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ARTIGO ARTICLE
Anthropological contributions for thinking
and acting in the health area and its ethical dilemas
Abstract This paper attempts to analyze the way Resumo Neste artigo, busco problematizar a for-
in which the issue of ethics in social research is ma como a questão da ética em pesquisa social
dealt by institutional commissions based in bio- vem sendo tratada hoje pelas comissões institu-
medicine criteria. This discussion is particularly cionais inspiradas nas questões da biomedicina.
important for Social Sciences in Health, as our Essa discussão é particularmente importante para
projects must necessarily be presented to Commit- as Ciências Sociais em Saúde pois existe uma
tees for assessment. In actual fact, Resolution Nº obrigatoriedade de apresentação dos nossos pro-
196/1996 issued by the National Health Council jetos para avaliação dos comitês. A rigor, na con-
establishes this mandatory requirement for all so- cepção da Resolução 196/1996 do Conselho Nacio-
cial areas. However, there is a question among nal de Saúde, essa obrigatoriedade cobre todas as
researchers working with social issues, arguing that áreas sociais. No entanto, existe questionamento
the health sector is moving outside its field when dos pesquisadores que lidam com o social, argu-
attempting to regulate actions in other fields of mentando que o setor saúde extrapola quando
investigation. Grounded on philosophical anthro- tenta regular ações de outros campos de investi-
pology, this paper is divided into three parts: (1) gação. Fundamentado na antropologia filosófica,
elements of anthropological foundations of ethics; este texto se divide em três partes: (1) alguns ele-
(2) contributions of Anthropology to thinking mentos sobre fundamentos antropológicos da éti-
about ethics and human rights in health; (3) in- ca; (2) contribuições da Antropologia para pen-
ternal and external questioning about anthropo- sar a ética e a realização dos direitos humanos em
logical practice. I conclude that if the ethical issue saúde; (3) questionamentos internos e externos
that involves human beings cannot be reduced to sobre a prática antropológica. Concluo dizendo
the procedures established by Ethics Committees, que, se a questão ética que envolve seres humanos
discussions in greater depth are required among não pode se reduzir aos procedimentos demanda-
social scientists on the construction of a practice dos por Comissões de Ética, é preciso aprofundar
based on and guided by respect for the intersubjec- a discussão dos cientistas sociais na construção de
tivity of all the players engaged in a research project. uma prática pautada e orientada pelo respeito à
1
Fundação Oswaldo Cruz, Key words Ethics in social research, Ethical intersubjetividade de todos os atores envolvidos
Escola Nacional de Saúde grounds of anthropology, Ethics and health numa pesquisa.
Pública, Claves. Av. Brasil
4036/700, Manguinhos.
Palavras-chave Ética em pesquisa social, Fun-
21040-361 Rio de Janeiro damentos éticos da antropologia, Ética e saúde
RJ. cecília@claves.fiocruz.br
330
Minayo, M. C. S.
When we bring the anthropological method be possible, the field of anthropology would also
to the area of health, we understand that it serves highlight that there is a “reciprocity of perspec-
to understand: (a) cultural values and represen- tive, communication, community, objectives and
tations; opinions and beliefs about health and subjective interpretation”20 - which can always
ailments; both in biomedical and in traditional occur in interlocution. For this reason, intersub-
terms; (b) the relationships between each of the jectivity would be a central category to under-
members of health groups, as well as the pa- stand relationship and for the analyses produced
tients and their family members; the logic of the both in clinical and in preventative and promo-
health institutions and specific social movements; tional processes. According to Schutz20 “here
and (c) evaluation of policies, practices, propos- where I am – there where my peer is: we can nev-
als, systems and attention models, from its for- er be in the same place, in the same position,
mulation, technical application to the relevance never be both here or there”, however, there is a
that the several subjects ascribe to them18. situation of familiarity that is created by means
If we think, for example, of the relationship of institutional and personal mechanisms, under
between a health professional and a patient in the form of “us”, allowing for the understanding
anamnesis, anthropologists would advise the of the other as unique in one’s individuality.
former to believe in the narrative provided by
their interlocutor as one of the possible versions
of their problem: (a) there is logical consistency Movements that hinder intersubjectivity
in the patient’s expressions when they describe in health
what they have experienced seeking to give an
order to the meanings reported; (b) there is mu- Accepting evidences that ailments are not only
tual possibility of considerate interpretation biological entities since they are also linked, to
(from the health professional and from the part different extents, to peoples ways of life, to the
of the patient) in the dialogue construction; and pluralist treatment offers and cure, to the greater
(c) the patient’s report could be based on empir- presence of society in the control it exercises on
ical or imaginary reality that goes beyond them, medical and epidemiological interventions make
in any case being effective to them. As William the health field much more open to receive con-
Thomas’19 , himself an anthropologist, theorem tributions from anthropology. However, it is nec-
goes: “When someone defines their situation as essary to bring light to some external and inter-
real, it is real in its consequences”, thus placing nal movements that once again tend to challenge
evidence on one of the dilemmas of those who this interaction.
work with people – which is the case of health
professionals – i.e., that of overcoming formal The biological reductionism
and functionalist interpretive schemas.
Anthropology would also teach the health The first one comes from the ideology that
professionals that, methodologically speaking, we supports contemporary genetics and that takes
need to, first of all, listen to how our interlocutor scientists to return to the dream nourished by
defines their situation20. Secondly, we need to bacteriologists of the late nineteenth and early
know what their biographical experience is, bear- twentieth centuries21. Nunes, in a classical work,
ing in mind that each person is always biograph- has analyzed how scientific revolution caused by
ically situated in their life world and that it is in the discoveries of bacteriology led medical studies
such context that they think, feel and act. Thirdly, to be guided by a reflection of rejection of the
we need to find out what their stock of knowledge social issue, in favor of a technological empire.
is, i.e., what their sedimentation of experiences Ideology created around these discoveries has be-
and situations lived are – knowing that it is from come reference to Western medicine: (1) an effec-
this knowledge that they interpret the world and tive “combat” (please note the military terminol-
support their actions. Fourthly, it is necessary ogy!) of acute ailments, by means of immuniza-
that we ask ourselves what the interlocutor con- tion and treatment; (2) centralization of actions
siders relevant in their speech, since their rele- pertaining to defined biological ailments; (3) op-
vance structures are related to the knowledge back- timism in relation to the eradication of epidemics;
ground and to their biographical situation20. (4) and the re-organization of medical teaching
Believing that a relationship between differ- with a sole focus on the biological field21.
ent people that respect each other under the con- It is clear that scientific development enabled
ditions of health professional and patient would by bacteriology was and still is important for the
333
ailments as social facts – taking no notice of the context, the problems and the agents that take
biological essence of phenomena – produce the part in the interaction. However, it is the respon-
same reductionist perspective that medicine has sibility of the field of anthropology to call atten-
of social phenomena – only in reverse. tion to the essential characteristic of intersubjec-
In order to interact in partnership, the an- tivity and empathy with the essential values in
thropology of contemporary health needs to feel the health sector.
challenged by the criticism of epidemiologists and
of practicioners25, theoretically admitting (since
in practice, the anthropologists know and feel it) Ethical dilemmas
that human beings are composed of spirit and in anthropological research
body and that social wholeness are based on the
biological reality of bodies. This note might sound Field research, the place where all ethnological ca-
obvious if not for the proliferation of a type of reer begins, is mother and breastfeeding milkmaid
scientific production that naïvely uses phenome- of doubt, a philosophical attitude by excellence.This
nological, symbolic interactionist and construc- anthropological doubt does not consist only of
tivist models, making people’s speeches the truth knowing that one knows nothing, but of resolutely
about their own problems. Scholars that use such exposing what one thought was known and their
approaches superficially or in a reduced manner, very ignorance to the insults and the denials that
analyze representations, relations and the social affect the ideas and the dearest habits to those that
construction of health and ailment situations as if can refute them at the highest level28.
they were whole, leading to query from the med-
ical areas and from epidemiology as to the need, Problems of interaction between
the origin and the scientificity of their findings. researcher and social agents
It is necessary to highlight that in health/ail- in the field research
ment phenomena interpretations, the anthropol-
ogists are seen as the “readers of reality” and that, At this point, I intend to challenge the rela-
within a hegemonic model, the predominance is tionship of anthropologists and researchers (who
of the “biomedical reading”. Legitimacy of an- have worked with qualitative research) with their
thropological findings by biomedicine with all its field interlocutors. Nothing is simple and every-
implications (and vice-versa) occurs as a kind of thing is complex in this relationship. In recent
tacit agreement between the agents involved, the conversation with people from a slum, I heard
institutions, practices, relations and ideas. From the following expression: “researchers are peo-
the anthropological point of view this agreement ple’s ‘chupa-cabra’. They research, take their con-
is expressed in the respect for the important and clusions, publish, improve in their careers and the
irreplaceable role played by scientific medicine in people continue in their poverty conditions”. Chu-
contemporary society. From the biomedical point pa-cabra is a creature believed to inhabit part of
of view, on the other hand, it is expressed by ac- the Americas. It is mostly associated to Puerto
cepting and valuing the idea that the population Rico, Mexico and the even in the Latin American
– regardless of whether one considers only those communities of the United States. Its name liter-
who use the public health and medical system, or ally means ‘goat sucker’ since the creature is said
those who use combined means of treatment, to drink the blood of livestock. Would the aware-
regardless of whether they only use alternative or ness development of rights make it even more
traditional therapeutics – possesses rationality. difficult for the investigator to approach their
In this meeting with alterities (which brings in empirical field?
itself the ethical foundation of relations and of In the researcher – researched social group
action) one can see the understanding of the hu- relationship, the critical observations of Social
manization of technique which, can only make Sciences reach two levels of questions, both brin-
sense in the health area if it is to improve the life ing relevance to the problematic characteristic of
quality of people. Thus, understanding that the interaction. On the one hand, there are several
health area is a pluri-disciplinary field in dispute theories that emphasize the inequality situation
for power and legitimacy26,27, between the medi- in which interviews take place, leading the critics
cal paradigm (hegemonic for all the health sci- to state that the researcher’s work is of domina-
ence professions) and the anthropology, there will tion and of a ‘reproductivist’ nature. On the oth-
always be possible relations: complementary, er hand, in opposition to the first view, there are
conflictuous or of rejection, depending on the scholars that highlight that, from a cultural per-
335
situation. They evidence that social reality is a and the behavior of their interlocutors. The lat-
world of shades and light in which all the actors ter always intends to keep a secret about the “in-
involved reveal and hide their group secrets. In- terior region” (concept used by Berreman) or to
stead of the passivity characteristic that the re- have “control over impressions” (expression used
productivist and positivist theories, from differ- by Goffman) that they provoke. This control is a
ent points of view, allow these agents (under- basic aspect, inherent to interaction. For this rea-
standing, symbolic interactionists and phenom- son, it is important that every social investigator
enologists) these researchers understand them as knows that no group will say the whole truth
part of the active movement during the whole about a social reality. There will always be a “con-
process of contact with the researcher. trol of impressions” and the safeguarding of the
Examples of these kinds of researchers are “interior region”.
Goffman30,31 and Berreman32 who designed rich, Berreman32 insists that both agents in research
and plastic reflection, full of detail on the re- (interviewer/interviewee), in a situation of inter-
searcher/researched exchange. Both used theater action, brief as it may be, act by judging the mo-
images to show that this pair simultaneously tives and attributes that the others bring; defining
constitutes actors and audience in the setting up the situation and the image they wish to project.
of a unique show: their interrelation is mediated Therefore, there is no possibility of clarity or
by specific cultural codes and by the private in- total transparency, as there is no scientific neu-
terests that both try to preserve and project. trality.
On the relationship of the interviewer and
their informants, Goffman31 states that: We of-
ten discover a division between the interior region Dilemmas of the process
– where representation is part of a pre-prepared of participative observation
routine; the external region – where representa-
tion is presented. Access to these regions is con- People that introduce the researcher in the field
troled so as to stop the audience to see the behind are (just as the researcher themselves) responsi-
the scenes and that foreigners have access only to a ble for their images, as well as for all the doors
representation that is set for them. that might be open or be shut. Accumulated ex-
Goffman’s words, which appear in several of perience shows that the profile of interlocutors
his works on total institutions and stigmas, are and the quality of data gathered are related to the
confirmed by Berreman’s32 reflections on the dif- impact of the researcher’s entry and introduc-
ficulties of having access to information in eth- tion24. However, their sensitivity and sympathetic
nographic research in a Himalayan community. ability in the field may decrease the initial im-
Berreman32 socializes his experience describing pacting aspects. In the specific situation of re-
them in images. He calls the “interior region” the search, empathy is at stake, as is the ability to
most intimate part of the experience with the com- observe and the researcher’s acceptance – which
munity. This region can be broader or stricter, he cannot be changed into a practical recipe.
says, but all groups save their secrets, their official A second moment of insertion (here under-
side, and all of them have a daily behavioral strat- stood only for analytical purposes) is that of re-
egy. This internal cohesion occurs because, even if searcher’s role definition18 within the group where
internally a group may experience many differ- they are being integrated. The actual roles that
ences and conflicts, their existence depends on a the researcher will play will vary according to the
certain degree of consensus, familiarity and soli- situation of research. Actually, in terms of groups
darity which implies in sharing meaning, secrets, elected, the researcher is less observed for the log-
forbidden zones and also sharing what can and ical basis of their studies, and much more for
what cannot be said. In the same perspective as their personality and behavior. Those who in-
Berreman32, Goffman’s29 statement is clarifying troduce them in the field and their interlocutors
when he says that there are few activities or daily want to know if they are “good people”, if they
relations in which agents are not involved in the will not “harm the group”, if they will not betray
hidden practices incompatible with the impres- “their secrets” and their strategies for solving life
sions that they seek to cause. problems.
Because of this contingency of the interior There are multiple situations of research.
region – from both parts –, there will always be a However, as a rule of thumb, the researcher’s im-
game, in any situation of field work, between the age is constructed only in partial collaboration
researcher – who is getting in touch and the speech with them, since the image that they project rever-
337
not allow us to take a leading position in terms of tists action within their research field, as well as
ethical issues that are asked us and that go against outside the field.
issues of intersubjectivity and interests. · Finally, I have no doubt that, in the specific
· I have tried to fundament this paper on case of the evaluation of our researches, it is nec-
philosophical bases that seem to support the two essary to provide criteria to those who will be judg-
paradigms from which different views on ethics ing them. But I take a stronger stand stating that
in research derive: the pragmatic and principalist we should produce a kind of rationale, followed
and the personalist and communicative. The eth- by guiding elements for evaluators, submitting
ics of science and technology in which one will this proposal (which could be standardized) to
find ethics in research cannot be mediated by public debate. Otherwise, we will continue to have
current standardized procedures. that same that is happening, leading to a kind of
· I have read many works that currently exist complacent cynicism from the behalf of qualita-
on the controversies of the Ethical Commissions tive researchers that, having to submit to current
set up to respond to biomedical research chal- Ethical Commissions, break the philosophical and
lenges as to anthropological and qualitative in- practical principles of a great deal of the research
vestigations. From all these works, it is possible to in their areas. For example: to provide the exact
derive at the same time the broad sense of the number of field interlocutors; write up an instru-
meaning of ethics, the broadened view of respon- ment requiring those who are going to be ob-
sibilities that are not condensed in instruments served for their consent, define closed instruments
evaluated by the ethical commission. Most of for investigation and for observation, among oth-
them highlight not only ethics within the casuis- ers. As Neves5 very well concludes, in Latin Amer-
tics of a certain research, but also of the scientific ica, the principalist and pragmatic Anglo-Ameri-
community relationship with society, of the insti- can norm and European personalist and human-
tutional relationships with policy makers, re- istic concerns are in conflict. However, the one
searchers and students, and also, the social scien- that is being enforced is the former.
339
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