue & like many issues we discuss here, not addressed often enough #hpm
Wed Sep 28 18:23:24 PDT 2011
PracticalWisdom
MT @aliciabloom: guilt is often deep rooted in pt/family relationships. need 2 remember its often about more than the medical decision. #HPM
Wed Sep 28 18:23:27 PDT 2011
nursefriendly
@KathyKastner @renee_berry Feel guilt over not being able to convince #family and #patient that #codeblue after #codeblue is futile #hpm
Wed Sep 28 18:23:35 PDT 2011
KathyKastner
NatriceR
RT @nursefriendly: @KathyKastner @nursefriendly #Doctors #nurses #caregivers can tell who is stable, unstable. Who will need life support, etc #hpm
Wed Sep 28 18:23:52 PDT 2011
renee_berry
RT @aliciabloom: guilt is often deep rooted in patient/family relationships. need to remember it's often about more than the medical decision. #hpm
Wed Sep 28 18:23:57 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 10 of 31
6/27/12 12:30 PM
vj_CR
PracticalWisdom
KathyKastner
RT @PracticalWisdom: @aliciabloom is Guilt often a natural by product of the grieving process? #HPM
Wed Sep 28 18:24:24 PDT 2011
nursefriendly
@KathyKastner Feel guilt everytime I do #CPR or "Shock" a #patient over 80 knowing it is like getting hit by a Mack Truck #hpm
Wed Sep 28 18:24:28 PDT 2011
a_singledrop
RT @aliciabloom: guilt is often deep rooted in patient/family relationships. need to remember it's often about more than the medical decision. #hpm
Wed Sep 28 18:24:35 PDT 2011
nickdawson
RT @renee_berry: T1 I think guilt in #healthcare decision making guilt is a common issue & like many issues we discuss here, not addressed often enough #hpm
Wed Sep 28 18:24:54 PDT 2011
NatriceR
RT @KathyKastner: RT @renee_berry: T1 What are some thoughts on patients decisions, family decisions, disagreements & guilt through the process #hpm
Wed Sep 28 18:24:56 PDT 2011
nursefriendly
@PracticalWisdom @aliciabloom Guilt can stem from many things, not spending time with a #patient when they were well #hpm
Wed Sep 28 18:25:09 PDT 2011
KathyKastner
renee_berry
good Q, would love to hear from the SW MT @PracticalWisdom @aliciabloom is Guilt often a natural result of the grieving process? #hpm
Wed Sep 28 18:25:14 PDT 2011
nursefriendly
@PracticalWisdom @aliciabloom Not getting out to see a #patient when they first got sick, were too "busy" to visit. #hpm
Wed Sep 28 18:25:40 PDT 2011
NatriceR
RT @PracticalWisdom: MT @aliciabloom: guilt is often deep rooted in pt/family relationships. need 2 remember its often about more than the medical decision. #HPM
Wed Sep 28 18:25:55 PDT 2011
@PracticalWisdom i think it's common for family to feel guilt/regret as they grieve. thinking
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 11 of 31
6/27/12 12:30 PM
aliciabloom
KathyKastner
@schwartzbrown Your #hpm ears ringing? Topic = Guilt and dealing with it. Yout thoughts/expereinces?
Wed Sep 28 18:26:10 PDT 2011
nursefriendly
@a_singledrop @aliciabloom Guilt over not being there in a #patients final hours, when you knew they would not be around much longer #hpm
Wed Sep 28 18:26:17 PDT 2011
ShahinaLakhani
PracticalWisdom
@renee_berry Could you please tell me what SW MT means? I really don't know. #HPM
Wed Sep 28 18:26:21 PDT 2011
NatriceR
RT @nursefriendly: @KathyKastner Feel guilt everytime I do #CPR or "Shock" a #patient over 80 knowing it is like getting hit by a Mack Truck #hpm
Wed Sep 28 18:26:25 PDT 2011
nursefriendly
@KathyKastner @schwartzbrown Many forms of guilt are simply perspective, not from actually doing anything wrong. #hpm
Wed Sep 28 18:26:52 PDT 2011
KathyKastner
KathyKastner
RT @nursefriendly: @KathyKastner @schwartzbrown Many forms of guilt are simply perspective, not from actually doing anything wrong. #hpm
Wed Sep 28 18:27:23 PDT 2011
DrBeckerSchutte
I do, even though I'm late!! RT @KathyKastner: I'm #hpm host tonite. 9p# T1: Guilt . I bet u have somethin (cont) http://t.co/ZHjJCEJo
Wed Sep 28 18:27:27 PDT 2011
a_singledrop
Hope the next q is on how health care providers / caregivers can help with guilt because these answers to #hpm are sobering but depressing!
Wed Sep 28 18:27:32 PDT 2011
PracticalWisdom
@aliciabloom Yes Alicia I agree with you. So hard for families friends so far away. we always wish we could have, should have, Etc. #HPM
Wed Sep 28 18:27:36 PDT 2011
nursefriendly
@KathyKastner @schwartzbrown Then there is guilt when a #patient has made their wishes known, and a family chooses to ignore #hpm
Wed Sep 28 18:27:37 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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6/27/12 12:30 PM
NatriceR
RT @nursefriendly: @PracticalWisdom @aliciabloom Guilt can stem from many things, not spending time with a #patient when they were well #hpm
Wed Sep 28 18:27:40 PDT 2011
renee_berry
@PracticalWisdom SW= Social Worker ( @aliciabloom ) & MT = Modified Tweet (changed your tweet language from by-product to natural) #hpm
Wed Sep 28 18:27:48 PDT 2011
KathyKastner
aliciabloom
important for us to reframe early & often for families. the conversations we have throughout the continuum impact the grieving process. #hpm
Wed Sep 28 18:28:29 PDT 2011
nursefriendly
@DrBeckerSchutte @KathyKastner I feel there should be a particularly desolate circle of #hell for family that ignore #endoflife wishes #hpm
Wed Sep 28 18:28:38 PDT 2011
KathyKastner
RT @aliciabloom: important for us to reframe early & often for families. the conversations we have throughout the continuum impact the grieving process. #hpm
Wed Sep 28 18:28:55 PDT 2011
PracticalWisdom
@renee_berry Thank you. MT as Andrew Spong has taught in his blog is spot on and respectful. I think good practice. Thank you 4 help #HPM
Wed Sep 28 18:29:03 PDT 2011
KathyKastner
RT @a_singledrop: Hope the next q is on how health care providers / caregivers can help with guilt because these answers to #hpm are sob ...
Wed Sep 28 18:29:07 PDT 2011
a_singledrop
RT @aliciabloom: important for us to reframe early & often for families. the conversations we have throughout the continuum impact the grieving process. #hpm
Wed Sep 28 18:29:10 PDT 2011
renee_berry
nursefriendly
@aliciabloom It burns me up when there is a living will on the chart, with what the patient wants, does not want, and it is ignored #hpm
Wed Sep 28 18:29:19 PDT 2011
equijada
#hpm don't think guilt is natural part of grief. Excessive guilt -> depression, something underlying.
Wed Sep 28 18:29:22 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 13 of 31
6/27/12 12:30 PM
renee_berry
RT @nursefriendly: @KathyKastner @schwartzbrown Then there is guilt when a #patient has made their wishes known, and a family chooses to ignore #hpm
Wed Sep 28 18:29:23 PDT 2011
NatriceR
RT @nursefriendly: @KathyKastner @schwartzbrown Then there is guilt when a #patient has made their wishes known, and a family chooses to ignore #hpm
Wed Sep 28 18:29:30 PDT 2011
PracticalWisdom
MT @aliciabloom: important 4 us 2 reframe early & often 4 families. Conversations we have throughout continuum impact grieving process. #HPM
Wed Sep 28 18:29:42 PDT 2011
rawarrior
Guilt either way. Since there's no happy alternative... Guilt is human & part of process. Even when decisions are clear & made well. #hpm
Wed Sep 28 18:29:49 PDT 2011
KathyKastner
You Came! hurrayRT @equijada: #hpm dont think guilt is natural part of grief. Excessive guilt -> depression, something underlying. #hpm
Wed Sep 28 18:29:59 PDT 2011
aliciabloom
guilt, like all emotions is multi-faceted & variable. not all expressions of guilt are created equal or come from the same place. #hpm
Wed Sep 28 18:30:00 PDT 2011
DrBeckerSchutte
nursefriendly
@equijada Yes, many "guilty" feelings are simply regrets, not from doing anything wrong per se #hpm
Wed Sep 28 18:30:17 PDT 2011
aliciabloom
@nursefriendly yes, that's frustrating. our job is unpack that with families. what is keeping them from honoring patient wishes? #hpm
Wed Sep 28 18:30:35 PDT 2011
KathyKastner
rawarrior
@equijada Yes, excessive guilt is unhealthy - true. I meant some of it is unavoidable. #hpm
Wed Sep 28 18:30:49 PDT 2011
PracticalWisdom
Complex Guilt signs? RT @equijada: #hpm dont think guilt is natural part of grief. Excessive guilt -> depression, something underlying. #HPM
Wed Sep 28 18:30:50 PDT 2011
KathyKastner
RT @nursefriendly: @equijada Yes, many "guilty" feelings are simply regrets, not from doing anything wrong per se #hpm
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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KathyKastner
RT @rawarrior: @equijada Yes, excessive guilt is unhealthy - true. I meant some of it is unavoidable. #hpm
Wed Sep 28 18:31:06 PDT 2011
renee_berry
RT @aliciabloom: guilt, like all emotions is multi-faceted & variable. not all expressions of guilt are created equal or come from the same place. #hpm
Wed Sep 28 18:31:24 PDT 2011
PracticalWisdom
@a_singledrop Hope you will continue to stay with us. You bring Value my Friend! #HPM
Wed Sep 28 18:31:27 PDT 2011
a_singledrop
A poem to help caregivers with guilt: Caregiving without Regret http://t.co/jOiJ69je #hpm (Thx for sharing @ShahinaLakhani!)
Wed Sep 28 18:31:30 PDT 2011
NatriceR
RT @nursefriendly: @DrBeckerSchutte @KathyKastner I feel there should be a particularly desolate circle of #hell for family that ignore #endoflife wishes #hpm
Wed Sep 28 18:31:36 PDT 2011
NatriceR
RT @PracticalWisdom: MT @aliciabloom: important 4 us 2 reframe early & often 4 families. Conversations we have throughout continuum impact grieving process. #HPM
Wed Sep 28 18:31:47 PDT 2011
NatriceR
RT @rawarrior: Guilt either way. Since there's no happy alternative... Guilt is human & part of process. Even when decisions are clear & made well. #hpm
Wed Sep 28 18:32:03 PDT 2011
KathyKastner
RT @a_singledrop: A poem to help caregivers with guilt: Caregiving without Regret http://t.co/jOiJ69je #hpm (Thx for sharing @ShahinaLak ...
Wed Sep 28 18:32:12 PDT 2011
nursefriendly
Feel it is a #crime that #advancedirectives are not legally binding @KathyKastner @nursefriendly @equijada #hpm
Wed Sep 28 18:32:16 PDT 2011
a_singledrop
@PracticalWisdom @equijada as we went over in psych 101, sadness, guilt, etc are normal under stress. It's how we deal that counts #hpm
Wed Sep 28 18:32:47 PDT 2011
DrBeckerSchutte
I think that the distinction between regret and guilt is important for processing and healing. #hpm
Wed Sep 28 18:33:12 PDT 2011
renee_berry
RT @DrBeckerSchutte: I think that the distinction between regret and guilt is important for processing and healing. #hpm
Wed Sep 28 18:33:28 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 15 of 31
6/27/12 12:30 PM
NatriceR
RT @a_singledrop: A poem to help caregivers with guilt: Caregiving without Regret http://t.co/jOiJ69je #hpm (Thx for sharing @ShahinaLak ...
Wed Sep 28 18:33:36 PDT 2011
PracticalWisdom
MT @a_singledrop: @PracticalWisdom @equijada we went over psych 101, sadness, guilt, etc R normal under stress. Its how we deal counts #HPM
Wed Sep 28 18:33:45 PDT 2011
kdhoffman2
nursefriendly
#Guilt can take many forms, for not discussing #endoflife wishes before a #patient got #sick. Meant to, was going to . . #hpm
Wed Sep 28 18:33:51 PDT 2011
jocelyn528
Absolutely RT @DrBeckerSchutte: I think that the distinction between regret and guilt is important for processing and healing. #hpm
Wed Sep 28 18:33:59 PDT 2011
KathyKastner
NiceRT @renee_berry: RT @DrBeckerSchutte: I think that the distinction between regret and guilt important for processing and healing. #hpm
Wed Sep 28 18:33:59 PDT 2011
a_singledrop
@PracticalWisdom @equijada in other words, the success of the coping mechanisms impt for distinguishing pathology vs normal #hpm
Wed Sep 28 18:34:20 PDT 2011
DrBeckerSchutte
Yes & prep! RT @a_singledrop: as we went over in psych 101, sadness, guilt, etc are normal under stress. Its how we deal that counts #hpm
Wed Sep 28 18:34:24 PDT 2011
KathyKastner
NatriceR
RT @nursefriendly: Feel it is a #crime that #advancedirectives are not legally binding @KathyKastner @nursefriendly @equijada #hpm
Wed Sep 28 18:34:31 PDT 2011
nursefriendly
#Health professionals can help by bringing the topic up, if a #patient condition or #diagnosis may warrant it later #hpm
Wed Sep 28 18:34:40 PDT 2011
KathyKastner
RT @nursefriendly: #Health professionals can help by bringing the topic up, if a #patient condition or #diagnosis may warrant it later #hpm
Wed Sep 28 18:34:48 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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PracticalWisdom
Guilt= I feel Bad Shame= I am Bad Regret=Wish I had done more? #HPM
Wed Sep 28 18:35:06 PDT 2011
KathyKastner
RT @kdhoffman2: @nursefriendly Guilt does seem to drive not following directives #hpm
Wed Sep 28 18:35:06 PDT 2011
carlosrizo
RT @renee_berry: for the next hour I'll be tweeting about #hospice & #palliative care, all are welcome to hop in the conversation! #hpm
Wed Sep 28 18:35:15 PDT 2011
nursefriendly
#health professionals can help by education #patients #family #caregivers #nurses #doctors and everyone involved in process #hpm
Wed Sep 28 18:35:21 PDT 2011
KathyKastner
RT @PracticalWisdom: Guilt= I feel Bad Shame= I am Bad Regret=Wish I had done more? #hpm
Wed Sep 28 18:35:36 PDT 2011
NatriceR
RT @nursefriendly: #Guilt can take many forms, for not discussing #endoflife wishes before a #patient got #sick. Meant to, was going to . . #hpm
Wed Sep 28 18:35:44 PDT 2011
NatriceR
RT @KathyKastner: NiceRT @renee_berry: RT @DrBeckerSchutte: I think that the distinction between regret and guilt important for processing and healing. #hpm
Wed Sep 28 18:35:49 PDT 2011
DrBeckerSchutte
Guilt is technically a response to something done wrong. Sadness about missed opportunities isn't something done wrong. #hpm
Wed Sep 28 18:35:51 PDT 2011
DrBeckerSchutte
Excellently said! RT @PracticalWisdom: Guilt= I feel Bad Shame= I am Bad Regret=Wish I had done more? #hpm
Wed Sep 28 18:36:13 PDT 2011
NatriceR
RT @DrBeckerSchutte: Yes & prep! RT @a_singledrop: as we went over in psych 101, sadness, guilt, etc are normal under stress. Its how we deal that counts #hpm
Wed Sep 28 18:36:20 PDT 2011
nursefriendly
On a daily basis I have to fight some #doctors for #hospice consults, perhaps because they equate #hospice with admitting defeat. #hpm
Wed Sep 28 18:36:21 PDT 2011
KathyKastner
Hi Carlos! Wel ome Twice in one day (doesn't this call for a tequlia sometime or anotbner) @carlosrizo #hpm
Wed Sep 28 18:36:23 PDT 2011
vj_CR
T1 I think guilt is one of the toughest feelings to deal with. It gets right under your skin. However really important 2 get it out #HPM
Page 17 of 31
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6/27/12 12:30 PM
a_singledrop
Yes! potential role for health care professionals? Preparing families for regret to prev guilt & shame RT @DrBeckerSchutte: Yes & prep! #hpm
Wed Sep 28 18:37:05 PDT 2011
nursefriendly
On a daily basis, I get chewed out by #patients #family members who are "not ready" to discuss #endoflife #wishes #hpm
Wed Sep 28 18:37:06 PDT 2011
renee_berry
healthcare professionals should practice preventative guilt RT @KathyKastner: Can guilt be avoided? Should Guilt be avoided #hpm
Wed Sep 28 18:37:12 PDT 2011
DrBeckerSchutte
I think that as professionals, we can help provide education & permission for feelings. #hpm
Wed Sep 28 18:37:30 PDT 2011
a_singledrop
RT @DrBeckerSchutte: I think that as professionals, we can help provide education & permission for feelings. #hpm
Wed Sep 28 18:37:39 PDT 2011
nursefriendly
#death is and continues to be a #taboo subject in #healthcare. This is unfortunate as it happens regardless and often. #hpm
Wed Sep 28 18:37:56 PDT 2011
PracticalWisdom
MT @vj_CR: T1 I think guilt is 1 toughest feelings 2 deal with. It gets right under your skin. However really important 2 get it out #HPM
Wed Sep 28 18:38:06 PDT 2011
PracticalWisdom
RT @a_singledrop: RT @DrBeckerSchutte: I think that as professionals, we can help provide education & permission for feelings. #HPM
Wed Sep 28 18:38:24 PDT 2011
KathyKastner
RT @PracticalWisdom: MT @vj_CR: T1 I think guilt is 1 toughest feelings 2 deal with. It gets right under your skin. However really important 2 get it out #HPM
Wed Sep 28 18:38:30 PDT 2011
nursefriendly
The last thing some #patients #family #caregivers or #doctors want to hear is "DNR" or #endoflife wishes. Many are not ready. #hpm
Wed Sep 28 18:38:38 PDT 2011
KathyKastner
RT @renee_berry: healthcare professionals should practice preventative guilt RT @KathyKastner: Can guilt be avoided? Should Guilt be avoided #hpm
Wed Sep 28 18:38:40 PDT 2011
DrBeckerSchutte
Love it! RT @renee_berry: healthcare professionals should practice preventative guilt #hpm
Wed Sep 28 18:38:45 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 18 of 31
6/27/12 12:30 PM
a_singledrop
equijada
#hpm guilt -> doing something wrong. Regret -> not doing something right. Morality implied in action.
Wed Sep 28 18:38:59 PDT 2011
KathyKastner
+1 RT @DrBeckerSchutte: Love it! RT @renee_berry: healthcare professionals should practice preventative guilt #hpm
Wed Sep 28 18:39:03 PDT 2011
KathyKastner
RT @equijada: #hpm guilt -> doing something wrong. Regret -> not doing something right. Morality implied in action.
Wed Sep 28 18:39:10 PDT 2011
a_singledrop
@DrBeckerSchutte @renee_berry more like preventative regret. don't think we're at the pt where we should be guilting patients! #hpm
Wed Sep 28 18:39:15 PDT 2011
vj_CR
1 way 2 deal w/ guilt is talk about it. Sometimes talking we understand what really happened and that there is no need to feel guilty #HPM
Wed Sep 28 18:39:18 PDT 2011
michaelbmoore
RT @a_singledrop: A poem to help caregivers with guilt: Caregiving without Regret http://t.co/jOiJ69je #hpm (Thx for sharing @ShahinaLak ...
Wed Sep 28 18:39:21 PDT 2011
PracticalWisdom
T2: I dont' think we should put judgement on Guilt. If typical not causing problems just a feeling. if more professional help important #HPM
Wed Sep 28 18:39:27 PDT 2011
KathyKastner
RT @vj_CR: 1 way 2 deal w/ guilt is talk about it. Sometimes talking we understand what really happened and that there is no need to feel guilty #HPM
Wed Sep 28 18:39:29 PDT 2011
kdhoffman2
@nursefriendly you are right...it is taboo...when loss of family member hope is thought that is desired #hpm
Wed Sep 28 18:39:32 PDT 2011
a_singledrop
RT @vj_CR: 1 way 2 deal w/ guilt is talk about it. Sometimes talking we understand what really happened and that there is no need to feel guilty #HPM
Wed Sep 28 18:39:34 PDT 2011
nursefriendly
No one has a right to tell a #patient #family #caregiver #nurse or #doctor that they should, or should not feel #guilt #hpm
Wed Sep 28 18:39:48 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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aliciabloom
@nursefriendly which is why the most effective conversations don't start with code status or EoL wishes. #hpm
Wed Sep 28 18:39:53 PDT 2011
KathyKastner
RT @nursefriendly: No one has a right to tell a #patient #family #caregiver #nurse or #doctor that they should, or should not feel #guilt #hpm
Wed Sep 28 18:39:58 PDT 2011
KathyKastner
RT @aliciabloom: @nursefriendly which is why the most effective conversations don't start with code status or EoL wishes. #hpm
Wed Sep 28 18:40:11 PDT 2011
equijada
@KathyKastner guilt stems from perceived wrong doing. Need to figure the root. #HPM
Wed Sep 28 18:40:17 PDT 2011
vj_CR
Just a thought but isn't guil very closely related to religion? At least catolicism? #HPM
Wed Sep 28 18:40:20 PDT 2011
nursefriendly
#Guilt is an emotion people feel, and will keep feeling based on their perspectives of the situation. #hpm
Wed Sep 28 18:40:24 PDT 2011
KathyKastner
That's what makes you so good RT @equijada: @KathyKastner guilt stems from perceived wrong doing. Need to figure the root. #HPM
Wed Sep 28 18:40:47 PDT 2011
aliciabloom
effective conversations about EoL care are an educational dialogue re: illness that turn into discussion about values & preferences. #hpm
Wed Sep 28 18:40:55 PDT 2011
PracticalWisdom
Was thinking of the role of confession. RT @vj_CR: Just a thought but isnt guil very closely related to religion? At least catolicism? #HPM
Wed Sep 28 18:40:57 PDT 2011
nursefriendly
#Best thing you can do, is lend an ear, and #listen to the #patient #family #caregiver #nurse #doctor, help sort out feelings #hpm
Wed Sep 28 18:41:07 PDT 2011
KathyKastner
Was waiting for the religion aspectRT @vj_CR: Just a thought but isn't guil very closely related to religion? At least catolicism? #HPM
Wed Sep 28 18:41:18 PDT 2011
PracticalWisdom
Earl do sometimes people just feel never know? T @equijada: @KathyKastner guilt stems from perceived wrong doing. Need 2 figure root. #HPM
Wed Sep 28 18:41:42 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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renee_berry
RT @aliciabloom: effective conversations about EoL care are an educational dialogue re: illness that turn into discussion about values & preferences. #hpm
Wed Sep 28 18:42:03 PDT 2011
nursefriendly
@vj_CR No, not in my experience, religion plays little part in generation of guilty feelings. It is more a function of actions/inaction #hpm
Wed Sep 28 18:42:17 PDT 2011
KathyKastner
Shoulder tap ....There is a T2: Overlapping roles. How do you deal? #hpm
Wed Sep 28 18:42:41 PDT 2011
PracticalWisdom
MT @aliciabloom: effective conversations re: EoL care R educ. dialogue re: illness that turn in2discussion re: values & preferences. #HPM
Wed Sep 28 18:42:48 PDT 2011
kdhoffman2
Death and impending death is taboo and it is impt to remember because family wants to think only of hope-- #hpm
Wed Sep 28 18:43:07 PDT 2011
KathyKastner
RT @PracticalWisdom: MT @aliciabloom: effective conversations re: EoL care R educ. dialogue re: illness that turn in2discussion re: values & preferences. #HPM
Wed Sep 28 18:43:07 PDT 2011
nursefriendly
Guilt/Religion are not related in my experience. It is more about a persons reactions, actions, inactions during the crisis. #hpm
Wed Sep 28 18:43:17 PDT 2011
KathyKastner
RT @nursefriendly: Guilt/Religion are not related in my experience. It is more about a persons reactions, actions, inactions during the crisis. #hpm
Wed Sep 28 18:43:20 PDT 2011
renee_berry
No matter how much prep & knowledge I have or how rational/irrational, I will feel guilt in many healthcare situations #hpm
Wed Sep 28 18:43:32 PDT 2011
kdhoffman2
DrBeckerSchutte
Ooh, good question. RT @KathyKastner: Shoulder tap ....There is a T2: Overlapping roles. How do you deal? #hpm
Wed Sep 28 18:43:43 PDT 2011
PracticalWisdom
RT @renee_berry: No matter how much prep & knowledge I have or how rational/irrational, I will feel guilt in many healthcare situations #HPM
Wed Sep 28 18:43:51 PDT 2011
KathyKastner
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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6/27/12 12:30 PM
aliciabloom
@kdhoffman2 so our job is to help them reframe and maintain hope, even in the absence of cure. #hpm
Wed Sep 28 18:44:09 PDT 2011
KathyKastner
renee_berry
RT @aliciabloom: @kdhoffman2 so our job is to help them reframe and maintain hope, even in the absence of cure. #hpm
Wed Sep 28 18:44:41 PDT 2011
nursefriendly
@kdhoffman2 There is #hope, there is #futility. It is important for #caregivers #patients #family #doctors #nurses to discern #hpm
Wed Sep 28 18:44:44 PDT 2011
KathyKastner
Can 'hope;' be reframedRT @aliciabloom: @kdhoffman2 so our job is to help them reframe and maintain hope, even in the absence of cure. #hpm
Wed Sep 28 18:44:53 PDT 2011
PracticalWisdom
Hope wishes R granted. RT @aliciabloom: @kdhoffman2 so our job is to help them reframe and maintain hope, even in the absence of cure. #HPM
Wed Sep 28 18:45:02 PDT 2011
DrBeckerSchutte
T2: The challenge of roles, being caregiver/partner, HCP/patient, can lead to guilt that creates tension. #hpm
Wed Sep 28 18:45:14 PDT 2011
KathyKastner
RT @PracticalWisdom: Hope wishes R granted. RT @aliciabloom: @kdhoffman2 so our job is to help them reframe and maintain hope, even in the absence of cure. #HPM
Wed Sep 28 18:45:17 PDT 2011
nursefriendly
@KathyKastner @kdhoffman2 My job as a #nurse is to define the situation, let them know options, potential outcomes. #hpm
Wed Sep 28 18:45:25 PDT 2011
KathyKastner
RT @DrBeckerSchutte: T2: The challenge of roles, being caregiver/partner, HCP/patient, can lead to guilt that creates tension. #hpm
Wed Sep 28 18:45:37 PDT 2011
KathyKastner
aliciabloom
perhaps we cannot hope for cure, but we can hope for comfort & quality. there are always things to hope for. #hpm
Wed Sep 28 18:46:00 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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DrBeckerSchutte
What a great job-such an honor. RT @aliciabloom: so our job is to help them reframe and maintain hope, even in the absence of cure. #hpm
Wed Sep 28 18:46:03 PDT 2011
KathyKastner
RT @aliciabloom: perhaps we cannot hope for cure, but we can hope for comfort & quality. there are always things to hope for. #hpm
Wed Sep 28 18:46:13 PDT 2011
nursefriendly
@nursefriendly @KathyKastner @kdhoffman2 To let them know what further treatment will, will not bring. Specifically quality of life. #hpm
Wed Sep 28 18:46:26 PDT 2011
DrBeckerSchutte
@KathyKastner Thanks for that--role conflict is a huge driver of guilt for all of us. Just think "mommy guilt. . ." #hpm
Wed Sep 28 18:46:38 PDT 2011
renee_berry
RT @aliciabloom: perhaps we cannot hope for cure, but we can hope for comfort & quality. there are always things to hope for. #hpm
Wed Sep 28 18:46:40 PDT 2011
PalliativeActiv
Well said- RT @aliciabloom: @kdhoffman2 "so our job is to help them reframe and maintain hope, even in the absence of cure" #hpm #palliative
Wed Sep 28 18:46:51 PDT 2011
vj_CR
@nursefriendly @KathyKastner @PracticalWisdom #hpm to me catholicism has a lot to do w/ guilt but it's just IMHO ;-)
Wed Sep 28 18:46:51 PDT 2011
KathyKastner
@nursefriendly With so much upset, how DO you deal with it? #hpm
Wed Sep 28 18:46:54 PDT 2011
aliciabloom
NatriceR
RT @PracticalWisdom: RT @renee_berry: No matter how much prep & knowledge I have or how rational/irrational, I will feel guilt in many healthcare situations #HPM
Wed Sep 28 18:47:01 PDT 2011
vj_CR
RT @nursefriendly: @vj_CR No, not in my experience, religion plays little part in generation of guilty feelings. It is more a function of actions/inaction #hpm
Wed Sep 28 18:47:04 PDT 2011
No_Bozo
RT @aliciabloom: effective conversations about EoL care are an educational dialogue re: illness that turn into discussion about values & preferences. #hpm
Wed Sep 28 18:47:08 PDT 2011
No_Bozo
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:30 PM
renee_berry
David Feldman, Phd has done a lot of great research on the context & language of #hope http://t.co/Sy2XaxHR #hpm
Wed Sep 28 18:47:14 PDT 2011
eyeseeyouarein
@nursefriendly I've seen religion play a negative role. "Let God decide when he'll die," they say, as they as us to do everything. ugh #hpm
Wed Sep 28 18:47:15 PDT 2011
KathyKastner
Love this bookRT @aliciabloom: The Anatomy of Hope by Jerome Groopman MD is an excellent book. #hpm
Wed Sep 28 18:47:18 PDT 2011
nursefriendly
@aliciabloom Yes, when a cure is not going to happen, can discuss keeping the #patient comfortable and dignified. #hpm
Wed Sep 28 18:47:24 PDT 2011
KathyKastner
RT @renee_berry: David Feldman, Phd has done a lot of great research on the context & language of #hope http://t.co/Sy2XaxHR #hpm
Wed Sep 28 18:47:26 PDT 2011
renee_berry
will have to look that up! RT @aliciabloom The Anatomy of Hope by Jerome Groopman MD is an excellent book. #hpm
Wed Sep 28 18:47:41 PDT 2011
DrBeckerSchutte
@KathyKastner And when we focus on the ways that end of life challenges our roles, we can find a way to resolve guilt. #hpm
Wed Sep 28 18:47:47 PDT 2011
NatriceR
RT @KathyKastner: Can 'hope;' be reframedRT @aliciabloom: @kdhoffman2 so our job is to help them reframe and maintain hope, even in the absence of cure. #hpm
Wed Sep 28 18:47:49 PDT 2011
PracticalWisdom
Culture!RT @vj_CR: @nursefriendly @KathyKastner @PracticalWisdom #hpm to me catholicism has a lot to do w/ guilt but its just IMHO ;-) #HPM
Wed Sep 28 18:47:51 PDT 2011
nursefriendly
Ok, I'll bite why do you think religion causes guilt? @vj_CR @nursefriendly @KathyKastner @PracticalWisdom #hpm
Wed Sep 28 18:48:05 PDT 2011
DrBeckerSchutte
Putting on list! RT @KathyKastner: Love this bookRT @aliciabloom: The Anatomy of Hope by Jerome Groopman MD is an excellent book. #hpm
Wed Sep 28 18:48:06 PDT 2011
NatriceR
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
6/27/12 12:30 PM
NatriceR
RT @aliciabloom: perhaps we cannot hope for cure, but we can hope for comfort & quality. there are always things to hope for. #hpm
Wed Sep 28 18:48:45 PDT 2011
vj_CR
If I feel guilty it's because I think I did something wrong. Maybe the point would be defining what's right or wrong for each of us #hpm
Wed Sep 28 18:48:45 PDT 2011
nursefriendly
How does culture play into religion causing guilt? @PracticalWisdom @vj_CR @nursefriendly @KathyKastner #hpm
Wed Sep 28 18:48:48 PDT 2011
DrBeckerSchutte
I think that cultural expectations create a sense of guilt: can be religion, ethnicity, social expectations! #hpm
Wed Sep 28 18:48:54 PDT 2011
PracticalWisdom
Good Night everyone. My daughter needs her Momma. Thank you for Friendship and thoughtful conversation. #HPM
Wed Sep 28 18:48:58 PDT 2011
aliciabloom
@renee_berry great read! you'll enjoy it. Dr. Groopman shares case vignettes and interesting perspective. #hpm
Wed Sep 28 18:49:00 PDT 2011
NatriceR
RT @nursefriendly: @nursefriendly @KathyKastner @kdhoffman2 To let them know what further treatment will, will not bring. Specifically quality of life. #hpm
Wed Sep 28 18:49:06 PDT 2011
NatriceR
RT @DrBeckerSchutte: @KathyKastner Thanks for that--role conflict is a huge driver of guilt for all of us. Just think "mommy guilt. . ." #hpm
Wed Sep 28 18:49:14 PDT 2011
KathyKastner
schwartzbrown
KathyKastner
RT @DrBeckerSchutte: I think that cultural expectations create a sense of guilt: can be religion, ethnicity, social expectations! #hpm
Wed Sep 28 18:49:41 PDT 2011
DrBeckerSchutte
@vj_CR So guilt can be that family can't create cure, that they may resent illness, for pt that they are leaving family behind, etc. #hpm
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 25 of 31
6/27/12 12:30 PM
nursefriendly
For the terminal #patient, find it is helpful to tell #families about other #patients in that situation, how it was handled. #hpm
Wed Sep 28 18:49:49 PDT 2011
DrBeckerSchutte
@PracticalWisdom Lisa, so good to see you. Have some good Momma time! #hpm
Wed Sep 28 18:50:07 PDT 2011
KathyKastner
RT @DrBeckerSchutte: @PracticalWisdom Lisa, so good to see you. Have some good Momma time! #hpm
Wed Sep 28 18:50:16 PDT 2011
nursefriendly
Two of my close family members died on #morphine drips. #hospice was the best option for them. #hpm
Wed Sep 28 18:50:39 PDT 2011
vj_CR
@nursefriendly it's like everything is wrong therefore people act on guilt, afraid of God #hpm (wow delicate subject)
Wed Sep 28 18:50:40 PDT 2011
renee_berry
& a reality of being human RT @schwartzbrown: I think all we can do in face of guilt is reflect reality of causation #hpm
Wed Sep 28 18:50:42 PDT 2011
DrBeckerSchutte
RT @nursefriendly: For the terminal patient, find it helpful to tell families abt other patients in that situation, how it was handled. #hpm
Wed Sep 28 18:51:03 PDT 2011
KathyKastner
RT @renee_berry: & a reality of being human RT @schwartzbrown: I think all we can do in face of guilt is reflect reality of causation #hpm
Wed Sep 28 18:51:09 PDT 2011
nursefriendly
aliciabloom
MT @renee_berry: & reality of being human RT @schwartzbrown: I think all we can do in face of guilt is reflect reality of causation. #hpm
Wed Sep 28 18:51:41 PDT 2011
PracticalWisdom
@nursefriendly Andrew I didn't say How does culture play into religion causing guilt? I placed tculture after @vj_CR Tweet.MT R Good #HPM
Wed Sep 28 18:51:51 PDT 2011
vj_CR
@nursefriendly although a week ago explained guilt in a very nice way #hpm he wanted me to see that religion wasn't = to guilt
Wed Sep 28 18:51:59 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 26 of 31
6/27/12 12:30 PM
DrBeckerSchutte
And resolve conflict if possible. RT @schwartzbrown: I think all we can do in face of guilt is reflect reality of causation #hpm
Wed Sep 28 18:52:02 PDT 2011
nursefriendly
When I share my personal #hospice stories, it is easier for them to weigh options. @KathyKastner @renee_berry @schwartzbrown #hpm
Wed Sep 28 18:52:04 PDT 2011
KathyKastner
KathyKastner
RT @nursefriendly: When I share my personal #hospice stories, it is easier for them to weigh options. @KathyKastner @renee_berry @schwartzbrown #hpm
Wed Sep 28 18:52:23 PDT 2011
nursefriendly
Yes, I know, so does everyone reading the original tweet. @PracticalWisdom @nursefriendly @vj_CR #hpm
Wed Sep 28 18:52:46 PDT 2011
schwartzbrown
vj_CR
RT @DrBeckerSchutte: @vj_CR So guilt can be that family can't create cure, that they may resent illness, for pt that they are leaving family behind, etc. #hpm
Wed Sep 28 18:53:12 PDT 2011
dianewolfePRx
RT @CompAndChoices: End of life directives don't hasten death: http://ow.ly/6HPhl #hpm #eol
Wed Sep 28 18:53:23 PDT 2011
KathyKastner
DrBeckerSchutte
@schwartzbrown I don't think that there's a wrong way to get here--so glad we have you! #hpm
Wed Sep 28 18:53:38 PDT 2011
nursefriendly
Uncertainty is a major factor in guilty feelings.That is why making your wishes known, having advanced directives, minimizes it #hpm
Wed Sep 28 18:53:54 PDT 2011
statweestics
schwartzbrown
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 27 of 31
6/27/12 12:30 PM
DrBeckerSchutte
Great segue into #EOLchat, right after #hpm! RT @dianewolfePRx: RT @CompAndChoices: End of life directives don (cont) http://t.co/nvZGSieM
Wed Sep 28 18:54:26 PDT 2011
ann_latestbc
DrBeckerSchutte
KathyKastner
@ann_latestbc Almost over but happy to see you l;shana Tova #hpm
Wed Sep 28 18:55:03 PDT 2011
nursefriendly
The best help we can give #patients, families is guide them through the #dying process, preferably before the need arises. #hpm
Wed Sep 28 18:55:08 PDT 2011
DrBeckerSchutte
Busy group of tweeters! :-) RT @statweestics: #hpm is getting popular, +700% the last hour : http://t.co/eOBLGv29 #hpm
Wed Sep 28 18:55:25 PDT 2011
schwartzbrown
Guilt is so religion tinged, though. If feel all is fate, you have no role-no guilt #hpm
Wed Sep 28 18:55:41 PDT 2011
nursefriendly
We all know it will happen, some prepare wills, some prepay funeral home plots. Preparing for #death is not unheard of. #hpm
Wed Sep 28 18:56:12 PDT 2011
KathyKastner
As this amazing hour draws to a close (and #eolchat gets started) Thank you all: last thoughts? #hpm
Wed Sep 28 18:56:15 PDT 2011
DrBeckerSchutte
renee_berry
RT @nursefriendly: We all know it will happen, some prepare wills, some prepay funeral home plots. Preparing for #death is not unheard of. #hpm
Wed Sep 28 18:56:52 PDT 2011
renee_berry
@KathyKastner thanks for hosting! Great to chat with everyone tonight! #hpm
Wed Sep 28 18:57:16 PDT 2011
ann_latestbc
When a loved one went into hospice, the guilt was about if we made the right decision. If we played G-d. #hpm
Wed Sep 28 18:57:22 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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6/27/12 12:30 PM
nursefriendly
Closing: Make your wishes known, do not leave your #dignity, quality of life when you are #dying to chance. #hpm
Wed Sep 28 18:57:26 PDT 2011
DrBeckerSchutte
Final thought: As in so many things, clear communication can help minimize/mitigate guilt. #hpm
Wed Sep 28 18:57:29 PDT 2011
renee_berry
will be looking for everyone's feedback in the near future on some of our tweetchat structure, hoping to hear from all of you #hpm
Wed Sep 28 18:57:53 PDT 2011
jocelyn528
This says it all. RT @DrBeckerSchutte: Final thought: As in so many things, clear communication can help minimize/mitigate guilt. #hpm
Wed Sep 28 18:58:02 PDT 2011
nursefriendly
Closing: Save your family the #burden of making #endoflife #decisions for you. With certainty, tell them what you do, don't want. #hpm
Wed Sep 28 18:58:09 PDT 2011
schwartzbrown
RT @DrBeckerSchutte: Final thought: As in so many things, clear communication can help minimize/mitigate guilt.// Absolutely #hpm
Wed Sep 28 18:58:10 PDT 2011
aliciabloom
people feel more comfortable preparing for death (funeral arrangements), but uncomfortable preparing for process that leads up to it. #hpm
Wed Sep 28 18:58:14 PDT 2011
DrBeckerSchutte
Final thought #2: We may need to be gentle with self & others when roles collide, because that's ripe ground for guilt. #hpm
Wed Sep 28 18:58:19 PDT 2011
KathyKastner
And I thought this might be a quiet convo. Wrong! Thank you one and all. @Nursefriendly: can I get you a tequlia? #hpm
Wed Sep 28 18:58:33 PDT 2011
nursefriendly
Closing: Address your #death early, along with a will and durable power of attorney. Let your family know your wishes. #hpm
Wed Sep 28 18:58:49 PDT 2011
renee_berry
Guilt in #healthcare decisions can be diffused with appropriate #SocialWork interventions, should ALWAYS be patient centered goals #hpm
Wed Sep 28 18:58:50 PDT 2011
nursefriendly
@KathyKastner @Nursefriendly That would be lovely :) thanks for hosting, was a great discussion. #hpm
Wed Sep 28 18:59:19 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 29 of 31
6/27/12 12:30 PM
DrBeckerSchutte
MT @renee_berry: Guilt in healthcare decisions can be diffused w/SocialWork interventions, should ALWAYS be patient centered goals #hpm
Wed Sep 28 19:00:07 PDT 2011
aliciabloom
RT @renee_berry: Guilt in #healthcare decisions can be diffused with appropriate #SocialWork interventions, should ALWAYS be patient centered goals #hpm
Wed Sep 28 19:00:12 PDT 2011
KathyKastner
RT @DrBeckerSchutte: MT @renee_berry: Guilt in healthcare decisions can be diffused w/SocialWork interventions, should ALWAYS be patient centered goals #hpm
Wed Sep 28 19:00:18 PDT 2011
nursefriendly
Minimize #guilt and #turmoil for your #family, avoid the #guesswork, if you're unable to make your #final wishes known #hpm
Wed Sep 28 19:00:40 PDT 2011
DrBeckerSchutte
@KathyKastner--Great job moderating. Such an important topic. For folks who want to talk more about the EOL conversation, pop over! #hpm
Wed Sep 28 19:00:52 PDT 2011
hJaime1
RT @schwartzbrown: I think all we can do in face of guilt is reflect reality of causation #hpm
Wed Sep 28 19:00:57 PDT 2011
nursefriendly
If you don't tell them what you want, you may end up in a "garden" being watered for a very long time. #hpm
Wed Sep 28 19:01:31 PDT 2011
KathyKastner
RT @DrBeckerSchutte: Final thought #2: We may need 2 b gentle with self & others when roles collide, cuz thats ripe ground for guilt. #hpm
Wed Sep 28 19:02:24 PDT 2011
NatriceR
RT @nursefriendly: Two of my close family members died on #morphine drips. #hospice was the best option for them. #hpm
Wed Sep 28 19:02:30 PDT 2011
NatriceR
RT @nursefriendly: Uncertainty is a major factor in guilty feelings.That is why making your wishes known, having advanced directives, minimizes it #hpm
Wed Sep 28 19:03:04 PDT 2011
a_singledrop
Ok back to studying. Thanks for the insights on guilt and how health care professionals can help #hpm!
Wed Sep 28 19:03:08 PDT 2011
nursefriendly
We'll continue this discussion on #eolchat with Dr.Ann Beckershutte, feel free to join us :) #hospice #death #dying #caregivers #mdchat #hpm
Wed Sep 28 19:03:34 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 30 of 31
6/27/12 12:30 PM
NatriceR
RT @nursefriendly: We all know it will happen, some prepare wills, some prepay funeral home plots. Preparing for #death is not unheard of. #hpm
Wed Sep 28 19:03:44 PDT 2011
schwartzbrown
NatriceR
RT @nursefriendly: Closing: Make your wishes known, do not leave your #dignity, quality of life when you are #dying to chance. #hpm
Wed Sep 28 19:04:13 PDT 2011
karenglowacki
ITA @nursefriendly Uncertainty is a major factor in guilty feelings.Making your wishes known, having advanced directives, minimizes it #hpm
Wed Sep 28 19:05:34 PDT 2011
ann_latestbc
Good night, all. Thank you for sharing your wisdom and experience. #hpm
Wed Sep 28 19:06:38 PDT 2011
vj_CR
Thanks #hpm but my bb is making it hard to follow.... See you next week
Wed Sep 28 19:07:58 PDT 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=09-28-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
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