Good Information -There is evidence that some people have a better understanding of the work -There still needs to be more work to inform children and young people and their families -The regional forums are working creatively to engage with the people directly affected by Transforming Care - The timescales for the Transforming Care work mean not enough time is taken to make sure people and families are understanding the information given.
Summary of regional feedback
Local people working together - There are a number of people and families involved in the Transforming Care work in their area - Some good work has been highlighted in a number of areas - The work in Kent showed the importance of meeting people with complex needs in a way that works for them - Some areas felt that inaccessible information was a barrier to people being involved.
Summary of regional feedback
Good care in hospital - Many people knew about the Care and Treatment Reviews - Regions are working well with one another to develop the skills of experts by experience - Areas that were able to tell us about discharge plans questioned how good they were - There is some very good practice in Kent
Summary of regional feedback
Stopping people going into hospital if they do not need to More people and families were aware of the risk of admission registers - Some regions gave examples about things that were being put in place to stop people going into hospital - Two regions said family carers were more likely to be involved in a meaningful way with planning what local services and support look like than people with learning disabilities and autism
Summary of regional feedback
Keeping people safe - Most regions werent able to give evidence of people with learning disabilities and families being involved in local Safeguarding Boards as equal partners - Regions have questioned if this is because of concerns about keeping information confidential - There is some work going on in the South East exploring new ways of keeping people safe in their community.
Summary of regional feedback
Changing how care and support happens - Only two regions London and the South East were able to give any feedback in this area - There is some evidence that some families are using personal budgets to manage their relatives support very successfully - These families are well-informed with many skills to manage a team of support staff - There were concerns that this wasnt open to all - Long-term planning for people who have very high support needs is not well-thought out