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THE
HARRISLCOUL
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Vacinação, social violência e
vacinaçãoCriminalidade,
Social Violência e
Criminalidade
Cérebro
por Harris L. Coulter
Stephen Hugh
assassino do pinguim por e Livros Aynesworth.
G. EUA
Michaud Inc.
, Por e permis
- Hugh
Random House, Inc., Permissão para citarasubclasse por Ken Auletta. © 1982 por Ken Auletta
orker). Jack
(originalmente publicado no The New Y Friedman, Kristina Johnson e Dan Knapp/P eekly
essoas W
Vacinação, The M
edical Assault Violência
s ocial, no a
riminalidade: Brain
mericano e C
ISBN ISBN
© 1990 1-55643-084-1 1-55643
03-1 pela Harris L. (Paperback)
-1
Coulter (pano) Todos os direitos reservados
Center for empírica Medicina 4221 45th S treet, N.W. Washington, D.C. 20016
intercultural perspectiva que liga vários sociaiscientíficos, e camposartísticas; para nutrir uma holística visão
Desenvolvimento 1-55643-1
03-1 : bibliográfico
cm.
20 1990 Coulter. s ocial de crianças
L. dc - deficiências- violência , $35,00
Complicações Etiologia. 2.
referências e a criminalidade ISBN p(. o assalto médica na American 1-5
5643-084- 1): e index.
Conduta Distúrbios e sequelas. Eu. Título.
(pbk.):
US $16,95
em crianças
- Etiologia .
90-7991 CIP
Índice
Introdução: “A maioria imunizados Criança na História!”. . .
Capítulo I: Autism
Alienação Ego Fraqueza Medo e Ansiedade “O Frigorífico Mãe” A Teoria Neurológica do Autismo
Craniano Nervo paralisias A Neurológicas Base para a alienação ea Ego Fraqueza Appetite,
digestivo, e Bowel Distúrbios Dores decabeça, Head-Bater Defining Autismo: S
índrome deRett,
Asperger's Syndrome. . . . 31 Compensando a Ego Fraqueza do: Resistindo à Mudança
Compensando a Ego Fraqueza do: Agressão . . . Compensando a Ego Fraqueza do:
uscando Estrutura: M
Hipersexualidade . B úsica cronológicos paralelos Uma intrigante
característica
Capítulo II: Minimal Brain Damage
espiração e Asma Psicológica ou
Definindo a Síndrome craniano nervo Paralisia do R
Neurológica? Intelectual FragilidadeIncapacidade de adquirir Experiência Ego F
raqueza do,
Egocentrismo A lienação deeEmocional Imaturidade Depressão e Suicídio Compensando a Ego
Fraqueza do: Resistindo à Mudança Compensando a Ego Fraqueza do: Hipersexualidade .
Buscando Estrutura: Música MínimoCerebral Dano e Autismo
117 119 124 125 127 130 131 132 133 141 143151
152 155 157 159 160 162
172 179
183 186 194 196 197
Aviolência, retardamentomental, e c raniano nervo paralisias Violência e Minor Neurológicas
Deficiência Personalidade do Sociopath: infantil. o egoísmo . . . A g
angue que nãopodia Pense
ersonalidade do Sociopath: FraquezaEgo, perder o controle. 209 Personalidade do
Hetero P
Sociopath: Depressão e Suicídio. . . . 211 D
efesas e Compensações: Paranóia, Sexuais Defesas e
efesas e Compensações: Álcool e
Compensações: Infantil Abuso . . . . D rogas . Álcool e
D de
drogas a o minimamente cérebro danificado O irresistível impulso: o caso de
buso por autistas e
Ted Bundy Háuma cura?
Capítulo VI: O Hubris Médico e suas Consequências
Apêndice: As Entrevistas
Bibliografia
Índice
200 202 204 207
212 214 216
”O XX século é a idade de vacinação. Edward JenneremA 1798 de descoberta de que a varíola
bovina inoculação de previne a infecção tardia com varíola foi o início de uma nova ciência.
Agora chamado de “imunologia”, foi adornada por tais históricos nomes como Louis Pasteur,
Robert Koch, Emil von Behring, Jonas Salk, Albert Sabin, e muitos outros menos proeminente.
Depois de varíola bovina veio vacinas contra a raiva (1885), febre tifóide (1911),
tuberculose (1921), a difteria (1925), tétano (1925), yel- baixa febre (1937), influenza (1943),
poliomielite (1954 e 1956), e outros.
A maioria tem sido benéfico, especialmente aqueles contra as grandes epidemias que já
poliomielite. oXIX, século nenhum Europeia ou americano poderia visitar osafricanos ou
N
asiáticos continentessem arriscar um poten- cialmente doençafatal. britânicos, franceses e
portugueses Diplomatas e coloniais administradores morreram em grande número.
Ainda hoje, turismo ou de negócios na maior parte doTerceiro Mundo seria impossível
semvacinas.
Estes triunfos da imunologia são incontestáveis, e nenhum criti- CISM é feito deles nas a
páginasseguir. Atuberculose, por exemplo, mesmo no início do séculoXX, levado milhares a
cadaano; hoje mortes por esta doença têm sido drasticamente reduzido, graças, em parte, à
vacina.
Segundo a Mundial de OrganizaçãoSaúde, a varíola de erradicação da campanha tem
completamente livraro mundo desta vez- epidemiatemida.
No entanto, como tantas vezes acontece nos humanos assuntos, o sucesso levou ao
excesso. Depois de domar estes flagelosancestrais, os médicos procuraram
ix
“A maioria i munizados C aH
riança n istória!
"Novos desafios e, no devido tempo, dirigiu sua aatenção para as comuns doenças da
infância.
O primeiro tal vacina foi para convulsa a tosse ( coqueluche) em 1925. Uma vacina para o
sarampo seguido em 1960, por alemão sarampo ( rubéola) em 1 966, e para a em
caxumba,1967 a vacina contra a galinhavaríola está em preparação hoje-..
édicos, noentanto, deu insuficiente pensamento para a diferença entre o
pesquisadores e m
totalmente crescido adultoe o recém-nascido Mesmo no primeirocaso, a injeção de
tóxicas proteínas carrega. uma medida de risco. injecção do mesmo material empequenos
bebês é muito mais perigoso oimunológico adulto sistema foi temperado e pode suportar o
estresse da vacinação os dois-..mês-velho bebê é inconcebivelmente mais vulneráveis
Mas isso é quando a imunização começa. nos Estados Unidos.*
as conseqüências são descritas nas páginasseguintes. vacinação os programas de
começou em s ério durante e depois da Guerra SegundaMundial. em 1960s persuasão
became obrigação como o aioria dos e
s tiros foram tornados obrigatórios na m stados.
Hoje quase todas as americanas criançasé vacinado contra a tosseconvulsa,
arampocaxumba, e tétano. (EuropaOcidental, ao
sarampoalemão, poliomielite, difteria, s
contrário, requer apenas tétano e de pólio vacinasorais.)
A lista está aberta-terminou, noentanto, como empreendedores os fabricantes preparar mais
e mais substâncias para injecção nos braços e coxas de nossos filhos, como se cada
imaginável doença poderia ser repelido por oportuna administração da apropriadamente
doença proteínapreparado.
As campanhas são difíceis de resistir. As vacinas têm p écadas estiveram na
or d
vanguarda do progressomédico. Que mãe irá não proteger seu bebê de uma bacteriana
ou ameaçaviral? O trabalho dos pais pode pagar o inconveniente de ficar em casa por
dias ou semanas com a
*A regra de que a vacinação deve começar em dois meses- mais cedo nos Estados Unidos
do que e m qualquer o utro país- é p
rojetado principalmente para o con- venience de
pediatras (ver Coulter, H. e Fisher, B., 32).
“
a história! "Xi
A mais i munizada criança d
convalescente aluno?
Não há noites ao do ladoberço. Não perdidas Dias na escola! A conveniência se estende
também para o médico ou pediatra. Não há mais visitasdomiciliares. Nenhum
telefonema à meia-noite, com um distraído ou indignado pai com a outra extremidade a
linhaem vezdisso, um agradável constante f luxo de crianças e mães que vêm para o
escritório para! “bem-de visitasbebê” e os obrigatória “tiros”
e, é claro, um muito-reduzido perigo de crianças morrer ou de sofrer cerebrais danos a
partir do encefalite que às vezes ocorre em mais graves casos de papeirasarampo, ou
convulsa a tosse.
nos ú ltimos anos, uma comum propaganda para vacinas em americanas médicas revistas
já contou com um rosado-cheeked jovem exaltado como “a mais criançaimunizados na
história!”
Ele anuncia que quase todos os criança bom nos Estados Unidos terão sido imunizadas
u oito doenças por anosidade de dois
contra sete o
o fabricante patrocinando essa publicidade é orgulhoso de sua vac-. cines, s eeing eles
como inquestionáveis sucessos d a moderna medicina.
organizações que promovem os para o público e para os legislativosestaduais, ea maioria dos
pais dos finais consumidores d esses produtos.
O consenso é que as infantis vacinações conferem grande benefíciosaúde àa ummínimo
custo.
Rara é a discordante voz neste quase-unânime coro de auto-congratulação.
Naverdade, os benefícios da vacinação infantil são aparentemente tão auto-evidente que
quase ninguém dá pensado para um p ossível ladonegativo.
Ninguém sugeriu, por exemplo, que a ameaça d e encefalite é dificilmente mitigado por uma
vacina que provoca encefalite.
Pouco ou nada foi publicado sobre adversas reações. Mas tais reações são, de fato,
generalizadas.
da DPT (difteria
-coqueluche-tétano) tiro que quase todos os americano bebés recebe a partir de
dois meses. Foi estimado que 1000 bebês, no mínimo, morrem com esta vacina a cada
ano,enquanto 12,000 estão permanentemente danificadas.
Os nossos números nunca foram desafiados pelo estab médica- belecimento, embora
esses números eram muito mais pessimista do que avaliaçõesanteriores.
E o Congresso concordou com nossas conclusões. Em Dezembro de 1986, a comissão
aprovou a Nacional de Infância vacinação Compensação Lei autorização do pagamento de
danos às crianças lesadas por uma imunização.
vacinas Danos causados por são agora um legítimo tópico de público debate. adversas
ramas e na imprensa. A crescente
As reacções foram discutidas na rádio e t elevisão pro- g
consciência do risco de vacinação tem f eito os pais m ais dispostos a processar de os
produtoresvacinas.
Um fabricante, LederleLaboratories, informou médicos em 1987 que “uma
partesignificativa” do preço das vacinas estava sendo reservados para pagar futuras
indenizações.
Uma nacionais paisde organização foi formada: i nsatisfeitos Os pais Together ( DPT),
com sede em Washington, D.C. Mães que devem tomar d ecisões sobreseus filhosde a saúde
estão se esforçando para tornar-semais beminformados. Mais e mais pessoas estão se
recusando a enviar os seus filhos para os tiros, mesmo quando eles são um pré-requisito para a
entrada naescola.
profissionais médicas Organizações não responderam a estes desenvolvimentos. Em vez de
reconhecer que as vacinas são perigosas e tomar as necessárias medidas para reduzir o risco, a
American Medical A ssociation e da American Academy of Pediatrics ter visto o ajuste para
manter osilêncio, esperando que o t umulto vai morrer para baixo e que a vacinação como de
costume pode continuar.
Não houve nenhuma oficial reação às muito graves acusações cometidos em DPT: A
Shot in t he D
ark.
Quando acusado de participar de uma “conspiração de silêncio,” um
* New York: Harcourt Brace Jovanovich, 1985. Revista, 1991, Avery Publishing Group, Inc., Garden
City Park, Nova Iorque.
“
istória! ”XIII
ah
A mais i munizada criança d
médico proeminente da Divisão de Imunização dos Centros de Doenças Controle de é
respondeu:“Não viável para responder a todos os documentos que lida com vacinas. . -
como se o nosso 439- livropágina, que contém mais de 100 entrevistas com famílias de
vacina-dam- crianças emidade, tinha o estatuto de um artigo no National E
nquirer.
Mas avestruz-como recusa de examinar os dados é não uma apro- c omeu resposta.
Oficiais dos Centros de Controle deDoenças, o Público de ServiçoSaúde, a Food and Drug
Administration, e os Institutos Nacionais de Saúde são eles próprios servidorespúblicos,
que trabalham para os contribuintes que pagam seussalários.Quando uma responsável
crítica da vac- cination aparece, eles são obrigados a dar-lhe uma audiênciahonesta.
DPT: Um t iro no e scuro descreveu os efeitos da vacinação em bebês e crianças
stes chil- dren na adolescência e idadeadulta.
pequenas. No presente trabalho, siga e
Mostramos que longo-longo prazo efeitos ada vacinação são muito mais comuns do que
nunca foi suspeito. Estas deficiências têm sido atribuídos a outras causas, ea conexão com
a vacinação tem sido sistematicamente ignorado.
AAmericana Psiquiátrica Associação publica um guia para mentais doenças neste país, o
Diagnóstico e Estatístico Man- ual, q ue dedica setenta páginas p ara “Transtornos
Geralmente Primeira evidente na infância, ou a dolescência.”*
Esses distúrbios têm recebido a de denominação“deficiênciasdesenvolvimento.
”Provavelmente, o líder é‘dislexia’, também c hamado c erebral de“lesãomínima. destaque
”Outro é“autismo. ”Mas há muitos outros:‘hiperatividade’,‘transtorno apego reativo d e da
infância’,‘transtorno de o positivo’,‘transtorno i dentidade’,‘enuresefuncional’, e assim por
diante.
Provavelmente, vinte por cento das americanas crianças jovem em cinco- sofre
- um de
uma “” desenvolvimento deficiência de.”Este é um stupefy-
e algum estrangeiro
figuraing. S
inimigo tivesse infligido tal dano em nossa
*Terceira Edição, Revisada, 1987. A segunda em edição,1968, lidou com esses transtornos em
áginasz. A primeiraedição, de1952, não mencioná-los em tudo. “Transtornos Geralmente
apenas V/ p
Primeira evidente na infância, ou adolescência” s
e multiplicam de formaclara.
“A riança da história!
ais imunizada c
m
”Countryxiv, de gostaríamosdeclarar guerra. Mas, como as seguintes páginas demónio- strate,
ersistir nela até hoje.
que infligimos-lo em nósmesmos. E nós p
As seguintes páginas mostram que “desenvolvimento deficiências de” são quase
sempre geradas por encefalite. E a principal causa de encefalite nos Estados Unidos e
outrosindustrializados paísesé o vacinação programa deinfantil.*
Para ser mais específico, uma grande proporção dos milhões de U.S. chil- dren e
adultos que sofrem de autismo, convulsões, retardomental, hiperatividade, dislexiae outros brotos e
ramos da hidra- liderada entidade chamado de de “deficiênciasdesenvolvimento”, devem suas
uma ou outra d
distúrbios a as vacinas c ontra doenças dainfância.
O modo-chamado de “personalidadesociopata”, que está na raiz do enorme aumento
da criminalidade das últimas duas décadas, é
também largamente enraizado em danosvacina.
Assim, o vacinação programa de tem servido para minar o americano escola sistema- -
que está em colapso através da incapacidade de
lidar com o um-quinto ou um-quarto dos
estudantes que nunca será capaz tanto para ler ou para executar cálculos aritméticossimples.
E isso tem contribuído para a onda de violentos crimes que está transformando nossas
a vicioso presa sobre os fracos e desprotegidos.
cidades em selvas onde os fortes e
Os efeitos da vacinação alteraram o próprio tom e atmosfera da moderna sociedade.
Porque as mudanças são tão insidiosas e difundidas, e porque nos falta perspectiva, elas foram
amplamente negligenciadas. é Não fácil discernir os contornos do pesadelo que o vacinação
programa de foi solto em cima de nós.
Todos os dias este programa continua, centenas de normais saudáveis bebês são
transformadas em produtosdefeituosos: retardomental, cegos, surdos, autístico, epiléptico, de
aprendizagem-deficientes, emocionalmente instáveis, futuros delinquentesjuvenis, e de
criminososcarreira.
Isto pode parecer um e xagero, mas é uma sóbrio conclusãocom base nas provas
recolhidas n áginasseguir.
as a p
*Encefalite pode surgir em outras maneiras: a partir de trauma nacabeça, de um grave bum ou
de uma doençainfecciosa, mas essas são relativamente ocorrênciasraras.
“A ais imunizada c
m riança d a história! "Xv
Quem duvida que tanto mal podia fluir a partir da p ipodérmica agulha tem
onta de uma h
apenas para ler sobre.
Uma palavra sobre o método depesquisa.
Nós têm atraído principalmente na especializada literatura sobre oautismo, de deficiência
encefalitedesenvolvimento, e vacinação. Quando leia com cuidadosuficiente, estes livros e
artigos provar unex pectedly revelador-.
Fizemos pesado uso de citaçãodireta, em parte por seu interesse intrínseco e em parte
porque as seguintes páginas são não só uma análise dosdevacinação programas
infantil,mas também uma história de médicas visões e opiniões. médicos mudar as suas
mentes, perplexidadeexpressa, se contradizem, por vezes, falar bobagem. estes humanos
aspectos de o médico's persona s ão trazidos p ara fora mais graficamente através de
cotaçãodirecta.
opiosamente nestas páginas é desenhada a partir de
outro corpo de informação citou c
três conjuntos de entrevistas com p ais de neurologicamente criançasdanificados.* Uma
série de 100 casos é composta de pais entramos em contato com ao escrever DPT: A
ark.Seus filhos tinham reagido violentamente para o tiroDPT, e os pais
Shot in theD
culparam suas m ais deficiências, tarde, e egunda e terceira s éries, cerca de
stavacina.A s
sessenta casos no t otal, consistem em famílias entrevistadas p or m
im p ara averiguar se a
neurologicamente danificados criança foi vítima de v acinação. Os três s éries são, portanto
complementar, iluminando a ntre a vacinação e neurológicas a partir d
relação e as duas
extremidades da de cadeiacausalidade. Os pais da primeira série sabia que seu filho
tinha reagido violentamente à vacinação e suspeita ele que seja a causa da
deficiênciasubseqüente. Os pais da segunda e terceira séries examinou a possibilidade de
que seu filho's de outra forma inexplicável neurológico dano foi realmente devido a uma
criança- a vacinaçãocapô.
Aqui também fazem pesado uso de citaçãodireta. Quando os pais discutem seus filhos,
sua linguagem é vívida; eles escolhem a exata palavra para descrever alguma
peculiaridade particular de personalidade ou comportamento;
*Veja o Apêndice.
sua maneira de expressar se pode dificilmente ser melhorado, e direta citação apenas faz
justiça à profundidade e intensidade de seus sentimentos.
As três séries são não para ser considerado amostras“científicos”. As entrevistas com os
pais servem apenas p rgumento retiradas da especializada literatura sobre
ara ilustrar o a
I
autismo
s filhosautistas.
As primeiras vítimas do médica assalto sobre oamericanos cérebro eram o
Em um agora-lendária 1943 artigodo mundo's melhor-infantil psiquiatraconhecido, Leo
Kanner, descreveu onze casos de uma nova mental doença em jovens pessoas que ele
chamou de “inato distur autista- bances de contatoafetivo.
“A condição é diferente”, escreveuele, “marcadamente e exclusivamente de qualquer coisa
relatados até agora.
...”Logo veio a ser conhecido infantil como‘autismo precoce’ou
simplesmente“autismo. ”2
inguém na época, ou por muitas décadas depois, observou que os primeiros casos de
N
autismo surgiu nos Estados Unidos no em momentoque a vacinação contra a tosse
convulsa foi se tornando cada vez mais popular e difundido.
”1
Alienação A marcante característica da autista criança era auto-absorvida
alienígena- ção (‘autismo’é a partir do automóvelg ue significa“eu"). Kanner
rego, q
observou que “ a dascrianças incapacidade de relacionar-se na ordinária forma a que as
esde o começo da vida ...
olidãoextremo. D
pessoas começam um e situações autista s
De . . . havia ”3“não sentiu necessidade de comunicação.
mão” aos seus pais quando pegou e não moldar-se para
Essas crianças não “estender a
caber nos dabraçosmãe.
I
autismo 2Eles tocaram por si sem exigir atenção: “ele caminha como
se ele está em uma
sombra, vive em um ser alcançado/'5 Eram‘’mundo próprio e“destacado inacessível.
”Onde ele não pode Eles nãopodiam, ou não, sorrir; recusaramse -a ser tocados, mesmo
ram " nervosamente hostis" com estranhos.
por seus pais, e e
auma síndrome de
Eles sofriam de “embotamentoemocional”, afetiva “isola- ção,» 9
inadequaçãoafetiva. ”6
Lembro-me d ele especialmente sentado d m círculo d
entro de u e brinquedos, como se b
loquear para
sentimento. de empatia A med britânicos- c om o iCal grupo buscando definir autismo
onde, não gostando do cheiro do mercado, ele desapareceu e andava pelas dez milhas de volta
para o motel sem informar seus pais, deixando-os a procurar desesperadamente por ele o
diatodo. “Ele não sob- se que sua afamília pode estar preocupado com seu desaparecimento e
pessoa,portanto, tinha não dito qualquer que ele estava saindo. De todos os seus problemas,
esta falta de simpatia, ilustrado nesta vinheta, pareciaa sersua grande- deficiênciaEST. Ele
simplesmente podia não apreciar como outras pessoas se sentiam, e portanto, podia n ão
responder adequadamente. Naverdade, falta uma empática sensibilidade aos sentimentos dos
ict como eles se comportam e assim parecia sempre
outros, ele poderia não mesmo pré- d
surpreso e intrigado com suasações. Isso tornou a vida dentro de sua família difícil e a vida
fora da família impossível.
”O maior defeito que afetou Jerry durante toda a sua vida (e é um proeminente sintoma em todos
os indivíduosautistas) é um glar- ing falta de empática relação ... Este fundamentais interper- bond
sonal parece ter sempre sido falta, e, assim, o mundo dos humanos, em contraste com a dos
objetosinanimados, sempre pareceu intrigante e assustador. Mesmo como um adulto Jerry aparece,
às vezes, para entender intelectualmente c omo outra pessoa pode sentir, m as ele n ão parece ser
capaz d e automaticamente d etectar em si mesmo um outro's e stadointerior. Ele continuaser aum
isolado, mechan- estariCal, incapazes d e intuir as sociais n uances de comportamento é
e,portanto,forçado a recuar de um mundo que é persistentemente surpris- ing e com falta de
regularidade.9
“Eu realmente não sabia que havia pessoas até 1 tinha sete anos. eu Então de repente percebi
que havia pessoas. Mas não como você f az. Eu ainda tenho que lembrar me q á pessoas.
ue h
”Esta necessidade de lembrar a si mesmo era evidente em suasrelações. Ele iria passarpor uma
pessoa como se ele não existisse, ou desaparecer off enquanto fala comalguém como se a
outra pessoa tivesse simplesmente m
orrido. 11
maneiras. Um deles é incapacidade a de h an- dle c rítica o u mesmo uma palavraafiada.
e discipliná-lo muito
não têm d
logio.
Eles
Ele responde b
em a
oe scola. Todos e
na e les t êm d
e é
fazer elogiá-lo bastante. Ele e uito s atisfeito c onsigo mesmo q
stá m uando e lgo c erto, mas
le faz a
uito s
m
ele é le. Nós nunca
ensível à scríticas e iria chorar i mediatamente s e você disse algo a e
ualquer outra f orma .
tivemos que discipliná- l o de q . . Se outro menino o derrubasse, ele ficaria
simplesmente l á e choraria.
I was living in a world of daydreaming and fear revolving about myself. I had no care about
human feelings or other people. I was afraid of everything! I was terrified to go in the water
swimming, and of loud noises; in the dark I had severe repetitive nightmares and occasionally
hearing electronic noises with nightmares. I would wake up so terrified and disoriented I wasn't
ay out of the room f or a few minutes. It felt like I was being dragged to Hell. I was
able to find my w
afraid of simple t hings such as going into the s hower, getting my nails clipped, soap in my eyes,
rides in the carnival . . . I was horrified the first time I saw my own blood . I also was very
— cut
hard to assureor convince and always
needed reassurance and still do today. I don't or didn't
trust any- body but myself — that still is a problem today. And I was and
still am very
insecure ... and was very nervous about every- thing, and feared people and social activity
greatly.20
Jerry Goldsmith exhibited “ profound feelings of inadequacy” and pervasive anxiety when
interviewed at age twenty-two:
His childhood experiences could b e summarized as consisting of two p redominant experiential
states: confusion and terror. The recurrent theme that ran through all of Jerry's recollections was
that of living in a frightening world presenting painful stimuli that could not be mastered ...
everything was unpredictable and strange ... Dogs were remembered as eerie and terrifying. As a
child, he believed that they were somehow humanoid (since they moved of their own volition,
etc.) , yet t hey were not really human, a puzzle that mystified him . . . He was also frightened of
other children, fearing that they might hurt him in some way. He could never predict or
understand their behavior. Elementary school was remembered as a horrifying experience. The
class- r oom was total confusion, and he always felt he would “go to pieces.” 21
Leonard, a moderately severe autistic occupied in a menial and highly structured job,
responded t o his father's request that he move up a little in life:
“ I can imagine myself doing it, my mind wanders in the air, and I can imagine doing it —
ar. But it will
riving a c
getting a job, d
be quite some time. You know, last year I had dreams of
going to another city, but nothing like that is possible for me.” When
“
efrigerator M
The R other” 1
asked why he couldn't do what he wished, he would answer:
“I simply couldn't drive. Even the littlest things make me too anxious, too panicked.
Unmistakably, unquestionably, if I t ried to drive, I would just certainly fall apart.* »22
“The Refrigerator Mother” Frustrated by their inability to h elp, or even
luded
to explain autism (no cure has ever been found), psychiatrists and psychoanalysts con- c
that the parents, especially the mother, were to blame for the child's alienation, self-absorption,
ego weakness, and anxiety. Kanner's discovery marked the start of an orgy of speculation which
has not quite run its course even today.
Kanner himself was at first influenced by prevailing theories of psychoanalysis and took
the lead, writing in 1944 that the parents of autistics are rarely “ warmhearted.”
For the most part the parents, grandparents and collaterals are per- sons strongly preoccupied
ry, or artistic nature and are limited in genuine interest in
with abstractions of a scientific, l iter- a
people. Even
ome of the happiest marriages are rather c old and formal affairs. The question
s
arises whether or to what extent this fact has contributed to the condition of the c hildren. 23
As they come up the stairs, the child trails forlornly behind the mother, who does not bother to
look back. The mother accepts the invitation to sit down in the waiting room, while the child sits,
ater, in the
stands, or wanders about at a distance. Neither makes a move toward the other. L
office, when the mother is asked under some pretext to take the child in her lap, she usually does
so in a dutiful, stilted manner, holding the child upright and using her arms solely for the
mechanical purpose of maintaining him in his position. I saw only one mother of an autistic child
who proceeded t o embrace him warmly and bring her face close to his.24
Kanner's views may have been influenced by the public he was dealing with. His early
patients were from the upper and upper-middle classes of Baltimore, Maryland, who are
restrained in their display of emotion. T
o a compassionate East European Jew their reticence
8 Autism
cannot tions tional might led refrigeration have but to be seemed his a highly “ refrigerator
which inordinate pathogenic the mother” children inhibition. element theory experience In
in any of the case, autism— patients from these such the early observa- parents emo
'
“
-
he admitted that the whole theory of t he “ refrigerator” In the or “ psychotoxic” mother had
been a meantime, however, others had taken blunder.'it 1
up. This was the era of Freud's
dominance of the treatment of mental illness. To
psychoanalysts mesmerized by the dynamics of ego, superego, and id, autism presented
a rich field for speculation.
They usually selected o ne aspect of the autistic child's behavior and on it erected an
The fact t hat parents can be sick emotionally without being aware of it and can have their
pathological symptoms brought to light in the setting of parenthood with such tragic
effects on the child is shocking and challenging . . . the negative mother does not truly want
her child. She has little capacity t o devote herself t o him, and this fact comes t o light very
clearly in the way she handles the infant. Her mothering i s a duty and often produces a
negative response i n the baby, who i s made uneasy by her ministrations . . . It seems t o me
that the mother of the child who develops autistic behavior i s an e xtreme case of this
negative woman, and unfortu- nately t he infant i s the first t o sense her unconscious
hostility.32
A1 949 article about autistic children o pined that the ego, which s erves to defend the
individual against external stimuli, must itself be developed in an orderly fashion. This is the
erected. and
she possibly fails she But overstimulates
— to this all too-delayed give “
-
premature the
child
ego organization” stimuli” and formation of then a mature provides breaks e
go down —
meanwhile having inhibited the
only organization. a “ weak protective barrier against “
Parents and others con- cerned with the welfare of these children would have to protect
these children thoroughly from intensive stimulation until such timeas the child'sego might
ver this function without strain.
be able t o take o
»»33 This
analysis may well have been based on the psychoanalyst's c orrect observation that
autistic children are often hypersensitive to sensory impressions. surge ment Another in
threatening the first group five the of ego years researchers structure. of life results held
erived) develop-
“In a that desperate in a defective libidinal attempt ego (id-d
to main- tain a hold on reality the child relates to its less threatening aspects: objects and
parts, rather than to its more dangerous aspects: persons and wholes. Then the mental
function of symbolization fails to develop.” 34
Autistic children do indeed relate to bits and pieces of their environment and have difficulty
with symbolization, but why “libid- inal” ? In any case, this daring conjecture was criticized
on the
10 Autism
Ego safety is achieved by an active and automatic pattern of self- inhibition and withdrawal which
raises an autistic barrier between himself and others, designed to conceal his vulnerability and
resulting in t he characteristic psychological isolation. By with- drawing from emotional contact with
others, the patient n go safety but also succeeds in frustrating the attempts of
ot only achieves e
others to relate themselves to him and so retaliates in a measure by sabotaging the effectiveness
of the “ influencing” pressures which he resents. His ego safety and his retaliation — both
Why, i n any case, was the American mom so inattentive or uninterested in her
son?What induced her to block his ego develop- ment in this systematic way? J. Louise
Despert, professor of clinical psychiatry at Cornell University Medical College, presented
a case in which the mother supposedly rejected her son through identifying him with an
incident of attempted rape by her cousin when she was four years old. Thus the boy
was
owerfully tabooed and childbirth in a sense illegitimate
involved in a conflict which made sex p
(recall the involved fantasy
“ The Refrigerator M other” 11
bidden ... Although no deep analysis of this mother's sexual conflict was made, the nature of the
conflict, even in its more superficial aspects, is so significant that conclusions regarding its bearing
on the rejection of motherhood are inescapable.37
Of all the fault-finders and critics of the American mother the most pertinacious by far was
Bruno Bettelheim, who had spent sev- eral years in an Austrian concentration camp (which he
called the “turning point” in his life) and later interpreted the parent-autistic- child relationship in
terms of camp-guards and inmates. His book, The E ortress, which appeared in 1967,
mpty F
remained influential for a decade or more and delayed a correct understanding of autism for the
same length of time. Assuming a p riori that the parents were guilty, he laid down the rule in his
Orthogenic School at the Univer- sity of Chicago that “the patient is always right.” By extension
arent was always wrong. Even the staff of the Orthogenic School was wrong in any conflict
the p
with an autistic child — - who was seen as willing himself to be sick in revenge for lack of
Thus, if the child was beating on a chair with a stick, the interpretation
attention from his parents.38
was: “ He's symbolically punishing his mother for rejecting him.”
But, as one s uch mother pointed out with a t least equal p
lausi- bility, “Billy could just as
im away f rom his beloved mother for this silly therapy hour.” 39
well be punishing y ou f or taking h
Other parents have described similar experiences:
If assistance was offered, it was on the basis of a correction of causative and contributing factors
in the parents first; then and if this were accepted, treatment of the child followed. The parents went
his attitude among professionals has
from being hostages of the child to hostages of the system. T
ately, we
nfortu- n
not died out completely [1978] in dealing with the families of autistic children. U
see it resurfacing in small communities where the only psychiatrist in town is “ king,” his word is
They never were interested in
law, and you had better hope he is not an admirer of Bettelheim.40
really seeing the child, but they had my husband and I come in forever — really doing the trick
on us.
12 Autism
We both thought we loved each other after that things have never been the fifteen years ago ...
But I never Nobody ever loved anything or anybody same — accepted before like even
we I
though it was
Bettelheim. love went this there, kid. No. but
slightest
doing it every day.41
I'm
the inexplicable Psychiatrists unwillingness and psychoanalysts of mothers criticized to be
treated in the gravest for their terms sup- posed sexual frustrations and blockages so as to
that they felt responsible for their child's illness, that sons they
the child, had they scrutinized
there
sexual per
their the handling kind and of of -
drome i t appeared
adjustment they themselves had made.42 — Bettelheim s and Its by
'
Autism
— the Syn-
ehavior.
demolished of B even Rimland before
went through the arguments for the psychoanalytic theory of causa- tion and picked them
apart one by one. There was no evidence that even severe maternal rejection of a child,
or maternal deprivation, could cause a syndrome as severe as autism. Children can
The Refrigerator Mother" 13
“
They protested in vain that their attitude resulted f rom their child's illness rather than causing
it. As one mother said, “ It is very hard to keep trying to make a relationship with a child
who doesn't know you exist.
They could never make clear to psychiatrists that aloofness, and even occasional
” 44
hostility, toward an autistic child were the nat- ural outcome of having to spend twenty-four
hours a day, 365 days a year, w
ith an individual who was totally unresponsive, probably
mentally defective, possibly incontinent, often hyperactive, and even violently aggressive.
When asked how these supposedly inadequate p arents could raise other children
successfully, psychiatrists pointed out, “A mother, biogenetically identical for all her children,
may n everthe- less psychogenetically differ widely from one child to another.
” 45 In normal language: she treats different children differently, causing some The to b e
major normal argument and others advanced t o be by autistic. Bettelheim [ !!]
ort their “emotional” thesis (and still advanced today!) was that
and others to sup- p
psychotherapy helps in the treatment of autism. If psychotherapy could cure, they claimed,
the cause must be psychological or “ emo- tional.” But Kanner disputed this, stating that the
children who receive the most intensive psychiatric care show poorer records of recovery
than those provided little or no professional treatment, while those who have recovered
sufficiently to go to school “are children who have not had anything that is regarded as good
psycho- therapy or as psychotherapy at all.
he millions of hours of psychiatric and psychoanalytic
This remains true today. T
” 46
roduced little
counseling of autistics and their parents during the past several decades have p
or no benefit. A small proportion of autistics s
eem to improve marginally with age, but this
* Autistics can
is due to the self-healing capacity of the developing nervous system.47
sometimes be trained but cannot be cured.
The “ refrigerator mother” or “ psychogenetic” theory of autism, and the turmoil it
engendered, these “decades of psychotoxic
*See discussion of demyelination and autism in Chapter IV.
14 Autism
theorizing,” have been described as “a black mark in the history of medicine.” 48
It led to
immeasurable “shame, guilt, inconvenience, financial expense, and m arital discord,” as
Rimland put it. Indeed, it has been estimated that more than half of families with autistic
children end in the divorce courts. Rimland, who himself has an autistic son, wrote:
The damage and torment this practice has w rought upon p arents whose lives and hopes have already
been shattered by their child's illness is not easy t o imagine nor p leasant to contemplate. T
o add a
hame finances, and guilt well-being, to the distress and of people
hopes, heavy social burden life, of s
whose feelings of worth have been all but destroyed seems heartless and inconsiderate in the
extreme. Yet i t is done . . ,49
This was in 1964. Things have gotten a little better t oday, but n
ot much, and attempts to
trivialize autism crop up at regular i nter- vals. Nikolaas Tinbergen, professor of animal
behavior a t Oxford, received the 1973 Nobel Prize in Physiology and Medicine, and used
the platform provided b y his Prize L ecture t o revive this largely discredited hypothesis. He
propounded, or repropounded, the thesis that autism is essentially an “ emotional
disturbance,” an “ a nxiety neurosis which prevents or r etards normal affiliation a nd
subsequent socialization.” It is due n ot to “genetic abnormalities or t o gross b rain damage,
but to early environmental influences. The majority of a ell as t heir parents,
utistics, as w
seem t o be genuine v ictims of e nvironmental stress.” Therapy thus must “aim a t anxiety and
at a restarting of proper socialization.” tioned favorably a therapist in Australia who “
en- o f
considers the Tinbergen reduction the restora- m
tion of initially defective affiliation with the mother as the first goal of the treatment of autism
... She does this by provoking in the mother an increase in maternal, protective behavior. .
. .
A 1980 textbook on “ emotional disorders in children and ado- lescents” reads: “The initial
treatment plan for this [autistic] child focussed on both child and parents. The child was
assigned t o a warm mothering child-care worker on a 1:1 basis, and parents were worked
with as a couple at first t o support them and further delineate t heir problems [emphasis
added], following which they sought indi- vidual treatment.” 51
” 50
utism 15
fA
A Neurologic Theory o
Robert C ancro in 1981 levelled a critique at the whole decades- long endeavor to
treat serious mental illness psychiatrically; his words apply a f ortiori to Bettelheim's
management of autism:
As so often happens following a “ hard sell,” the initially con- vinced customer is left with a
significant level of disappointment, if not rage. Thus it was with psychiatry, which could not deliver
the cornucopia of benefits that were promised and in fact found great difficulty in even reducing the
anguish o f the chronically psychotic. After riding off madly in all directions, psychiatry did
ortal injury t o its credibility.53
grievous if not m
surprise,” that the children suffered disproportionately disorders — “ Our review in of
addition the (twenty-one literature to their dealing cases) autistic with from symptoms. autism
epilepsy gave a nd They no o ther indication o bserved, seizure
of such an association ... Other authors have not commented t o our knowledge o n an
association between a history of seizures and the autistic syndrome.
”61 Some twenty to thirty percent of autistics a re now known t o have a seizure disorder:
convulsions, fits, clonic s
pasms, infantile spasms, hypsarrhythmia, temporal lobe epilepsy,
psychomotor epilepsy, “strange quivering tensing of all muscles in a kind o f pass- ing
paroxysm,” grand mal, petit mal, “ absence seizures” or “ staring spells,” a nd combinations
of all of these.62
Sometimes these develop only in a dolescence. Seizures, furthermore, are almost universal
in autistics with an
eurologic T
AN utism 1
heory of A 7
IQ lower than 50, while rare in those of normal intelligence. In other words, autism, mental
retardation, and seizure disorders tend to cluster in the same child.53
Autistics have problems with muscular control: motor disorders, paralyses, cerebral palsies,
paraplegia ( paralysis of the lower limbs), h emiplegia (paralysis of o ne side o f the body),
hemiparesis (slight paralysis of o ne side of the face o r body), hypotonia (muscular
s muscular d ystrophy, spasticity, etc.
weakness), Duchenne'
Peggy Napear's Brain C hild: A
Mother's D iary i s an account of a cerebral palsy child with
autistic features. 54
18 Autism
These children have difficulty crawling when small. Some never crawl but only start to walk,
usually later than normal. Many walk on their toes for years
— indicating a general tension of
the
muscular system.
The sensation of pain may be s everely d
iminished, and even t he sense o f touch may be
absent. “ Objects placed in the hand m ay be a llowed to fall away as if they m ade no tactile
representation. Painful stimuli are often ignored; the children may not notice painful bumps,
bruises, cuts, or injections.” 69
The child plays outdoors in the winter without mittens or jacket, is
impervious to hot or cold water in his bath, or, alternately, is very sensitive to heat and insists only
on lukewarm baths.
The prevalence of left-handedness and ambidexterity in the autistic population (common
also in the epileptic and the mentally retarded) has long excited comment.70
Autistics are prone to a number of sleep disturbances and do not observe the normal
day-night rhythm. Even in the first year the child “ turns night into day and day into night.” But
sometimes the child sleeps normally for the first year or eighteen months and devel- ops irregular
sleeping habits later.71
Sleeping difficulties continue into adolescence, often accom- panied by night terrors:
It is not uncommon to hear that parents spell each other during the night when their autistic
child screams unceasingly for several hours. Often it is the mother who stays up or stays in
because Daddy has to go to work in the morning.” 72
the basement with the child “
These children may grind their teeth while asleep, and some- times during the day as
well.75
to account for that hallmark of autism child's alienation from his surroundings. It was
— the “ ”
now seen to reflect impairment of the cranial nerves, which run from the eyes, ears, nose, vocal
cords, mouth, and muscles of the face, over t he skull to the “ brainstem,” at the back of the neck,
between the spinal cord and the brain.
alsies 1
erve P
Cranial N 9
These nerves convey information to the brain and help effect control by the brain over the
respective sensory organs and muscles.
In the autistic child the sensory organ itself is sometimes defec- tive, but more often there
is impairment (palsy) of one or more of the cranial nerves. The sensory organ itself functions
but for some reason c annot transmit information to the brain.
When this happens, the individual is to that extent isolated from his surroundings.
To survive and prosper we must absorb and process informa- tion from the environment.
Data are perceived through the sensory organs and processed in the brain. Making sense of
information in this way enables us to function in life, and when we cannot gather this information,
we are ipso facto d iminished as human beings.
Autistic children suffer from a large r ange of cranial nerve disorders.
Take, for instance, the vision. There may be pathology of the eyeball itself, or of the muscles
which regulate its movements. Blindness is not uncommon. The eyes may be crossed
(strabismus). The normal visual reflexes may be diminished (known as decrease or absence of
postrotatory nystagmus), or the cornea may be deformed (keratoconus). Kanner reported a case
of “ conjugate deviation of the eyes to the right.” 74
There may be problems with spatial perception.
These c hildren tend to look to the s ide of t he object regarded, or beyond it, and refuse t o make eye
contact; o n the other h
and, they sometimes stare so intently as to raise a question of a bsence
seizures. They may be unable to control the movement of their eyes — the “ lazy eye
syndrome.”
Others have better than perfect sight. Harvey Jackson, Jr., had the “ vision o
f a hawk.”
Often the eyeball is intact, but information is not processed from t he eyes to the brain, as
in autistics who are dyslexic.
omprehension.75
A related disorder is hyperlexia: the child reads fluently but without any c
'
He reads anything you p im . H
ut in f ront of h e doesn t u
nderstand it but he reads it .
20 Autism
The same variety of disorders is found with the hearing, ranging from total deafness to
various degrees of impairment.
edia and other ear infections; these are likely to be
Autistics suffer frequently from otitis m
more serious in the more seriously a
utistic child, less pronounced in the mildly autistic.76
Otitis, of course, may be partially responsible for the hearing loss.It may be difficult,
however, to determine if the hearing defect is in the eardrum or somewhere in the brain. As
already noted with the eyes, the eardrum itself may be normal and function normally part of
the time, but then “ switch off'; for instance, the child has normal hearing when tested through
the audiometer b ut cannot com- prehend words.
In 1951 Isaac Karlin called attention t o a phenomenon which he called “congenital word
deafness,” describing, for example, a boy with an apparent ninety-eight percent hearing loss
who could still distinguish the sounds identifying certain preferred toys; he had learned to
speak in simple sentences, even though this should have been impossible with a
ninety-eight percent hearing loss.
Other children are seemingly deaf to some sounds, such as the mother's voice or a door
slamming right behind them, but can hear others, such as a cellophane candy-bar wrapper
being removed, a vending machine delivering chewing gum, or a favorite TV commercial.
77
Giovanni sing after entire hearing sym- phonies by Mozart and Haydn, songs by Schubert
Or she will shout for help in an emergency but otherwise remain mute: “ When one patient
was receiving an injection, she clearly said that she wanted to go home, virtually her first
sentence.
” 8 !
22 Autism
Or he will have severe speech difficulties: “ Paul, ten, seems to be trying hard to speak,
without success so far except for a few unin- telligible sounds and a clear 'Mommie'
recorded recently on tape. The moderately autistic child may have a t errible stutter.
On the other hand, he may b
e capable o
f speech and chatter nonstop, b
ut without making
any sense (hyperlalia), or may l imit tions himself will be (delayed rote to parrotlike
post-encephalitic Existing
to be definitions a one-sided syndrome are
exacerbation
discussed artificially
below restrictive
. of a larger in Chapter Once
condition — autism
III — this latter syndrome becomes t he principal object of investigation. Aphasia
,
dysphasia, autism itself, and many other syndromes and conditions will take their places as
parts of the post-encephalitic syndrome.
'
> 82
3
erve Palsies 2
Cranial N
The salivary glands are regulated by derivatives of the cranial nerves and are thus affected
by the same palsies. The tendency of autistics to salivate, drool, and spit indicates damage
to these nerves.
Another set of cranial nerves governs the facial muscles. When these nerves are impaired,
the face takes on an unnaturally rigid look (known as “ rigid facies” or “ Moebius Syndrome”
).
These failures of sensory communication may be compensated by apparent
over-development of the senses of taste and smell. Autistic children often smell, lick, and
mouth objects and people — to extract at least some meaning from their environment. They
extraordinarily sensitive to smells and extremely fussy about their food."
can be
6
One theory holds that taste and smell are preserved unimpaired in autistics because these
cranial nerves, unlike the others, are not myelinated. If, as we suspect, autism is related to
demyelination of the cranial nerves, those which are not myelinated in the first place might
be relatively immune.
Another important cranial nerve is the vagus or pneumogastric, providing the regular neural
impulse to the lungs that stimulates the breathing process. Future autistics have sometimes
been noted to suffer from “ asthma” in infancy, but this relationship has been insufficiently
stressed.
Many kinds of breathing difficulties are common in autism. Called “ stereotyped respiratory
maneuvers” or “compulsive respirat- ory stereotypies,” these include breath-holding attacks,
hyperventi- lation, deep inspiration followed by a grunting exhalation, “ Valsalva Maneuver”
(trying t o exhale while keeping the mouth and nose closed), exhalation without inhalin g
(causing a fainting fit); and the like. Often these are confused with seizures and may, in fact,
have a seizure c omponent." 7
Harvey Jackson, Jr., is a classic case. According to his father's diary, at age three months
his breathing stopped altogether -six hours after hissecond DPTshot.The father
— thirty
describes thisoccurrence:
I'm hot r ecord n
looking at t he s ow, a
nd it s tates t hat on January 13 , 1
972 , Harvey w iven a
as g
DPT s hot . I then l ooked at m iary,
yd
utism
24 A
“
since this i s a
ne vent you can never f orget . Saturday morning, J 5 , 1972, 1
anuary 1 wrote: A
nd frightening day. Harvey had been wheezing loudly since the m
difficult a orning , a nd by
octor —
then saw a d t he b octor for t he r egular pediatrician— who said to t ake h
ackup d im
hildren' s H
to C ospital . H as admitted a t 5: 1
ew 5 P. M
. , and w
e anxiously a fh
waited news o im.
By the next d as much better, a
e w
ay h as b
nd his color w as b
ack t o pink . He w orn i n
October, so h
ew
as three m
onths a ld.”
nd a f ew days o
Harvey, Sr., believes that Harvey, Jr., narrowly escaped “ sudden infant death.” The boy
grew up t o be moderately autistic.
Thus autism and SIDS appear to be generated in the same way — by an encephalitis
most c ommonly caused by vaccination. Breathing difficulties of various kinds ensue, and during
one such “ breath-holding attack” the infant simply expires. The child who would have grown up
autistic dies instead of “sudden infant death s yndrome” (SIDS).
A Neurologic Basis for Alienation a
nd Ego Weakness The emerging
neurologic theory of autism was reinforced by Stella Chess's 1971 observation that children with
uently displayed classic autistic features. These c hildren suffered, in
“congenital rubella” fre- q
particular, from “ multiple sensory disabilities,” and it gradually became clear that the autistic's
—
characteristic alienation, withdraw- al, and ego weakness — initially seen as causal
— that would
instruments — roper running order
the five senses in p
enable him to extract
meaning from the external world. Unable to extract meaning, he is lost in the swirl of events. M.
Rutter and L. Bartak suggested very accurately i n 1971, ”... a central deficit in processing of
symbolic or sequence information is likely to prove the basic defect . . . in infantile autism.” H !I
Once we have received information through the senses, we extract meaning and organize
it in the form of concepts or i deas.
asis for A
A Neurologic B lienation and Ego W 5
eakness 2
These are stored in the memory and recalled when necessary. In this way sense-perception
and memory help us acquire experience.
This the autistic cannot do. He cannot receive sensory informa- tion in an orderly fashion.
He cannot distinguish impulses, sensa- tions, and other mental contents which originate
He cannot generate order out of himself
inside from those which originate outside the self.89
and impose it on his surroundings. One investigator wrote: “Severely autistic children exhibit
a preoccupation with the sensory impressions stemming from the world about them, but
seem unable t o organize perceptions into f unctional patterns.
Weakness of memory adds t o their problems. Rimland has written:
” 90
The child with e arly infantile a rossly i mpaired in af unction b
utism is g asic to a ognition: the
ll c
ability t o r elate new stimuli to remem- bered e xperience. The vital connections between
sensation and memory can be made only with difficulty. New sensation can be related only
to sharply limited fragments of m irtually divested of the means for
emory. The child i s thus v
deriving m eaning from his experience .
yi Observers have been fooled by the startling capacities man - ifested by these “sharply
limited fragments of memory” (already noted in connection with the musical abilities of
autistics). One mother interviewed claimed that her autistic son could remember events
occurring when he was six months old!!
But these mnemonic talents, however striking, are nonetheless fragmentary. In the broader
sense the autistic has a weak memory. He cannot recall, compare, and process a broad
range of informa- tion. Sensory experience reaches the child's mind as if phrased in a
of
located
of in the animals. language During frontal
development of the Researchers sense
in the frontal
whose and evolution process temporal perception words and of the have
and temporal 92
maturing and organization lobes.human into
found s yntax
lobes
—
the brain involves
autism world he of acquired will
the of to moving never brain,
abstraction — be
which
associated a capacity
master.
beyond
is not
specifi-
Hence the autistic cannot create and manipulate the symbols which normal people use to
represent and act upon external reality.
26 Autism
Neurologic testing of autistics has disclosed evidence of dam- age to the brainstem and
ame
Edwards these was due tests in to 1982 defective with agreed the myeli- s
that autistic children have a “ generalized lower brainstem dysfunction”:
Brain development involves differentiation of systems or parts of systems that mature at very
different rates. . . In the human it would appear that the period between approximately ten
and t wenty months of age is a particularly critical period in develop- ment, where the neural
organization responsible for internal cog- nitive operations is reaching a functional state.95
This neurological research demonstrates that the “developmen- tal delay” or “ maturational
delay” associated with autism reflects an actual biological delay in maturation of the brain and
nervous system. Other phenomena such as “failure to develop abstract reasoning and
concepts,” “ absent or limited symbolic capacities,” or “ relative in- ability to process
symbolic information,” are the consequences.96
Hence autistics do poorly on IQ tests “demanding symbolic or abstract thought and
sequential logic.
In spite of his i nterest in reading, [Ronald] could neither formu- late his t houghts in
language nor p xtended oral report of h
rovide an e is daily activities; nor c
ould he write in
anything more than a low manner . . . In a
laborious s characteristic incident o f that period
[age fifteen], Ronald b ecame panicked in a theater when he realized that he could not follow
the lines b eing spoken by the a ctors . On another occasion, he recognized how he became
blank and incomprehending when asked t he directions i n a city that he could easily
navigate using guide books.98
” 9 }
” 97
*The myelination of the brain and nervous system during the first year or two of life, and the
impact of v accination on this process, are dis- cussed below in Chapter IV.
AN asis for Alienation and E
eurologic B go Weakness 2 7
By the same token the autistic has trouble with comparisons. A s Kanner noted, “Though he
could speak of things as big or pretty, he was utterly incapable of making comparisons
('Which is the bigger line? Prettier face?' etc.).
102 nifying indicating Unwillingness ego abstract weakness — assent, to use also
the is
word
reflects
“ yes”
— inability nalyzed to
a
a concept the autistic
abstract. above as “
Yes,” sig-
may take years to acquire. Normally he indicates “ yes” by repeating the question. One child
learned to say “ yes” when his father rewarded him by putting him on his shoulders.
Thereafter the word meant only the desire to be put on his father's shoulders, and it took
months before he could detach it f rom this specific situation. This b ances of combination
timuli, and concep-
perception, of inability and lack of to ability cope with to abstract new s
distur-
ith others and even with themselves, making them
tualize s everely r estricts their r elations w
aware that they are both different from o thers and less worthy.
They live in the world w ithout acquiring experience o orld; their awareness of being
f the w
cut off in this way, of being alien- ated f rom the world, deprives them of self-confidence and
ego s trength.
103
28 Autism
At the age of thirteen years he believed that other children in his class were talking about
him and trying to influence his thoughts. He was agitated and belligerent with those he
believed were per- secuting him.
106
Jerry Goldsmith exhibited some incipient paranoid distortions; for example, if he found any
of his possessions missing he would automatically assume that one of the other children
had stolen them.
107
weakness
— are all rooted
as shown well that the typical ego-weakness, as the “ mental”
Appetite, Digestive, and Bowel Disturbances With the progress of research in
autism, other constellations of symptoms became associated with this condition. While
usually labelled “emotional” at t heir first appearance, these symptoms are recognized
today a s neurologic.
Autistics have many abdominal pains and appetite disturbances a ften described
nd are o
as “feeding problems first bottle, eleven changing c ases formulas, had serious and the
,
difficulties like.Take with John nursing, F., for instance:
taking the
ain thing that w
The m orries me is the difficulty
The father said: ' in feeding . That is the
essential thing, and secondly his slowness in development. During the first days of life he
ot take the breast satisfactorily. After fifteen days he was changed from breast to
did n
bottle but did n ot take the bottle satisfactorily. There is a long story of trying to get food
down. We have tried everything u nder the sun . . . There were frequent hospitalizations
because of his feeding problem.
One three-year old would eat nothing but baby foods; another, at the age of one year, “
began third “first suspected a problem t o at age starve five himself'; months because the
f a
mother of chok- o
ing and gagging with feeding.
»
IOH Six of Kanner's » ioy
»110
bedtime At seven ... y ears the of pediatrician age the patient diagnosed mesis.” At the age of nine
years . . began
to vomit “ psychosomatic . his pediatrician each
reported night
hypere- “de- at
teriorating behavior” and reappearance of regurgitation. By ten years of age the parents sought
psychiatric help. Episodic vomit- ing reappeared, behavior deteriorated, and he was mumbling to
himself incoherently/"
This behavior is sometimes labelled anorexia nervosa (literally: “ nervous loss of appetite”
):
In school S. refused to take certain previously eaten foods, saying she attempt they could tasted —
a similar pattern occurred at home.
to no eat longer with prompting eat them because but would she
... She would
often did not gag like and the spit way
arge quantities of milk or water were used to help her wash down small amounts of food. S.
up. L
stated that she could not eat because food would make her sick. During the third week of May, S. and
became refused physically t o eat them. ill Subsequently, and vomited a
t on the three sight
consecutive of some morn- foods
ings time she S/s vomited symptoms breakfast were strongly on the bus indicative en route of to
y this
anorexia school. nervosa. B
,
She had a eating ... noticeable and vomiting. weight 1 2
what dog can they turds, have eat — dirt, tendencies meaning
and the
not
to like.
only
bulimia,
113
food
“ Rumination,” meaning the regurgitation, sucking, and reswal- lowing of partially digested
food, is associated with autism and
30 Autism
severe developmental disorders and falls into the same category of gastrointestinal disorders."5
Soviet researchers have found a t endency to obesity in autistic c hildren, a nd Gillberg
found that one-third of a group of autistics grew “coarser and plumper” with age."6 Although no
systematic data exist on the weights of autistics in the United States, their numerous
disturbances of appetite function suggest the possibility of long-term anorexia or excessive
weight gain.
The food, once eaten, is digested with difficulty. Autistics suffer frequently from colic and
other gastrointestinal pains. The baby may cry with p ain or arch his back. S
tudies o f autistic
children often find a past history of gastrointestinal s ymptoms, “ abdominal p ain,” “ re- current
gastrointestinal upsets,” etc.
This may be associated with chronic constipation or acute diarrhea; the bowel movements of the
autistic baby may have a sour, acid, or musty smell. Autistics suffer with abnormal frequency
from celiac disease. And their non-autistic siblings seem also to have an unusual incidence of
abdominal pains and gastrointestinal disorders."7 They have difficulty with bowel and bladder
nd even during the day. Or they may have had bowel
control (enuresis and encopresis) at night a
control early in i nfancy, only to lose it at about eighteen months.
Difficulties with elimination foster an inordinate interest in urine and feces and a tendency
to smear t hem around:
wetting, jumps up and down in ecstasy, says, “ Look at the big puddle he made
!”"8
coping at his ) — with hair all head o f or which ears, pain.
are arch common his back, in or autistics extend and his
In 1982 Norman Geschwind a nd Peter Behan published their finding stuttering,
post-encephalitic handedness — of migraine an i .e. , association syndrome. all
features which we here
headaches, among Their developmental autism, article caused
discuss as part of the
celiac disabilities, disease, a sensation dyslexia, and in left- s ci-
entific circles because of inability to imagine what the connecting thread among these
disparate conditions could be.122
We feel that Geschwind and Behan's findings were a prelimi- nary outline of the
correlations presented in this book. And the con- necting thread is found in the childhood
vaccination program.
s Syndrome
Defining Autism: Rett Syndrome, Asperger' The discovery that
autism is accompanied by neurologic s ymptoms never be unexpectedly included i n complex.
Kanner's In first 1971, definition checking showed up on the the condition eleven chil- t o
dren from his first group, Kanner found outcomes ranging “ all the way from complete
deterioration to a combination adequacy with limited though superficially ment” and
ny illness may
f social occupational adjust- a
commented, “ In medicine . . . smooth o
appear in different degrees of severity, all the way from the so-called forme fruste t o the most
fulminant manifestation. Does this possibly a pply also t o early infantile autism?” 121
*
*Forme fruste: t he patient manifests few or no symptoms.
32 Autism
A decade l ater Rimland gave a striking demonstration of t he complexity of autism: he
compared the original diagnoses of 445 autistic children with a “ second opinion” and found
no trace of a positive correlation between them!! The relationship between the two diagnoses
was practically random.124
Rimland's finding h as been confirmed repeatedly. Almost as many c riteria are i n use today
for diagnosing autism as there are writers on the subject.125
Autism cannot easily be distinguished from such “ overlapping” neurologic conditions as
Hetzler and Griffin wrote in 1981: “The
mental retardation, c erebral palsy, and epilepsy.126
extremely heterogeneous autistic population may represent a variety of central nervous
manifestations. system »dysfunctions 127
Deborah Fejn resulting in the in same overlapping year: “There overt behavioral i s consid-
ecessary and
erable disagreement about which symptoms should be considered as n
sufficient for the diagnosis of autism . . . There is also considerable uncertainty about the
degree of symptom over- lap between autism and other severe developmental disabilities,
and probably for this reason,the reliability of diagnoses within the gen- eral category of
bility' is poor.
sychosis' or 'severe developmental dis- a
'childhood p
”128
The arbitrariness of the diagnostic process was encapsulated by W
. and M. DeMyer, who
ach inves- t igator looks through his own peephole, finds an
wrote in 1984, “ It seems that e
abnormality, and thus confirms his preconceptions.
While this confusion and disagreement about the diagnosis of autism has sometimes
” 129
been blamed on “ the inexperience or lack of scholarly rigor of diagnosticians,” it would be
more reasonable t o admit that autism does not exist as an independent entity.
It is only a piece of the p ost-encephalitic syndrome. That the diagnosis should be
continually contaminated by other bits and pieces of this syndrome is hardly unexpected.
Why, then, do specialists insist that autism is unique and unre- lated to other neurologic
diseases and disorders? The answer was given by a speaker at the 1980 Conference of the
National Society for Autistic Children:
'
Defining Autism: Rett S yndrome , A sperger s Syndrome 33
Autism is not a specific disorder. I t hink that m akes a lot of us uncomfortable because it's the banner
under which we rally, it's what brings us all together, it's what we all s ommon, and around
hare in c
it's rather is threatening less than real. f or We s omeone need to to think say that about what what we
that are rallying means. I t's n
ot that anyone is saying that the disorder does not exist. That we have
disturbed children is rather apparent. But the trap we can fall into is thinking about autism as if going to
ere . a disease which is . These are the myths that we get caught
lend itself to a singular remedy it . w
up in . . . We are really talking about a spectrum.
1.10
Insistence on the autonomous status of autism reflects to some d egree chologists, the
organizational psychoanalysts, o r psychiatrists, class interest and of other the physicians,
sy-
medical profes- p
sionals who make a living diagnosing, treating, and writing about autism, and f or whom its
existence is a vital necessity. “Chinese and The ensuing definitional Restaurant menu” three
from Group B, etc.” approach- — f uzziness A checklist is two overcome compiled
“
No single symptom is indispensable. Michael Rutter and Eric Schopler only cally truly
and
Such indication
a of
feature autistic
of has some
cases yet specifi
- “c ould to be identified
.
Only when autism is recognized as merely one particular config- uration of the hundreds
” 132
of symptoms included in the p ncephali- tic syndrome will physicians be able to discard
ost-e
these fruitless efforts
34 Autism
to pin it down more precisely.
For, just as autism cannot readily be d
emarcated from other neurologic states, so it often
cannot be distinguished from psycho- logical ( emotional!) normality. Kanner's As e arly
original as 1964 “essential Rimland diagnostic claimed criteria that some ... c hildren extreme
meeting alone- ness and a desire for the preservation of sameness,” were quite nor- mal in
other respects and in no way autistic.133
In 1981 the DeMyers noted: “A c ontinuum exists among the behaviors of typical autistic
children, other retarded children with- out overtly or numerous autistic traits, and even
normal children.
Such diagnoses as “ autistic-l ike,” “ with strong autistic fea- tures,” “ near-normal,” etc.,
” 134
have become increasingly c ommon. In particular, moderate autistics often resemble the
typical child with a s evere case of “ minimal brain damage.”
Researchers sometimes w onder if these “ high-functioning” autistic children are really “
autistic” or rather constitute a d
ifferent defineable disease:
I've seen a number of children who share specific problems and symptoms with [a utistic] chidren, but
they cannot, even w ith a broadened definition, by any s tretch of the imagination be called autistic.
I've seen two children who are t he most rigid children sameness I 've ever s een, a nd their as r igid
violent as any responses autistic to child minor in shifts. t heir insistence But they are on
social ... have good language relationships, and they are not autistic unless you an autistic child....
want to call everyone who has any symptom Now where do these children belong? . . . I have other
children who have stereotypies. They are not autistic, but hand not they by clapping — definition
even igh
very h level
have regular are stereotypic patterns, some rocking and some linically
they c
children. Not by history and
autistic. I don't
know what to call them, frankly, but they are not autistic.115
There “ in medicine is no . . need for soul-searching. To quote Kanner again, . any illness
may appear in different degrees of sev- erity, all the way from the so-called forme fruste t o
the most fulminant manifestation.” This holds true for autism and, as we will see, for the
gradation t o minimal brain damage, conduct disorder, and
Defining Autism: Rett S
yndrome, Asperger' s
Syndrome 3
5
sociopathic behavior. The near-normal are merely milder versions of the classic autistic
syndrome. They are not entirely cut off from others but have intellectual their capacity for
,
human and contact.emotional 1 6
36 Autism
To begin with ... he is unable to learn from others.... The child tion from follows
the teacher. his
own
His methods
intelligence because
may he
enable cannot
him accept
to find instruc
- orig- i nal
of concerns intelligence a that tendency might to fos - be ter rather unusual circumscribed ogy erally
relationships. or appeal astronomy to 139
other or “ children — life” in the interest abstract. patterns, Such topics such do as not geneal- gen-
Van Krevelen called this “ lack of intuition”: “ By intuition 1 mean a higher quality of
intelligence, a short-circuited intelligence, by which one is able to skip associations.” A typical
case was t he boy who, when asked to speak at a football rally, predicted that the team was
going t o lose; the e
nsuing round o f boos l ed him finally to modify his initially c orrect prediction,
but the experience bewildered him.
Marginal autistics may be incredibly boring:
Although some autistic children do not talk at all, mildly autistic children are often handicapped by a
tendency to talk too much on, when to t hem concentrating they that are listeners exceedingly on
what may not they interested share are trying t heir in a enthusiasm. t o topic. s
ay, without It does So
not any they occur reac- t alk
tion tosigns of boredom. Such a monologue is not easily interrupted or the tic changed person
to-and-froof is in a poor its normal course listener, conversation by and the sometimes comments is
t best to t herefore, the be autis- com- pletely unaware of the fact
missing. he of seems others; A
that somebody is trying to talk to him.
140
Parents often report that moments to process any the remark mildly he hears autistic . . child . stand
And have in their case the intelligence i t may be to appreciate more emotionally their plight.
trying, “ Ronald” because states: they “ I never could have a friend. I really don't know what to
do with other people, really.
”143
Autism, however, also incorporates a streak of naked hostility, a r ejection of contact with
others. “Jerry Goldsmith” responded to psychological testing with stories centering on “
aggression toward the father and on characters dying,” while “Tony W.” stated about himself:
! liked hellish environments, such as the s pook-house at the carni- val, Halloween, and horror
aydreamed a lot and tried to actively communicate and get into that w
movies. I d orld. . . . I was
very cold-hearted too. It was i mpossible for me to give or receive love from anybody. I often
repulse it b y turning people o ff . Thai's a problem today, relating to other p eople. I l iked
things over people and didn't care about people at all.
144
The higher-IQ autistic will use verbal aggression, finding out the opponent's weak points and
taunting him.
If autism is a manifestation of vaccine-induced encephalitis, the implications are very
disturbing. The symptoms manifested with pathological intensity in a small group will of
necessity appear in milder form in a much larger proportion of the population. For every “
autistic” who is shut away in an institution there will b e a thousand alienated individuals
functioning as n ormal taxpaying citizens.
The parallel with the alienation and anomie of twentieth-cen- tury industrial society is
striking. How much of this loneliness are we inflicting upon ourselves?
Compensating for Ego Weakness: Resisting Change Because the autistic
suffers from “ inability to learn from and cope with new stimuli,” loss of control is an
ever-present threat.145
But control is threatened by change, so change is what the autistic fears and hates the most.
“Small changes in [ “ Ronald's” ] feeding, either in the schedule or the way in which he was
nursed, led to anxious disorganization. . . . A sa toddler, any c hange in his routine c ould
lead to catastrophe. One time, when drinking from a glass, milk went up his nose.
Following this, he refused to drink from a glass for over two years, using a spoon to eat
liquids.
Kanner noted their “ anxiously obsessive desire for the mainte- nance of sameness”:
When John's parents were ready to move to a new home, thechild was frantic when he saw
the moving man roll up the rug in his room. He was acutely upset until the moment when in
the new home he saw his furniture arranged in t he same manner as before. He looked
pleased, all anxiety was suddenly gone, and he went around affectionately patting each
piece.147
When change does occur, it provokes a storm. “There may be resistance and even
.g. , the child may scream
catastrophic reactions to minor changes in the environment, e
when his or her place at the dinner table is changed.” 148
Nothing can be changed in the
daily routine; unpattemed situations are what the autistic fears the most.
A particular instance of incipient loss of control is the autistic's terror at separation from
family and familiar surroundings. Harvey J ackson, Jr., is typical:
lways h
He a ated a ny d
isruption i n his f amiliar r outine, When h e came h ome from vacation, f or
instance, w hen he was nine months o ld , a
nd he s aw t hat his f ather and sisters were not
there, he put up a tremendous fuss. The f amiliar family was not t here . O nce the rest of t
he
family g ot home that time, he calmed down. B ut u ntil then he screamed loud enough t o
wake up t he w hole neighborhood. Even t oday [ age f ifteen] he is m uch better, b e will
ut h
ody home?" He
ask, “ Is any- b likes t hat reassurance.
Once h is sister m
issed h er bus, a ad t o r ush out a
nd l h nd l eave him. H ew ent to the neighbors
crying a nd screaming a nd c om- 146
»
38
Compensating for Ego W eakness: R esisting C hange 3 9
plained that / had left him. I never c ould leave him at a ll . Now he is a l ittle that way with his
younger b rother. He i s afraid of some- thing happening w ith him.
and twirling ness weeks, Another is a a fascination piece with manifestation of the string, with
Autism 40
Rocking may involve banging the head against the headboard of function vide the
the crib
,
of child's possibly
this and life other
to with relieve
repetitive structure. the
pain movements,
One of Leon Eisenberg's original cases, four years old, “ 're- lated' to the examiners only
off! ' She would tell y ou t hat y ou a re old, because y ou h ave gray hair. And e ven when she is being
affectionate with u s, she h as t rouble s ustaining i t, aggressively exploring m y face, my hair, etc.
Harry, who is twenty-four years old:
. . . had learned to intimidate ished so because
people by staring them down when he doing w
to escape of an his educational size — Harry used physical intimidation activity He had no .
trouble six feet, six inches. Thus . . . as an effective way of maintain- ing h
is noncompliance
autistic Few lacks restraints any empathetic are
im.'58
when demands were placed on h
imposed relation by with morality others or which decency, might for mod- the
erate incipient aggressive tendencies:
” 154
” 157
42 Autism
Most frustrating to the family was B rian's seemingly non-caring attitude toward others. He did not
want to join in f amily activities, he did n
ot respond t o outreaches of his s iblings, and h
e did n
ot
develop a respect for others' property.159
The and ity ity to underlying deal other could
of so adequately
perceived not do which the was unpredictabil- l eft with his
, empathize as him inabil- others con
- fused
and frightened.
Alienation and cold-heartedness can lead to fantasies of vio- lence as well as actual
violence against people and animals. For a six-year old in school:
ith He became
Interactions play about themes with peers of murder were and associated blood. w
bizarre increasingly stories and
ith such At school verbalizations, he knife and was “ found sawing
destructive preoccupied themes. w
on a ment, with delight, was “ You could aggressive acts, and peer's repeatedly kill someone neck
took or with arm.” a this plastic His knife.” com- t oy
On one occasion he tried to choke a child with a rope. He showed decreasing tolerance to stress and
., brother.tantrums.... 161
.g
increasing disruptive behavior, e
He threatened physical harm to his younger
Tony W. wrote a bout himself as a c hild:
I remember the Yale Child Study Center. I ignored the doctors and did my own thing.... I was also
very hateful and sneaky. I struggled and breathed hard because I wanted t o kill the guinea pig; as
soon as the examiner turned h er back, I killed it. I hated my mother because s he tried to stop me
from being in my world and doing what I liked; so I stopped and as soon as she turned destructive.
her back, I went I would at Evil things astonished it again. I was very rebellious and p
lot to kill my
omb. destroy . . sneaky and . t he world. I also had a very warped
mother me such as an H. and b
sense of humor and learned perverted things very quickly. I used to lash out of control and repeat
ell as t elling people v iolent, w
sick, perverted phrases as w
ild, untrue things to impress t hem.162
160
Billy McCoy:
Compensating for Ego Weakness: A
ggression 4
3
e was considered uncontrollable by all
. . . has spent the past fifteen years i n and o ut of institutions. H
of them because of his fits of the men. r age. institutions The Julia family McCoy is has that learned
says he is that stronger to the l ive only with t han thing six his or fits, her seven during son full-grown
learned which in a boy who can hardly articulate t he sounds necessary to pronounce going his own to
name kill you.” screams 163
loud and clear, “ You son of a bitch, I'm
The mother of an autistic youngster describes driving him in the c ar:
Suddenly I felt like somebody dipped ten razor blades in tabasco sauce before throwing them into
my neck and shoulders. Jeff without warning had plowed his claws into m e. . . . He grabbed a handful
of my hair and started slicing away at me with the t en switchblades Larry thought he had just clipped
and filed down. It was hard t o duck, dodge, and capture him a ame time, especially hemmed up
t the s
ar. . . . Jeff is five years old and still in diapers.
in the c
164
The immediate family, of course, bears the greatest burden— especially the mother
who must often stay home with the child. Many live in a state of near exhaustion. One,
who had just under- gone an operation, described having t o carry a pillow a t all
'
times t o protect herself. Another sought refuge f rom her adolescent son s rages by
We kept t he outside
locking herself i n the family c ar. “ ith a t wo-way
doors locked w
lock day and night because he would run away. I would leave the patio door
unlocked for him to play in t he daytime i n our backyard, where we had a five-foot
fence with a padlock on the g as virtually a prisoner in my home, with a
ate. . . . I w
tiger loose a nd no respite, not even for a night o r a weekend o r a week.
year-old One son family in a locked interviewed room f or with t his barred book
” 165
back he went through a series of emotional states — first violently upset, then sobbing, then
dad, then crying again....
I66
screaming and swinging at
The tendency to violence can be combined with sleeping difficulties:
ights were as bad as days. W
When he reached puberty, all hell broke loose. . . . N e slept with our
iolent rages he would have during the night. 167
bedroom door locked because of the v
The violence of autistics is thus a mixture of ungovernable impulses and — depending
upon the level of intelligence — justifica- tions and rationalizations of these impulses in
terms of need to pro- tect
the vulnerable ego and to assert one's own point of v
iew in life.
The uncontrollable impulsive component is seen, above all, in violence directed at the self.
Compensating f or E eakness: A
go W ggression 4
5
art of of his the serious first twenty-four
Harry life in has institutions spent a good because p
self-abusive years behavior. o
f his
As early as age 3Vi he wore arm restraints and a football helmet to prevent him from self-abusing.
Between the ages o i and f ifteen he was in and out of various schools and centers for the
f 5V
retarded. At age 15Vi he was placed in a n institution where he began to receive massive his extreme
outbursts continued (2) thigh-hitting i n the form with his of of (1 self-abuse. dosages fists, ) head- (3) of
and ankle-kicking, drugs However, nose-banging as an Harry's attempt and with (4) self-abuse to his
arm-bit- control
fists,
ing. Harry's repeated blows to his face resulted in a permanent disfigurement of his nose as well as a
number of hematomas to his face and body. His ankle kicks had caused his ankles to begin to calcify.
Finally, biting had resulted in numerous scars and scabs on his arms.
168
e flicks very u
is H sed y ou aggressive to ( e ite his o
ven b ith t he a
nw rm, e
yeball), o ang his
thers. b
Slaps t hrows head them on things things, on at t he you. slap head, ...
himself t he arms, He
He used t o p yh
ull m is own hair out w
air and h ngry. a
hen he was a lso digging a ttacked his nails
nd He a
the t eacher i n.When i n he his w
as new five s chool, h sed grabbing t o g
eu er m
rab h and hand
yh
p to h is mouth a nd bite; or h e would d ig h is nails into m
ut i t u
and p is school. l ips hand;
yh
sometimes.They He o
r attacks h
e would his g
rab b y s wollen hair. a
et s o m
edroom g e that
nd the H
e can' t attack there. chew the H
ould h
furniture w e on girls b ny- in
ites a
ithout them getting caught.
thing w
In very severe cases autistic children have bitten off their own lips and fingers, or chunks
ave suffered detached retinas from repeatedly hitting
from their shoulders; they h
themselves in t he face and eyes. having The a greater level of tendency i ntelligence t o
self-mutilation, plays a role, with w
hile retarded those autistics with a higher One IQ very
might hostile simply and hate violent themselves.
sixteen-year-old, interviewed for this book, started biting himself at age fourteen months:
ore m
It i s m e says, '7 hate the w
ental abuse now. H ow all l ong of will us. I H
ay I am. H ave i s t o
eh
e this way? for a I s i t cure. b
looking b ure forever?
ecause he thinks t he doctor will c e him.
" This H
likes to is very h
ard on go to the doctor
46 Autism
Psychologists and psychiatrists have attributed self-destructive- ness to feelings of sexual
frustration. But how can sexual frustration cause a two-year old to start pulling his hair out,
or hit himself on the head until it is black and blue? While self-hatred undoubtedly plays a
role in some cases, a purely neurologic impulse seems also to be at work. Some hit and
pinch themselves only when they are excited, others when angry. The mother of one
nine-year-old was asked why he did it:
Q . Does h e touch people? A . Y es, h
e will touch y our h r hit you. H
air, o e is quite unpredictable
.Q
hat does he s
. W ay if you t ell him n ot t o h eople?
it p A He w
. ill hit you and then s ay, “ You
"
need to face down, meaning
can' t h
elp himself. Sometimes he d oes it delib-
ants to. T
erately, because he w he self-d ost especially
estructive neurologic impulse is seen m
in a condition peculiar to boys known as the Lesch-Nyhans Syn- d rome (a combination of
mental retardation, with autistic features, inability to speak, and violent aggressiveness
thers within reach). These boys must be kept permanently in
directed at the self and at any o
strait-jackets to prevent them from destroying themselves physi- cally. They are aware o
f
hen their strait-jackets shake loose, they gesture to the
their state and terrified of it, so that w
nurses to come quickly a nd tie t hem in again.
169 Undirected, unfocussed, impulsive violence is, of course, a serious problem o f late
twentieth-century American society. In Chapter alence of V post-encephalitic we discuss
the possibility neurologic that damage. it is related The to very a high common prev-
association of impulsive damage with autism and, as we will see, with minimal brain
damage, makes it very probable that social vio- lence springs in part from the same
causes.
Compensating for Ego Weakness: Hypersexuality An important way to
compensate for one's own perceived inade- quacies is through intensified sexuality, and this
is found quite often
Compensating for Ego W eakness: Hypersexuality 47
in autistics.
In some the sexual function is underdeveloped. Sybil Elgar, a specialist in the care and
training of autistics who heads a residential working community for forty autistic m en and
adjusted usual
” women among in England, autis- autistic people” can
become involved
with others. The majority “ lack any capacity for They affection, “ remain tenderness,
self-absorbed and and solicitous lack care of the capacity a to sexual form p
artner.” relation-
ships because their level of social and emotional development is obstructed by the
characteristics of autism.
The wives of some marginal autistics leading normal sexual lives describe them as “ never
very interested, mechanical, never with feelings.” “ I b
ut performed with have t o tell him what
to do.” “ Sex drive n
ormal
no feelings. He uses me like an object. But many parents describe their autistic children as
exed,” and Soviet researchers have found “ precocious puberty” in autistics.172
“ hyper- s The
sexually aroused autistic, moreover, pursues t his gratification for its own sake and not as
part of a relationship with someone else.
Sexual drives tend to be satisfied through masturbation. One of Kanner's first cases, at age
five, “often masturbated with com- plete abandon.” 173 The same has been reported by others:
“ noisy, incontinent, and destructive, and masturbated excessively during his first weeks on
the pediatric ward, taxing the patience of w ard personnel”; “hypersexuality, expressed in
excessive masturbation and sadomasochistic actions”; “ public masturbation occasionally
noticed at about eight years” (in a girl).174
For a bout t he p
ast year, s
tarting at a ge f our, he has been masturbat- ing . / couldn' t b elieve i t .
Once I f ound him under the c overs, com- p letely n aked, a e had a h
nd h uge e rection. This h as
been a r eal problem for us. W im i t has been a c
ith h onstant thing . Coming h ome from s chool
he would take h is clothes off and g o into the bedroom a nd spend as long t here as l would
let him, and then he w ould c ome o ut naked. It h as d iminished a l ittle since. For a
while it was
onstant .
almost c
” 170
” 171
Seeking Structure: M
usic Mention has already been made of the extraordinary
musical talents of many autistics and their ability to remember and repeat arias, symphonies,
and whole scenes from operas.
According to Rimland, “Astonishing musical ability is found age. in these Kanner children
describes quite frequently.” a one-year-old 173
And [!!] it who is manifested “could hum at and
an early sing many tunes accurately.” Another could discriminate among eighteen
symphonies at age eighteen months; at age four, in kindergarten, “ if there is m
usic, he will
go to the front row and sing.” Another four-year-old “can tell victrola records by their color,
and if one side of the record is identified, he remembers what is on t he other side.
'
176
Total deaths in the United States during the 1980s from “ac- quired immune-deficiency
180
syndrome” (AIDS) have been about 45,000. Thus the living death of autism has affected as
many chil- dren, and their families, as have died from AIDS in thesame period. The first
cases of Rett Syndrome were reported from Austria in 1966.181
The same chronological parallel between autism and childhood vac- cination programs is
found in other countries. In Japan, for example, the first autistic was a boy bom in February
1945.182 One of the first public health m easures introduced by the United States
Occupation was a compulsory pertussis vaccination program, and this c ase seems more
than a coincidence. births — Today In France, is lower the Chile, prevalence than
in the United
Austria, tries the first cases of autism reflecting introduction of the of
autism
States
in Japan comparable.
— but
00 live
4.5/10,0
pertussis started
Holland, appearing vaccine and
the in in
Scandinavian this the
same early
decade.
1950s — coun-
In England the pertussis vaccine was introduced on a broad scale 1957. only P rior in to the
this late time 1950s, it had been after used a series only of sporadically trials from by 1946
physi- t o
cians. When a society of parents of autistic children was established in London in 1962, most
of the children were found to have been bom in the late 1950s, with a few from the early
1950s.
In England the incidence of autism is the same as in Japan, 4.5/10,000 live births. Why
these countries have less autism than the United States has never been explained, but it is
probably because the pertussis vaccine is given l ater in these t wo countries than in Japan);
in the coverage United S tates in England ( at s ix months is optional i n E
ngland and,
depending and at two on years cir- c umstances, ranges from eighty to as low as thirty
percent; British physicians, f inally, take more care to elicit contraindications and are less
eager to vaccinate a child at risk than are physicians in the United States.185
183
184
A Puzzling Feature curious als An such unexplained Of frequency Kanner's as
physicians, feature first in well-educated 100 lawyers, of cases, a
utism 96 professors,
families— on of the its initial fathers and especially apearance accountants.
were high-school profession- was its
graduates, 87 had attended college, 74 had graduated from college, and 38 had done
Of the mothers, 92 were high- school graduates, 49 had graduated from
graduate work.186
college, and eleven had done graduate work. This was an astonishingly high level of
educa- tional attainment, especially for women and especially for the 1930s. Also
unexpected was the finding that 70 of the women had taken jobs, while many had continued
working even after marriage! “ To this day,” Kanner observed in 1954, “ we have not
ne autistic child who came of unintelligent parents.”
encountered any o
In 1964 Rimland concluded that “ t he parents of autistic chil- dren f orm a unique and highly
f intel- lect and personality.
homogeneous group in terms o
of 1970
autistic was
study done children made
proving a had similar
completed that
Ph.D. This contrasted sharply with t he parents of other categories of m entally disturbed
s nineteen percent of the parents w
children, where as few a ere college graduates.
189 skewed A ttempts distribution have of been c
ases made, to genetic but without factors
success, in the middle-class to link this
or upper-class population of parents.
One point insufficiently stressed in the early surveys was the high incidence of parents
working in medicine or connected with it. Kanner's first 100 cases included eleven
physicians (five psychia- trists), three Ph.D.'s in the sciences, one psychologist, and one
dentist; of the mothers one was a physician, three were nurses, two were psychologists,
one a physiotherapist, and one a laboratory technician.
190 But there were other medical connections which did not neces-
51
52 Autism
sarily appear in the statistical breakdown. One mother told Kanner:
doctor, but my family didn't have the stamina. I have
I majored in zoology. . . . I wanted to be a
often regretted for two years, then worked in an endocrinology it. laboratory.I taught school
191
In another case the father was a clothing merchant , the mother had “a successful business
record, a theatrical b ooking office in New York.” But h er uncle, a psychiatrist, came t o the
physician's o ffice instead o
f t he father a nd clearly had m uch influence over t he family's
medical decisions. One New England m other had studied a child t ype psychiatrist,
secretary of psychology person; in w athology sees in t he everything college. mother,
hile a p
a 'hypomanic'
the specimen father “ worked was rather as a
afraid than well; she would throughout not live the through pregnancy the labor.
she was very apprehensive,
Kanner noted: “ Many of the fathers and most of the mothers are perfectionists. . . . The
mothers felt duty-bound to carry out to the letter the rules and regulations which they were
given by their obstetricians and p ediatricians.
But these early data showing a preponderance of educated par- ents have now been
superseded; since the 1970s the skewed distri- bution no longer obtains. In the United
States autism is now evenly distributed, with no social class or ethnic group being particularly
favored.
” 192
” 193
194 Hence the conclusion is now reached that the earlier data were mistaken, “based on
outdated research.... No social or psycholog- ical characteristics of parents or families have
proven to be associated with autism.
orrect? Was t he earlier research done badly, or did the source p
But is this c
” 195 opulation for
autistic children change b etween 1940-1950 and t he 1970s? This latter p ossibility has not
been investigated.
A real shift in the socio-economic distribution pattern of autism can r eadily be explained in
terms of childhood vaccination. When the pertussis vaccine was f irst introduced, being
offered by theocca- sional forward-looking pediatrician to parents anxious to do “every- thing
possible” for their children and avid for the latest wonders off
Chapter / Notes 5
3
the medical assembly-line, who were the first takers? Not the blue- collar workers, who could
ree vaccination at public
not afford these frills and are, in any case, often suspicious of doctors. F
health clinics (where today the vast bulk of lower-class children get their shots) was still for the
Today the more enlightened specialists realize that autism is not a discrete entity of
psychological or “emotional” origin, but a many- faceted neurologic condition with close links to
other recognizably neurologic disabilities such as mental retardation and epilepsy.
Although it occurs frequently enough to be classified as a true epidemic, no theory as to
as yet been accepted.
its cause h
The next chapter brings out the parallels between autism and the much more widespread
condition
— minimal brain damage.
1957, 62. 27. Kanner, Leo, 1944, 217. 28. Kanner, Leo, 1949, 426. 29. Kanner, Leo, 1954,
Akerley, Mary, 1975, 378. 40 Torisky, Constance V., 1978, 235 41. Katz, Donald R.,
. .
1979. 42. Despert, J.Louise, 1951, 344. 43. Rimland, Bernard, 1964, 47. 44. Chess,
Stella, 1971, 44. 45. Despert, J.Louise, 1951, 345. 46. Quoted in B. Rimland, 1964,
17, 49. 47. DeMyer, W . and M., 1984, 151. 48. R
itvo, Edward and Freeman, B. J.,
1984, 299.
Chapter I N otes 5 5
inbergen, N., 1974, 23. 5
49. Rimland, B. 1964, 65. 50. T 1. S l. , 437. 52. Pingree,
holevar, G.P e t a
ewis, Dorothy O., 1981, Forward. 54. Kanner, Leo, 1942/1943, 250. 55.
Carmen B., 1984, 336. 53. L
eMyer, W. and M. , 1984, 147. 58.
American Psychiatric Association, 1980, 88. 56. Ibid., 89. 57. D
Coleman, Mary, 1976, 28. 59. American Psychiatric Association, 1980, 37. 60. Kanner, 1942/1943,
248. 61. Schain, R. and Yannet, H., 1960, 5
63, 564. 62. Wolf, L. and Goldberg, B. , 1986. 63. American
Psychiatric Association, 1980, 89. Bartak, L. and Rutter,
mitz, E.M. and Ritvo, E.R., 1976, 616. 66.
M., 1976, 119. 64. New York: Harper and Row, 1974. 65. O
nd T. Campbell, 1969, 559. 6 8. K
Katz, Donald R., 1979. 67. Goodwin, Mary S. a atz, Donald R., 1979.
69. Omitz, E.M., 1974, 199. 70. T ates, A., 1984.
sai, L., 1982, 1983, 1984. Sarz, Paul etal., 1985. Y
71. Yamazaki, Kosuktetal., 1975, 330. 72. Sullivan, Ruth Christ, 1979, 113. 73. Kanner, Leo,
1942/1943, 237. 74. Ibid., 2
39. 75. Whitehouse, D. etal., 1984. 76. Kanner, Leo, 1942/1943, 237.
Smith, Donald E.P. et al., 1988.
arlin, Isaac W., 1951, 60. 78. R
987. 77. K
l. , 1
Konstantareas, M. Mary et a utter, M. , 1972, 330. 79.
., 1953, 825. 8 0. C
Sherwin, Albert. C oc. c it. 82. Goodwin, Mary S.
ohen, Donald J., 1980, 389. 81. L
and T. Campbell, 1969, 560. 83. Kanner, Leo, and Eisenberg, Leon, 1957, 56. 84. Katz, Donald R.,
1979. 85. Realmuto, George M. and Main, Bart, 1982, 368. Bemporad, Jules
984, 82.
l., 1
R., 1979, 182. 86. Bemporad, Jules R., 1979, 192. Komoto, Junko et a
Coleman, Mary, 1980, 17.
56 Autism
87. Gastaut, H. etal., 1987. 88. Chess, S., 1971, 39, 44. Myklebust, H.R
. et ai , 1
972, 158. 89.
Cohen, Donald J., 1980, 396. 90. Eisenberg, Leon, 1956, 611. 91. Rimland, B., 1964, 79. 92.
978, 18. 93. I bid., 1
Student, M. and Sohmer, H., 1 8. 9 4. R
osenblum, S.M. e tal., 1 980, 222. 95.
Tanguay, P.E. and Edwards, R.M., 1982, 181-182. 96. Freeman, B.J. and Ritvo, E.R., 1984, 287.
Bartak, L. and Rutter,
Connor, ed., 1 99.
975, 1
M., in Neal O' 97. American Psychiatric Association, 1980, 88. 98. Cohen,
984, 130. Van
Donald J., 1980, 387. 99. Kanner, Leo, 1942/1943, 239. 100. Petty, L.K. et al., 1
Bourgondien, Mary E. and
Mesibov, Gary B., 1987. 101. P . etal., 1
etty, L.K 984, 130. 102. K
anner, Leo, 1942/1943, 238.
103. K omoto, Junko et al., 1 984, 82-83. E
anner, Leo, 1944, 215. 104. K isenberg, Leon, 1956, 609.
ohen, Donald J., 1980, 387. 106. Petty, L.K. et al. , 1984, 132. 1 07. Bemporad, Jules R.,
105. C
1979, 186. 108. Sullivan, Ruth Christ, 1975, 177, 181. 109. Kanner, Leo, 1942/1943, 237.
Pasamanick, B. and Knobloch, H.,
50. Betz, Barbara, 1947, 269. Sher-
1963. 110. Markowitz, Philip. I ., 1983, 2
win, Albert C., 1953, 825. 111. Petty, L.K. , 1984, 130. 112. Stiver, Richard and Dobbins, John P,
71
1980, 70- . 113. Goodwin Mary S. and T . Campbell, 1969, 560. Lotter, V., 1966/
illberg, C., 1983a. G
1967, 136. 114. G illberg, C., 1985a. 115. S
auvage, D. e tal. , 1 985, 197. 116.
i , 1987,
Mnukhin, S.S. and Isaev, D.N., 1975, 106. Gillberg, C. eta
282. 117. Sullivan, Ruth Christ, 1975, 180. Goodwin, Mary S. et al. , 1971,
61. Coleman, Mary, 1976. 19, 221. 1 18. Kanner, Leo, 1942/1943, 236. 119. Sullivan, Ruth Christ,
1975, 177, 181. 120. Personal communication from Bernard Rimland, Ph.D. 121. Volkmar, Fred R.
and C ohen, Donald J., 1985, 51.
Chapter I Notes 5 7
122. G eschwind, N. a nd P. B
ehan, 1982. K olata, Gina, 1983, 1 23. Kanner, Leo, 1971,
312. 1
144-145. 124. Cited in T
inbergen, N., 1974, 20. 1
25. Coleman, Mary, 1976, 1. 1
26. S
chopler, Eric
28. F ejn, Deborah et al., 1981,
nd Griffin, Judith, 1981, 317. 1
etal. , 1979, 4. 127. Hetzler, Bruce a
29. D eMyer, W. and M., 1 984, 145. 130. R eichler, Richard, 1980, 95-9 6, 126. 131. A merican
312. 1
Psychiatric Association, 1987, 38. 132. Rutter, M. and Schopler, Eric, 1987, 172. 1
33. Kanner, Leo
and Lesser, L.I., 1958, 711. R ., 1984, 1
imland, B., 1964, 21. 134. DeMyer, W. and M 35.
46. 1
988. 137. Nomura, Y. Segawa, M. and
l., 1
Reichler, Richard, 1980, 96. 136. Ritvo, E. et a
Hasegawa, M., 1984. 138. American Psychiatric Association, 1980, 90; 1987, 39. 139. Van
Krevelen, D.A., 1971, 83-84. S
ee, also, Wing, L., 1981. Wing,
L., 1986. 1 ewey, M. and Everard,M., 1974, 348-349. 141. Loc. cit. 142. C
40. D ohen, Donald J.,
1980, 389. 143. Ibid., 3
88. 144. Volkmar, Fred R. and Cohen, Donald J., 1985, 50. 145. DeMyer,
W. and M., 1984, 142. Bemporad, J., 1
979, 185. 146. Cohen Donald J., 1980, 387. 147. Kanner,
Leo, 1942/1943, 245. Kanner, Leo, 1944, 215-216. 148. American Psychiatric Association, 1980,
87-88. 149. Kanner, Leo and Eisenberg, Leon, 1957, 56. 150. Pingree, Carmen, 1984, 330, 331.
imons, Jeanne M., 1974, 7. 1 53. Sherwin, A lbert C., 1953,
151. Bemporad, J. R., 1979, 190. 152. S
ohen, Donald J., 1980, 388. 1 55. Everard, Margaret P.,
824. Clark, P. and Rutter, M., 1977. 154. C
1976. 156. Eisenberg, Leon, 1956, 609. 157. Bemporad, J.R., 1979, 181, 185. 158. Foxx, Richard,
1980, 51. 159. Pingree, Carmen, 1984, 331. 160. Bemporad, Jules, R., 1979, 1 91. 161. Petty, L.K.
etal., 1984, 132. 162. Volkmar, Fred R. a
nd Cohen, Donald J., 1985, 50.
58 Autism
The children show involuntary and constant overactivity which greatly surpasses the normal. This
otor development is often advanced, and histories
may already be present during early infancy. M
t he crib w
ell
frequently indicate that t he child climbed out of
before a year of age. Parents often
say that he walked early and there was “ no holding him” after that, or that he could not be kept in a
play pen and was into everything, h
aving to be tied to keep him in the y ard. 1
The U.S. Public Health Service in 1963 listed nearly 100 signs and symptoms associated
with hyperactivity and altered the name to “ minimal brain dysfunction.”
However, the expression “ minimal brain damage” is preferable, since the “dysfunction” is
the consequence of actual brain damage.
Within a decade minimal brain damage was presenting a major challenge to the American school
system, and to child psychiatry generally. Paul Wender, a leading authority, wrote in 1971 that the
all . . .
disorder “occurs in conjunction with
— and possibly a s the basis of— virtually
categories of childhood behavior disturbances
... embarrassing but true,” and that it is “ probably
the most com- mon single diagnostic entity seen in Child Guidance Clinics.” 2 The Shaywitzes,
professors of pediatrics at Yale Medical School, wrote in 1984 that minimal brain damage is “
perhaps the
59
0
Minimal 6 Brain Damage
most common, and certainly one of the most time-consuming prob- l ems in current pediatric
practice.
And the Journal of t he American Medical A
ssociation in 1988 called minimal brain damage
“ the single most prevalent disability reported by elementary schools and one of the most
common refer- ral problems to child psychiatry outpatient clinics . . . probably the most
researched problem in child psychiatry.” 4
Boys manifest it five or ten times as frequently a
s girls, and it was once thought to be an
exclusively male disorder.
The American Psychiatric Association estimates that three per- cent ifestation of U.S. of minimal
prepubertal brain children damage suffer (from from thirty one to seventy-five or another man-
per- cent of these are a ne accepts).5
lso hyperactive, depending upon whose opinion o
But the APA's figures are certainly understated. If the figure was only three percent, this
disorder would not be “ the most com- mon single diagnostic entity seen in Child Guidance
Clinics.” Those who have estimated the prevalence level at fifteen to twenty percent of school
children are closer to the mark.6
But even this may be an understatement. Kathleen Long and David McQueen, studying
the Maryland and District of Columbia school systems in 1984 (where thirteen percent of children
are already in “ special education classes” ), concluded that “[minimally brain damaged] children
ation- ally in public school systems.” 7
are significantly underdetected . . . n
inimal brain damage with hyperactivity is steadily rising.
In any case, the prevalence of m
Defining the Syndrome A 1984 U.S government pamphlet described three typical
cases:
My son Johnny is two years old and has totally disrupted our household since he was an
infant. He has few friends because he kicks, pushes, shoves, and screams at other kids. He
opens the refrigerator and tries to sit in it. He climbs onto kitchen counters, turns off the water
heater and u nscrews almost anything, even the s torm door. Nothing s eems to please him. . .
.
Defining t he Syndrome 61
Tommy can't sit still. He is disruptive at school with his constant talking and clowning around.
He leaves the classroom without the teacher's permission. Although he has above-average
intelligence, Tommy has trouble reading and writing. When he talks, the words come out so
fast no one understands him.
Joe won't go t o school . Instead, he explores the house. When he grew tall enough to unlock
creen door, those explorations s
the s hifted to the neighborhood . He w
as the neighborhood
terror. Once we found Joe wandering down the middle of the street! He looks l ike an abused
child. He has a mass of bruises from bump- ing into anything that gets in his way.
8
As with autism, when the attempt was made to define minimal brain damage, it was seen to
ramify and become associated with other disabilities. //y/wactivity although less (sluggishness)
nd requires an
common; the child is found is lethargic i n this population, during the day a
unusual amount of sleep.9
Minimally brain-damaged children usually have a limited atten- t ion span; even when o f
normal or superior IQ, they do poorly in school because of easy distractibility and failure to
inded.
complete work within the allotted time. Such a child may be called “ absent-m
The opposite occurs also: an excessively long attention span: “ If he's interested,” says the
mother, “ he's there until its completely done.” The five-year old can spend four or five hours
on a building- block project; he s
eems unable to withdraw his attention from the task at hand."
While children were f ormerly thought to “ grow out” of mini- mal brain damage, this is now
known to occur only in a few of the milder cases. Hyperactivity in particular often slackens
with age. But other symptoms, especially attention-span difficulties, continue into adult life.
There is no cure.
” 10
Once minimal brain damage had been identified as a syndrome, psychologists and
psychiatrists came forward to explain why chil- dren were acting in these bizarre ways. But
then, just as with autism, investigators found to their surprise that the MBD syndrome
nd “s
a eurologic signs, and other disabilities which did
oft” n
hard” not readily fit into “
behavioral” or “emotional” categories.
anual estimates that five per- c ent of children with minimal
nd Statistical M
The Diagnostic a
brain damage suffer from one or another of these more serious conditions.12
But this statistic is
nderstated, being distorted by t he aversion of mental hospitals and
likely to be severely u
insurance programs t o multiple diagnoses. When a c hild is diagnosed with two or more
disorders as for instance epilepsy and minimal brain damage— the
— such , ,
m ore
serious neurologic
defect will overshadow the less serious. The diagnosis written down on
the chart will be “epilepsy,” and the minimal brain damage aspect of his condition will be
forever lost to medical statistics- gathering. 11
Nonetheless, there is indeed a high association between mini- mal brain damage and these
connection with autism.Mental r etardation, for example: while many children with minimal
brain damage are of average or even above-average intelli- gence, on the whole they have
a lower IQ than normal children.
brain damage is three t o four times
By the same token, minima) more c ommon in the
mentally retarded than in those with a normal IQ.'4MBD children also have a high incidence
of seizure disorders: epilepsy, tics, tremors, choreiform (twisting) movements, facial grimaces,
infantile spasms, and others. And, conversely, children diagnosed as “ epileptic” have a
very high incidence of severe learn- ing disabilities and attention-s pan difficulties.15
If the MBD child does n ot have a seizure disorder per se, he may still show one or more of
the “ hard” or “ soft” signs indicating a “ subclinical” neurologic disorder. Half of these children
manifest such typical “ hard” signs as EEG abnormalities and muscle hyper- tony or
hypotony. Typical “soft” signs are motor impairments, extremely poor handwriting, inability
to balance, poor visual-motor coordination, clumsiness, awkward gait, impaired hopping
ability, and a tendency to walk on t he toes.1 ''
Defining the S yndrome 6 3
“Clumsiness” in its m ost severe form becomes cerebral palsy. In one study a quarter of the
children with cerebral palsy were also hyperactive.17
Children with minimal brain damage are disproportionately l eft-handed or ambidexterous
(described technically as “left and mixed laterality” or “ poorly defined unilateral
dominance”). The child cannot readily distinguish right from left, up from down, beside from
behind, etc. If asked to touch his left ear with his right hand, he becomes baffled.18
The 1982 article by Norman Geschwind and Peter Behan men- tioned earlier showed a
anded- ness and dyslexia.
significant correlation between left-h